PENNY.....It has been a long time of sustained wellness!!!

[Guest guest]

Penny!! 3/12-4 years of this degree of remission not good enough???

You know when I knew I had turned a corner was after the

hospitalization of my preemie grandaughter. It was a HIGHLY intense

4 months starting with the marriage of my son. I can't even tell

you. Neo-natal intensive care is pretty terrifying, and when you

baby is one of the tiniest, you can't imagine. Not only dealing with

your own child but then there other families in the beds next to you

with much bigger babies, loosing their little ones.

My daughter and I spent 2 1/2 months in a hotel close to the

hospital with my just 2 year old grandaughter. It was day after day

of high drama as these itt bitty ones can take a turn for the worst

at any moment and be gone. There were coountless sleepless nights

tht just rolled into the next day. Nothing but fast food, if you

could even eat. Then as I said my dad died.

His death was nightmareish. The last time I heard my dads voice, he

was screaming in agony over the phone across the ocean, he was out

of his head and my brother was trying to hold him down to keep

oxygen on. He had staph on a heart valve and he died the very next

day while being life flighted to Honolulu for heart surgery. This

was stress of the rawest kind. I was sitting on a hotel bed, totally

unable to do anything. I lost it, and had to go home. But, 2 days

later I was back in the NICU.

I had been on ABX on and off for about 1 year or so prior to this. I

had quit just when all of this stuff started happening about 5

months earlier. I could not herx, and deal with this stuff at the

same time. The whole time this was going on I KNEW without a doubt I

was going to crash, and CRASH HARD when this was over, and that was

before my dad died. I was a train wreck waiting to happen.

When it was over and my now 5 lb grandaughter was doing awesome, I

went home. I was exhausted and emotionally the toll was huge. I

waited to crash, and I waited and I waited and I waited some more.

The crash NEVER came. In fact after a couple of months I was making

plans to move 900 miles to New Mexico for a new start in life. Tough

enough for a healthy person. This meant selling homes, and finishing

up a business.

Even though we love NM, we had to return to California 18 months

later, another 900 miles back. Unfortuneatly things didn't go

smoothly while in NM, again huge stress, and my daughter is now a

single mother with chronic Lyme. So anyway Blah, blah, blah, life

goes on.

My point is, that through ALL of this, I am STILL in remission. The

only time I really feel awful is when I start that tiny dose of

Mino. Going through hell in the rest of my life, I'm ok, BETER THEN

OK!!! But give me a tiny dose of Mino and down I go!

You can wait another year to see how I am doing to maybe get

exceited, but I am dang exceited NOW.

***Penny, I know that people respond to many ABX when dealing with

certain infections and they do so quickly. I have often told people

when treating acase of bronchitis or something, that if you are on

the right ABX, you will see adifference withing a day. BUT, LYME,

MYCOPLASMA AND CHLAMYDIA, etc., aren't just any old infction. We all

know that!!! These infections DO NOT respond in a few days to ABX

and then we are well. Heck, if that was the case, not a one of us

would be here on any of these support boards. We'd all be well. It

is expected that there will be months of killing going on and that

means months of herxing. When we no longer herx without going into

relapse when NOT on ABX, then we likely have the upper hand and can

expect to keep it for a long time.

> > > > >

> > > > > >Barb

> > > > > >I have read 1000's of posts, thousands of testimony's-

> who's

> > > > > >actually looking at the low dose impact zones-this is

> > basically

> > > > > >another world far, far away- just something about reading

> > stuff

> > > > that

> > > > > >is so irrelevant to what is actually practised. it's

> > > deceiving ...

> > > > > >I'd have no problems with people using low dose

> tetracyclines

> > > > > >because they actually still kill, it's when they

stimulate

> > that

> > > > they

> > > > > >BECOME scary- I personally had a problem with stimulating

> > > > bacteria

> > > > > >by using certain drugs and mino was one that was near the

> top

> > > of

> > > > the

> > > > > >list for me and I OBSERVED ON QUITE A FEW OTHER SAMPLES.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > > The way i see it there is alot of people that don't get

well

> > > with

> > > > the

> > > > > current way of thinking,

> > > > > Instead they are left to believe that walking sticks or

> > cruches

> > > is

> > > > the

> > > > > rigth thing.

> > > > > This does not mean that low dose is the right thing, Its

> means

> > > > that

> > > > > somethings must be done differnently to allow

> > > > > for a change to occur low dos abx maybe be a candidate.

> > > > >

> > > >

> > >

> >

>