RE: What to do politically

[Guest guest]

I think the medical higher powers pick their targets

carefully. They knew they were going to win this one

and by doing so put the fear of the AMA into anyone

who sins against them.

We'd be wise to pick battles that we know we can win.

But we're too busy ignoring those.

penny

--- Colourbleu <colourbleu@...> wrote:

> I think the most powerful way to respond to the

> current status quo is

> to collectively PRODUCE A DOCUMENTARY coving these

> issues.

>

> There is much to talk about. I.e. inadequate

> treatment, poor testing,

> (and quiet death to the victims), defensive medicine

> by mainstream Dr.

> who don't take any chances, and those very few Dr.

> who do step outside

> the box and do the best they can, end up the targets

> of which hunts by

> some very iffy agendas (these agendas cannot claim

> ignorance in such

> cases.)

>

> Our winges on online bulletin boards are very easily

> ignored (if ever

> heard).

>

> This latest case could act well as the protagonist.

> bleu

>

>

[Guest guest]

Bleu

Where are all the wonderfull patients that are jumping with joy for

getting a treatment program that worked???My experience with

something resembling what this guy tries is 3 days of feeling great,

then 3 days of feeling near death and just after recovering a little

the same attempt at therapy still made me feel DEATHLY ILL.

The stupidity that keeps the ball rolling with these types of

thinkers is the 3 day wonder period that I experienced - BUT IT

AIN'T COMING BACK- WHEN YOUR USING A DRUG THAT'S DESIGNED TO KNOCK

OUT GRAM NEGATIVES, THE GRACE PERIOD WITH THE KNOCKING DOWN OF THE

GRAM POSITIVES GOES AND THEY COME BACK AT YOU ANGRY.

This is just my opinions of course. I would hate to stop anyone

attempting a lyme IV therapy based on those poor choice group of

drugs, I have seen hundreds (zero) people on forums yelling there

success with those therapies.

But the truth is we do see many people getting a major leg up and

feeling almost normal with general antibiotic combinations not to

forget the antifungals which is what alway's gives me a pointer as

to why we should never ever discount the staphs,

pseudonomas,candida's of these ilnesses.

>

> I think the most powerful way to respond to the current status quo

is

> to collectively PRODUCE A DOCUMENTARY coving these issues.

>

> There is much to talk about. I.e. inadequate treatment, poor

testing,

> (and quiet death to the victims), defensive medicine by mainstream

Dr.

> who don't take any chances, and those very few Dr. who do step

outside

> the box and do the best they can, end up the targets of which

hunts by

> some very iffy agendas (these agendas cannot claim ignorance in

such

> cases.)

>

> Our winges on online bulletin boards are very easily ignored (if

ever

> heard).

>

> This latest case could act well as the protagonist.

> bleu

>

[Guest guest]

Agreed.

It's the message that just got sent..

It's, see what we can do to you if you don't get in

line with the rest of us?

Barb

>

> > I think the most powerful way to respond to the

> > current status quo is

> > to collectively PRODUCE A DOCUMENTARY coving these

> > issues.

> >

> > There is much to talk about. I.e. inadequate

> > treatment, poor testing,

> > (and quiet death to the victims), defensive medicine

> > by mainstream Dr.

> > who don't take any chances, and those very few Dr.

> > who do step outside

> > the box and do the best they can, end up the targets

> > of which hunts by

> > some very iffy agendas (these agendas cannot claim

> > ignorance in such

> > cases.)

> >

> > Our winges on online bulletin boards are very easily

> > ignored (if ever

> > heard).

> >

> > This latest case could act well as the protagonist.

> > bleu

> >

> >

>

[Guest guest]

This Jemsek thing is not a good sign, because Fallon and maybe Cameron

got in there with their new data and Jemsek goes down in spite of

that. Not good.

No one respects ILADS more than me... I would be dead if I didnt find

the ideas of which they have been the most visible promoters. But, I

frankly think they should be doing more science. The new treatment

studies are the right move. They should also be visualizing Bb

themselves using fluorescent antibody. Why not? I wrote to Jemsek

suggesting this.

[Guest guest]

Wow, there is actually one in the works as

we write. I heard about it and saw part of it at the Virginia Lyme conference I

attended this spring. Anyone can contribute to it. My son gave some money for

its production.

Here is the link to the website.

http://www.lymediseasefilm.com

You can email the co-producer at Cheryl@...

Her name is Cheryl Drake.

a

I think the most powerful way to respond to the

current status quo is

to collectively PRODUCE A DOCUMENTARY coving these issues.

There is much to talk about. I.e. inadequate treatment, poor testing,

(and quiet death to the victims), defensive medicine by mainstream Dr.

who don't take any chances, and those very few Dr. who do step outside

the box and do the best they can, end up the targets of which hunts by

some very iffy agendas (these agendas cannot claim ignorance in such

cases.)

Our winges on online bulletin boards are very easily ignored (if ever

heard).

This latest case could act well as the protagonist.

bleu

[Guest guest]

Bleu

If your genitals are bothering you (for egs).Get them cultured.

There's no point telling me anything when this FIRST STEP in

understanding MY ILNESS hasn't been taken.I'm also sure if you have

an ulceration anywhere on your anatomy the same applies???? Get it

cultured. If your sinuses are full of gunk and blood as MArie

mentions TAKE THE CULTURE OF PSEUDONOMAS SERIOUSLY.I think the gunk

on the front side of the sinus is also in the cavity side that

houses the brain....

tony

> > >

> > > > I think the most powerful way to respond to the

> > > > current status quo is

> > > > to collectively PRODUCE A DOCUMENTARY coving these

> > > > issues.

> > > >

> > > > There is much to talk about. I.e. inadequate

> > > > treatment, poor testing,

> > > > (and quiet death to the victims), defensive medicine

> > > > by mainstream Dr.

> > > > who don't take any chances, and those very few Dr.

> > > > who do step outside

> > > > the box and do the best they can, end up the targets

> > > > of which hunts by

> > > > some very iffy agendas (these agendas cannot claim

> > > > ignorance in such

> > > > cases.)

> > > >

> > > > Our winges on online bulletin boards are very easily

> > > > ignored (if ever

> > > > heard).

> > > >

> > > > This latest case could act well as the protagonist.

> > > > bleu

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

On Jun 16, 2006, at 9:43 AM, Colourbleu wrote:I think the most powerful way to respond to the current status quo is to collectively PRODUCE A DOCUMENTARY coving these issues.Centralizing information documenting people who are recovering from infections that went unrecognized by the health system does seem like it could be effective. Although doctors seem very conditioned not to pay any attention to evidence that doesn't come from double-blind studies. Still, administrators might be moved by this type of information.- Kate

[Guest guest]

a

I like you read forums as a research tool as well as to see how

therapies perform. I just can't find the people that are winning

goals posting anywhere. There's nothing for me to get excited about

with there choice of therapies. Alas I'm a pain in the ass but by me

telling it as I read it and see it instead of using stealth and

conspiracy I AM MAKING PROGRESS. You see the HERX is almost a dead

issue for most people. many are understanding the need for multiple

antimicrobial therapies as opposed to single therapies and

mycoplasma infections are starting to make no sense to the people

getting or thinking of having this diagnosis.

> >

> > I think the most powerful way to respond to the current status

quo

> is

> > to collectively PRODUCE A DOCUMENTARY coving these issues.

> >

> > There is much to talk about. I.e. inadequate treatment, poor

> testing,

> > (and quiet death to the victims), defensive medicine by

mainstream

> Dr.

> > who don't take any chances, and those very few Dr. who do step

> outside

> > the box and do the best they can, end up the targets of which

> hunts by

> > some very iffy agendas (these agendas cannot claim ignorance in

> such

> > cases.)

> >

> > Our winges on online bulletin boards are very easily ignored (if

> ever

> > heard).

> >

> > This latest case could act well as the protagonist.

> > bleu

> >

>