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Re: For Stan

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Posted

>

> Hi Stan,

>

> First of all thanks for creating this list!

>

> We are chelating with TD-DMPS (We just completed our 1 yr

> anniversary). We'll be starting Valtrex soon either at the 1000mg

or

> 1500mg dosage. We are a little worried that both treatments

together

> might stress the liver. We'll definitely be testing often to make

> sure the liver & kidneys aredoing okay. In any case, would you

> recommend we start slow and ramp it up or would you rather

recommend

> starting at full dose on the first day itself? Will it matter?

Also,

> how do you know that you are " done " with the treatment? Is there a

> time limit? Is there a test to take afterwards to verify that all

the

> viruses are gone??

>

> Also, did you wash off the blue dye before giving the Valtrex to

your

> child? Is it possible to get it compounded? Has anyone done this?

My

> son is VERY sensitive to fillers and other " inactive " substanses

and

> I worry about the reactions from those more than the medicine

itself.

>

> Sorry, I'm asking waaay too many questions today.

>

> Sangeeta

Sangeeta,

Lee-Silsby Pharmacy out of Cleveland will compound it for you and

remove the blue dye.

Debbie

Posted

Ethan did not test posative for herpes virus, but he had soft signs

that included (but not limited to): low muscle tone, sensory issues,

apraxia, abnormal gait, lack of bilaterality (one side of his body

weaker then the other... one eye less open, one leg much stronger than

the other, etc), sensitivity to loud sounds, etc.

My son was on Valtrex for 9 months. He had a pretty big leap after

the 20 day and continued to have gains for the entire time he was on

Valtrex and then he leveled off. I then took him off everything for

three weeks and retested his OATS to see were his motabolism was. His

OATs only had three markers (compared to 17 a year before... something

like that).

It's been about 10 months since then and he's doing quite well. Today

he is still on SCD less IGG Food markers and he still gets zinc, and

vitamin C every day and that's about it.

- Stan

>

> Hi Stan,

>

> If you wouldn't mind would you tell me what your son's viral issues

> were and how long you were on Valtrex? I think I remember by week 3

> your son was basically recovered, correct? Sorry if I am asking you

to

> repeat yourself but I can't seem to find your child's history here.

> Thanks

>

> Donna

>

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