another question about iron

[Guest guest]

Hi Mac

My wife who has Hep b was told to take iron before

she was diagnosed. would you advise against this as

she is pregnant? This is important if anyone knows.

thanks

--- MaC wrote:

> Abijann,

> You put things into perspective so well.

> Thank you,

>

> MaC

>

>

>

> abijann <no_reply > wrote:

> You may be surprised how

> little people know about cirrhosis and

> it causes. You may also be surprised that they

> know just as

> little about having a transplant.

>

> People think that when you have liver disease, that

> you are

> automatically placed on a transplant list. They

> don't know about

> all the testing that goes with it and how hard it

> may be to get

> on the list. They don't know that when they have

> liver disease,

> to start early to be placed on the list while they

> are in fairly

> good health...otherwise they may be waiting too

> long and die

> because of it.

>

> Many people don't know that just by signing their

> organ donor

> card, that their wishes to donate an organ will not

> be recognized

> unless their families know about it and want it

> done also.

> They will not take an organ after someone dies if

> the family

> decides they do not want it done. Also, they have

> the right

> to say when the organ is taken...either at brain

> death, or

> when the heart stops beating.

>

> It is true that there are many causes of cirrhosis.

> Most of

> the people here know that it can be caused by iron

> build up

> in the liver...which is an inherited disease know

> as

> hemochomatosis. It can also be caused by copper

> build up.

> It can be caused by inflammation of the liver from

> having a

> virus like hepatitis. It can be caused by fatty

> livers when

> someone is obese or by build up of fat (lipids)

> inside the

> liver. It can be caused by the bile backing up in

> the liver

> because of the bile tubes becoming blocked or mal

> formed and

> twisted causing strictures. It can be caused by

> exposure to

> chemicals or drugs taken. But, what all people may

> not know

> is that the surgeons and doctors say when they

> evaluate, through

> all kinds of tests, that 2/3 of the people who have

> to have a

> liver transplant never know for certain what caused

> their liver

> to become cirrhosed. This is even after they have

> taken the

> liver out and checked it out after surgery.

>

> So, what do we say to people who are curious. Like

> other said

> here...they either shy away from discussing it at

> all or they

> automatically jump to conclusions. Let us look at

> things from

> their perspective. When someone dies or is

> terminally ill,

> many people don't know how to approach others about

> it...they

> feel uncomfortable cause it is something they could

> not do

> anything about and besides that it is a strange

> territory they

> might have never encountered before or understood.

> Like why

> people so young die so early in their lives when

> they are such

> good people. The second thing is that this may be

> a first for

> them and they don't know everything about the

> disease...and

> like many here who are searching for answers and

> trying to

> understand what is going on with them...they also

> have to become

> educated about it. The third thing is that they

> may be very

> concerned about what happened and yet, seeing

> someone die because

> of it frightens them that it could happen to those

> they love also

> or even themselves and they would not know how to

> handle the

> situation any better than what the caregivers and

> patients who

> are going through it now do.

>

> So, what it comes down to is having patience with

> those who

> have less understanding. By giving them

> information, they will

> learn and pass it onto others. We need to give

> them the

> benefit of the doubt and not take what they say to

> heart, for

> they may mean well but don't know how to approach

> the subject or

> the illness or what to say to someone who is going

> through so

> much. I say, let us make them part of our lives

> and help them

> understand more. You might be surprised that they

> may be

> behind you 100% in being stirred to action to help

> more research

> becoming available.

>

>

>

>

>

>

> ---------------------------------

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>

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