Re: Just joined. Lyme Disease

[Guest guest]

Hello Kate,

I took Cipro for a month or so but, it didn't seem to help

the Morgellons symptoms. Been taking 200 mg of Doxy daily

for about a year now. It is still working.

I heard it is possible to get a Vitamin C infusionn treatment

that they CLAIM with cure Lyme in 48 hours. Heard anything

about that?

Regards,

Lawrence

>

> > Lawrence here. I have had undiagnosed and untreated Lyme Disease

> > for over 17 years. ...

> > Anyone have any good treatment regimens I could try to rid myself

> > of this?

>

> What else have you already tried besides doxy? Maybe you need a

> different antibiotic now, or a combination. Are you in touch with

> other Lymies in Texas. There are quite a few.

>

> - Kate (Nova Scotia Lymie -- but the Lyme came from Massachusetts)

>

[Guest guest]

I've had numerous, very high dose vitamin C i.v.s. Hasn't cured anything. Can you tell us more, details, etc? pennyLawrence Rayburn <lawrencerayburn@...> wrote: Hello Kate, I took Cipro for a month or so but, it didn't seem to help the Morgellons symptoms. Been taking 200 mg of Doxy daily for about a year now. It is still working. I heard it is possible to get a Vitamin C infusionn treatment that they CLAIM with cure Lyme in 48 hours. Heard anythingabout that? Regards, Lawrence > > > Lawrence here.

I have had undiagnosed and untreated Lyme Disease> > for over 17 years. ...> > Anyone have any good treatment regimens I could try to rid myself> > of this?> > What else have you already tried besides doxy? Maybe you need a > different antibiotic now, or a combination. Are you in touch with > other Lymies in Texas. There are quite a few.> > - Kate (Nova Scotia Lymie -- but the Lyme came from Massachusetts)>

[Guest guest]

> I heard it is possible to get a Vitamin C infusionn treatment

> that they CLAIM with cure Lyme in 48 hours. Heard anything

> about that?

There is alot of BS out there coming from low-minded merchants. I've

heard of these infusions being therapeutic for some people, but not

curative.

Your good response to doxy alone is probably above the median IMO. I

would at least consider more powerful treatment - antibiotic

combinations. I personally *believe* (but cant prove) that good

results tend to be slightly-to-somewhat more likely when

my " favorites, " the nitroimidazoles, are used. (They certainly did

the job for me, along with doxy.) Nitroimidazoles have their dangers,

like all these drugs do to a greater or lesser degree, so one has to

find out about that and take responsibility for it as part of the

bargain of becoming proactive in ones own care. If you want to do

that (become proactive), its best to read for (unfortunately) hours

and hours. Just as you worked thru the CDC materials on lyme disease.

But theres a whole nother viewpoint, relating to a whole nother level

of treatment intensity, that most correspondants share on lists like

this or cpnhelp.org. The latter has a set protocol (or three) that I

think are very aggressive and are likely to be among the best out

there (understanding that this is all internet-community-based,

uncontrolled observation, not science; its not proof).

At cpnhelp we focus on Chlamydia pneumoniae just as the lyme

establishment focuses on borrelia, but I personally dont place the

identification of the infectious species all that centrally. While

borrelia and Cpn are my two " top picks, " numerous other discovered or

undiscovered taxa could have a role in many (or even almost) peoples

chronic inflammatory illnesses. For example, CFS often develops after

iella burnetti infection AKA Q fever (just as it can develop after

borrelia infection). Its possible those post-Q CFS cases ( " QFS " )

could be caused by borrelia transmitted along with the coxiellae, but

theres at least some reason to think coxiellae themselves cause those

cases (others, of course, think that the disease is not a persistent

infection at all, but I personally lean the other way).

[Guest guest]

Hmmm. I've got flagyl. Maybe this is a good time to revisit it. I've also got plaquenil, one that's supposed to alkalinize the cells. Might be worth another try. penny <usenethod@...> wrote: > I heard it is possible to get a Vitamin C infusionn treatment > that they CLAIM with cure Lyme in 48 hours. Heard anything> about that? There is alot of BS out there coming from low-minded merchants. I've heard of these infusions being therapeutic for some people, but not curative.Your good response to doxy alone is probably above the median IMO. I would at least consider more powerful treatment - antibiotic combinations. I personally *believe* (but cant prove) that good results tend to be

slightly-to-somewhat more likely when my "favorites," the nitroimidazoles, are used. (They certainly did the job for me, along with doxy.) Nitroimidazoles have their dangers, like all these drugs do to a greater or lesser degree, so one has to find out about that and take responsibility for it as part of the bargain of becoming proactive in ones own care. If you want to do that (become proactive), its best to read for (unfortunately) hours and hours. Just as you worked thru the CDC materials on lyme disease. But theres a whole nother viewpoint, relating to a whole nother level of treatment intensity, that most correspondants share on lists like this or cpnhelp.org. The latter has a set protocol (or three) that I think are very aggressive and are likely to be among the best out there (understanding that this is all internet-community-based, uncontrolled observation, not science; its not proof). At cpnhelp we focus

on Chlamydia pneumoniae just as the lyme establishment focuses on borrelia, but I personally dont place the identification of the infectious species all that centrally. While borrelia and Cpn are my two "top picks," numerous other discovered or undiscovered taxa could have a role in many (or even almost) peoples chronic inflammatory illnesses. For example, CFS often develops after iella burnetti infection AKA Q fever (just as it can develop after borrelia infection). Its possible those post-Q CFS cases ("QFS") could be caused by borrelia transmitted along with the coxiellae, but theres at least some reason to think coxiellae themselves cause those cases (others, of course, think that the disease is not a persistent infection at all, but I personally lean the other way).