Re: Sleep apnea

[Guest guest]

Terry,

Thank you so much for all the information! I am expecting a packet in the mail

(should have checked my mail today! lol) and we will see if they are as detailed

as you were! (probably not) I worry that he will have a hard time falling asleep

with all those electrodes hooked up to him and I worry if I will be able to fall

asleep at all! My husband is a long haul truck driver, so he is rarely home, so

this will be up to me and Tim, and I will have to send Garrett (my 7 yr old) to

a friends house over night.

I hope that they will find the problem and fix it! Does Craig fall asleep during

the day alot? What caused you to have these tests? Was it just lack of sleep on

his part? or what?

Also, thanks for the info on the gas. I think that is the next issue that we may

have to look into. Although, I really think some of it is just " being a rude

boy! " lol on Tim's part.

Let us know what you find out on the sleep apnea please! We can compare notes!

Kristy

Terry Van Evera wrote:

Hi, Kristy, I took my son, Craig, who is 15, to a Sleep Disorders Center

for an overnight on March 31st for the same types of issues you experience

with Tim. There were two beds and only the one he was in was " watched " . I

was only on camera when he first went t o sleep and needed to be calmed and

once when he awoke during the night. They affixed 23 electrodes to him

(mostly to his head, but also to his chest abdomen and legs to monitor his

brain waves, breathing pattern, heart for seven hours. It took awhile to

put the electrodes on and I wish they had given me more information about

affixing them so that my son could have been better prepared for the

procedure but he dealt with it very well. Also, had we had a bit more

information we would have been better prepared for showering the gunk off in

the morning (it took some scrubbing). Anyway, they hooked all the wires at

the top of his head " like a ponytail " and plugged them into a box that was

placed behind the pillow and plugged into the monitor beside the bed. They

said he should have something comfortable to sleep in but said that a

t-shirt and gym shorts worked best. He watched a video while they set him

up and we tried to pretty much follow his usual bedtime routine. He is

afraid of the dark and they had a nightlight for his use. They said it

would take 2 -3 weeeks for the results so I am expecting to get some answers

this coming week. I had begun recording his sleep last fall and discovered

that we get 7 nights each of undisturbed sleep each month. Hope this

information is helpful to you.

Incidentally, I am the same Mom who had looked for information abaout gas

problems with mds folks last November and this is something else we are

currently working on. We are beginning to see results - Out

gastrointerologist has him avoiding high fructose corn syrup (it is in a

tremendous amount of processed foods) and he takes lactobicillus every

morning. For him, this is helping. Even school has remarked about the

improvement. I didn't want to report back until we were seeing something

positive.

Terry, Mom to Craig, 15mds

Sleep apnea

> Hi everyone,

> Today I took Tim to the doctor for his annual thyroid check and while we

were there I told the doctor that we have a HUGE problem with Tim falling

asleep at inappropriate times. He falls asleep in class, he falls asleep in

church, he falls asleep in the middle of a party!, he can fall asleep any

where at any time! And, when he is asleep, he is SOUND asleep! This has been

an ongoing problem for several years that I just never really addressed with

the doctor.

> The doctor and I talked about it and he thinks that Tim has sleep apnea.

He said that people with sleep apnea do not get enough sleep during the

night and always feel tired in the day because of it.

> When Tim was born (8 weeks premature) he stayed in the hospital for 4

weeks BECAUSE of apnea attacks.(10-30 a day) After 3 weeks old, he never

really had them again. When I began going through the hospital records, I

read that my oldest son Arron had apnea when he was born. (something they

failed to tell me!) Arron has always had sleep apnea and I am pretty sure

that I have it too.

> Next Saturday, we have to do a sleep study at the hospital. We will have

to stay overnight at the hospital and I guess they will watch us sleep! LOL

I am NOT looking forward to this at all!

> Has anyone else ever dealt with sleep apnea with their kids or even

someone that doesn't have disabilities? If you have any info on this, I

would greatly appreciate it. This is just one more stress I don't need right

now!!!!!

> Thanks,

> Kristy

>

>

>

[Guest guest]

Sleep apnea

>

>

> > Hi everyone,

> > Today I took Tim to the doctor for his annual thyroid check and while we

> were there I told the doctor that we have a HUGE problem with Tim falling

> asleep at inappropriate times. He falls asleep in class, he falls asleep

in

> church, he falls asleep in the middle of a party!, he can fall asleep any

> where at any time! And, when he is asleep, he is SOUND asleep! This has

been

> an ongoing problem for several years that I just never really addressed

with

> the doctor.

> > The doctor and I talked about it and he thinks that Tim has sleep apnea.

> He said that people with sleep apnea do not get enough sleep during the

> night and always feel tired in the day because of it.

> > When Tim was born (8 weeks premature) he stayed in the hospital for 4

> weeks BECAUSE of apnea attacks.(10-30 a day) After 3 weeks old, he never

> really had them again. When I began going through the hospital records, I

> read that my oldest son Arron had apnea when he was born. (something they

> failed to tell me!) Arron has always had sleep apnea and I am pretty sure

> that I have it too.

> > Next Saturday, we have to do a sleep study at the hospital. We will have

> to stay overnight at the hospital and I guess they will watch us sleep!

LOL

> I am NOT looking forward to this at all!

> > Has anyone else ever dealt with sleep apnea with their kids or even

> someone that doesn't have disabilities? If you have any info on this, I

> would greatly appreciate it. This is just one more stress I don't need

right

> now!!!!!

> > Thanks,

> > Kristy

> >

> >

> >

[Guest guest]

Kristy, Craig has falen asleep or acted exrtremely tired during the day for

many years, I guess for as long as he has been. In elementary school they

were always sending home notes in his book that he was tired, could hardly

stay awake, fell asleep, etc. I usually would have to carry him off the

school bus " like a sack of potatoes over my shoulder " He was extremely

difficult to feed and ate very slow. I, thought that might have something

to do with the falling asleep - not enough energy to get through the day but

I was also often up with him during the night. His pediatrician put him on

an antihistimine to help him sleep, to stimulate his appetite and to help

with allergies. It helped some over they years and we fell into the pattern

of being up between 1 - 3 times a night. But he has always been tired

during the day and will fall asleep immediately if he gets in the car (I

take him to a karate class that is 6 minutes from home and he will be sound

asleep before we get there) and just generally acts tired most of the time.I

figured he is sleep deprived (me 2) and he could function better if we could

get to the root of his problem instead of band-aiding it We have during the

past year tried every psychological thing we could think of to relax him so

he would sleep at night to no avail. So I talked with the pediatarician

about obstructive sleep apnea or meds to help him get into deep sleep. We

decided to start with the sleep center at this point. I don't think it is

something that he would have cooperated with at a younger age. I am anxious

to know if they discovered anything helpful. If so, perhaps it will help

him not only sleep all night, but be able to focus and attend better during

the day and not get so irritable. On one hand I feel guilty not discussing

this with the doctor long ago, on the other I really don't think it would

have been helpful without his cooperation. Good luck with your sleepover.

Let me know how you make out. Terry

Sleep apnea

>

>

> > Hi everyone,

> > Today I took Tim to the doctor for his annual thyroid check and while we

> were there I told the doctor that we have a HUGE problem with Tim falling

> asleep at inappropriate times. He falls asleep in class, he falls asleep

in

> church, he falls asleep in the middle of a party!, he can fall asleep any

> where at any time! And, when he is asleep, he is SOUND asleep! This has

been

> an ongoing problem for several years that I just never really addressed

with

> the doctor.

> > The doctor and I talked about it and he thinks that Tim has sleep apnea.

> He said that people with sleep apnea do not get enough sleep during the

> night and always feel tired in the day because of it.

> > When Tim was born (8 weeks premature) he stayed in the hospital for 4

> weeks BECAUSE of apnea attacks.(10-30 a day) After 3 weeks old, he never

> really had them again. When I began going through the hospital records, I

> read that my oldest son Arron had apnea when he was born. (something they

> failed to tell me!) Arron has always had sleep apnea and I am pretty sure

> that I have it too.

> > Next Saturday, we have to do a sleep study at the hospital. We will have

> to stay overnight at the hospital and I guess they will watch us sleep!

LOL

> I am NOT looking forward to this at all!

> > Has anyone else ever dealt with sleep apnea with their kids or even

> someone that doesn't have disabilities? If you have any info on this, I

> would greatly appreciate it. This is just one more stress I don't need

right

> now!!!!!

> > Thanks,

> > Kristy

> >

> >

> >