Re: MRSA status; getting docs to give antibx long term; how to make this happen

[Guest guest]

And what specifically do we do to get the

proper course of treatment i.e. the antibx for long enough as Tony is

suggesting. Antibx are not over the counter (OTC) so I have to convince docs of

the need and then get them…I don’t understand why our docs keep

treating these active very serious MRSA situations so lightly. Which docs are

willing to prescribe antibiotics for lengthy periods of times? I think I know 2

of them and will make this approach work but do people like Tony live in towns

where Doxycline requires no prescription. I’m not getting the comments

about this?

From: infections [mailto:infections ] On Behalf Of Penny Houle

Sent: Sunday, May 14, 2006 11:50

PM

infections

Subject: RE:

[infections] MRSA status; Re: Anaphylactic shock, Electrolytes,

Salt/C, Ampehotericine B, Benicar etc.

Yeah, you and me both. Even when we have diagnosed abx resistant

bacteria, that knowledge results in no treatment. What is wrong here? I

mean seriously?

julie levitt

<knightshotter@...> wrote:

You ask good questions but will you come

with me to these docs and ask the same question. They look, and shake their

head were the MRSA status. They have no interest in making it “go

down” unless I have an active open lesion like the infected portacat.

This has been my experience to date from every doc I see. It is something

they label on my chart like I have aids and nothing more…..That is the

part I still don’t understand and essentially why I joined the list.

Because I want the MRSA issue addressed now since I think it is stopping me

from getting well everywhere else. The fact that I suddenly developed a rapidly

escalating lung infection just after I joined the list was coincidental.

[Guest guest]

…I don’t understand why our docs keep treating these active very serious MRSA situations so lightly. Therin lies the crux of the problem. Why can't we get the basic help that we need so desperately? Why don't docs i.d. even simple bugs when kids come in with ear infections and strep throats, preventing such problems from developing and becoming a societal issue in the first place? Tony gets whatever he wants because he scared his doctor. When his doctor realized that Tony knew what to do better than he did, he just started cooperating and gave him anything he wants. He also lives in Australia, where he can actually go into labs and talk to people. He even got training from a microbiologist who was willing to help him. pennyjulie levitt <knightshotter@...> wrote:

And what specifically do we do to get the proper course of treatment i.e. the antibx for long enough as Tony is suggesting. Antibx are not over the counter (OTC) so I have to convince docs of the need and then get them…I don’t understand why our docs keep treating these active very serious MRSA situations so lightly. Which docs are willing to prescribe antibiotics for lengthy periods of times? I think I know 2 of them and will make this approach work but do people like Tony live in towns where Doxycline requires no prescription. I’m not getting the comments about this?

[Guest guest]

I live in australia- nobody just gets what they want anywhere yet my

doctor gives me exactly what I want because he has been presented

enough evidence by me where the problem lies and the alternative

treatments like pain meds are even worse- so he doesn't want to go

there. My last script was 10 courses of penicillin plus 10 courses

of keflex.

I had a positive blood culture similar to yours- you also have MRSA

positive which puts you in a very good barganing position. As I say

the other alternatives are a lot worse often the side effects alone.

>

> You ask good questions but will you come with me

> to these docs and ask the same question. They

> look, and shake their head were the MRSA status.

> They have no interest in making it " go down "

> unless I have an active open lesion like the

> infected portacat. This has been my experience to

> date from every doc I see. It is something they

> label on my chart like I have aids and nothing

> more...That is the part I still don't understand

> and essentially why I joined the list. Because I

> want the MRSA issue addressed now since I think it

> is stopping me from getting well everywhere else.

> The fact that I suddenly developed a rapidly

> escalating lung infection just after I joined the

> list was coincidental.

>

>

>

>

>

>

[Guest guest]

Bleu

You shouldn't sit on the nystatin if it doesn't provide you relief

IMO. I see it as a 50/50 helper, I would be bouncing straight back

to the amp B if it's keeping you improving.The lamisil is just

brilliant- everytime I see the add in the pharmacy with a bad nail

repaired to a good nail tells me what a drug this must be to diffuse

deep into the nail- which is full of coagulase negative staphs every

time I cultured any clippings.

> > >

> > > You ask good questions but will you come with me

> > > to these docs and ask the same question. They

> > > look, and shake their head were the MRSA status.

> > > They have no interest in making it " go down "

> > > unless I have an active open lesion like the

> > > infected portacat.  This has been my experience to

> > > date from every doc I see. It is something they

> > > label on my chart like I have aids and nothing

> > > more...That is the part I still don't understand

> > > and essentially why I joined the list. Because I

> > > want the MRSA issue addressed now since I think it

> > > is stopping me from getting well everywhere else.

> > > The fact that I suddenly developed a rapidly

> > > escalating lung infection just after I joined the

> > > list was coincidental.

> > >

> > > 

> > >

> > > 

> > >

> > >