living pain free

[Guest guest]

Yes, I agree that it did sound like and advertisment, and that with

the email address does look suspicious. I think you can understand

that we may be leary because we see it all the time.

I also think that sometimes when we find something simple that has a

dramatic effect on our conditions, it is really easy to get excited

and want to tell the world about it, and we do so only to receive

negative feedback. I felt the same way you do about antioxidants,

only my miracle was magnesium. When I started taking magnesium, it

was an amazing thing - gave me energy I hadn't felt in decades,

helped relieve a lot of symptoms.

But, after a few months, the relief I got at first changed and in

fact I started to develop some not-so-positive symptoms and had to

cut back on the magnesium - but this took months for me to go thru.

What I am trying to express is that those of us who for a long time

have suffered the various CFS/FMS/ME etc etc etc have all had good

experiences with various supplements and we have also found that

sometimes, the good stuff doesn't last, we crash and get back up to

start the process all over again. If lucky, we find something else

that helps and the cycle continues. If we are really lucky, we find

Dr's who believe us and help get the diagnosis we really need. In my

case it was 25+ years ignorance of my Lyme Disease. As we go, we

learn, hopefully.

I hope your results " stick " and that you don't experience any more

setbacks.

Cheers,

*S*

>

> I changed my mind, I am NOT leaving this group. I have as much

right

> to share my experiences as any other person, and I am not willing

to

> let one person with a bad attitude chase me off. But I guess I will

> keep my experiences to myself from now on and be a silent observer.

>

> Penny, I am sorry if you were bothered by my email address. Living

> pain free is my goal, it is an affirmation of sorts. Perhaps it is

> silly, but it is a daily reminder of where I want to be, and if it

> helps me get there, then use it I shall.

> To answer your question, my primary problem seem to be a result of

> systemic candida infection. Once I was able to get that under

> control, my other symptoms became more manageable. The

> supplementation, along with a total overhaul of my eating habits,

> brought my serum candida levels down. At the same time, my

> supplements helped to specifically reduce inflammation. I still

have

> flareups, and a whole slew of trouble spots, but I am able to carry

> on.

>

>

> Living pain free, one day at a time,

> Sara

>

[Guest guest]

Well, I'm sorry that my " tone " was misconstrued. It wasn't an ad,

I'm not selling anything. And since my email address appears to be

such an issue, I will change it... jeez!

Perhaps my excitement is premature... but for right now, I am

feeling better and living better, that is what is important to me.

So, I'm just going to keep on being excited and positive and

believing that I have found something that will help me. And if I am

proven wrong, well, I will deal with that when and if it comes.

In the meantime, I would appreciate it if we could move on already.

I got the message, I'll just keep my mouth shut from now on, okay?

Sara

P.S. To answer your somewhat condescending-sounding question , I

do NOT have a doctor who supports me in this, she moved from

Portland several years ago. That is why I am working on this by

myself.

[Guest guest]

Sara, I'm sorry you've taken offense and that we've gotten off on the wrong foot. And seriously, changing your address isn't the issue here. Selling is, so thanks for clarifying that you're not doing that. I'm a little concerned that you don't seem to understand why people thought you were advertising a new miracle cure, but perhaps it's because you're fairly new to all of this. Believe me, no one begrudges any success you may have. Every little bit helps. It's just that we've had lots of experiences with successes that are non-lasting or placebo based. So we take a very cautious approach when we hear someone touting a new miracle cure. We will be most interested though, in hearing how you progress with your regimen, and anything else you wish to share regarding your experiences. I wish you continued success and improving health, and hope you feel welcome here in the future. As you said, this can be a very lonely

disease. penny Sara <satellitesab@...> wrote: Well, I'm sorry that my "tone" was misconstrued. It wasn't an ad, I'm not selling anything. And since my email address appears to be such an issue, I will change it... jeez! Perhaps my excitement is premature... but for right now, I am feeling better and living better, that is what is important to me. So, I'm just going to keep on being excited and positive and believing that I have found something

that will help me. And if I am proven wrong, well, I will deal with that when and if it comes. In the meantime, I would appreciate it if we could move on already. I got the message, I'll just keep my mouth shut from now on, okay?Sara P.S. To answer your somewhat condescending-sounding question , I do NOT have a doctor who supports me in this, she moved from Portland several years ago. That is why I am working on this by myself.

[Guest guest]

You haven't answered the question ...You say your [comparative] serum levels are now down What is the level now , Down from what? , over how long a period ?.what specific test was carried out and by whom ?. People here rely on accurate information especially concerning tests

-----Original Message-----From: infections [mailto:infections ]On Behalf Of SaraSent: 09 July 2006 14:22infections Subject: [infections] Re: living pain free

Well, I'm sorry that my "tone" was misconstrued. It wasn't an ad, I'm not selling anything. And since my email address appears to be such an issue, I will change it... jeez! Perhaps my excitement is premature... but for right now, I am feeling better and living better, that is what is important to me. So, I'm just going to keep on being excited and positive and believing that I have found something that will help me. And if I am proven wrong, well, I will deal with that when and if it comes. In the meantime, I would appreciate it if we could move on already. I got the message, I'll just keep my mouth shut from now on, okay?Sara P.S. To answer your somewhat condescending-sounding question , I do NOT have a doctor who supports me in this, she moved from Portland several years ago. That is why I am working on this by myself.

[Guest guest]

That's it... screw you and your shitty attitude. I don't know who in

the hell you think you are and why you have decided to gun for me, but

I do not need this crap.I am sure that there are some very lovely

people, here, but you , are an asshole. I was going to just keep

quiet and try to learn something, but I have enough to deal with in my

life without personal attacks. Mission accomplished, you win, I'm

leaving.

>

> You haven't answered the question ...You say your [comparative]

serum levels

> are now down What is the level now , Down from what? , over how

long a

> period ?.what specific test was carried out and by whom ?. People

here rely

> on accurate information especially concerning tests

>

>

[Guest guest]

Sara:

Think it over.

was asking the right qestions- he wasn't gunning for you.

Really - none of us are A-holes (although I guess there are some

people on some forums that think so after visiting here) but there

are several of us that are VERY much better or in remission ( myself,

, , Tony and Penny is holding her own although when she

should probably be dead ) and we stay on these lists wanting to learn

more and more.

I will admitt though - we are are tuff bunch. And we can be

demanding when it comes to data or supportive data.

If we weren't tough and objective- we wouldn't be where we are.

Barb

> >

> > You haven't answered the question ...You say your [comparative]

> serum levels

> > are now down What is the level now , Down from what? , over how

> long a

> > period ?.what specific test was carried out and by whom ?.

People

> here rely

> > on accurate information especially concerning tests

> >

> >

>