Guest guest Posted August 16, 2006 Report Posted August 16, 2006 This arm flapping thing rings another bell. My left hand will shake uncontrollably if I try to hold something away from body in a certain place. Most noticeably when I'm reading a book. I wonder if it's some kind of nerve pressure? It's not something I feel as any kind of pinching, just may hand shakes for no reason, and it freaks me out! If you can get someone to do cultures and sensitivities on your nose swab, it would be a start in knowing which antibiotics might work for you. You have to insist they do not throw out any "normal flora" like staph aureus or staph epi. If you can get someone to do that you'll have a starting point. My bone biopsies and my nose cultures had the same organisms and the same abx resistances and the same antibiotic sensitivities. And I responded favorably to the abx that my organisms were sensitive to. If you can't get anyone to culture you, then it's a matter of guess work and therapeutic trials with the drugs. Hopefully you've got a doctor who will help? If not, keep looking. As for the shoulder pain. You may need to have some bone spurs removed. I'm told I do. And so far, I just haven't wanted to go under the knife, considering my luck with all procedures and how sick I usually am afterwards. But it may be necessary because I'm quite certain that a lot of my problem is due to the bone spurs having decreased the amount of space in the shoulder and are pressing on nerves when I try to raise them. It sounds like you are even worse than me and surgey may be necessary. I don't know about the growth on your tail bone, but I'd go back to the doc and say look, dammit! You may not know what's going on, but it's causing me PAIN! and I need to find someone who CAN figure out what's going on. Now who are you going to send me to????? You can't give up with these symptoms. Keep looking until someone will get over themselves and help you. penny p.s. I had read that sometimes these shoulder/rotator cuff things resolve on their own. I don't know if the spurs dissolve (I've heard they can, but don't know how) or what. But I do know my shoulder unfroze itself, so I suppose improvement is possible. irishdrought1955 <irishdrought1955@...> wrote: > >> > I just wondered about this discussion.> > When I first got sick in 1987 the first real bad feeling was flu > > like achy and all over weakness.> > > > A few months later I could not stay awake. This was beyond fatigue > > but just so sleepy that I could sleep for days and then could > barley > > wake up to shower.> > > > Some time before those things felt so bad I developed some painful > > neck and shoulder pains. > > I was give a couple of shots of cortizone back then and I was first > > told it was bursitis then later tendonitis.> > > > Through the years of developing more and more symptoms with these I > > do have daily burning neck and shoulder pain.> > > > It was not until the summer of 2000 that so many different pains > got > > so bad.> > A couple of years ago I woke up with same neck pain but a few days > > into it the pain radiated down my arm.> > > > This got worse and the only way to get relife was to keep my arm > > over my head.> > This felt like a deep cramp that ran up my arm down to my fingers.> > > > I went to see a chiropractor that took this seriously.> > He did x rays and said I had a pinched nerve he called it > radiopathy.> > The xrays also showed spurs and degenerative disk dx.> > After a couple of weeks the pain got under control. I still have > > numbness in two fingers and weakness with that arm.> > > > Sometime last year my MD had me have a cervical MRI that showed > > cervical spindylosis with joints of Lushka hypertrophy at C5-6 and > > C6-7.> > Encroachment on the neural foramina more severe on the right than > > left.> > The radiopathy was on the other side.> > MD wanted me to see a neuro surgeon for a evaluation and after a > few > > more months of burning neck and shoulder pain I got up the nerve to > > see one more person that calls there self a Dr.> > > > The neuro surgeon ordered PT and a lumbar MRI.> > > > I have feet that are cold all the time and they feel just like they > > are painful with a feeling that is a sorness. > > > > . I ask him the neuro surgeon back pain could cause this and he > > ordered a lumbar MRI and PT for lumbar.> > It showedL3-4 diffuse posterior bulge and right lateral disc > > protrusion.> > L4-5 diffuse posterior bulge mild facet arthropathy bilaterally.> > L5-S1 diffuse posterior bulge .> > Both deep tendon reflexes are dead. Some of the arm ones are > > dulling.> > These things are getting worse some days I almost can't feel my > arms > > but they do hurt.> > My feet hurt every day and are so cold that I burned a small hole > in > > my calf with the heating pad. I feel asleep.> > > > I tested positive for lyme dx almost three years ago. None of the > > antibiotics seem to help except ramifin did back in the winter.> > I used it for 30 days. I just started a another 30 days of it.> > > > I had high fibrinogen, and high fragment 1+2, and then factor II > > activity was high through HEMEX.> > > > For over 20 years I have been getting a herpes rash on my tailbone > > and now my tailbone has some hard bone that I can feel that keeps > > growing.> > It didn't show up on xray.> > That hurts sometimes and I know that there is a knot there because > > my husband can feel it. I can not sit in a bathtub without it > > making me have to sit on one side. I don't understand why it does > > not show up on xray. It is getting larger.> > > > Something else that I keep reading on this forum I had two positive > > staph cultures from my nose back in 1973 and they said I was a > > carrier.> > > > I don't have any root canals and only three amalgams.> > I have had good teeth.> > I did have a horse give me a concussion a few months before all the > > flu like achy weakness started and I don't know how long I was > > knocked out. The Dr I went to for lyme was the only Dr to ever > > mention jarring your putitary gland. > > > > I have taken several different antibiotics so how do you know which > > one you need?> > > > Thanks I hope I didn't ask to many questions.> > sandy> >> Quote
Guest guest Posted August 16, 2006 Report Posted August 16, 2006 Some people at the salt/C site are saying that the protocol may be responsible for removing calcifications from the bacterial cell walls and are reporting a lessening of body pain.Recuperation is also mostly salt and those people also report a relief of body pain. Since our bone spurs are calcifications, it might not be too much of a stretch to think that salt and or c might also be effective against the spurs. Something to consider? Plus, we know the salt will most likely help increase our blood volume and blood flow, which is a good thing when fighting deeply entrenched infection (eg. osteomyelitis). pennyirishdrought1955 <irishdrought1955@...> wrote: > >> > I just wondered about this discussion.> > When I first got sick in 1987 the first real bad feeling was flu > > like achy and all over weakness.> > > > A few months later I could not stay awake. This was beyond fatigue > > but just so sleepy that I could sleep for days and then could > barley > > wake up to shower.> > > > Some time before those things felt so bad I developed some painful > > neck and shoulder pains. > > I was give a couple of shots of cortizone back then and I was first > > told it was bursitis then later tendonitis.> > > > Through the years of developing more and more symptoms with these I > > do have daily burning neck and shoulder pain.> > > > It was not until the summer of 2000 that so many different pains > got > > so bad.> > A couple of years ago I woke up with same neck pain but a few days > > into it the pain radiated down my arm.> > > > This got worse and the only way to get relife was to keep my arm > > over my head.> > This felt like a deep cramp that ran up my arm down to my fingers.> > > > I went to see a chiropractor that took this seriously.> > He did x rays and said I had a pinched nerve he called it > radiopathy.> > The xrays also showed spurs and degenerative disk dx.> > After a couple of weeks the pain got under control. I still have > > numbness in two fingers and weakness with that arm.> > > > Sometime last year my MD had me have a cervical MRI that showed > > cervical spindylosis with joints of Lushka hypertrophy at C5-6 and > > C6-7.> > Encroachment on the neural foramina more severe on the right than > > left.> > The radiopathy was on the other side.> > MD wanted me to see a neuro surgeon for a evaluation and after a > few > > more months of burning neck and shoulder pain I got up the nerve to > > see one more person that calls there self a Dr.> > > > The neuro surgeon ordered PT and a lumbar MRI.> > > > I have feet that are cold all the time and they feel just like they > > are painful with a feeling that is a sorness. > > > > . I ask him the neuro surgeon back pain could cause this and he > > ordered a lumbar MRI and PT for lumbar.> > It showedL3-4 diffuse posterior bulge and right lateral disc > > protrusion.> > L4-5 diffuse posterior bulge mild facet arthropathy bilaterally.> > L5-S1 diffuse posterior bulge .> > Both deep tendon reflexes are dead. Some of the arm ones are > > dulling.> > These things are getting worse some days I almost can't feel my > arms > > but they do hurt.> > My feet hurt every day and are so cold that I burned a small hole > in > > my calf with the heating pad. I feel asleep.> > > > I tested positive for lyme dx almost three years ago. None of the > > antibiotics seem to help except ramifin did back in the winter.> > I used it for 30 days. I just started a another 30 days of it.> > > > I had high fibrinogen, and high fragment 1+2, and then factor II > > activity was high through HEMEX.> > > > For over 20 years I have been getting a herpes rash on my tailbone > > and now my tailbone has some hard bone that I can feel that keeps > > growing.> > It didn't show up on xray.> > That hurts sometimes and I know that there is a knot there because > > my husband can feel it. I can not sit in a bathtub without it > > making me have to sit on one side. I don't understand why it does > > not show up on xray. It is getting larger.> > > > Something else that I keep reading on this forum I had two positive > > staph cultures from my nose back in 1973 and they said I was a > > carrier.> > > > I don't have any root canals and only three amalgams.> > I have had good teeth.> > I did have a horse give me a concussion a few months before all the > > flu like achy weakness started and I don't know how long I was > > knocked out. The Dr I went to for lyme was the only Dr to ever > > mention jarring your putitary gland. > > > > I have taken several different antibiotics so how do you know which > > one you need?> > > > Thanks I hope I didn't ask to many questions.> > sandy> >> Quote
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