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Hello people!

I am gonna begin with physiotherapy... here's a related question...

My physiotherapist said that the exercises will be focused on strengthening the

muscles of lower back legs as they have become stiff and weak with continued use

of foot orthotics. He added that I might feel destabilized initially due to

this...

Any similar experiences? Any feedback? Would love to hear on this...

Thanks in advance

Cheers... :)

Reema

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  • 4 years later...
Guest guest

ka,Did any of the docs you saw mention Flatback in regards to your case? If you do have Flatback, it's a structural problem, and while PT and pilates can help, it's not a fix for the lack of lordosis.

I too had arthritis in my lower spine, along with stenosis, Flatback, and lateral listhesis and a detached Harrington rod at both hooks . I'm doing very well after revision surgery.

Alvera's suggestion to see Dr. LaGrone in Amarillo is a very sound suggestion. He's tops in the field and has been doing this work for ages, and has many patients in our group.I'd give him a ring, and see if you could send your x-rays his way, and see if he could give your case a looksee.

Colorado SpringsOn Thu, Mar 31, 2011 at 9:45 PM, alvera <alvera@...> wrote:

 

>

> Hello!

>

> I am glad you asked , because I have the same questions for the group!! I have suffered from lumbar back pain for the past 10 years since my Harrington rod was put in 17 years ago. The pain has gotten much worse over the past 3 years since purchasing my tempurpedic bed.

>

> I have seen 4 doctors in Dallas, Texas and none of them agree with what to do with me. My rod is detached at the lower end, but has been this way for about 15 years. Two docs don't want to touch the rod, one wants to take out and do revision surgery and one just wants to clip the detached portion of rod off!

>

> Three out of four doctors agree that I should do PT and Pilates. One doctor says my pain ALL stems from arthritis in my remaining lumbar vertebra that were not fused. He said there is nothing to do about the arthritis. He feels strongly that the detached rod is NOT the source of my pain now.

>

> In January, I began wearing a back brace for work and physical activity and I feel better than I've felt in 10 years!!! Given this revelation, I am going to try PT and Pilates before agreeing to any other surgery.

>

> Surely, there is some progress in the holistic realm regarding arthritis! Anyone know???

>

> Thanks,

> ka

>

> Sent from ka's iPhone

>

ka I encourage you to see Dr. LaGrone in Amarillo, Tx. You may go to his web..

Alvera White

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Hi ,

You asked if there is a way to use non invasive techniques to avoid the

progression/cascade of problems that can often befall those with fused spines.

It is very much the million dollar question...and one that all kinds of

charletans and unqualified folks will offer hope for in exchange for the right

amount of money....so be vary wary of anyone that offers you a " cure " or even a

guarantee of arresting your condition at its current state.

That said, I certainly remember wishing that was true for my case. Part of the

process of coming to terms with what my exact problems and pain generators were

were understanding what was really a structural problems, what were nerve

related, arthritis related and how they would progress over time.

Some of your problems may stem from the original fusion...or the un- attached

rod...either of which could mean you still have an underlying area on non-union

in your original fusion. One member s doctor discovered a cycst was the source

of her pain. Everyone really is unique...you need a good diagnosis before you

plan to mitigate its effects....there is just not a " one size fits all " ...and as

important as it is to pursue all palliative measures, please also do your best

to find a very qualified surgeons who is an expert in our populations so that

you can begin to form a clear picture of what your structural issues are.

I will say that my local ortho diagnosed me with arthritis in the hip and

spine.....no doubt some was/is present in both locations...however following

revision my hips seems to be just fine....so I wonder how accurate his diagnosis

was.

No matter what comes in your future...I think generally the wisest course of

action is to follow a good regime for maintaining your weight and what

flexibility is there. Also...core strengthening is very useful for supporting

that lumbar area that is very much over used right now where you are

experiencing accelerated disc degeneration. Could you avoid further

degeneration....who knows...but if you have tried all the alternatives and

nothing is helping then you will be clearer about what is in your future...and

if you choose to try surgery you will be in the best possible shape for a good

outcome. I do know some folks seem to have at least bought a little time for

themselves with alternative methods...a bit more comfortable and capable...but

they did not stop their progression.

Nothing ventured...nothing gained though...right? Just be sure to run it all by

your doctor to stay safe...for instance you might want to stay away from

anything that would physically manipulate your spine. My guess is you will be

permitted to try just about anything unless it causes your more pain.

Let us know what you decide to do.

Take Care, Cam

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Like Cam said, that's the million dollar question. Here are some things that

I've come across through my internet travels but haven't necessarily tried

myself: pilates, yoga, chiropractic manipulations, the SpineCor brace, and the

Schroth Method. Several years prior to my revision surgery, I had a physical

therapist who developed a daily exercise routine that incorporated pilates.

Prior to that I had a daily exercise routine along with regular chiropractic

manipulations. I stopped the daily routine when we put our house up for sale

and when I wanted to go back to it I discovered that my abilities had

deteriorated to the point where I couldn't go back. I went to a physiatrist the

year before my surgery; he prescribed physical therapy that ended up hurting

more than helping.

>

> Hello,

> I would like to ask if anyone know a centre for physiotherapy for people with

scoliosis and harrington rod instrumentation.

> This is very important because different exercises should done by people with

scoliosis and people with fusion.

> Is there a way for people with harrington rod to avoid the progression of

osteoarthritis and disc degeneration and muscle stiffeness and further surgeries

if following a physiotherapy program, swimming, pilates, reduce working hours

etc?

> Thank you,

>

>

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