Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 So sorry to know that your wife did not make it. I thank you so much for all the information and support you give here. It is much needed. You know I was diagnosed almost 5 years ago with Chronic Hepatits by my primary doctor. At that time he never said anything more about it other than it was an inside condition that no one could catch from me and he didn't do much about it. At the time I was suffering from a lot of stomach problems thet they later (2 years later) contributed to stress and never mentioned the Hepatitis again. I started with alot of muslcle aches which he said was fibromylagia and then subscribed a pain inhibitor, when my Cholorestrol went up he tried several medications and finally ended up with Vytorin .So I have been taking the pain inhibitor (Mobic) and the Vytorin for several years. I heard the commercials about not taking it with liver problems but thought my doctor of 15 years knew me and what he was doing.When the muscle aches got worse he double the daily dose of mobic from 7.5 mil a day to two tablets a day. It was when he retired a few months ago that I had to search for a new doctor who immediately (after 30 days of different blood work, stopped all medications then a liver scan) diagnosed me with Auto immune Hepatitis and said go to this liver specialist who is 45 minutes away and booked until mid August. Worry....Yes I worry everyday of what these medications have done to my liver. I have never in my life drank anything. I could never find a drink that I liked the taste of even a wine. I have never taken any drugs other than Tylenol (which I now know is bad too!)So I have no idea where I got this from except heredity factors. I know my father died at 56, he told everyone he had cancer of the liver (but he was a beer drinker, I never saw him without a beer can, so I attributed it to that. My mothers brother died of Hepatits 5 years ago he was in his mid 50's also. (He to was a drinker and did not lead the best life.) I know I have begun to ramble I will close this for now. Thanks for letting me ramble. -- In livercirrhosissupport , MaC wrote: > > Thanks , > Hang in there, and learn, learn, learn. I'm here because my wife died of Cirrhosis in Nov 05. She was 31 years old. I came here looking for support and answers. While my wife was sick, I looked toward the doctor for answers and we followed his advice. They say, hindsight is twenty, twenty, but I wish we would have researched more and educated ourselves better on the disease. I probably would have asked more questions and maybe even have played a more important role in advocating my wifes treatment. Unfortunately, I learned more about the disease after my wife died than I did when she was alive. So I came here, not only for support, but to support others. And, maybe offer advice and share links to information that I wish I would have had. Cirrhosis is to important to ignore. > For your families worry, I say this; > > Worry a little bit every day and in a lifetime you will lose a couple of years. If something is wrong, fix it if you can. But train yourself not to worry. Worry never fixes anything. > Hemingway > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 It's ok to ramble, that's what we are here for! Just remember the liver is an amazing organ which can repair itself. (too a certain extent). So, hopefully your liver doctor, when you see him/her, will provide treatment that can help reverse some of the damage. MaC mry_burnette wrote: So sorry to know that your wife did not make it. I thank you so much for all the information and support you give here. It is much needed. You know I was diagnosed almost 5 years ago with Chronic Hepatits by my primary doctor. At that time he never said anything more about it other than it was an inside condition that no one could catch from me and he didn't do much about it. At the time I was suffering from a lot of stomach problems thet they later (2 years later) contributed to stress and never mentioned the Hepatitis again. I started with alot of muslcle aches which he said was fibromylagia and then subscribed a pain inhibitor, when my Cholorestrol went up he tried several medications and finally ended up with Vytorin .So I have been taking the pain inhibitor (Mobic) and the Vytorin for several years. I heard the commercials about not taking it with liver problems but thought my doctor of 15 years knew me and what he was doing.When the muscle aches got worse he double the daily dose of mobic from 7.5 mil a day to two tablets a day. It was when he retired a few months ago that I had to search for a new doctor who immediately (after 30 days of different blood work, stopped all medications then a liver scan) diagnosed me with Auto immune Hepatitis and said go to this liver specialist who is 45 minutes away and booked until mid August. Worry....Yes I worry everyday of what these medications have done to my liver. I have never in my life drank anything. I could never find a drink that I liked the taste of even a wine. I have never taken any drugs other than Tylenol (which I now know is bad too!)So I have no idea where I got this from except heredity factors. I know my father died at 56, he told everyone he had cancer of the liver (but he was a beer drinker, I never saw him without a beer can, so I attributed it to that. My mothers brother died of Hepatits 5 years ago he was in his mid 50's also. (He to was a drinker and did not lead the best life.) I know I have begun to ramble I will close this for now. Thanks for letting me ramble. -- In livercirrhosissupport , MaC wrote: > > Thanks , > Hang in there, and learn, learn, learn. I'm here because my wife died of Cirrhosis in Nov 05. She was 31 years old. I came here looking for support and answers. While my wife was sick, I looked toward the doctor for answers and we followed his advice. They say, hindsight is twenty, twenty, but I wish we would have researched more and educated ourselves better on the disease. I probably would have asked more questions and maybe even have played a more important role in advocating my wifes treatment. Unfortunately, I learned more about the disease after my wife died than I did when she was alive. So I came here, not only for support, but to support others. And, maybe offer advice and share links to information that I wish I would have had. Cirrhosis is to important to ignore. > For your families worry, I say this; > > Worry a little bit every day and in a lifetime you will lose a couple of years. If something is wrong, fix it if you can. But train yourself not to worry. Worry never fixes anything. > Hemingway > > --------------------------------- Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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