help!

[Guest guest]

.. The school psychologist doesn't want me to have it...she says the letter has been all that was needed in the past. Those of you with experience...Don't I have a right to a copy of the eval? If so, how do I make them give it to me?

I had no trouble getting a copy of my sons' directly from the school psychologist. I'm not sure how it works in the school district you are in, but in ours the next step after that would be the Director of Special Education.

Terry in Macon

[Guest guest]

You have a right to any records (educational or medical) pertaining to

your child no matter what they are or who has them. They cannot refuse you.

It's against the law. I had a doctor try this with Dillon's (age 8 NT)

biopsy report, but she had some thinks-she's-God-thing going on. You

shouldn't have to anything more than ask. If you can't get it from the case

worker, go over her head. Then keep going until you get what you need.

Personally, I find going to the top immediately the best way to deal with

people like your school psychologist. Go to the school superintendant. That

should get her attention.

Sissi

nitetrax@...

Kids' Page

http://home.isoa.net/~nitetrax/dillon.htm

HELP!

> I applied for the Beckett this summer...I paid a Babies Can't

> Wait employee (who does the forms on the side) to be sure the

> paperwork was done correctly. I was turned down...they didn't count

> the BDI I sent in so I needed a new psych. In August I requested that

> the school do it. It was finally done in Sept. I got a letter

> summarizing the eval. My case worker says I need the actual eval, not

> just a summary. I have been trying for weeks to get a copy. The

> school psychologist doesn't want me to have it...she says the letter

> has been all that was needed in the past.

> Those of you with experience...Don't I have a right to a copy of the

> eval? If so, how do I make them give it to me?

>

>

>

>

>

[Guest guest]

The latest claim is that they can't make a copy due to

copyright laws. I said give me a blank test and then

the results for each item.

--- nitetrax@... wrote:

> You have a right to any records (educational or

> medical) pertaining to

> your child no matter what they are or who has them.

> They cannot refuse you.

> It's against the law. I had a doctor try this with

> Dillon's (age 8 NT)

> biopsy report, but she had some

> thinks-she's-God-thing going on. You

> shouldn't have to anything more than ask. If you

> can't get it from the case

> worker, go over her head. Then keep going until you

> get what you need.

> Personally, I find going to the top immediately the

> best way to deal with

> people like your school psychologist. Go to the

> school superintendant. That

> should get her attention.

> Sissi

> nitetrax@...

> Kids' Page

> http://home.isoa.net/~nitetrax/dillon.htm

>

> HELP!

>

>

> > I applied for the Beckett this summer...I

> paid a Babies Can't

> > Wait employee (who does the forms on the side) to

> be sure the

> > paperwork was done correctly. I was turned

> down...they didn't count

> > the BDI I sent in so I needed a new psych. In

> August I requested that

> > the school do it. It was finally done in Sept. I

> got a letter

> > summarizing the eval. My case worker says I need

> the actual eval, not

> > just a summary. I have been trying for weeks to

> get a copy. The

> > school psychologist doesn't want me to have

> it...she says the letter

> > has been all that was needed in the past.

> > Those of you with experience...Don't I have a

> right to a copy of the

> > eval? If so, how do I make them give it to me?

> >

> >

> >

> >

> >

[Guest guest]

She's trying to hide something. Probably her own incompetence. Go over her

head.

Sissi

nitetrax@...

Kids' Page

http://home.isoa.net/~nitetrax/dillon.htm

HELP!

> >

> >

> > > I applied for the Beckett this summer...I

> > paid a Babies Can't

> > > Wait employee (who does the forms on the side) to

> > be sure the

> > > paperwork was done correctly. I was turned

> > down...they didn't count

> > > the BDI I sent in so I needed a new psych. In

> > August I requested that

> > > the school do it. It was finally done in Sept. I

> > got a letter

> > > summarizing the eval. My case worker says I need

> > the actual eval, not

> > > just a summary. I have been trying for weeks to

> > get a copy. The

> > > school psychologist doesn't want me to have

> > it...she says the letter

> > > has been all that was needed in the past.

> > > Those of you with experience...Don't I have a

> > right to a copy of the

> > > eval? If so, how do I make them give it to me?

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I'm going to take a shot at this--My masters degree is in school

psychology (psy testing). The actual test is covered under copyright

laws. So, the " parent/guardian have the legal right to obtain

information about the RESULTS of assessments of their children " . (I

pulled that quote from a psy ethics book) The parents cannot have the

actual test protocol (or even a copy). The rationale behind this is

not to withhold information from the parent but to protect the test

from being copied, etc.... The problem comes that people would be

able to see the test and know what was on it it would then invalidate

the " standardization " of the test. There are people out there who

actually try to get copies of the test so that they can " prepare "

their children or themselves for the test! If there were current

copies of the SAT --it would be much easier to study to get a better

score. I am not trying to be the bad guy--I have left the field of

testing because of many reasons of unfairness--but the school system

is correct in not being able to give you a copy of the test! NOW,

all of my families have the Deeming Waiver and I have never heard of

them having to provide the actual test!! If this is the case--the

school system can share test protocol with qualified individuals. It

seems to me that a valid psy report containing the results should be

enough??? In my practicum--I did have someone see part of the test

but I was forced to white out all of the " test " info and leave only

the child's responses but that made the test completely

unrecognizable--pointless! Maybe your summary didn't provide enough

information. YOu are definitely entitiled to any summary, report or

notes. Look at the summary and see if it contains the actual

standarized scores or stanines or anything that would give the

pertinent info to the people requesting the info.

Hope this helps,

> > You have a right to any records (educational or

> > medical) pertaining to

> > your child no matter what they are or who has them.

> > They cannot refuse you.

> > It's against the law. I had a doctor try this with

> > Dillon's (age 8 NT)

> > biopsy report, but she had some

> > thinks-she's-God-thing going on. You

> > shouldn't have to anything more than ask. If you

> > can't get it from the case

> > worker, go over her head. Then keep going until you

> > get what you need.

> > Personally, I find going to the top immediately the

> > best way to deal with

> > people like your school psychologist. Go to the

> > school superintendant. That

> > should get her attention.

> > Sissi

> > nitetrax@i...

> > Kids' Page

> > http://home.isoa.net/~nitetrax/dillon.htm

> >

> > HELP!

> >

> >

> > > I applied for the Beckett this summer...I

> > paid a Babies Can't

> > > Wait employee (who does the forms on the side) to

> > be sure the

> > > paperwork was done correctly. I was turned

> > down...they didn't count

> > > the BDI I sent in so I needed a new psych. In

> > August I requested that

> > > the school do it. It was finally done in Sept. I

> > got a letter

> > > summarizing the eval. My case worker says I need

> > the actual eval, not

> > > just a summary. I have been trying for weeks to

> > get a copy. The

> > > school psychologist doesn't want me to have

> > it...she says the letter

> > > has been all that was needed in the past.

> > > Those of you with experience...Don't I have a

> > right to a copy of the

> > > eval? If so, how do I make them give it to me?

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Here I go, getting MAD AGAIN!!!!

YOU have every right to have that COMPLETE evaluation.

Call the board of education office and ask for the person that is the

coordinator of special education and tell them to get you a copy of the

evaluation, or for them to FIND LEGAL HELP!

Ask nicely first and in a couple of days, you do not have this in your

hands, tell them the lawyer is coming!!

P.S. if this doesn't work, let me know.

At 09:04 PM 11/6/00 +0000, you wrote:

>I applied for the Beckett this summer...I paid a Babies Can't

>Wait employee (who does the forms on the side) to be sure the

>paperwork was done correctly. I was turned down...they didn't count

>the BDI I sent in so I needed a new psych. In August I requested that

>the school do it. It was finally done in Sept. I got a letter

>summarizing the eval. My case worker says I need the actual eval, not

>just a summary. I have been trying for weeks to get a copy. The

>school psychologist doesn't want me to have it...she says the letter

>has been all that was needed in the past.

>Those of you with experience...Don't I have a right to a copy of the

>eval? If so, how do I make them give it to me?

>

>

>

>

>

[Guest guest]

That's a bunch of BULL!!! Those state taxes and property taxes pay for

these things.

YOU have the right to the original. THEY can have a copy! That's what I got

from the school, the original.

At 02:14 PM 11/6/00 -0800, you wrote:

>The latest claim is that they can't make a copy due to

>copyright laws. I said give me a blank test and then

>the results for each item.

>

>

>--- nitetrax@... wrote:

> > You have a right to any records (educational or

> > medical) pertaining to

> > your child no matter what they are or who has them.

> > They cannot refuse you.

> > It's against the law. I had a doctor try this with

> > Dillon's (age 8 NT)

> > biopsy report, but she had some

> > thinks-she's-God-thing going on. You

> > shouldn't have to anything more than ask. If you

> > can't get it from the case

> > worker, go over her head. Then keep going until you

> > get what you need.

> > Personally, I find going to the top immediately the

> > best way to deal with

> > people like your school psychologist. Go to the

> > school superintendant. That

> > should get her attention.

> > Sissi

> > nitetrax@...

> > Kids' Page

> > http://home.isoa.net/~nitetrax/dillon.htm

> >

> > HELP!

> >

> >

> > > I applied for the Beckett this summer...I

> > paid a Babies Can't

> > > Wait employee (who does the forms on the side) to

> > be sure the

> > > paperwork was done correctly. I was turned

> > down...they didn't count

> > > the BDI I sent in so I needed a new psych. In

> > August I requested that

> > > the school do it. It was finally done in Sept. I

> > got a letter

> > > summarizing the eval. My case worker says I need

> > the actual eval, not

> > > just a summary. I have been trying for weeks to

> > get a copy. The

> > > school psychologist doesn't want me to have

> > it...she says the letter

> > > has been all that was needed in the past.

> > > Those of you with experience...Don't I have a

> > right to a copy of the

> > > eval? If so, how do I make them give it to me?

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Sorry you are in pain, I would have to say that the prednisone works

for me in a matter of hours. My last flair does not sound as serious

as the one you are having.

Hope you feel better.

Chris

> Hi! I have a question about prednisone, so I thought I'd go to the

source

> with the most knowledge - my Stills friends.

>

> I haven't been on pred for almost two years now. The last time

(that I can

> recall, that is) I responded to the pred within a couple of days.

My new

> primary doc just put me on pred (which he said he was trying to

avoid all

> along) because my sed rate has taken some big jumps in going up.

He's

> always been against it in the past because of its lovely nasty side

effects.

> However, I got a call last week from his nurse that he wanted me on

20 mg in

> the morning and 10mg at night until after the Labor Day weekend

when I have

> an appointment to see him.

>

> Those lab tests were from at least a week prior to that. So, since

I've

> been feeling A LOT WORSE since the blood was drawn, I think my sed

rate is a

> lot higher! He thought the 65 sed rate was high, but I've been

over 90 in

> the past (though that was almost 3 years ago!).

>

> I know, sorry, I'm rambling here... I started on the pred four

days ago. I

> also started with a TENS unit last week. I've been in so much pain

that

> I've got that darn TENS unit up full blast and I'm still crying in

pain. I

> was in the ER on Sunday night and again last night. Stupid ER doc

(sorry,

> but you all know there are a lot of " uneducated " and " uncaring "

ones out

> there) first time just gave me some IV fluids and a shot for nausea

(duh,

> the wretching was from all the pain!) and an Rx for Valium (? -

anyone ever

> gotten this for pain?). Last night, after an attack of chills,

severe

> sweating for several hours, pain so bad I couldn't move, go to

sleep, eat,

> drink much, much less function, I called the doc that was on call

for my

> doc. I wasn't very coherent but he told me I needed to go to the

ER. Oh,

> wow...what a surprise (sorry, pain makes for crabby people!).

>

> My friend took me and I got the same stupid ER physician AGAIN!!!

This time

> he said he really couldn't see anything he could do for me. He

said I

> SHOULD WAIT UNTIL THE PREDNISONE KICKS IN!!! He thought I was just

being a

> little IMPATIENT!!! (No, I was being a 'patient in pain'!) He did

give me

> a shot of Demerol with phenergan (pain killer, but not a big dose)

and 125

> mg of Solu-Medrol.

>

> I'm not sure which one helped, but I at least slept last night and

woke up

> today feeling better. Now it's late afternoon and I'm starting to

ache

> severely and the familiar pain is coming back. I can't go through

another

> night of this. I live alone and this is really scaring me. I've

never been

> in this much pain before.

>

> My doc is gone today, but I've called his office to see if the

other doc can

> do something for me before it's nighttime and all this misery starts

> happening again. Geez, what does it take to get someone's

attention!?!

>

> Do you guys think it really can take so long for the prednisone to

work.

> I've had a gastric bypass and don't absorb things orally very

well. I told

> the stupid doc that, but he just looked at me! I don't think the

pain shot

> lasted from last night until this afternoon, so it must have been

the extra

> boost from the Solu-Medrol. What do you guys think? I told the

office that

> I'd be happy to self-inject some more Solu-Medrol, if a doc there

would

> order it. Or do you think I should get something more for pain.

> Injectable? Oral? I have no problems with giving myself shots.

>

> HELP!!!!!!!!!!!!

> Jul

[Guest guest]

I'm currently doing better! I finally had to get in touch with one of " my

docs! " They had me come in and get an IV infusion of 1 gram of Solu-Medrol.

Boy, what a help that was. After all the harassment and frustration I went

though, just because the average doc does know diddly about AOSD! Now, its just

a matter of keeping my fingers crossed that this lasts through until next

Tuesday (when I see my doc again!). He also upped my oral prednisone to 40 mg a

day. I'm still aching, had some fever, sweating and pain, but gosh...at least

I'm not crying out in pain and have been able to get some sleep in (with my TENS

unit on also!).

Boy, this is the worst flare I've ever had. I thought this disease was supposed

to be the worst in the beginning and then taper off with (hopeful) remissions

in-between. I had this 1997, and this was the worst flare I've ever had. I

don't get the rashes, so most of my symptoms are " invisible. " Of course,

medically trained people should know how to identify pain intensity (such as

elevated blood pressure, sweating/chills, dry heaves or vomiting at pain

threshold, etc. I guess it was just dumb luck to happen to become " evaluated "

by " medically intelligent-deficit " doctors!

Glad I could voice my frustrations with people who understand!

Thanks everyone! Now I hope the " good treatment " will continue, because I'm far

from out of the woods. I know they can't keep me on this high dosing of

corticosteroids for long without doing severe damage somewhere else in my body.

Hope everyone is having a good holiday weekend (mine at least is not a

disaster!).

All my heart,

Jul

Re: HELP!

Sorry you are in pain, I would have to say that the prednisone works

for me in a matter of hours. My last flair does not sound as serious

as the one you are having.

Hope you feel better.

Chris

> Hi! I have a question about prednisone, so I thought I'd go to the

source

> with the most knowledge - my Stills friends.

>

> I haven't been on pred for almost two years now. The last time

(that I can

> recall, that is) I responded to the pred within a couple of days.

My new

> primary doc just put me on pred (which he said he was trying to

avoid all

> along) because my sed rate has taken some big jumps in going up.

He's

> always been against it in the past because of its lovely nasty side

effects.

> However, I got a call last week from his nurse that he wanted me on

20 mg in

> the morning and 10mg at night until after the Labor Day weekend

when I have

> an appointment to see him.

>

> Those lab tests were from at least a week prior to that. So, since

I've

> been feeling A LOT WORSE since the blood was drawn, I think my sed

rate is a

> lot higher! He thought the 65 sed rate was high, but I've been

over 90 in

> the past (though that was almost 3 years ago!).

>

> I know, sorry, I'm rambling here... I started on the pred four

days ago. I

> also started with a TENS unit last week. I've been in so much pain

that

> I've got that darn TENS unit up full blast and I'm still crying in

pain. I

> was in the ER on Sunday night and again last night. Stupid ER doc

(sorry,

> but you all know there are a lot of " uneducated " and " uncaring "

ones out

> there) first time just gave me some IV fluids and a shot for nausea

(duh,

> the wretching was from all the pain!) and an Rx for Valium (? -

anyone ever

> gotten this for pain?). Last night, after an attack of chills,

severe

> sweating for several hours, pain so bad I couldn't move, go to

sleep, eat,

> drink much, much less function, I called the doc that was on call

for my

> doc. I wasn't very coherent but he told me I needed to go to the

ER. Oh,

> wow...what a surprise (sorry, pain makes for crabby people!).

>

> My friend took me and I got the same stupid ER physician AGAIN!!!

This time

> he said he really couldn't see anything he could do for me. He

said I

> SHOULD WAIT UNTIL THE PREDNISONE KICKS IN!!! He thought I was just

being a

> little IMPATIENT!!! (No, I was being a 'patient in pain'!) He did

give me

> a shot of Demerol with phenergan (pain killer, but not a big dose)

and 125

> mg of Solu-Medrol.

>

> I'm not sure which one helped, but I at least slept last night and

woke up

> today feeling better. Now it's late afternoon and I'm starting to

ache

> severely and the familiar pain is coming back. I can't go through

another

> night of this. I live alone and this is really scaring me. I've

never been

> in this much pain before.

>

> My doc is gone today, but I've called his office to see if the

other doc can

> do something for me before it's nighttime and all this misery starts

> happening again. Geez, what does it take to get someone's

attention!?!

>

> Do you guys think it really can take so long for the prednisone to

work.

> I've had a gastric bypass and don't absorb things orally very

well. I told

> the stupid doc that, but he just looked at me! I don't think the

pain shot

> lasted from last night until this afternoon, so it must have been

the extra

> boost from the Solu-Medrol. What do you guys think? I told the

office that

> I'd be happy to self-inject some more Solu-Medrol, if a doc there

would

> order it. Or do you think I should get something more for pain.

> Injectable? Oral? I have no problems with giving myself shots.

>

> HELP!!!!!!!!!!!!

> Jul

[Guest guest]

Dear Jul,

It sounds like you have had a terrible few days. I hope that you can find

relief soon. I hope you have a good Dr. that can help you get your disease

under control.

The Prednisone should act pretty quickly. Maybe it is because you said that

you don't absorb things well orally.

I would try to get something for your pain. You certainly can't run to the

ER every night. Unfortunately as you experienced they ussually don't do too

much for you. That has been my experience anyway.

Your in my thoughts and prayers,

jatw@...

[Guest guest]

I am trying to find out how to locate the new specail instructor to

Atlanta. She was mentioned a few days ago, but i didn't see the info.

Her name is Amy . Any information on her would be helpful.

thanks.

[Guest guest]

I will have Amy contact you.

Brad