Going in through a different door for help

[Guest guest]

I know it is not the norm Penny, what I am saying though is that

diagnosis like FM and CFS are becoming more accepted. Fact is we ALL

have either FM or CFS, these are symptoms I suspect. In order to get

treatment can we go in stating this instead of Lyme, which just gets

to little response. FM and CFS are further ahead, even with

insurance compaines.

These are considered autoimmune in nature, or at least FM. There are

MANY doctors that are seeing autoimmune disorders treatable with

ABX. It would be going in through a different door at the time, but

might get the meds needed.

I believe in time, all of this will come together. I believe in ALL

autoimmue issues and Lyme has that autoimmune component, we are

talking about chronic infection. Actually I am beginning to believe

that all of mans ailments, including aging may be related to

pathogenic infections.

I think it is amazing that white blood cells or is it the red, have

no DNA at birth. As we age they become filled with DNA, but it isn't

ours. The closer to death we are, the more DNA from other places. So

eventually we are half them and half us.....no wonder nothing works

right.

> > >

> > > Barb,

> > >

> > > Just to add another piece of the puzzle - Blue

> > Cross/Blue Shield

> > of North

> > > Carolina has decided it will not pay for longterm

> > antibiotics for

> > Lyme

> > > patients. This means that even if Jemsek backs off

> > on IV

> > antibiotics, which

> > > he said he only used on worst cases, he will not

> > be able to

> > prescribe the

> > > antibiotics needed for any of us unless we have

> > our own money.

> > BC/BS is the

> > > insurance company that covers all state employees

> > in North and

> > South

> > > Carolina.

> > >

> > >

> > >

> > > I keep thinking there has to be some way to

> > protest this. It's

> > bigger than

> > > Jemsek getting his license suspended. Trouble is,

> > all the patients

> > in the

> > > south with Lyme look like cfs, fms, MS, ALS, or

> > Alzheimers -

> > needless to

> > > say, those groups of sick people are too sick to

> > protest or even

> > think.

> > > Borrelia is a brain disease and we are losing

> > ours.

> > >

> > >

> > >

> > > a

> > >

> > > Article said in part:

> > > QUOTE

> > > The decision came after two days of hearing

> > testimony from

> > patients

> > > and medical experts before the 12-member board,

> > which had accused

> > the

> > > Huntersville doctor of misdiagnosing at least 10

> > patients with

> > Lyme

> > > disease and inappropriately treating them

> > antibiotics for months

> > or

> > > years.

> > > END QUOTE... and that's even with and

> > Fallon testifying

> > on

> > > his behalf. This is very sad. And it will effect

> > how other Lyme

> > > Drs. practice.

> > >

> > > Soooooooo I ask myself...

> > > Then why can't the Docs be prosecuted who

> > misdiagnosed me

> > > with 'Chomplex autoimmune Disorder " and would have

> > inappropriately

> > > treated me with steriods?

> > >

> > > And I answer myself........

> > > Because the medical community has established

> > strict protocols for

> > > diagnosis, safety rules AND treatment for their

> > brand of diagnosis

> > > which results in the protection THEMSELVES more

> > than their

> > patients.

> > >

> > > We have one size fits all diagnoses and treatment

> > -

> > > which may work for some percentage of people, but

> > an enormously

> > > large portion fall out side that group ( the very

> > old, the

> > chronicly

> > > infected- and the ones they can't figure out

> > what's wrong).

> > > it's to hell with them (or any one who helps them)

> > - give 'em

> > prozac

> > > and send in the next patient.

> > >

> > > Jaded as always,

> > > Barb

> > >

> >

> >

> >

> >

> >

>