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I LOVE your attitude Pamela and I totally understand. I was surprised to find out, however, that even deaf people have tinnitis and other such problems.

There was a time 8-9 years ago when I came down with Hyperacusis in my case that I just wanted my ears to be gone, they were causing such trouble. But since then, when I listen to birds sing and the sounds of wildlife and other critters, I think what a blessing of a gift we do have with hearing.

I'm going to start listening to a tabletop set on " rain " and then interdesperse that with just welcoming sounds in and listening to lovely music when I can to help feel " safe " again with noises. I don't know if I will EVER like close living noises, I am not sure I am wired for that but at least I can do my best and that's all we can ever do, eh?!

Jane

Reply-To: Soundsensitivity

Date: Wed, 8 Feb 2006 05:22:36 -0800 (PST)

To: Soundsensitivity

Subject: Re: Reactions----new heading

Hi Jane,

I attempt (with everything I've got) to stay in the present.....which seems overwhelming enough at times when attempting to live with this. Morphing into the future of my elderly years only tends to bring about more anxiety......

HOWEVER, having typed those words I will again write: At age 48, I PRAY for deafness to come to me in my old age. Oddly enough -- that is the one thing that seems a possible blessing.......as I've typed before: I intend to learn the sign language of the deaf, and have advised both of my kids along with my husband to learn it as well.....there will be no hearing aids for this old lady!!!!

Jane Parks-McKay wrote:

<<.....am I postponing perhaps strengthening myself to live, say, in 20 years as an elderly person in a loud, crowded, impersonal nursing home with the tv's on all the time......Thoughts Marsha, thoughts others?.....>>

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ah yes, controlling one's emotions. I don't think one can ever control emotions but we can manage it. Whether it is out of simple courtesy toward others, or doing the right thing by responding graciously to others but yet, taking care of oneself, I do tend to think more that we can MANAGE them.

There's a good book out there called " Managing your Emotions " or something like that. I am a Christian and of course, letting it all hang out just because we are having problems internally is simply not part of what we are taught to do. Too, my family taught me to not do that so it's kind of been drilled in my head. Not to confuse this with my Marine daughter thing of holding in emtotions either. Like life itself, balance is the key. The balance of expressing yourself but in an appropriate way that will not hurt yourself or others.

Now, having said all of that, for me, and this is me I'm speaking about, I calmed WAY down internally and externally by changing my diet to organic as much as possible. Cutting out stimulating food like a lot of sweets, etc. and watching my carbs watched. The typical diabetic diet (and I am not diabetic) is probably one of the most healthy ones to follow and I lost tons of weight on it, have a long way to go though still!

Exercise helps me a bit but I have found if something is broken so to speak, I make lists, ponder them, do what is necessary to get to the bottom of it and try to " fix " it or at least, manage it.

For me, reading my Bible every morning, the Upper Room daily devotional, too, makes all the difference.

I would be a total basket case.

I will be soon starting some mindfulness meditation and deep breathing through the day when I get a chance which I think will round a lot of this out.

And, well, the Serenity prayer. Even though I don't drink or anything, I printed out the Serenity Prayer from Google, the whole prayer and I read that every single night. It helps me realize that life is much of doing our best and then letting it go...

Jane

Reply-To: Soundsensitivity

Date: Wed, 8 Feb 2006 06:02:00 -0800 (PST)

To: Soundsensitivity

Subject: Re: Reactions----new heading

Mayuri Mandel wrote:

<<.....Sorry for being so wordy, but does anything I've said here resonates with anyone?.........I also recognize that there are times when I am simply not at all in control over my reactions, and because I'm socially conditioned enough to avoid lashing out and hurting others, I turn all that violence inward on myself. For me, **at this moment in time,** that is not a choice. I hope to keep widening that gap so that I DO have more choice about this, but if I'm being truly honest with myself, I don't right now......>>

Yes, Mayuri -- I am certain that I do this as well. As I've stated previously, I also deal with anxiety and anorexia -- both are connected to this disorder. I am certain of it. The sounds of others eating or chewing gum, and sometimes even the sound of myself attempting to eat make me crazy at times.....and, at other times it's not so bad.......

<<.....The trick, I'm finding, is recognizing that those answers can change rapidly from moment to moment, even with the same stimulus. So I'm trying to remain open to that. It's really, **really** hard. That level of continual awareness and self-monitoring is exhausting to me, but I have to keep reminding myself that the sound of heels on pavement or a throat-clearer in the next room doesn't always affect me with the same level of severity, so I have to stay tuned and see what effect it's having on me at THIS moment in time, knowing that it will be uncomfortable but that it might not actually be quite as bad as it sometimes is. And there's the gap, winking at me saucily while it plays hard-to-get......>>

I am also curious and would like to pose this question......I am the recipient of migraine headaches. Sound seems to affect me more in the days prior to the pain.....does anyone else experience this???? (And yes, I've had the studies done -- extensively......there are no tumors or abnormalities.....the migraines are just something that I've had for the past 45 years. They did intensify at age 11 which was about the same time that sound sensitivity came to stay as well......)

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I too suffer from migraines where I am extremely sensative to sound

and light. I have had them ever since I was a kid along with sound

sensitivity. I am trying to recall if one came first. I still

remember my lovely pediatrician telling me my migraines were from a

lack of sleep since I liked to go into dark rooms when I had a

migraine.

>

> <<.....Sorry for being so wordy, but does anything I've said here

resonates with anyone?.........I also recognize that there are times

when I am simply not at all in control over my reactions, and because

I'm socially conditioned enough to avoid lashing out and hurting

others, I turn all that violence inward on myself. For me, **at this

moment in time,** that is not a choice. I hope to keep widening that

gap so that I DO have more choice about this, but if I'm being truly

honest with myself, I don't right now......>>

>

> Yes, Mayuri -- I am certain that I do this as well. As I've

stated previously, I also deal with anxiety and anorexia -- both are

connected to this disorder. I am certain of it. The sounds of

others eating or chewing gum, and sometimes even the sound of myself

attempting to eat make me crazy at times.....and, at other times it's

not so bad.......

>

> <<.....The trick, I'm finding, is recognizing that those answers

can change rapidly from moment to moment, even with the same

stimulus. So I'm trying to remain open to that. It's really,

**really** hard. That level of continual awareness and self-

monitoring is exhausting to me, but I have to keep reminding myself

that the sound of heels on pavement or a throat-clearer in the next

room doesn't always affect me with the same level of severity, so I

have to stay tuned and see what effect it's having on me at THIS

moment in time, knowing that it will be uncomfortable but that it

might not actually be quite as bad as it sometimes is. And there's

the gap, winking at me saucily while it plays hard-to-get......>>

>

> I am also curious and would like to pose this question......I am

the recipient of migraine headaches. Sound seems to affect me more

in the days prior to the pain.....does anyone else experience

this???? (And yes, I've had the studies done --

extensively......there are no tumors or abnormalities.....the

migraines are just something that I've had for the past 45 years.

They did intensify at age 11 which was about the same time that sound

sensitivity came to stay as well......)

>

>

>

>

>

> ---------------------------------

> Yahoo! Mail - Helps protect you from nasty viruses.

>

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I think we're actually just evolved and all of our maladies will

disintegrate when society catches up to our consciousness.

Ever read anything by Whitley Strieber?

> >

> > <<.....Sorry for being so wordy, but does anything I've said

here

> resonates with anyone?.........I also recognize that there are

times

> when I am simply not at all in control over my reactions, and

because

> I'm socially conditioned enough to avoid lashing out and hurting

> others, I turn all that violence inward on myself. For me, **at

this

> moment in time,** that is not a choice. I hope to keep widening

that

> gap so that I DO have more choice about this, but if I'm being

truly

> honest with myself, I don't right now......>>

> >

> > Yes, Mayuri -- I am certain that I do this as well. As I've

> stated previously, I also deal with anxiety and anorexia -- both

are

> connected to this disorder. I am certain of it. The sounds of

> others eating or chewing gum, and sometimes even the sound of

myself

> attempting to eat make me crazy at times.....and, at other times

it's

> not so bad.......

> >

> > <<.....The trick, I'm finding, is recognizing that those answers

> can change rapidly from moment to moment, even with the same

> stimulus. So I'm trying to remain open to that. It's really,

> **really** hard. That level of continual awareness and self-

> monitoring is exhausting to me, but I have to keep reminding myself

> that the sound of heels on pavement or a throat-clearer in the next

> room doesn't always affect me with the same level of severity, so I

> have to stay tuned and see what effect it's having on me at THIS

> moment in time, knowing that it will be uncomfortable but that it

> might not actually be quite as bad as it sometimes is. And there's

> the gap, winking at me saucily while it plays hard-to-get......>>

> >

> > I am also curious and would like to pose this question......I

am

> the recipient of migraine headaches. Sound seems to affect me more

> in the days prior to the pain.....does anyone else experience

> this???? (And yes, I've had the studies done --

> extensively......there are no tumors or abnormalities.....the

> migraines are just something that I've had for the past 45 years.

> They did intensify at age 11 which was about the same time that

sound

> sensitivity came to stay as well......)

> >

> >

> >

> >

> >

> > ---------------------------------

> > Yahoo! Mail - Helps protect you from nasty viruses.

> >

>

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I used to wish to be deaf to the same extent as you, Pam... but

recently (last week) I " went deaf " in one ear due to a cold. This has

NEVER happened to me in all of my 23 years... I was nervous that this

would be permanent (I have a tendency to panic) but it only lasted

the weekend. I will never after that experience wish to go deaf

again... It made be realize, that although I am a very irritated

person in particular situations, that my " hyper-hearing " makes me an

incredibly talented, perceptive, intuitive person. This is something

I wouldn't give up. I would rather just give up being irritable,

which with an open mind I continue to work on. I'm glad that I have

improved my tolerance, especially at a young age... this all started

when I was only six... maybe in a few more years it will be gone. It

makes me feel fortunate that I am not in your same situation, and I

pray that you will overcome this... you may never hear the sweet

voices of your grandchildren (among their gum smacking). But

anyway... one remaining problem that I'm looking for help on: Is

there a polite way to ask people to " STOP PLEASE! " For example, " your

gum chewing is loud and distracting, will you please STOP! " If I

could ask for what I want without fear of offending someone I think I

could get along better... I also have a problem with snoring (ex.

an " ass " was snoring on the bus and it pissed me off, I wanted to

kick him- thank GOD for Headphones " ) Anyone relate to this?? Isn't it

quite RUDE? O.K. enough from me!

> <<.....am I postponing perhaps strengthening myself to live,

say, in 20 years as an elderly person in a loud, crowded, impersonal

nursing home with the tv's on all the time......Thoughts Marsha,

thoughts others?.....>>

>

>

> ---------------------------------

> Brings words and photos together (easily) with

> PhotoMail - it's free and works with Yahoo! Mail.

>

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Your comment didn't sink in until I was on my way home, surrounded by

commuters, with nowhere to escape. Somehow I don't think my husband

will buy it.

I have never read anything by Whitley Strieber. What do you

recommend?

> > >

> > > <<.....Sorry for being so wordy, but does anything I've said

> here

> > resonates with anyone?.........I also recognize that there are

> times

> > when I am simply not at all in control over my reactions, and

> because

> > I'm socially conditioned enough to avoid lashing out and hurting

> > others, I turn all that violence inward on myself. For me, **at

> this

> > moment in time,** that is not a choice. I hope to keep widening

> that

> > gap so that I DO have more choice about this, but if I'm being

> truly

> > honest with myself, I don't right now......>>

> > >

> > > Yes, Mayuri -- I am certain that I do this as well. As I've

> > stated previously, I also deal with anxiety and anorexia -- both

> are

> > connected to this disorder. I am certain of it. The sounds of

> > others eating or chewing gum, and sometimes even the sound of

> myself

> > attempting to eat make me crazy at times.....and, at other times

> it's

> > not so bad.......

> > >

> > > <<.....The trick, I'm finding, is recognizing that those

answers

> > can change rapidly from moment to moment, even with the same

> > stimulus. So I'm trying to remain open to that. It's really,

> > **really** hard. That level of continual awareness and self-

> > monitoring is exhausting to me, but I have to keep reminding

myself

> > that the sound of heels on pavement or a throat-clearer in the

next

> > room doesn't always affect me with the same level of severity, so

I

> > have to stay tuned and see what effect it's having on me at THIS

> > moment in time, knowing that it will be uncomfortable but that it

> > might not actually be quite as bad as it sometimes is. And

there's

> > the gap, winking at me saucily while it plays hard-to-get......>>

> > >

> > > I am also curious and would like to pose this question......I

> am

> > the recipient of migraine headaches. Sound seems to affect me

more

> > in the days prior to the pain.....does anyone else experience

> > this???? (And yes, I've had the studies done --

> > extensively......there are no tumors or abnormalities.....the

> > migraines are just something that I've had for the past 45

years.

> > They did intensify at age 11 which was about the same time that

> sound

> > sensitivity came to stay as well......)

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Yahoo! Mail - Helps protect you from nasty viruses.

> > >

> >

>

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I've only read Breakthrough--the Next Step. It's the follow up book to Communion. He's very "out there" as far as introducing new concepts.. it's all pretty crazy. I just tried to take in & integrate what I could.

Here's a link to his -->online journals <--.

My roommate introduced me to all this. I'm not a conspiracy theorist myself. I just have a select few ideas/models of consciousness.

The basic concepts should be pretty easy for hyperacusistics to relate to their own experience. The average subway goer--eh..not so much.

> > > > > > > > <<.....Sorry for being so wordy, but does anything I've said > > here > > > resonates with anyone?.........I also recognize that there are > > times > > > when I am simply not at all in control over my reactions, and > > because > > > I'm socially conditioned enough to avoid lashing out and hurting > > > others, I turn all that violence inward on myself. For me, **at > > this > > > moment in time,** that is not a choice. I hope to keep widening > > that > > > gap so that I DO have more choice about this, but if I'm being > > truly > > > honest with myself, I don't right now......>>> > > > > > > > Yes, Mayuri -- I am certain that I do this as well. As I've > > > stated previously, I also deal with anxiety and anorexia -- both > > are > > > connected to this disorder. I am certain of it. The sounds of > > > others eating or chewing gum, and sometimes even the sound of > > myself > > > attempting to eat make me crazy at times.....and, at other times > > it's > > > not so bad.......> > > > > > > > <<.....The trick, I'm finding, is recognizing that those > answers > > > can change rapidly from moment to moment, even with the same > > > stimulus. So I'm trying to remain open to that. It's really, > > > **really** hard. That level of continual awareness and self-> > > monitoring is exhausting to me, but I have to keep reminding > myself > > > that the sound of heels on pavement or a throat-clearer in the > next > > > room doesn't always affect me with the same level of severity, so > I > > > have to stay tuned and see what effect it's having on me at THIS > > > moment in time, knowing that it will be uncomfortable but that it > > > might not actually be quite as bad as it sometimes is. And > there's > > > the gap, winking at me saucily while it plays hard-to-get......>>> > > > > > > > I am also curious and would like to pose this question......I > > am > > > the recipient of migraine headaches. Sound seems to affect me > more > > > in the days prior to the pain.....does anyone else experience > > > this???? (And yes, I've had the studies done -- > > > extensively......there are no tumors or abnormalities.....the > > > migraines are just something that I've had for the past 45 > years. > > > They did intensify at age 11 which was about the same time that > > sound > > > sensitivity came to stay as well......)> > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Yahoo! Mail - Helps protect you from nasty viruses.> > > >> > >> >>

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