Re: Our little one is coming home

[Guest guest]

So happy to hear Emma is coming home! WE didn't see a geneticist until

Dorothy was 15 months. There was so much else going on health wise we didn't

have

time. I guess it just came along in its natural order of things. He was pretty

helpful but TMI. Way too much information! He went over everything possible

that could present itself in the future. Too overwhelming for me. I have to take

it One Day At a Time. Good luck!! Enjoy your little girl.... Alice

Alice Poholsky

cell

[Guest guest]

Lynnelle and Craig,

What wonderful news!!!!!! Congratulations! You should both go out for a date,

because once she is home, your whole life will be completely different! And,

sleep in late, it will be the last time you get a chance to do so! LOL

I think that you should make an appointment with the genetisist at your lesiure.

Then you can make a list of questions you would like to ask. Make sure that you

ask the doctor for the Down syndrome health check list. This will give you a

guideline of things that should be checked throughout the years. It is nothing

major, but children with Ds need to have their thyroid checked, and some other

things (can't remember the whole list). But, I would wait to see the doctor

about a month, this will give you a chance to think of questions you might have.

And, by that time you will get used to your little one and will have millions of

questions!

I am so glad she is coming home! Give her lots of kisses from us!

Kristy

july4thmommie wrote:

I had to share with everyone that Emma gets out of the NICU on

Saturday.

We are thrilled. She has been so well that they don't need to keep

her any

more!!!!

One quick question: When will she need to see the geneticist? We

saw the

Geneticist when they told us about the MDS, but I have no idea when

to call

and make an appointment.

Lynnelle, Craig and Emma Snowbarger

Won't you please consider adding your personal story on the MDS website today?

http://www.mosaicdownsyndrome.com

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Become a member of IMDSA at http://www.imdsa.com

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MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

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[Guest guest]

I don't think it would hurt. It's always good I think to be aware of

information that you can look back on in the future and say to yourself " I

remember

the doctor/geneticist saying this could be a possibility " , and now you have the

knowledge to have the situation checked out further. So much of what the

geneticist mentioned was in the book Babies with Down Syndrome A New Parents

Guide.

Basically every child is different, every child with Downs is different. No

doctor can really predict what the future holds so it really comes down to One

Day At A Time and live for today and be grateful. I know this sounds like a

large order! But, it does get easier in time.

One of the things I recall reading is sometimes Downs children have more

problems with their teeth. So I have been taking Dorothy to the dentist every 3

-

6 months to have her teeth cleaned and checked for cavities or whatever else

needs to be checked. She/we are not brushing teeth yet, she won't allow it. We

are working on this. So in the meantime, I just take her to the dentist and

keep her well visits up to date. There are many pediatric dentists around. There

is even one in Catonsville, MD that specializes in children with special

needs. They are so good with Dorothy. Nothing like I remember gong to the

dentist

as a child! lol.

God Bless, hope this was of some help. Alice

Alice Poholsky

cell

[Guest guest]

We have never seen a geneticist largely because I had a tubal ligation after

having Kelsey. She is now three. What kind of information did the

geneticist offer about the child? Do you think it would be beneficial to us

to see one? -- Tina

Re: Our little one is coming home

> So happy to hear Emma is coming home! WE didn't see a geneticist until

> Dorothy was 15 months. There was so much else going on health wise we

didn't have

> time. I guess it just came along in its natural order of things. He was

pretty

> helpful but TMI. Way too much information! He went over everything

possible

> that could present itself in the future. Too overwhelming for me. I have

to take

> it One Day At a Time. Good luck!! Enjoy your little girl.... Alice

>

> Alice Poholsky

> cell

>

>

>

[Guest guest]

There are additional medical tests to be done on anyone with MDS or Down

Syndrome. A genetic doctor can make sure all medical areas are addressed.

There

are specific health risks that are greater in these populations than to the

general public that must be monitored. Plus, we found this to be a caring

doctor who could take the time to help us plan and get proper services for our

son.

Sharon Kaye

Occupational Therapist

Mom to Mark with MDS age 17, 14 and Zack 11