Testing for mycoplasma, etc : Was What causes Jarisch-Herxheimer reactions ?

[Guest guest]

Hi Tony,

Isn't it important to know what opportunistic infections are present, like mycoplasma? I do get Penny's point loud and clear (at least I think so) about the importance of identifying common but resistant infections, but aren't these other infections also important and, for some, treatable? If the infection load can be reduced in the case of multiple infections, seems like this would give our bodies a chance, unless of course there is that bad effect mentionned recently whereby eliminating one bug causes others to flourish. A couple of years ago, Dr. Nicholson was advocating and Dr. De Meirleir was trying to treat mycoplasma infections, wonder what the scoop is on this now.

I know I am particularly sensitive to the Herpes family of viruses (very frequent HHV2 outbreaks, worse on abx and when I get fevers, also during time I was taking whey to build glutathione, had bad chicken pox as a child, roseola, EBV titers were high when I first got sick). Unfortunately, Valtrex was no help at all with the HHV2 ...

Gee, I hope Dr. De Meirleir will be able to help me shed some light, I presume he is a responsible doctor and he has seen so many ME/CFS patients! I would just be happy to have a few more answers as to the state of my immune system and infections. He is not one of those expensive doctors (40 Euros for a first visit) but testing can go up to 1000 Euros (there is of course, the trip...).

Hmm, am I barking up the wrong tree?

Carole

> Carol, I wouldn't bother getting a mycoplasma or viral panel; done cause they > just don't have any real answers or treatments- as Penny discoivered > this group of doctors falls into the CHARLATAN category of medicine.> Often they'll run 5000 dollar panels of tests which ain't truly > aimed at diagnosing the patient rather a more sinister version of > USA capitalism. They are virtually seeeing hundreds of patients a > week making millions of dollars and just slapping the patienst with > supplements.

[Guest guest]

I think you've got a much better chance of finding an understanding Dr. In DeMelier than you will with most docs. Perhaps he'll be open to testing for organisms other than the cwd form if tests come up negative. And if you come up positive, just try to make sure you get strong enough and complete enough abx coverage to knock out co-infections. Talk to him about some of the work of other doctors with other infections and experiences of patients who've benefitted from multitherapy. You know, I've been off abx for about 2 months (due to sinus surgery) and I've been going downhill really badly. Got desperate the other night, and took around 4 grams of penicillin in 24 hours. Stomache couldn't handle more. But I've got to say, I started feeling better almost immediately. pennycarolesierpien <sierpien@...> wrote: Hi Tony, Isn't it important to know what opportunistic infections are present, like mycoplasma? I do get Penny's point loud and clear (at least I think so) about the importance of identifying common but resistant infections, but aren't these other infections also important and, for some, treatable? If the infection load can be reduced in the case of multiple infections, seems like this would give our bodies a chance, unless of course there is that bad effect mentionned recently whereby eliminating one bug causes others to flourish. A couple of years ago, Dr. Nicholson was advocating and Dr. De Meirleir was trying to treat mycoplasma infections, wonder what the scoop is on this now. I know I am particularly sensitive to the Herpes family of viruses (very frequent HHV2 outbreaks, worse on abx and when I get fevers, also during time I was taking whey to build glutathione, had

bad chicken pox as a child, roseola, EBV titers were high when I first got sick). Unfortunately, Valtrex was no help at all with the HHV2 ... Gee, I hope Dr. De Meirleir will be able to help me shed some light, I presume he is a responsible doctor and he has seen so many ME/CFS patients! I would just be happy to have a few more answers as to the state of my immune system and infections. He is not one of those expensive doctors (40 Euros for a first visit) but testing can go up to 1000 Euros (there is of course, the trip...). Hmm, am I barking up the wrong tree? Carole

[Guest guest]

Thanks for your response, Penny. Will talk to Dr. De Meirleir about this

(apparently he will try to answer all questions asked of him).

I'm sorry to hear you are doing so poorly. It's so hard to see oneself

go downhill, or others for that matter. Just hope that you will be able

to start up treatment again soon.

Too bad we can't communicate with all these organisms frolicking inside

of us : hey listen, smartie pants, the party's over, clear out !!!

Carole

> Hi Tony,

> Isn't it important to know what opportunistic infections are present,

like mycoplasma? I do get Penny's point loud and clear (at least I think

so) about the importance of identifying common but resistant infections,

but aren't these other infections also important and, for some,

treatable? If the infection load can be reduced in the case of multiple

infections, seems like this would give our bodies a chance, unless of

course there is that bad effect mentionned recently whereby eliminating

one bug causes others to flourish. A couple of years ago, Dr. Nicholson

was advocating and Dr. De Meirleir was trying to treat mycoplasma

infections, wonder what the scoop is on this now.

> I know I am particularly sensitive to the Herpes family of viruses

(very frequent HHV2 outbreaks, worse on abx and when I get fevers, also

during time I was taking whey to build glutathione, had bad chicken pox

as a child, roseola, EBV titers were high when I first got sick).

Unfortunately, Valtrex was no help at all with the HHV2 ...

> Gee, I hope Dr. De Meirleir will be able to help me shed some light, I

presume he is a responsible doctor and he has seen so many ME/CFS

patients! I would just be happy to have a few more answers as to the

state of my immune system and infections. He is not one of those

expensive doctors (40 Euros for a first visit) but testing can go up to

1000 Euros (there is of course, the trip...).

> Hmm, am I barking up the wrong tree?

> Carole

>

[Guest guest]

Carol

Woof! woof! your definately barking up the wrong tree. I have doen

(quinolone damage)heaps of work on bacteria and the status quo of

problems is when your ill with these diseases- the common culprits

are coagulase negative staphs(shoemaker,newcastle) that have got

some nasty toxins and immune system beating high antimicrobial

resistance traits, followed by pseudonomas. that fungal infection

you think your got often is pseudonomas aueriganosa and not fungus

at all.The third candidate is candida.Playing around for the last

few years I can safely say that these are environmentally and

chemically sensitive organisms that spring up according to the

terrain.They are plastered in every nook and cranny and cover every

millimeter of your external and internal anatomy.Then you've got

thrown in for good measure and added twists to your drug regime

staph areus a major pathogen which is just waiting it's oppurtunity,

and alongside that often you'll culture VRE vancomycin resistant

enterococcus -You've got the complete ballpark of death and misery

in every hospital system in the world and all you needed to join the

rat race was dehydration. Or often preceeded by a doctors visit for

his usual sore throat take these for sven days approach to patient

care.

I think if they want to fix things in IRAQ they should send in

american doctors practising westernised medicine- we'll incapacitate

them all.Hopefully they'd be too fatigued to strap on the explosives.

> > Carol, I wouldn't bother getting a mycoplasma or viral panel;

done

> cause they

> > just don't have any real answers or treatments- as Penny

discoivered

> > this group of doctors falls into the CHARLATAN category of

medicine.

> > Often they'll run 5000 dollar panels of tests which ain't truly

> > aimed at diagnosing the patient rather a more sinister version of

> > USA capitalism. They are virtually seeeing hundreds of patients a

> > week making millions of dollars and just slapping the patienst

with

> > supplements.

>