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Re: Hi new here need suggestions and advice

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If it is possible to have hyperacusis along with 4s then is the treatment the same? If not, what is the difference? Which one do you treat if there is a difference? Also, has this happened to any of you before? My daughter was on her way to the kitchen to eat and she heard a spoon click on a bowl. (My husband was feeding the baby) and before she even saw anything she ran down the hall and said she didn't want to eat. When I told her it was the baby, she went into the kitchen and started eating. She (so far) hasn't had any issues with the baby at all and she is 11months old. I'm really trying to understand all this, but it's weird to me ( I am not a sufferer) that she can tolerate the baby noises but not anyone else in the house. Thanks for the feedback! Robin

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> Also, has this happened to any of you before? My daughter was

on her way to the kitchen to eat and she heard a spoon click on a

bowl. (My husband was feeding the baby) and before she even saw

anything she ran down the hall and said she didn't want to eat.

When I told her it was the baby, she went into the kitchen and

started eating. She (so far) hasn't had any issues with the baby at

all and she is 11months old. I'm really trying to understand all

this, but it's weird to me ( I am not a sufferer) that she can

tolerate the baby noises but not anyone else in the house.

Hi.

It's been awhile since you posted this message but it's been

haunting me. I just feel so bad for your daughter.

I've suffered 4s since about 8 or 9 and all the postings about

children really get to me.

I'm only triggered by certain people and I don't know why.

Several times I've started becoming mad at my neighbors for playing

music loudly and it turns out that I have the tv on downstairs. My

neighbor has only played music loud a handful of times in three

years.

It's funny how that fear of the noise becomes almost worse than the

noise itself. I say almost because I've forced myself to listen a

few times trying to demystify it and it was terrible. It was

torture. Trying to ignore the noise is about the same as it would be

to stand outside in 75 mph wind and forget it is windy. Your senses

are just too stimulated.

Anyway, just didn't want you to think that your child was acting

weird withing 4s paramaters because she isn't.

I'm 41 and I still pretty much run if I think a person who bothers

me is making the noise. And sometimes it turns out it was someone

else and I feel so releived.

Good luck with your daughter. I have two daughters and I'm worried

sick they will get this.

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Sniffing and humming could be compulsions but also could be a way to

defend against the sound. The answer to the magical question

is " Empathy " Imagine you have your hands behind your back and someone

throws an ice pick at your face, now keep your hands behind your

back. Quite impossible as there is no chance you would let a sharp

object come towards you without putting your hands up in defense, now

is this a compulsion or an automatic response to the situation?

Having a problem like this is very lonely and we think that we are

crazy and we just don't get how others can handle these noises just

the same as they don't get how we can't handle them. It gets

embarrassing and it might be safe to say that your daughter is not

telling you everything for fear you wouldn't understand. If people

would just stop questioning us on what irritates us, if they would

just get it that in the middle of a conversation if we switch off we

are not being rude, if they would just let us get mad at what they

think is nothing without saying What is it? Whats wrong with you? Why

are you ignoring me? Then life would be more tolerable. If people

would ignore us when we respond to a sound, but stop making the noise

that made us respond then life would be more tolerable. If we ask

someone to stop whistling or jingling keys, and they would stop and

carry on as if nothing happened, without need of apology, rather than

whistle louder or jingle the keys in front of our face thinking that

its funny when it is very cruel, then perhaps life would be

tolerable. And yes I myself when I hear a trigger sound imitate it,

if you eat with me expect me to bang a fork on the plate each time

you do, even if I have no food left (that's if I sit with you at the

table in the first place), cutlery banging on plates is torture to

the brain. And while at the dinner table if I block my ears then I am

not being rude I am trying my best to be a part of something which I

feel so lonely when it takes place, the family meal. Anyhow, pardon

the long windedness of this post but if you can Robin, look at the

foods your daughter eats, I myself have cut out stimulants such as

coffee which has helped dramatically. The sounds still bug me but I

tend to recover mentally more quickly without dwelling on the sound

too much.

>

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Wow, this is so hard to hear and I wish there were answers. I am feeling

pretty down today and cannot express how much this makes me feel like " this

is hell and when we die all this stuff will be over and we will be in

heaven " . I am 50 and who cares but when the kids feel the way they do it

rips my heart out! We have to make this public for the kids!!!!!!! I write

to all the talk shows with no replies....I guess they think it is better to

have a whole show dedicated to women buying the right

BRA!!!!!!!!!!!!!!!!!!!!!!

>

>Reply-To: Soundsensitivity

>To: Soundsensitivity

>Subject: Re: Hi new here need suggestions and advice

>Date: Mon, 19 Mar 2007 20:47:45 -0700 (PDT)

>

>Thanks for the reply about my daughter. We are trying to do everything to

>help her, but nothing has really worked. My husband and I try to

>accomodate her by wearing socks or slippers (she doesn't like the sound of

>someone walking on the bare floors barefoot she will just stare at our

>feet). We let her use her ear phones and listen to music during dinner,

>but then it became that she couldn't even watch us eat. She would cover

>her eyes. It isn't the breathing noises alone, she asked me to sit down

>the other day because she could see my chest moving. We pushed the swishy

>pants to the back of the closet, but now she can't stand the sound of my

>jeans. Another new noise is my keys jingling hanging from my purse. I

>hook them to the strap so I don't have to search for them with the baby.

>(See, I feel like I have to validate why I am doing things now) I don't

>know what to do. Each time we make a change a new noise starts. It's like

>she hears something for the first time

> and gets obsessed. This is where I wonder about the link to OCD. Do any

>of you have to make a respond or noise or movement when you hear the

>trigger noises? My daughter will sniff really loud and that's how we know

>there is an issue at the time (besides the stare). Sometimes she will

>start humming loudly. So, the obsession would be noises and the compulsion

>would be sniffing, humming, staring or fleeing? So, does she have OCD,

>SSSS, or both? I suppose it doesn't matter what it is, how do I help her

>without giving up or becoming frustrated? That is the magical question,

>huh?

>

>

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I suppose it doesn't matter what it is, how do I help her without

giving up or becoming frustrated? That is the magical question, huh?

>

Anything you do will be better than the response that many of us had

from our parents. " Get over it " " don't let every little thing bother

you " " why are you doing this to me "

You can't walk on eggshells around her all the time. Allow her to

remove herself from the situation whenever possible. Explain, explain,

explain and always let her know that you love her just as she is.

My husbands wiggling is driving me crazy !!!!!

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