Guest guest Report post Posted November 6, 2000 .. The school psychologist doesn't want me to have it...she says the letter has been all that was needed in the past. Those of you with experience...Don't I have a right to a copy of the eval? If so, how do I make them give it to me? I had no trouble getting a copy of my sons' directly from the school psychologist. I'm not sure how it works in the school district you are in, but in ours the next step after that would be the Director of Special Education. Terry in Macon Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 You have a right to any records (educational or medical) pertaining to your child no matter what they are or who has them. They cannot refuse you. It's against the law. I had a doctor try this with Dillon's (age 8 NT) biopsy report, but she had some thinks-she's-God-thing going on. You shouldn't have to anything more than ask. If you can't get it from the case worker, go over her head. Then keep going until you get what you need. Personally, I find going to the top immediately the best way to deal with people like your school psychologist. Go to the school superintendant. That should get her attention. Sissi nitetrax@... Kids' Page http://home.isoa.net/~nitetrax/dillon.htm HELP! > I applied for the Beckett this summer...I paid a Babies Can't > Wait employee (who does the forms on the side) to be sure the > paperwork was done correctly. I was turned down...they didn't count > the BDI I sent in so I needed a new psych. In August I requested that > the school do it. It was finally done in Sept. I got a letter > summarizing the eval. My case worker says I need the actual eval, not > just a summary. I have been trying for weeks to get a copy. The > school psychologist doesn't want me to have it...she says the letter > has been all that was needed in the past. > Those of you with experience...Don't I have a right to a copy of the > eval? If so, how do I make them give it to me? > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 The latest claim is that they can't make a copy due to copyright laws. I said give me a blank test and then the results for each item. --- nitetrax@... wrote: > You have a right to any records (educational or > medical) pertaining to > your child no matter what they are or who has them. > They cannot refuse you. > It's against the law. I had a doctor try this with > Dillon's (age 8 NT) > biopsy report, but she had some > thinks-she's-God-thing going on. You > shouldn't have to anything more than ask. If you > can't get it from the case > worker, go over her head. Then keep going until you > get what you need. > Personally, I find going to the top immediately the > best way to deal with > people like your school psychologist. Go to the > school superintendant. That > should get her attention. > Sissi > nitetrax@... > Kids' Page > http://home.isoa.net/~nitetrax/dillon.htm > > HELP! > > > > I applied for the Beckett this summer...I > paid a Babies Can't > > Wait employee (who does the forms on the side) to > be sure the > > paperwork was done correctly. I was turned > down...they didn't count > > the BDI I sent in so I needed a new psych. In > August I requested that > > the school do it. It was finally done in Sept. I > got a letter > > summarizing the eval. My case worker says I need > the actual eval, not > > just a summary. I have been trying for weeks to > get a copy. The > > school psychologist doesn't want me to have > it...she says the letter > > has been all that was needed in the past. > > Those of you with experience...Don't I have a > right to a copy of the > > eval? If so, how do I make them give it to me? > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 She's trying to hide something. Probably her own incompetence. Go over her head. Sissi nitetrax@... Kids' Page http://home.isoa.net/~nitetrax/dillon.htm HELP! > > > > > > > I applied for the Beckett this summer...I > > paid a Babies Can't > > > Wait employee (who does the forms on the side) to > > be sure the > > > paperwork was done correctly. I was turned > > down...they didn't count > > > the BDI I sent in so I needed a new psych. In > > August I requested that > > > the school do it. It was finally done in Sept. I > > got a letter > > > summarizing the eval. My case worker says I need > > the actual eval, not > > > just a summary. I have been trying for weeks to > > get a copy. The > > > school psychologist doesn't want me to have > > it...she says the letter > > > has been all that was needed in the past. > > > Those of you with experience...Don't I have a > > right to a copy of the > > > eval? If so, how do I make them give it to me? > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 I'm going to take a shot at this--My masters degree is in school psychology (psy testing). The actual test is covered under copyright laws. So, the " parent/guardian have the legal right to obtain information about the RESULTS of assessments of their children " . (I pulled that quote from a psy ethics book) The parents cannot have the actual test protocol (or even a copy). The rationale behind this is not to withhold information from the parent but to protect the test from being copied, etc.... The problem comes that people would be able to see the test and know what was on it it would then invalidate the " standardization " of the test. There are people out there who actually try to get copies of the test so that they can " prepare " their children or themselves for the test! If there were current copies of the SAT --it would be much easier to study to get a better score. I am not trying to be the bad guy--I have left the field of testing because of many reasons of unfairness--but the school system is correct in not being able to give you a copy of the test! NOW, all of my families have the Deeming Waiver and I have never heard of them having to provide the actual test!! If this is the case--the school system can share test protocol with qualified individuals. It seems to me that a valid psy report containing the results should be enough??? In my practicum--I did have someone see part of the test but I was forced to white out all of the " test " info and leave only the child's responses but that made the test completely unrecognizable--pointless! Maybe your summary didn't provide enough information. YOu are definitely entitiled to any summary, report or notes. Look at the summary and see if it contains the actual standarized scores or stanines or anything that would give the pertinent info to the people requesting the info. Hope this helps, > > You have a right to any records (educational or > > medical) pertaining to > > your child no matter what they are or who has them. > > They cannot refuse you. > > It's against the law. I had a doctor try this with > > Dillon's (age 8 NT) > > biopsy report, but she had some > > thinks-she's-God-thing going on. You > > shouldn't have to anything more than ask. If you > > can't get it from the case > > worker, go over her head. Then keep going until you > > get what you need. > > Personally, I find going to the top immediately the > > best way to deal with > > people like your school psychologist. Go to the > > school superintendant. That > > should get her attention. > > Sissi > > nitetrax@i... > > Kids' Page > > http://home.isoa.net/~nitetrax/dillon.htm > > > > HELP! > > > > > > > I applied for the Beckett this summer...I > > paid a Babies Can't > > > Wait employee (who does the forms on the side) to > > be sure the > > > paperwork was done correctly. I was turned > > down...they didn't count > > > the BDI I sent in so I needed a new psych. In > > August I requested that > > > the school do it. It was finally done in Sept. I > > got a letter > > > summarizing the eval. My case worker says I need > > the actual eval, not > > > just a summary. I have been trying for weeks to > > get a copy. The > > > school psychologist doesn't want me to have > > it...she says the letter > > > has been all that was needed in the past. > > > Those of you with experience...Don't I have a > > right to a copy of the > > > eval? If so, how do I make them give it to me? > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 Here I go, getting MAD AGAIN!!!! YOU have every right to have that COMPLETE evaluation. Call the board of education office and ask for the person that is the coordinator of special education and tell them to get you a copy of the evaluation, or for them to FIND LEGAL HELP! Ask nicely first and in a couple of days, you do not have this in your hands, tell them the lawyer is coming!! P.S. if this doesn't work, let me know. At 09:04 PM 11/6/00 +0000, you wrote: >I applied for the Beckett this summer...I paid a Babies Can't >Wait employee (who does the forms on the side) to be sure the >paperwork was done correctly. I was turned down...they didn't count >the BDI I sent in so I needed a new psych. In August I requested that >the school do it. It was finally done in Sept. I got a letter >summarizing the eval. My case worker says I need the actual eval, not >just a summary. I have been trying for weeks to get a copy. The >school psychologist doesn't want me to have it...she says the letter >has been all that was needed in the past. >Those of you with experience...Don't I have a right to a copy of the >eval? If so, how do I make them give it to me? > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2000 That's a bunch of BULL!!! Those state taxes and property taxes pay for these things. YOU have the right to the original. THEY can have a copy! That's what I got from the school, the original. At 02:14 PM 11/6/00 -0800, you wrote: >The latest claim is that they can't make a copy due to >copyright laws. I said give me a blank test and then >the results for each item. > > >--- nitetrax@... wrote: > > You have a right to any records (educational or > > medical) pertaining to > > your child no matter what they are or who has them. > > They cannot refuse you. > > It's against the law. I had a doctor try this with > > Dillon's (age 8 NT) > > biopsy report, but she had some > > thinks-she's-God-thing going on. You > > shouldn't have to anything more than ask. If you > > can't get it from the case > > worker, go over her head. Then keep going until you > > get what you need. > > Personally, I find going to the top immediately the > > best way to deal with > > people like your school psychologist. Go to the > > school superintendant. That > > should get her attention. > > Sissi > > nitetrax@... > > Kids' Page > > http://home.isoa.net/~nitetrax/dillon.htm > > > > HELP! > > > > > > > I applied for the Beckett this summer...I > > paid a Babies Can't > > > Wait employee (who does the forms on the side) to > > be sure the > > > paperwork was done correctly. I was turned > > down...they didn't count > > > the BDI I sent in so I needed a new psych. In > > August I requested that > > > the school do it. It was finally done in Sept. I > > got a letter > > > summarizing the eval. My case worker says I need > > the actual eval, not > > > just a summary. I have been trying for weeks to > > get a copy. The > > > school psychologist doesn't want me to have > > it...she says the letter > > > has been all that was needed in the past. > > > Those of you with experience...Don't I have a > > right to a copy of the > > > eval? If so, how do I make them give it to me? > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 31, 2001 Sorry you are in pain, I would have to say that the prednisone works for me in a matter of hours. My last flair does not sound as serious as the one you are having. Hope you feel better. Chris > Hi! I have a question about prednisone, so I thought I'd go to the source > with the most knowledge - my Stills friends. > > I haven't been on pred for almost two years now. The last time (that I can > recall, that is) I responded to the pred within a couple of days. My new > primary doc just put me on pred (which he said he was trying to avoid all > along) because my sed rate has taken some big jumps in going up. He's > always been against it in the past because of its lovely nasty side effects. > However, I got a call last week from his nurse that he wanted me on 20 mg in > the morning and 10mg at night until after the Labor Day weekend when I have > an appointment to see him. > > Those lab tests were from at least a week prior to that. So, since I've > been feeling A LOT WORSE since the blood was drawn, I think my sed rate is a > lot higher! He thought the 65 sed rate was high, but I've been over 90 in > the past (though that was almost 3 years ago!). > > I know, sorry, I'm rambling here... I started on the pred four days ago. I > also started with a TENS unit last week. I've been in so much pain that > I've got that darn TENS unit up full blast and I'm still crying in pain. I > was in the ER on Sunday night and again last night. Stupid ER doc (sorry, > but you all know there are a lot of " uneducated " and " uncaring " ones out > there) first time just gave me some IV fluids and a shot for nausea (duh, > the wretching was from all the pain!) and an Rx for Valium (? - anyone ever > gotten this for pain?). Last night, after an attack of chills, severe > sweating for several hours, pain so bad I couldn't move, go to sleep, eat, > drink much, much less function, I called the doc that was on call for my > doc. I wasn't very coherent but he told me I needed to go to the ER. Oh, > wow...what a surprise (sorry, pain makes for crabby people!). > > My friend took me and I got the same stupid ER physician AGAIN!!! This time > he said he really couldn't see anything he could do for me. He said I > SHOULD WAIT UNTIL THE PREDNISONE KICKS IN!!! He thought I was just being a > little IMPATIENT!!! (No, I was being a 'patient in pain'!) He did give me > a shot of Demerol with phenergan (pain killer, but not a big dose) and 125 > mg of Solu-Medrol. > > I'm not sure which one helped, but I at least slept last night and woke up > today feeling better. Now it's late afternoon and I'm starting to ache > severely and the familiar pain is coming back. I can't go through another > night of this. I live alone and this is really scaring me. I've never been > in this much pain before. > > My doc is gone today, but I've called his office to see if the other doc can > do something for me before it's nighttime and all this misery starts > happening again. Geez, what does it take to get someone's attention!?! > > Do you guys think it really can take so long for the prednisone to work. > I've had a gastric bypass and don't absorb things orally very well. I told > the stupid doc that, but he just looked at me! I don't think the pain shot > lasted from last night until this afternoon, so it must have been the extra > boost from the Solu-Medrol. What do you guys think? I told the office that > I'd be happy to self-inject some more Solu-Medrol, if a doc there would > order it. Or do you think I should get something more for pain. > Injectable? Oral? I have no problems with giving myself shots. > > HELP!!!!!!!!!!!! > Jul Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 1, 2001 I'm currently doing better! I finally had to get in touch with one of " my docs! " They had me come in and get an IV infusion of 1 gram of Solu-Medrol. Boy, what a help that was. After all the harassment and frustration I went though, just because the average doc does know diddly about AOSD! Now, its just a matter of keeping my fingers crossed that this lasts through until next Tuesday (when I see my doc again!). He also upped my oral prednisone to 40 mg a day. I'm still aching, had some fever, sweating and pain, but gosh...at least I'm not crying out in pain and have been able to get some sleep in (with my TENS unit on also!). Boy, this is the worst flare I've ever had. I thought this disease was supposed to be the worst in the beginning and then taper off with (hopeful) remissions in-between. I had this 1997, and this was the worst flare I've ever had. I don't get the rashes, so most of my symptoms are " invisible. " Of course, medically trained people should know how to identify pain intensity (such as elevated blood pressure, sweating/chills, dry heaves or vomiting at pain threshold, etc. I guess it was just dumb luck to happen to become " evaluated " by " medically intelligent-deficit " doctors! Glad I could voice my frustrations with people who understand! Thanks everyone! Now I hope the " good treatment " will continue, because I'm far from out of the woods. I know they can't keep me on this high dosing of corticosteroids for long without doing severe damage somewhere else in my body. Hope everyone is having a good holiday weekend (mine at least is not a disaster!). All my heart, Jul Re: HELP! Sorry you are in pain, I would have to say that the prednisone works for me in a matter of hours. My last flair does not sound as serious as the one you are having. Hope you feel better. Chris > Hi! I have a question about prednisone, so I thought I'd go to the source > with the most knowledge - my Stills friends. > > I haven't been on pred for almost two years now. The last time (that I can > recall, that is) I responded to the pred within a couple of days. My new > primary doc just put me on pred (which he said he was trying to avoid all > along) because my sed rate has taken some big jumps in going up. He's > always been against it in the past because of its lovely nasty side effects. > However, I got a call last week from his nurse that he wanted me on 20 mg in > the morning and 10mg at night until after the Labor Day weekend when I have > an appointment to see him. > > Those lab tests were from at least a week prior to that. So, since I've > been feeling A LOT WORSE since the blood was drawn, I think my sed rate is a > lot higher! He thought the 65 sed rate was high, but I've been over 90 in > the past (though that was almost 3 years ago!). > > I know, sorry, I'm rambling here... I started on the pred four days ago. I > also started with a TENS unit last week. I've been in so much pain that > I've got that darn TENS unit up full blast and I'm still crying in pain. I > was in the ER on Sunday night and again last night. Stupid ER doc (sorry, > but you all know there are a lot of " uneducated " and " uncaring " ones out > there) first time just gave me some IV fluids and a shot for nausea (duh, > the wretching was from all the pain!) and an Rx for Valium (? - anyone ever > gotten this for pain?). Last night, after an attack of chills, severe > sweating for several hours, pain so bad I couldn't move, go to sleep, eat, > drink much, much less function, I called the doc that was on call for my > doc. I wasn't very coherent but he told me I needed to go to the ER. Oh, > wow...what a surprise (sorry, pain makes for crabby people!). > > My friend took me and I got the same stupid ER physician AGAIN!!! This time > he said he really couldn't see anything he could do for me. He said I > SHOULD WAIT UNTIL THE PREDNISONE KICKS IN!!! He thought I was just being a > little IMPATIENT!!! (No, I was being a 'patient in pain'!) He did give me > a shot of Demerol with phenergan (pain killer, but not a big dose) and 125 > mg of Solu-Medrol. > > I'm not sure which one helped, but I at least slept last night and woke up > today feeling better. Now it's late afternoon and I'm starting to ache > severely and the familiar pain is coming back. I can't go through another > night of this. I live alone and this is really scaring me. I've never been > in this much pain before. > > My doc is gone today, but I've called his office to see if the other doc can > do something for me before it's nighttime and all this misery starts > happening again. Geez, what does it take to get someone's attention!?! > > Do you guys think it really can take so long for the prednisone to work. > I've had a gastric bypass and don't absorb things orally very well. I told > the stupid doc that, but he just looked at me! I don't think the pain shot > lasted from last night until this afternoon, so it must have been the extra > boost from the Solu-Medrol. What do you guys think? I told the office that > I'd be happy to self-inject some more Solu-Medrol, if a doc there would > order it. Or do you think I should get something more for pain. > Injectable? Oral? I have no problems with giving myself shots. > > HELP!!!!!!!!!!!! > Jul Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 3, 2001 Dear Jul, It sounds like you have had a terrible few days. I hope that you can find relief soon. I hope you have a good Dr. that can help you get your disease under control. The Prednisone should act pretty quickly. Maybe it is because you said that you don't absorb things well orally. I would try to get something for your pain. You certainly can't run to the ER every night. Unfortunately as you experienced they ussually don't do too much for you. That has been my experience anyway. Your in my thoughts and prayers, jatw@... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 23, 2002 I am trying to find out how to locate the new specail instructor to Atlanta. She was mentioned a few days ago, but i didn't see the info. Her name is Amy . Any information on her would be helpful. thanks. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 24, 2002 I will have Amy contact you. Brad Quote Share this post Link to post Share on other sites