Re: new with questions

[Guest guest]

Hi ,

Both are very effective. Some find the spray better, some find the shots

better. For me, I

was using the shots every day and was doing pretty good, then I had the spray

made and

it worked even better than any mixture of the shots I could come up with.

Today, only a

few months later, I hardly need to take any MB12. Since you are starting with

the shots,

you'll have a baseline and then if you'd like you could always try the spray

down the line.

I believe a few people in the UK have had some made for them. The group members

in the

UK might shed some light on it.

We peel the apples because the the peels are a bad bacteria magnet. They also

have been

known to cut the intestines of impaired folks during digestion.

Many of us seem to have an uptake problem with MB12, but there also seems to be

a

difference in regular B12 updake (cynocobalamin - eg: pernicious anaemia) and

methylcobalamin depletion. Both require an active transport, but most of our

kids with

MB12 challenges are not anaemic, at least not a majority of them.

Zinc has been known to seal leaky gut in Chron's disease and is used in many

different

ways by the immune system and the motabolism. In autism, we see many children

with

Zinc and Vitamin C deficiencies, so we strongly encourage supplementation.

There is a subset of autistic kids with thyroid problems, yes. That could play

a role in the

updake of MB12 but there are other elements as well.

The SCD (Specific Carbohydrate Diet) was developed by Elaine Gottschall, a

legend in the

community who sold more than 1 million copies of " Breaking the Vicious Cycle,

Intestinal

Health through diet. " Her book is a " must read " in the autism community, but it

was

origionally writted for ulcerative colitis and Chron's. Elaine cured her sick

and dying child

simply by removing disaccrites and polysaccrites which are complex protiens like

rice,

starches, and grains. The undigested food can feed bacteria and fungus in the

intestines

and purpetuate an overgowth that constantly taxes the body with toxicity, sugar,

and even

alchohol.

Her website is www.breakingtheviciouscycle.info

I have a tribute video to her on my website at www.recoveryvideos.com which

includes

some of the science behind her diet. It's worth the 13 minute investment to

watch it.

There are several chronic fatigue recoveries that are on that are videos on that

website as

well.

Also, if you do a search on " Breaking the Vicious Cycle " on amazon, you can see

the rave

reviews from many different communities there.

I also have what I call the Caveman Diet, which is a starter diet you can use

while you get a

IGG Food Allergy test by blood from Great Plains laboratory (you can order a

test kit over

the phone and bring it to your doctor). Any markers on this test are foods that

have

leaked out of your intestines and your immune system has to constantly work on

to keep

your blood clear of these undigested toxins.

http://www.greatplainslaboratory.com/

Some doctors do not believe in IGG Food panels, but I have ALWAYS found

something

useful in the findings and many times people improve just by removing the food

markers

from this test. This process can help to calm the immune system down and reduce

autoimmunity leaving many of us with more energy.

I hope that helps to get you up to speed.

- Stan

>

> Hello Stan and All

>

> I have ME/CFS and was alerted to this list on CFSExperimental(thank

> you Bill). I am just about to start mb12 injections and have a few

> questions:

>

> Shots v spray - it seems that from the feedback you have so far the

> nasal spray works better; is that the case with both autism and ME/CFS

> or only, at this stage, with autism ( I know that that represents the

> majority of people here)? Do you know whether the spray is available

> in the UK?

>

> Zinc - is this advisable for ME/CFS too? At what sort of dosage?

>

> Pectin - I have read that pectin in the diet lowers B12. I notice on

> your website, Stan, that you recommend peeling apples - is that too

> reduce pectin? Would it be advisable to avoid all pectin foods?

>

> Thyroid - I have been trying to understand the connection between B12

> and hypothyroidism, something that many people with ME/CFS suffer

> from. I know that thyroiditis and the failure of the gut to take

> up/use B12( leading to pernicious anaemia)are linked because both are

> caused by autoimmune problems but do you know of, or can you point me

> towards any sources of information about, a direct causal link?

>

> Finally, the SCD diet - what is it? And do you have an opinion on

> whether it would help with ME/CFS? So far I have gleaned from the

> clues in messages that it isn't gluten and casein free and that it

> involves avoiding rice ( as rice supports the growth of helpful

> intestinal flora that compete with candida I eat quite a lot of it).

>

>

> Thank you in advance for any help you can give me with these questions

> - sorry to post so many. This is a very interesting list and it is

> encouraging to read messages of peoples progress.

>

> Best wishes to all

>

>