Guest guest Posted May 10, 2006 Report Posted May 10, 2006 Hi! My daughter is 6 months old and has spina bifida, chiari II, and hydro with vp shunt from birth. Recently she has been very constipated with even a trip to er because her abdomen was so distended it was making her breathing labored. She ended up passing an enormous amount, more then I have ever seen a baby do. I don't want that to happen again so her doctors were talking about adding miralax to her already 5 medications she takes daily. She is on 3tsp a day of lactulose but is obviously not doing the job. I found this group while doing research on miralax. The info I have learned is enough for me to try anything else but miralax. I feel Amaya's little brain and neurological system are all ready compromised enough that I don't want to risk doing more damage. We are taking her off of the soy formula she is on (I didn't know that soy was constipating!) and putting her on nutramigen. She was on this briefly before and never had bowel issues while on it. So far things are flowing! Thanks for the advice and hope I can help others as well. Theresa Quote
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