Re: question about MB-12 spray

[Guest guest]

For some kids, the shots work better. Go to www.autismweb.com 's

biomed board and post your question with " Rick " in the subject.

Rick is Dr. Neubrander's brother and works in his office. He would

be the next person I would ask after Stan (who is away right now).

Rick says that, anecdotally, the spray seems to be working for about

50% of the kids, based on a sample of 37 kids. They are still

collecting data.

I have not heard of the type of regression you describe as being

consistent with the shots OR the spray. You should be keeping

language, if not adding to it.

For what it is worth, I would switch back to the shots right away.

After the gains return and stabilize, I would try substituting the

spray for one shot each week. But hopefully Rick and Stan (when he

gets back) will have more for you.

Also, maybe he is reacting to the folinic in the spray (if you have

the spray with folinic). I know folinic causes some kids to regress

someway, but I'm not sure how. You could also try to get the spray

without folinic.

I hope this helps.

Oh! You said " starting Tuesday. " Maybe he needs the spray every

day. After you gave it on Wednesday, did he do better?

Dawn

>

> Hello, I just posted on another board how wonderful my son has

been

> doing...glowing notes home from school, also noticed by family,

> friends and therapist. We have been on cloud 9.

>

> MB-12 background: We started MB-12 shots last May using the Dr.

> Neubrander protocol (dont add/delete anything for the first 5

> weeks)...you know what I mean. He responded VERY well to the

shots.

> Over time, our son did not continue to make progress, so we

increased

> the shots to every other day. Great gains again...but then those

> gains stopped also. So, when I heard about this spray and the

> glowing reports from JB Handley...I switched from the shots to the

> spray.

>

> We started the MB-12 spray on Monday. We are doing every other

day,

> 1 spray in the morning, so he had a spray on monday, wednesday and

> just this morning. All of those wonderful gains described in

> paragraph 1 at the top are gone. Initially, I thought he was

> responding with great language on Monday, really cool

> stuff...then....starting tuesday through today.....he is VERY

spacey,

> more stims, more autistic looking and VERY withdrawn. We did not

> have these side effects with the shots.

>

> Is this typical when starting the spray? Is there a specific

amount

> of time to use the spray before deciding if it works or not?

>

> Thanks everyone....very confused here. Kim

>

[Guest guest]

You don't say how old your son is or his age, but I would definitely

consider dosing him every day, and/or substituting one day a week as

Dawn says below.

Vicki

> --- Re: question about MB-12 spray

>

> Date: Fri, January 20, 2006 1:39 pm

> To: mb12 valtrex

>

> For what it is worth, I would switch back to the shots right away.

> After the gains return and stabilize, I would try substituting the

> spray for one shot each week. But hopefully Rick and Stan (when he

> gets back) will have more for you.

>

> Also, maybe he is reacting to the folinic in the spray (if you have

> the spray with folinic). I know folinic causes some kids to regress

> someway, but I'm not sure how. You could also try to get the spray

> without folinic.

>

> I hope this helps.

>

> Oh! You said " starting Tuesday. " Maybe he needs the spray every

> day. After you gave it on Wednesday, did he do better?

>

> Dawn

>

>

> >

> > Hello, I just posted on another board how wonderful my son has

> been

> > doing...glowing notes home from school, also noticed by family,

> > friends and therapist. We have been on cloud 9.

> >

> > MB-12 background: We started MB-12 shots last May using the Dr.

> > Neubrander protocol (dont add/delete anything for the first 5

> > weeks)...you know what I mean. He responded VERY well to the

> shots.

> > Over time, our son did not continue to make progress, so we

> increased

> > the shots to every other day. Great gains again...but then those

> > gains stopped also. So, when I heard about this spray and the

> > glowing reports from JB Handley...I switched from the shots to the

> > spray.

> >

> > We started the MB-12 spray on Monday. We are doing every other

> day,

> > 1 spray in the morning, so he had a spray on monday, wednesday and

> > just this morning. All of those wonderful gains described in

> > paragraph 1 at the top are gone. Initially, I thought he was

> > responding with great language on Monday, really cool

> > stuff...then....starting tuesday through today.....he is VERY

> spacey,

> > more stims, more autistic looking and VERY withdrawn. We did not

> > have these side effects with the shots.

> >

> > Is this typical when starting the spray? Is there a specific

> amount

> > of time to use the spray before deciding if it works or not?

> >

> > Thanks everyone....very confused here. Kim

> >

>

>

>

>

>

>

>

>

[Guest guest]

Hi Kim,

One thing I would make sure of is that you are giving the same ingredients. If

you are just

doing MB12 shots for example, then keep the spray MB12 until you know that works

well

and then you can try the folinic.

If that's what you are doing, and you dont' see any hyperactivity with the spray

you may

want to consider trying the spray more often (say every day for example). If

that doesn't

work, I would switch back to the shots or try a combination.

We have seen some people who respond better to the shots. Some do better on the

spray,

some the shots, some respond the same way to both. For me, the spray is MUCH

better,

but we do hear about people from time to time who do better on the shots.

The nice thing is, as soon as you find the best method everything should come

right back.

Either the spray is not enough... is too much... or is just not the most

appropriate for your

specific child's metabolic issue.

We don't have a way to test what would work best for what child except to try

what I

mentioned above.

Someday we'll have all the answers, but today we need to do trials with each

child to find

the " right " dose and the " right " method.

Keep us updated and remember to record your finding in our POLLS which is

located on

the POLLS link in our group.

Good or bad, we want to collect data about the spray compared to the shots. So

far, we

only have one person who reported the shots worked better in the MB12 POLL.

- Stan

>

> Hello, I just posted on another board how wonderful my son has been

> doing...glowing notes home from school, also noticed by family,

> friends and therapist. We have been on cloud 9.

>

> MB-12 background: We started MB-12 shots last May using the Dr.

> Neubrander protocol (dont add/delete anything for the first 5

> weeks)...you know what I mean. He responded VERY well to the shots.

> Over time, our son did not continue to make progress, so we increased

> the shots to every other day. Great gains again...but then those

> gains stopped also. So, when I heard about this spray and the

> glowing reports from JB Handley...I switched from the shots to the

> spray.

>

> We started the MB-12 spray on Monday. We are doing every other day,

> 1 spray in the morning, so he had a spray on monday, wednesday and

> just this morning. All of those wonderful gains described in

> paragraph 1 at the top are gone. Initially, I thought he was

> responding with great language on Monday, really cool

> stuff...then....starting tuesday through today.....he is VERY spacey,

> more stims, more autistic looking and VERY withdrawn. We did not

> have these side effects with the shots.

>

> Is this typical when starting the spray? Is there a specific amount

> of time to use the spray before deciding if it works or not?

>

> Thanks everyone....very confused here. Kim

>