Re: Another recovery! Re: chelating info

March 18, 2004

: You're a candidate for our " Autism is

Treatable " campaign too. I'm sending you the form so

you can consider it. I realize I sent the form to

the group for , so will send it personally, as

the list cannot take attachments. And for you too,

Lynne, for Spencer. Thanks, guys, for all the kind

words! Dr. JM

--- Original Message ---

To: csb-autism-rx

Subject: Another recovery! Re:

chelating info

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>Oh wow! Another great success story from the clinic

at the Mini

>Dan.. thanks Dr. M for doing these!

>I realized when I read this that I had never posted

to this list

>about our progress and I hope it will encourage

someone.

>We saw Dr. McCandless in January and had eval and

started treatment.

>My son is SO much better! He is now a typical two

year old in almost

>all ways. He regressed into autism at about 6 months

of age.. I

>adopted he and his sister internationally at 4

months and never

>dreamed that this was ahead. He now has wonderful

eye contact,

>laughs, initiates play, play is age appropiate

(chases his sister

>and pulls her hair! how much more typical can we

get!) and he also

>has lost 95% of his stimming and tendency toward

perseverative play.

>He is in an early intervention class at our local

university and

>they are truly so amazed. They did not realize that

a child COULD

>recover from Autism and now are helping me to get

education started

>in our state and even a Mini Dan we believe in

November. Everyone

>come! I am forever grateful and I hope that by the

time we see Dr.

>McCandless again, that he can say & quot;thank

you & quot; to her himself. OH..

>and he is starting to talk after being totally non

verbal! He has

>gone from about 3 words to over 30 since we started

detoxing with

>Authia... it is amazing the change in him in 2 weeks

since we

>started. He is even putting two words together now

and though we

>still have articulation issues, I know it will

happen and come

>together in time.

>Yes! Autism can be treated and it is so amazing what

this treatment

>protocol and the right testing and supplements can

do. We are still

>battling some gut issues but that too will get

resolved! I saw

>improvement today in fact.

>Hope these updates will help to encourage someone...

I love reading

>them and it gave me hope and still does as we go

through this

>journey.

>Thanks Dr. McCandless for helping Slater to have his

life back

>again. I put some photos in the photo section and

for some reason

>Yahoo did not cooperate.. there are about 3

& quot;befores & quot; and it will

>not let me delete the duplicates(Sorry!) and then an

after that was

>2 weeks ago.. and he is even better now.

>Good luck and blessings to everyone... Children with

Starving Brains

>is such a gift to us all. I hope we can all get the

word out so that

>more children can improve and be touched by the new

treatments that

>these special doctors work so hard on.

>

>Mom to Slater & nbsp; 26 months old and recovering!

>

> & gt; : & nbsp; Such wonderful news! & nbsp; Your

post inspires me

> & gt; to ask you if you will participate in the

& quot;Autism is

> & gt; Treatable & quot; program. & nbsp; We need to get

it out there that

> & gt; this is a disorder that can be treated. & nbsp; I

am

> & gt; attaching the message about this program for

you to

> & gt; see if you want to participate. & nbsp; Best

wishes, Dr. JM

> & gt; --- Original Message ---

> & gt; From: & quot;The Huber & amp;#039;s & quot;

& lt;ebayrules@e... & gt;

> & gt; To: csb-autism-rx

> & gt; Subject: RE: chelating info

> & gt;

> & gt; & gt; & lt;html & gt; & lt;body & gt;

> & gt; & gt;

> & gt; & gt; & lt;tt & gt;

> & gt; been removed]

>

></tt>

>

>

><tt>

>Many frequently asked questions and answers can be

found at & lt;<a href= " http://www.autism-

rxguidebook.com/forums " >http://www.autism-

rxguidebook.com/forums</a> & gt;</tt>

>

>

>

>

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March 18, 2004

: Yes, sounds like you've already got the

form. In regard to your post, another parent sent me

a wonderful story but felt it might be painful for

those of us who keep struggling with our kids

(including my Chelsey) doing everything and just not

seeing the progress that some do. I rejoice in

everyone's success but do always feel the pain of

Chelsey's continued impairment and struggle, but it

just keeps me trying harder to find the answers so

that one of these days she'll be one of these kids,

along with all the rest of our kids. I would

appreciate comments from others how they feel, along

with the joy of course that any child is better,

about hearing the stories. This campaign is mainly

for all those parents out there who may not know

autism is treatable and in some cases curable, and we

all know that. Do they inspire, depress, both,

neither? Comments appreciated. Dr. JM

--- Original Message ---

To: csb-autism-rx

Subject: Another recovery! Re:

chelating info

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>Hi.. I'd love to participate.. in fact I may already

have! When I

>talked to ARI a few days ago, and told Matt about

Slater's progress

>in the course of conversation, he directed me to a

website where I

>filled out and submitted a form related to the

recovery. Is this the

>same thing? If not, send it on!

>This is a difficult journey and after posting, I

wanted to say that

>there have been many days that I have felt

discouraged. I am so

>understanding of that emotion that we all have, and

hope that the

>news of recoveries/improvements will encourage and

not seem

>insensitive to anyone who may be having a struggle

at this time. I

>know that every day is a challenge on this journey

to bring our

>children back. We are in fact still struggling with

gut issues and

>that is scary... & quot;starving brains & quot; are a

serious issue and one that

>keeps me awake at night still in spite of the gains

I see. But I

>know that Dr. McCandless and Slater will eventually

lick the

>beasties! My update truly was posted in the spirit

of hoping to

>encourage-and to say thanks to Dr. McCandless for

all the hours she

>spends working toward the goal of healing our

children... and her

>own sweet Chelsey who has affected so many lives at

her young

>innocent age.

>I heard & quot;Mama & quot; for the first time recently

and it was something I

>was not sure that I would ever hear from this little

guy.

>Every child deserves the chance to recover and we

have to get the

>information out. I live in Alabama and we are

initiating some

>education programs that we hope to share with those

particularly in

>the southeast. If you are in this area, please feel

free to contact

>me if you would be interested in helping....

>Thanks again Dr. McCandless and blessings to

everyone!

>

> & gt; : & nbsp; You're a candidate for our

& quot;Autism is

> & gt; Treatable & quot; campaign too. & nbsp; I'm sending

you the form so

> & gt; you can consider it. & nbsp; I realize I sent the

form to

> & gt; the group for , so will send it

personally, as

> & gt; the list cannot take attachments. & nbsp; And for

you too,

> & gt; Lynne, for Spencer. & nbsp; Thanks, guys, for all

the kind

> & gt; words! & nbsp; Dr. JM

> & gt; --- Original Message ---

> & gt; From: & quot;adoptinggrace & quot;

& lt;adoptinggrace@m... & gt;

> & gt; To: csb-autism-rx

> & gt; Subject: Another recovery!

& nbsp; Re:

> & gt; chelating info

> & gt;

> & gt; & gt; & lt;html & gt; & lt;body & gt;

> & gt; & gt;

> & gt;

>

></tt>

>

>

><tt>

>Many frequently asked questions and answers can be

found at & lt;<a href= " http://www.autism-

rxguidebook.com/forums " >http://www.autism-

rxguidebook.com/forums</a> & gt;</tt>

>

>

>

>

>

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March 19, 2004

For me, the stories of recoveries leave me a bit frustrated, that I am still

not doing enough, that I have missed something, and I feel so inadequate.

At this time, I have to admit that it also keeps me going, hoping that one

day, we also will find that magic answer for . Sooo, I say let's keep

them coming. The thing to remember is that each child is different and with

different severity, but we are always comparing them the same way, and

that's the trap.

Another recovery!

> & nbsp; Re:

> > & gt; chelating info

> > & gt;

> > & gt; & gt; & lt;html & gt; & lt;body & gt;

> > & gt; & gt;

> > & gt;

> >

> ></tt>

> >

> >

> ><tt>

> >Many frequently asked questions and answers can be

> found at & lt;<a href= " http://www.autism-

> rxguidebook.com/forums " >http://www.autism-

> rxguidebook.com/forums</a> & gt;</tt>

> >

> >

> >

> >

> >

> ><tt><hr width= " 500 " >

> >

March 19, 2004

Needless to say, this dialog around the " stories " takes Jaquelyn and me into our

place of deep introspection around Chelsey's healing--an ongoing seven-year

exploration that covers a multitude of feelings from self-judgment, frustration

and treasuring the small movements to profound gratitude for the progress of so

many families in our community. We all seem to understand now that each child

is different and has a different path of healing. So also each parent is

different, each family is different and the harvest of raising an ASD child

varies as wildly as the children.

It is so hard to avoid comparisons, but we continue to struggle to move our

energy into finding the unique harvest of Chelsey's path of healing. So far it

has produced CSB, improved the lives of many children, prompted Jaquelyn's work

with the DAN community, led to the training of many doctors and so much more. I

am so moved by how many of you have also transformed your lives, started

organizations, been politically active, begun to change the face of medicine and

in so many other ways found the abundant harvests of dark times.

Also important to Jaquelyn and me, is that Chelsey's limited response to

virtually every protocol has led eventually to the transformation of our

relationship that could not have happened in any other way. We now are beginning

to glimpse the connections between healing and the " many-splendored " dimensions

of love that could only have been discovered in our journey with Chelsey.

Jack

anagrammys wrote:

> For me, the stories of recoveries leave me a bit frustrated, that I

am still

> not doing enough, that I have missed something, and I feel so

inadequate.

> At this time, I have to admit that it also keeps me going, hoping

that one

> day, we also will find that magic answer for . Sooo, I say

let's keep

> them coming. The thing to remember is that each child is different

and with

> different severity, but we are always comparing them the same way,

and

> that's the trap.

>

Well said .

I find that if Dean is doing ok..his mama is doing ok. If he's not,

the stories are harder to read for her and just a little " why not me "

comes into the picture.

HOPE, the good gains keep Hope alive.

Dean is a " slow/non responder " to most things, but even with that,

everyday he is doing things we were not sure were possible. Sometimes

you have to set down and look back...not forward, to get a good

picture of where you are.

The success of others also give you new avenues to look into that

maybe you had not considered.

As a group, the kids are all so alike, and yet so different depending

on all the how/when/why's of their regression.

I rejoice with every good success....and keep looking for our darn

key!!! ;~)

I think the only thing that has not been thrown at Dean or Chelsey,

is the kitchen sink. Hummm, maybe I'll go shopping for a sink today,

how about you J? ;~)

On the up side....2 days ago, Dean's speech teacher reported that she

ask him " Dean, are you ready to go? " ....and a little voice

replied... " ready,go " . Now, it may be 6 months or never before we

hear that again...but, it's in there...somewhere.

Ann

Many frequently asked questions and answers can be found at

<http://www.autism-rxguidebook.com/forums>

March 21, 2004

I just love to hear the recovery stories! I think that a lot of parents, like

me, still have that little niggling fear in their heart that something else

could 'set' their kids off again. I am afraid not to stay up with my emails

from the lists that I am on, for fear of missing something important. I am so

thankful that so many parents can and do take the time to tell their stories. I

know that these parents' feedback saved my son. Thank you all for sharing such

valuable information.

Another recovery!

& nbsp; Re:

> & gt; chelating info

> & gt;

> & gt; & gt; & lt;html & gt; & lt;body & gt;

> & gt; & gt;

> & gt;

>

></tt>

>

>

><tt>

>Many frequently asked questions and answers can be

found at & lt;<a href= " http://www.autism-<http://www.autism-/>

rxguidebook.com/forums " >http://www.autism-<http://www.autism-/>

rxguidebook.com/forums</a> & gt;</tt>

>

>

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