Re: Re: MRSA status; getting docs to give antibx long term; how to make this happen

[Guest guest]

I just got back from the doc, got another 3 months of lamisil, and

Nystatin this time instead of fungizone.

He's one of the few good ones.

bleu

On 15 May 2006, at 16:28, dumbaussie2000 wrote:

>

> I live in australia- nobody just gets what they want anywhere yet my

> doctor gives me exactly what I want because he has been presented

> enough evidence by me where the problem lies and the alternative

> treatments like pain meds are even worse- so he doesn't want to go

> there. My last script was 10 courses of penicillin plus 10 courses

> of keflex.

> I had a positive blood culture similar to yours- you also have MRSA

> positive which puts you in a very good barganing position. As I say

> the other alternatives are a lot worse often the side effects alone.

>

>

>

>

>

>

>

> >

> > You ask good questions but will you come with me

> > to these docs and ask the same question. They

> > look, and shake their head were the MRSA status.

> > They have no interest in making it " go down "

> > unless I have an active open lesion like the

> > infected portacat.  This has been my experience to

> > date from every doc I see. It is something they

> > label on my chart like I have aids and nothing

> > more...That is the part I still don't understand

> > and essentially why I joined the list. Because I

> > want the MRSA issue addressed now since I think it

> > is stopping me from getting well everywhere else.

> > The fact that I suddenly developed a rapidly

> > escalating lung infection just after I joined the

> > list was coincidental.

> >

> > 

> >

> > 

> >

> >

[Guest guest]

Hi, Nystatin is cool. I haven't tried lamisil. I wish you well. I live in the Eastern part of the US, and am having a terrible time with doctors. I used to have MRSA but got over it[?] with a few years of IV vancomycin. Now I have this infection in both knees, and osteomylitis in bones near the Ethmoid sinus between my eyes. Both knees are almost locked up, my eye sock is killing me and my ankles are all swollen up. My doc doesn't think i have an infection? I'm tired of being sick and i want to end it. Sincerely, A disgruntled patientColourbleu <colourbleu@...> wrote: I just got back from the doc, got another 3 months of lamisil, and Nystatin this time instead of fungizone.He's one of the few good

ones.bleuOn 15 May 2006, at 16:28, dumbaussie2000 wrote:> > I live in australia- nobody just gets what they want anywhere yet my> doctor gives me exactly what I want because he has been presented> enough evidence by me where the problem lies and the alternative> treatments like pain meds are even worse- so he doesn't want to go> there. My last script was 10 courses of penicillin plus 10 courses> of keflex.> I had a positive blood culture similar to yours- you also have MRSA> positive which puts you in a very good barganing position. As I say> the other alternatives are a lot worse often the side effects alone.>>>>>>> > >> > You ask good questions but will you come with me> > to these docs and ask the same question. They> > look, and shake their head were the MRSA status.> > They have no interest in making it "go down"> > unless I have an active open lesion like the> > infected portacat. This has been my experience to> > date

from every doc I see. It is something they> > label on my chart like I have aids and nothing> > more...That is the part I still don't understand> > and essentially why I joined the list. Because I> > want the MRSA issue addressed now since I think it> > is stopping me from getting well everywhere else.> > The fact that I suddenly developed a rapidly> > escalating lung infection just after I joined the> > list was coincidental.> >> >Â > >> >Â > >> >

[Guest guest]

Huh? You've got proof of osteomyelitis and he says you don't have an infection? What the....? What are they doing about the osteomyelitis (which means bone infection, in case they forgot!). pennyLily <nukemaid@...> wrote: Hi, Nystatin is cool. I haven't tried lamisil. I wish you well. I live in the Eastern part of the US, and am having a terrible time with doctors. I used to have MRSA but got over it[?] with a few years of IV vancomycin. Now I have this infection in both knees, and osteomylitis in bones near the Ethmoid sinus between my eyes. Both knees are almost locked up, my eye sock is killing me and my ankles are all swollen up. My doc doesn't think i have an infection? I'm tired of

being sick and i want to end it. Sincerely, A disgruntled patientColourbleu <colourbleu@...> wrote: I just got back from the doc, got another 3 months of lamisil, and Nystatin this time instead of fungizone.He's one of the few good ones.bleuOn 15 May 2006, at 16:28, dumbaussie2000 wrote:> > I live in australia- nobody just gets what they want anywhere yet my> doctor gives me exactly what I want because he has been presented> enough evidence by me where the problem lies and the alternative> treatments like pain meds are even worse- so he doesn't want to go> there. My last script was 10 courses of penicillin plus 10 courses> of keflex.> I had a positive blood culture similar to yours- you also have

MRSA> positive which puts you in a very good barganing position. As I say> the other alternatives are a lot worse often the side effects alone.>>>>>>> > >> > And what specifically do we do to get the proper> > course of treatment i.e. the antibx for long> > enough as Tony is suggesting. Antibx are not over> > the counter (OTC) so I have to convince docs of> > the need and then get them.I don't understand why> > our docs keep treating these active very serious> > MRSA situations so lightly. Which docs are willing> > to prescribe antibiotics for lengthy periods of> > times? I think I know 2 of them and will make this> > approach work but do people like Tony live in> > towns where Doxycline requires

no prescription.> > I'm not getting the comments about this?> >> >Â > >> >Â Â _____Â > >> > From: infections > > [mailto:infections ]> > On Behalf Of Penny Houle> > Sent: Sunday, May 14, 2006 11:50 PM> > infections > > Subject: RE: [infections] MRSA> > status; Re: Anaphylactic shock, Electrolytes,> > Salt/C, Ampehotericine B, Benicar etc.> >> >Â > >> > Yeah, you and me both. Even when we have diagnosed> > abx resistant bacteria, that knowledge results in> > no treatment. What is wrong here? I mean> > seriously?> >> >Â > >> >> >> > julie levitt

wrote:> >> > You ask good questions but will you come with me> > to these docs and ask the same question. They> > look, and shake their head were the MRSA status.> > They have no interest in making it "go down"> > unless I have an active open lesion like the> > infected portacat. This has been my experience to> > date from every doc I see. It is something they> > label on my chart like I have aids and nothing> > more...That is the part I still don't understand> > and essentially why I joined the list. Because I> > want the MRSA issue addressed now since I think it> > is stopping me from getting well everywhere else.> > The fact that I suddenly developed a rapidly> > escalating lung infection just after I joined the> > list was coincidental.> >> > >

>> >Â > >> >

[Guest guest]

consider self treatment?

you need to be your own boss when this happens...

bleu

On 16 May 2006, at 02:14, Lily wrote:

> Hi,

>  

> Nystatin is cool. I haven't tried lamisil. I wish you well.

> I live in the Eastern part of the US, and am having a terrible time

> with doctors.

> I used to have MRSA but got over it[?] with a few years of IV

> vancomycin. Now I have this infection in both knees, and osteomylitis

> in bones near the Ethmoid sinus between my eyes. Both knees are almost

> locked up, my eye sock is killing me and my ankles are all swollen up.

> My doc doesn't think i have an infection?

> I'm tired of being sick and i want to end it.

>  

> Sincerely,

> A disgruntled patient

>

> Colourbleu <colourbleu@...> wrote:

>> I just got back from the doc, got another 3 months of lamisil, and

>> Nystatin this time instead of fungizone.

>>

>> He's one of the few good ones.

>>

>> bleu

>>

>>

>> On 15 May 2006, at 16:28, dumbaussie2000 wrote:

>>

>> >

>> > I live in australia- nobody just gets what they want anywhere yet my

>> > doctor gives me exactly what I want because he has been presented

>> > enough evidence by me where the problem lies and the alternative

>> > treatments like pain meds are even worse- so he doesn't want to go

>> > there. My last script was 10 courses of penicillin plus 10 courses

>> > of keflex.

>> > I had a positive blood culture similar to yours- you also have MRSA

>> > positive which puts you in a very good barganing position. As I say

>> > the other alternatives are a lot worse often the side effects alone.

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> > >

>> > > You ask good questions but will you come with me

>> > > to these docs and ask the same question. They

>> > > look, and shake their head were the MRSA status.

>> > > They have no interest in making it " go down "

>> > > unless I have an active open lesion like the

>> > > infected portacat.  This has been my experience to

>> > > date from every doc I see. It is something they

>> > > label on my chart like I have aids and nothing

>> > > more...That is the part I still don't understand

>> > > and essentially why I joined the list. Because I

>> > > want the MRSA issue addressed now since I think it

>> > > is stopping me from getting well everywhere else.

>> > > The fact that I suddenly developed a rapidly

>> > > escalating lung infection just after I joined the

>> > > list was coincidental.

>> > >

>> > > 

>> > >

>> > > 

>> > >

>> > >

[Guest guest]

ok tony.

thanks

On 16 May 2006, at 02:34, dumbaussie2000 wrote:

> Bleu

> You shouldn't sit on the nystatin if it doesn't provide you relief

> IMO. I see it as a 50/50 helper, I would be bouncing straight back

> to the amp B if it's keeping you improving.The lamisil is just

> brilliant- everytime I see the add in the pharmacy with a bad nail

> repaired to a good nail tells me what a drug this must be to diffuse

> deep into the nail- which is full of coagulase negative staphs every

> time I cultured any clippings.

>

>

>

>

>

> > >  >

> > >  > You ask good questions but will you come with me

> > >  > to these docs and ask the same question. They

> > >  > look, and shake their head were the MRSA status.

> > >  > They have no interest in making it " go down "

> > >  > unless I have an active open lesion like the

> > >  > infected portacat.  This has been my experience to

> > >  > date from every doc I see. It is something they

> > >  > label on my chart like I have aids and nothing

> > >  > more...That is the part I still don't understand

> > >  > and essentially why I joined the list. Because I

> > >  > want the MRSA issue addressed now since I think it

> > >  > is stopping me from getting well everywhere else.

> > >  > The fact that I suddenly developed a rapidly

> > >  > escalating lung infection just after I joined the

> > >  > list was coincidental.

> > >  >

> > >  > 

> > >  >

> > >  > 

> > >  >

> > >  >