RE: Re: Yet another newcomer here :)

[Guest guest]

Bonnie: we are so pleased you found us, and we you. You are, indeed, among friends.

Jane, California, USA

Reply-To: Soundsensitivity

Date: Tue, 03 Jan 2006 09:28:55 -0000

To: Soundsensitivity

Subject: Re: Yet another newcomer here

You and I must have been separated at birth!!!!!!

>

> Hi all,

>

> I joined this group yesterday and I can already tell that I'm

among people

> who'll understand. I'm 23 years old and live in the UK. I've

been

> suffering from sound sensitivities since I was a young child and

had to

> share a bedroom with my younger sister. The sound of her breathing

when she

> was asleep used to upset me so much that I would hit her, put

pillows over

> her face, pinch her arms - I would try anything to get her to roll

over or

> wake up. This got me into a lot of trouble with my mum and grandma

(with

> whom I lived) and they thought I was very selfish. They didn't

understand

> how angry and upset the breathing sounds made me. Eventually I

started

> taking my bedding downstairs and sleeping on the sofa, but I got

into

> trouble for that, too, and was ordered back to bed. In addition to

that, my

> mum and gran would always watch TV after we'd gone to bed, and I

could hear

> it through the floor. Bedtimes were not fun.

>

> As I got older I gradually realised that I have more and more

> sensitivities - sound, sight, and touch mainly. The sound of

people eating

> (and the sight of it, too), sniffing, whistling, wheezing, coughing

> repeatedly, crying, brushing their teeth, scratching their heads,

walking on

> carpet with bare feet... and also some other non-human noises,

like ticking

> clocks, clicking computer mice, tapping keys (on a keyboard), bass

music,

> vacuuming, alarms/sirens, static sounds (like the sound that comes

out of

> the TV that nobody else seems to be able to hear), unexpected

bangs or

> shouts (these make me cry in absolute terror), scissors cutting

anything,

> fingernails scratching on top of cotton t-shirt material (sight

and sound).

> I also hate the feel of sandpaper, velvet, nail files, labels in

clothing,

> anything around my neck, anything touching the front of my neck,

and having

> my hair pulled even gently makes me scream out in pain - I think

my scalp is

> sensitive. Then there are the sight sensitivities, like clusters of

> anything, seeing people eating or picking their

teeth/fingers/skin, people

> twirling their hair, any repetitive patterns, any tiny lights on

electrical

> equipment (the little green and red on/off lights, for example),

the way you

> can see the Adam's apple on a man's neck (I have to turn away when

I see a

> man with a really bulgy Adam's apple - sounds crazy, I know). So

they are

> mainly sound sensitivities, but I am also sensitive to certain

sensations

> and sights, as well as some textures in food and even the sound of

certain

> words!!! Most of the words have something to do with either food

or sex.

>

> I explained my problem to my mum, who eventually started to

understand but

> didn't know what it was, and I explained it to my doctor - who had

no idea.

> He suggested tinnitus and I didn't understand where he got that

from. I

> started wearing earplugs at night, which helped a LOT, although I

started to

> get ringing in my ears after wearing them for a while. I started

university

> just over four years ago (I have since graduated) and whilst I was

there, I

> started seeing an occupational therapist to discuss my problems,

as I was

> having a great deal of trouble in exams. In one particular exam

(one of my

> finals - a very important exam) I stormed out in floods of tears

because

> they were showing a film next door and I could hear the muffled

voices. My

> teacher was very unsympathetic at first and basically told me I

had to deal

> with it, that she was sure other people were " finding it annoying "

as well,

> and I told her it wasn't the same for them. She said I wanted

special

> treatment and she couldn't give it to me. So what she did in the

end was ask

> the group if any of them wanted to move into a new room and

several people

> said they did. So those people moved to a new room and that way

everyone had

> been given the choice - thank goodness, or I wouldn't have been

able to

> continue with my exam.

>

> So anyway (sorry - I'm going on a bit, aren't I?) the occupational

therapist

> went through a rather lengthy period of assessment with me and

basically

> told me I have sensory defensiveness. This was a major relief for

me, to

> hear someone confirm that I wasn't a freak of nature and that I

had a real

> medical condition that was causing me to react in this way to

things. She

> wrote up a very long sensory report for me and I was very pleased

with it,

> because it outlined most of the things we had discussed. The only

problem

> was that sensory defensiveness did not account for many of my

> sensitivities - no textbook definition of sensory defensiveness

mentioned

> the eating noises, the breathing noises, the people picking their

teeth, the

> people cutting up their food ready for eating. It was a long time

before I

> discovered references to soft sound sensitivity syndrome and

honestly, when

> I first read the description of it I almost jumped up and down

screaming

> " that's ME! that's ME! " because it was just spot on. Everything

was spot on.

>

> So I think I have now discovered that I do have sensory

defensiveness,

> including hyperacusis, but that I also have soft sound sensitivity

syndrome.

> I am sure of it.

>

> And that was my rather long introduction. Sorry. :/ I am very

pleased to be

> here and will try not to write this much next time.

>

> xxx Bonnie

>

[Guest guest]

Well, if I am watching a movie and the camera pans around quickly I cannot

watch that. Let me think about this some more!!

>

>Reply-To: Soundsensitivity

>To: Soundsensitivity

>Subject: Re: Yet another newcomer here

>Date: Tue, 25 Apr 2006 01:12:35 -0000

>

>I'm going thru all of the old threads and have come across this

>one...it's so odd because when I was younger (doesn't happen anymore)

> I would sometimes have a hard time looking thru the front windshield

>of a car, esp. while the wipers were going...I still have trouble

>looking thru bars (cage.)

>Any progress w/this, Pia?

>

>

>

> >

> > Hi! I joined last week and I hear you!! The only thing I can add is

>that I

> > can't look at things with holes. Even if a slice of swiss cheese has

>holes

> > in a certain pattern it makes me crazy. Weird, yup!

> > Aren't we all!! It really seems like this is exploding in front of

>our eyes.

> > More and more people are seeking reassurance that they are not alone in

> > this! I dropped out of classes for people chewing gum and so on...I

>like

> > your long letters!!

> >

> >

> > >

> > >Reply-To: Soundsensitivity

> > >To: <soundsensitivity >

> > >Subject: Yet another newcomer here

> > >Date: Wed, 7 Dec 2005 17:34:43 -0000

> > >

> > >Hi all,

> > >

> > >I joined this group yesterday and I can already tell that I'm among

>people

> > >who'll understand. I'm 23 years old and live in the UK. I've been

> > >suffering from sound sensitivities since I was a young child and had to

> > >share a bedroom with my younger sister. The sound of her breathing

>when she

> > >was asleep used to upset me so much that I would hit her, put

>pillows over

> > >her face, pinch her arms - I would try anything to get her to roll

>over or

> > >wake up. This got me into a lot of trouble with my mum and grandma

>(with

> > >whom I lived) and they thought I was very selfish. They didn't

>understand

> > >how angry and upset the breathing sounds made me. Eventually I started

> > >taking my bedding downstairs and sleeping on the sofa, but I got into

> > >trouble for that, too, and was ordered back to bed. In addition to

>that, my

> > >mum and gran would always watch TV after we'd gone to bed, and I

>could hear

> > >it through the floor. Bedtimes were not fun.

> > >

> > >As I got older I gradually realised that I have more and more

> > >sensitivities - sound, sight, and touch mainly. The sound of people

>eating

> > >(and the sight of it, too), sniffing, whistling, wheezing, coughing

> > >repeatedly, crying, brushing their teeth, scratching their heads,

>walking

> > >on

> > >carpet with bare feet... and also some other non-human noises, like

>ticking

> > >clocks, clicking computer mice, tapping keys (on a keyboard), bass

>music,

> > >vacuuming, alarms/sirens, static sounds (like the sound that comes

>out of

> > >the TV that nobody else seems to be able to hear), unexpected bangs or

> > >shouts (these make me cry in absolute terror), scissors cutting

>anything,

> > >fingernails scratching on top of cotton t-shirt material (sight and

>sound).

> > >I also hate the feel of sandpaper, velvet, nail files, labels in

>clothing,

> > >anything around my neck, anything touching the front of my neck,

>and having

> > >my hair pulled even gently makes me scream out in pain - I think my

>scalp

> > >is

> > >sensitive. Then there are the sight sensitivities, like clusters of

> > >anything, seeing people eating or picking their teeth/fingers/skin,

>people

> > >twirling their hair, any repetitive patterns, any tiny lights on

>electrical

> > >equipment (the little green and red on/off lights, for example),

>the way

> > >you

> > >can see the Adam's apple on a man's neck (I have to turn away when

>I see a

> > >man with a really bulgy Adam's apple - sounds crazy, I know). So

>they are

> > >mainly sound sensitivities, but I am also sensitive to certain

>sensations

> > >and sights, as well as some textures in food and even the sound of

>certain

> > >words!!! Most of the words have something to do with either food or

>sex.

> > >

> > >I explained my problem to my mum, who eventually started to

>understand but

> > >didn't know what it was, and I explained it to my doctor - who had

>no idea.

> > >He suggested tinnitus and I didn't understand where he got that from. I

> > >started wearing earplugs at night, which helped a LOT, although I

>started

> > >to

> > >get ringing in my ears after wearing them for a while. I started

>university

> > >just over four years ago (I have since graduated) and whilst I was

>there, I

> > >started seeing an occupational therapist to discuss my problems, as

>I was

> > >having a great deal of trouble in exams. In one particular exam

>(one of my

> > >finals - a very important exam) I stormed out in floods of tears

>because

> > >they were showing a film next door and I could hear the muffled

>voices. My

> > >teacher was very unsympathetic at first and basically told me I had

>to deal

> > >with it, that she was sure other people were " finding it annoying "

>as well,

> > >and I told her it wasn't the same for them. She said I wanted special

> > >treatment and she couldn't give it to me. So what she did in the

>end was

> > >ask

> > >the group if any of them wanted to move into a new room and several

>people

> > >said they did. So those people moved to a new room and that way

>everyone

> > >had

> > >been given the choice - thank goodness, or I wouldn't have been able to

> > >continue with my exam.

> > >

> > >So anyway (sorry - I'm going on a bit, aren't I?) the occupational

> > >therapist

> > >went through a rather lengthy period of assessment with me and

>basically

> > >told me I have sensory defensiveness. This was a major relief for

>me, to

> > >hear someone confirm that I wasn't a freak of nature and that I had

>a real

> > >medical condition that was causing me to react in this way to

>things. She

> > >wrote up a very long sensory report for me and I was very pleased

>with it,

> > >because it outlined most of the things we had discussed. The only

>problem

> > >was that sensory defensiveness did not account for many of my

> > >sensitivities - no textbook definition of sensory defensiveness

>mentioned

> > >the eating noises, the breathing noises, the people picking their

>teeth,

> > >the

> > >people cutting up their food ready for eating. It was a long time

>before I

> > >discovered references to soft sound sensitivity syndrome and

>honestly, when

> > >I first read the description of it I almost jumped up and down

>screaming

> > > " that's ME! that's ME! " because it was just spot on. Everything was

>spot

> > >on.

> > >

> > >So I think I have now discovered that I do have sensory defensiveness,

> > >including hyperacusis, but that I also have soft sound sensitivity

> > >syndrome.

> > >I am sure of it.

> > >

> > >And that was my rather long introduction. Sorry. :/ I am very

>pleased to be

> > >here and will try not to write this much next time.

> > >

> > >xxx Bonnie

> > >

> >

>

>

>

>

[Guest guest]

never really thought about that, but yeah, me too!Pia Levensteins wrote: Well, if I am watching a movie and the camera pans around quickly I cannot watch that. Let me think about this some more!! > >Reply-To: Soundsensitivity >To: Soundsensitivity >Subject: Re: Yet another newcomer here >Date: Tue, 25 Apr 2006 01:12:35 -0000 > >I'm going thru all of the old threads and have come across this >one...it's so odd because when I was younger (doesn't happen anymore) > I would sometimes have a hard time looking thru the front windshield >of a car, esp. while the wipers were going...I still have trouble

>looking thru bars (cage.) >Any progress w/this, Pia? > > > > > > > Hi! I joined last week and I hear you!! The only thing I can add is >that I > > can't look at things with holes. Even if a slice of swiss cheese has >holes > > in a certain pattern it makes me crazy. Weird, yup! > > Aren't we all!! It really seems like this is exploding in front of >our eyes. > > More and more people are seeking reassurance that they are not alone in > > this! I dropped out of classes for people chewing gum and so on...I >like > > your long letters!! > > > > > > > > > >Reply-To: Soundsensitivity > > >To:

<soundsensitivity > > > >Subject: Yet another newcomer here > > >Date: Wed, 7 Dec 2005 17:34:43 -0000 > > > > > >Hi all, > > > > > >I joined this group yesterday and I can already tell that I'm among >people > > >who'll understand. I'm 23 years old and live in the UK. I've been > > >suffering from sound sensitivities since I was a young child and had to > > >share a bedroom with my younger sister. The sound of her breathing >when she > > >was asleep used to upset me so much that I would hit her, put >pillows over > > >her face, pinch her arms - I would try anything to get her to roll >over or > > >wake up. This got me into a lot of trouble with my mum and grandma >(with > > >whom I lived) and they thought I was very selfish.

They didn't >understand > > >how angry and upset the breathing sounds made me. Eventually I started > > >taking my bedding downstairs and sleeping on the sofa, but I got into > > >trouble for that, too, and was ordered back to bed. In addition to >that, my > > >mum and gran would always watch TV after we'd gone to bed, and I >could hear > > >it through the floor. Bedtimes were not fun. > > > > > >As I got older I gradually realised that I have more and more > > >sensitivities - sound, sight, and touch mainly. The sound of people >eating > > >(and the sight of it, too), sniffing, whistling, wheezing, coughing > > >repeatedly, crying, brushing their teeth, scratching their heads, >walking > > >on > > >carpet with bare feet... and also some other non-human noises, like

>ticking > > >clocks, clicking computer mice, tapping keys (on a keyboard), bass >music, > > >vacuuming, alarms/sirens, static sounds (like the sound that comes >out of > > >the TV that nobody else seems to be able to hear), unexpected bangs or > > >shouts (these make me cry in absolute terror), scissors cutting >anything, > > >fingernails scratching on top of cotton t-shirt material (sight and >sound). > > >I also hate the feel of sandpaper, velvet, nail files, labels in >clothing, > > >anything around my neck, anything touching the front of my neck, >and having > > >my hair pulled even gently makes me scream out in pain - I think my >scalp > > >is > > >sensitive. Then there are the sight sensitivities, like clusters of > > >anything, seeing people eating or picking their

teeth/fingers/skin, >people > > >twirling their hair, any repetitive patterns, any tiny lights on >electrical > > >equipment (the little green and red on/off lights, for example), >the way > > >you > > >can see the Adam's apple on a man's neck (I have to turn away when >I see a > > >man with a really bulgy Adam's apple - sounds crazy, I know). So >they are > > >mainly sound sensitivities, but I am also sensitive to certain >sensations > > >and sights, as well as some textures in food and even the sound of >certain > > >words!!! Most of the words have something to do with either food or >sex. > > > > > >I explained my problem to my mum, who eventually started to >understand but > > >didn't know what it was, and I explained it to my doctor - who had >no idea.

> > >He suggested tinnitus and I didn't understand where he got that from. I > > >started wearing earplugs at night, which helped a LOT, although I >started > > >to > > >get ringing in my ears after wearing them for a while. I started >university > > >just over four years ago (I have since graduated) and whilst I was >there, I > > >started seeing an occupational therapist to discuss my problems, as >I was > > >having a great deal of trouble in exams. In one particular exam >(one of my > > >finals - a very important exam) I stormed out in floods of tears >because > > >they were showing a film next door and I could hear the muffled >voices. My > > >teacher was very unsympathetic at first and basically told me I had >to deal > > >with it, that she was sure other people were "finding

it annoying" >as well, > > >and I told her it wasn't the same for them. She said I wanted special > > >treatment and she couldn't give it to me. So what she did in the >end was > > >ask > > >the group if any of them wanted to move into a new room and several >people > > >said they did. So those people moved to a new room and that way >everyone > > >had > > >been given the choice - thank goodness, or I wouldn't have been able to > > >continue with my exam. > > > > > >So anyway (sorry - I'm going on a bit, aren't I?) the occupational > > >therapist > > >went through a rather lengthy period of assessment with me and >basically > > >told me I have sensory defensiveness. This was a major relief for >me, to > > >hear someone confirm that I wasn't a freak of

nature and that I had >a real > > >medical condition that was causing me to react in this way to >things. She > > >wrote up a very long sensory report for me and I was very pleased >with it, > > >because it outlined most of the things we had discussed. The only >problem > > >was that sensory defensiveness did not account for many of my > > >sensitivities - no textbook definition of sensory defensiveness >mentioned > > >the eating noises, the breathing noises, the people picking their >teeth, > > >the > > >people cutting up their food ready for eating. It was a long time >before I > > >discovered references to soft sound sensitivity syndrome and >honestly, when > > >I first read the description of it I almost jumped up and down >screaming > > >"that's ME! that's ME!"

because it was just spot on. Everything was >spot > > >on. > > > > > >So I think I have now discovered that I do have sensory defensiveness, > > >including hyperacusis, but that I also have soft sound sensitivity > > >syndrome. > > >I am sure of it. > > > > > >And that was my rather long introduction. Sorry. :/ I am very >pleased to be > > >here and will try not to write this much next time. > > > > > >xxx Bonnie > > > > > > > > >

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

i think that would make me very irritable!Pia Levensteins wrote: in our living room (the room from hell for me) my husband has Bose speakers for the TV and stereo.I cannot stand it for one second! To others it sounds great but it goes through every fiber of my being. Anyone else?>From: >Reply-To: Soundsensitivity >To: Soundsensitivity >Subject: RE: Re: Yet another newcomer here >Date: Tue, 25 Apr 2006 07:54:37 -0700 (PDT)>>>never really thought about that, but yeah, me too!>>Pia Levensteins wrote: Well, if I am >watching a movie and the camera pans around quickly I cannot> watch that. Let me

think about this some more!!>>> >From: "nonniecita" > >Reply-To: Soundsensitivity > >To: Soundsensitivity > >Subject: Re: Yet another newcomer here > >Date: Tue, 25 Apr 2006 01:12:35 -0000> >> >I'm going thru all of the old threads and have come across this> >one...it's so odd because when I was younger (doesn't happen anymore)> > I would sometimes have a hard time looking thru the front windshield> >of a car, esp. while the wipers were going...I still have trouble> >looking thru bars (cage.)> >Any progress w/this, Pia?> >> >> >> > >> > > Hi! I joined last week and I hear you!! The only

thing I can add is> >that I> > > can't look at things with holes. Even if a slice of swiss cheese has> >holes> > > in a certain pattern it makes me crazy. Weird, yup!> > > Aren't we all!! It really seems like this is exploding in front of> >our eyes.> > > More and more people are seeking reassurance that they are not alone >in> > > this! I dropped out of classes for people chewing gum and so on...I> >like> > > your long letters!!> > >> > >> > > >From: "Bonnie" > > > >Reply-To: Soundsensitivity > > > >To: > > > >Subject: Yet another newcomer here > > > >Date: Wed, 7 Dec 2005 17:34:43 -0000> > > >> > > >Hi

all,> > > >> > > >I joined this group yesterday and I can already tell that I'm among> >people> > > >who'll understand. I'm 23 years old and live in the UK. I've been> > > >suffering from sound sensitivities since I was a young child and had >to> > > >share a bedroom with my younger sister. The sound of her breathing> >when she> > > >was asleep used to upset me so much that I would hit her, put> >pillows over> > > >her face, pinch her arms - I would try anything to get her to roll> >over or> > > >wake up. This got me into a lot of trouble with my mum and grandma> >(with> > > >whom I lived) and they thought I was very selfish. They didn't> >understand> > > >how angry and upset the breathing sounds made me. Eventually I

>started> > > >taking my bedding downstairs and sleeping on the sofa, but I got >into> > > >trouble for that, too, and was ordered back to bed. In addition to> >that, my> > > >mum and gran would always watch TV after we'd gone to bed, and I> >could hear> > > >it through the floor. Bedtimes were not fun. > > > >> > > >As I got older I gradually realised that I have more and more> > > >sensitivities - sound, sight, and touch mainly. The sound of people> >eating> > > >(and the sight of it, too), sniffing, whistling, wheezing, coughing> > > >repeatedly, crying, brushing their teeth, scratching their heads,> >walking> > > >on> > > >carpet with bare feet... and also some other non-human noises, like> >ticking> >

> >clocks, clicking computer mice, tapping keys (on a keyboard), bass> >music,> > > >vacuuming, alarms/sirens, static sounds (like the sound that comes> >out of> > > >the TV that nobody else seems to be able to hear), unexpected bangs >or> > > >shouts (these make me cry in absolute terror), scissors cutting> >anything,> > > >fingernails scratching on top of cotton t-shirt material (sight and> >sound).> > > >I also hate the feel of sandpaper, velvet, nail files, labels in> >clothing,> > > >anything around my neck, anything touching the front of my neck,> >and having> > > >my hair pulled even gently makes me scream out in pain - I think my> >scalp> > > >is> > > >sensitive. Then there are the sight sensitivities, like clusters of>

> > >anything, seeing people eating or picking their teeth/fingers/skin,> >people> > > >twirling their hair, any repetitive patterns, any tiny lights on> >electrical> > > >equipment (the little green and red on/off lights, for example),> >the way> > > >you> > > >can see the Adam's apple on a man's neck (I have to turn away when> >I see a> > > >man with a really bulgy Adam's apple - sounds crazy, I know). So> >they are> > > >mainly sound sensitivities, but I am also sensitive to certain> >sensations> > > >and sights, as well as some textures in food and even the sound of> >certain> > > >words!!! Most of the words have something to do with either food or> >sex.> > > >> > > >I explained my problem to my mum, who

eventually started to> >understand but> > > >didn't know what it was, and I explained it to my doctor - who had> >no idea.> > > >He suggested tinnitus and I didn't understand where he got that >from. I> > > >started wearing earplugs at night, which helped a LOT, although I> >started> > > >to> > > >get ringing in my ears after wearing them for a while. I started> >university> > > >just over four years ago (I have since graduated) and whilst I was> >there, I> > > >started seeing an occupational therapist to discuss my problems, as> >I was> > > >having a great deal of trouble in exams. In one particular exam> >(one of my> > > >finals - a very important exam) I stormed out in floods of tears> >because> > > >they were

showing a film next door and I could hear the muffled> >voices. My> > > >teacher was very unsympathetic at first and basically told me I had> >to deal> > > >with it, that she was sure other people were "finding it annoying"> >as well,> > > >and I told her it wasn't the same for them. She said I wanted >special> > > >treatment and she couldn't give it to me. So what she did in the> >end was> > > >ask> > > >the group if any of them wanted to move into a new room and several> >people> > > >said they did. So those people moved to a new room and that way> >everyone> > > >had> > > >been given the choice - thank goodness, or I wouldn't have been able >to> > > >continue with my exam.> > > >> > > >So

anyway (sorry - I'm going on a bit, aren't I?) the occupational> > > >therapist> > > >went through a rather lengthy period of assessment with me and> >basically> > > >told me I have sensory defensiveness. This was a major relief for> >me, to> > > >hear someone confirm that I wasn't a freak of nature and that I had> >a real> > > >medical condition that was causing me to react in this way to> >things. She> > > >wrote up a very long sensory report for me and I was very pleased> >with it,> > > >because it outlined most of the things we had discussed. The only> >problem> > > >was that sensory defensiveness did not account for many of my> > > >sensitivities - no textbook definition of sensory defensiveness> >mentioned> > > >the eating

noises, the breathing noises, the people picking their> >teeth,> > > >the> > > >people cutting up their food ready for eating. It was a long time> >before I> > > >discovered references to soft sound sensitivity syndrome and> >honestly, when> > > >I first read the description of it I almost jumped up and down> >screaming> > > >"that's ME! that's ME!" because it was just spot on. Everything was> >spot> > > >on.> > > >> > > >So I think I have now discovered that I do have sensory >defensiveness,> > > >including hyperacusis, but that I also have soft sound sensitivity> > > >syndrome.> > > >I am sure of it.> > > >> > > >And that was my rather long introduction. Sorry. :/ I am very> >pleased to be> > > >here and will try not to write this much next time.> > > >> > > >xxx Bonnie> > > >> > >> >> >> >> >>>>>>---------------------------------> YAHOO! GROUPS LINKS>>> Visit your group "Soundsensitivity" on the web.>>

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but it depends on what mood i'm in too wrote: i think that would make me very irritable!Pia Levensteins wrote: in our living room (the room from hell for me) my husband has Bose speakers for the TV and stereo.I cannot stand it for one second! To others it sounds great but it goes through every fiber of my being. Anyone else?>From: >Reply-To: Soundsensitivity >To: Soundsensitivity >Subject: RE: Re: Yet another newcomer here >Date: Tue, 25 Apr 2006 07:54:37 -0700 (PDT)>>>never

really thought about that, but yeah, me too!>>Pia Levensteins wrote: Well, if I am >watching a movie and the camera pans around quickly I cannot> watch that. Let me think about this some more!!>>> >From: "nonniecita" > >Reply-To: Soundsensitivity > >To: Soundsensitivity > >Subject: Re: Yet another newcomer here > >Date: Tue, 25 Apr 2006 01:12:35 -0000> >> >I'm going thru all of the old threads and have come across this> >one...it's so odd because when I was younger (doesn't happen anymore)> > I would sometimes have a hard time looking thru the front windshield> >of a car, esp. while the wipers were going...I still have trouble> >looking thru bars (cage.)> >Any progress w/this, Pia?> >> >> >> > >> > > Hi! I joined last week and I hear you!! The only thing I can add is> >that I> > > can't look at things with holes. Even if a slice of swiss cheese has> >holes> > > in a certain pattern it makes me crazy. Weird, yup!> > > Aren't we all!! It really seems like this is exploding in front of> >our eyes.> > > More and more people are seeking reassurance that they are not alone >in> > > this! I dropped out of classes for people chewing gum and so on...I> >like> > > your long letters!!> > >> > >> > > >From: "Bonnie" > > > >Reply-To: Soundsensitivity > > > >To:

> > > >Subject: Yet another newcomer here > > > >Date: Wed, 7 Dec 2005 17:34:43 -0000> > > >> > > >Hi all,> > > >> > > >I joined this group yesterday and I can already tell that I'm among> >people> > > >who'll understand. I'm 23 years old and live in the UK. I've been> > > >suffering from sound sensitivities since I was a young child and had >to> > > >share a bedroom with my younger sister. The sound of her breathing> >when she> > > >was asleep used to upset me so much that I would hit her, put> >pillows over> > > >her face, pinch her arms - I would try anything to get her to roll> >over or> > > >wake up. This got me into a lot of trouble with my mum and

grandma> >(with> > > >whom I lived) and they thought I was very selfish. They didn't> >understand> > > >how angry and upset the breathing sounds made me. Eventually I >started> > > >taking my bedding downstairs and sleeping on the sofa, but I got >into> > > >trouble for that, too, and was ordered back to bed. In addition to> >that, my> > > >mum and gran would always watch TV after we'd gone to bed, and I> >could hear> > > >it through the floor. Bedtimes were not fun. > > > >> > > >As I got older I gradually realised that I have more and more> > > >sensitivities - sound, sight, and touch mainly. The sound of people> >eating> > > >(and the sight of it, too), sniffing, whistling, wheezing, coughing> > > >repeatedly,

crying, brushing their teeth, scratching their heads,> >walking> > > >on> > > >carpet with bare feet... and also some other non-human noises, like> >ticking> > > >clocks, clicking computer mice, tapping keys (on a keyboard), bass> >music,> > > >vacuuming, alarms/sirens, static sounds (like the sound that comes> >out of> > > >the TV that nobody else seems to be able to hear), unexpected bangs >or> > > >shouts (these make me cry in absolute terror), scissors cutting> >anything,> > > >fingernails scratching on top of cotton t-shirt material (sight and> >sound).> > > >I also hate the feel of sandpaper, velvet, nail files, labels in> >clothing,> > > >anything around my neck, anything touching the front of my neck,> >and

having> > > >my hair pulled even gently makes me scream out in pain - I think my> >scalp> > > >is> > > >sensitive. Then there are the sight sensitivities, like clusters of> > > >anything, seeing people eating or picking their teeth/fingers/skin,> >people> > > >twirling their hair, any repetitive patterns, any tiny lights on> >electrical> > > >equipment (the little green and red on/off lights, for example),> >the way> > > >you> > > >can see the Adam's apple on a man's neck (I have to turn away when> >I see a> > > >man with a really bulgy Adam's apple - sounds crazy, I know). So> >they are> > > >mainly sound sensitivities, but I am also sensitive to certain> >sensations> > > >and sights, as well as some textures in

food and even the sound of> >certain> > > >words!!! Most of the words have something to do with either food or> >sex.> > > >> > > >I explained my problem to my mum, who eventually started to> >understand but> > > >didn't know what it was, and I explained it to my doctor - who had> >no idea.> > > >He suggested tinnitus and I didn't understand where he got that >from. I> > > >started wearing earplugs at night, which helped a LOT, although I> >started> > > >to> > > >get ringing in my ears after wearing them for a while. I started> >university> > > >just over four years ago (I have since graduated) and whilst I was> >there, I> > > >started seeing an occupational therapist to discuss my problems, as> >I was> > > >having a great deal of trouble in exams. In one particular exam> >(one of my> > > >finals - a very important exam) I stormed out in floods of tears> >because> > > >they were showing a film next door and I could hear the muffled> >voices. My> > > >teacher was very unsympathetic at first and basically told me I had> >to deal> > > >with it, that she was sure other people were "finding it annoying"> >as well,> > > >and I told her it wasn't the same for them. She said I wanted >special> > > >treatment and she couldn't give it to me. So what she did in the> >end was> > > >ask> > > >the group if any of them wanted to move into a new room and several> >people> > > >said they did. So those people moved to a new room and that

way> >everyone> > > >had> > > >been given the choice - thank goodness, or I wouldn't have been able >to> > > >continue with my exam.> > > >> > > >So anyway (sorry - I'm going on a bit, aren't I?) the occupational> > > >therapist> > > >went through a rather lengthy period of assessment with me and> >basically> > > >told me I have sensory defensiveness. This was a major relief for> >me, to> > > >hear someone confirm that I wasn't a freak of nature and that I had> >a real> > > >medical condition that was causing me to react in this way to> >things. She> > > >wrote up a very long sensory report for me and I was very pleased> >with it,> > > >because it outlined most of the things we had discussed. The

only> >problem> > > >was that sensory defensiveness did not account for many of my> > > >sensitivities - no textbook definition of sensory defensiveness> >mentioned> > > >the eating noises, the breathing noises, the people picking their> >teeth,> > > >the> > > >people cutting up their food ready for eating. It was a long time> >before I> > > >discovered references to soft sound sensitivity syndrome and> >honestly, when> > > >I first read the description of it I almost jumped up and down> >screaming> > > >"that's ME! that's ME!" because it was just spot on. Everything was> >spot> > > >on.> > > >> > > >So I think I have now discovered that I do have sensory >defensiveness,> > > >including

hyperacusis, but that I also have soft sound sensitivity> > > >syndrome.> > > >I am sure of it.> > > >> > > >And that was my rather long introduction. Sorry. :/ I am very> >pleased to be> > > >here and will try not to write this much next time.> > > >> > > >xxx Bonnie> > > >> > >> >> >> >> >>>>>>---------------------------------> YAHOO! GROUPS LINKS>>> Visit your group "Soundsensitivity" on the web.>>