Re: Fw: [Autism-Mercury] Re: Don't poison kids with TTFD, use Benfotiamine instead

[Guest guest]

Dr. Lonsdale is the reigning expert on thiamine, and his answer per my

request has already been posted in reply to this " c--p " by my friend Andy,

who has a personal vendetta against TTFD in spite of having nothing to

substantiate it except his opinion. I do not keep many posts, so you'll

have to go to archives and check subject to find it. I also asked Dr.

Bradstreet why he's not using TTFD, and he says it is not dangerous but is

foul-smelling and he thinks our methylation strategies now are taking care

of what TTFD does. I have found it very useful, and have almost all of my

patients on it in addition to all other things I am doing. I usually use

Authia to cut down the odor problem except for a few who don't mind it and

like the results they get with the compounded variety. Dr. JM

[Autism-Mercury] Re: Don't poison kids with TTFD, use

Benfotiamine instead

>

>

> > Andy:

> >

> > Is this a new product,

>

> No, it has been around for decades, just like TTFD.

>

> > I have never heard of it

>

> That is because it isn't a fashion fad among the liberal arts majors

> turned MD who work in this area.

>

> > especially with all the talks about TTFD on the list.

>

> All the talk of TTFD plus all the adverse reaction reports plus some

> positive reports (not on toxin clearance, but on general improvement as

> one would expect for correcting functionally inadequate thiamine

> levels) motivated me to look for an alternative to poisoning children

> in order to get enough thiamine in them.

>

> > Thanks Jeanne

> >

> > andrewhallcutler <AndyCutler@a<mailto:AndyCutler@a>...> wrote:

> > For those who think their child needs more thiamine than they can

> > absorb by using the regular stuff, there are alternatives to TTFD.

> >

> > Benfotiamine is one. It releases fairly benign benzoic acid rather

> > than toxic tetrahydrofurfuryl mercaptan when the thiamine is set free.

> > Also benfotiamine has the thaimine in the semi-active

> > monophosphorylated form while TTFD does not.

> >

> > You can find info at www.benfotiamine.org<http://www.benfotiamine.org/>

and can order it from

> > www.benfotiamine.net<http://www.benfotiamine.net/> (there are probably

other sources as well).

> >

> > Since benfotiamine does not have the toxicity of TTFD, it can be used

> > by mouth rather than transdermally.

> >

> > BTW, both benfotiamine and TTFD were developed for the same purpose -

> > preventing alcoholic neuropathy and psychosis - and for this purpose

> > they do both work reasonably well.

> >

> > Andy . . . . . . . . . .

> >

>

>

>

>

>

> =======================================================

>

[Guest guest]

Dr. M, thank you for clearing this up for me.

[Autism-Mercury] Re: Don't poison kids with TTFD, use

Benfotiamine instead

>

>

> > Andy:

> >

> > Is this a new product,

>

> No, it has been around for decades, just like TTFD.

>

> > I have never heard of it

>

> That is because it isn't a fashion fad among the liberal arts majors

> turned MD who work in this area.

>

> > especially with all the talks about TTFD on the list.

>

> All the talk of TTFD plus all the adverse reaction reports plus some

> positive reports (not on toxin clearance, but on general improvement as

> one would expect for correcting functionally inadequate thiamine

> levels) motivated me to look for an alternative to poisoning children

> in order to get enough thiamine in them.

>

> > Thanks Jeanne

> >

> > andrewhallcutler

<AndyCutler@a<mailto:AndyCutler@a<mailto:AndyCutler@a<mailto:AndyCutler@a>>...>

wrote:

> > For those who think their child needs more thiamine than they can

> > absorb by using the regular stuff, there are alternatives to TTFD.

> >

> > Benfotiamine is one. It releases fairly benign benzoic acid rather

> > than toxic tetrahydrofurfuryl mercaptan when the thiamine is set free.

> > Also benfotiamine has the thaimine in the semi-active

> > monophosphorylated form while TTFD does not.

> >

> > You can find info at

www.benfotiamine.org<http://www.benfotiamine.org/<http://www.benfotiamineorg<htt\

p://www.benfotiamine.org/>>

and can order it from

> >

www.benfotiamine.net<http://www.benfotiamine.net/<http://www.benfotiaminenet<htt\

p://www.benfotiamine.net/>> (there are probably

other sources as well).

> >

> > Since benfotiamine does not have the toxicity of TTFD, it can be used

> > by mouth rather than transdermally.

> >

> > BTW, both benfotiamine and TTFD were developed for the same purpose -

> > preventing alcoholic neuropathy and psychosis - and for this purpose

> > they do both work reasonably well.

> >

> > Andy . . . . . . . . . .

> >

>

>

>

>

>

> =======================================================

>

[Guest guest]

Dear Moria: He did address it, I thought it was on the info I sent, but

perhaps it was to me personally. I am in HI without any of my files, but I

recall him saying it was a thiamine that definitely had some drawbacks.

Also, I'm not giving TTFD for the thiamine, as my kids are getting that in

their other nutrients. I'm sorry, Moria, but Dr. Lonsdale has at least 17

published papers on thiamine, and Owens found a published article on

the benefits of TTFD on rat livers. We aren't (all) rats, but after using

this with hundreds of kids I have followed, I would not say my information

is just " opinion " , though I certainly agree that in this new field we are

forced to often make decisons without all the final data. As I've said ad

nauseam, AM draws the parents who have had bad results, and Andy goes by

that, rather than the hundreds to thousands of kids who are getting good

results about whom he never hears, though I have told him many times of my

excellent results, including one child who absolutely lost his diagnosis

using 8 months of TTFD, TD GSH, and methylcobalamin (no chelation).

Jaquelyn Fw: [Autism-Mercury] Re: Don't poison kids with

TTFD, use Benfotiamine instead

> Hello Jaquelyn's and and others,

>

> When first posted this, I honestly thought she was

> asking for Jaquelyn's opinion about ***Benfotiamine***

> (which Lonsdale does NOT address in the prior post).

>

> Jaquelyn's response appears to be only regarding TTFD, and

> says she is satisfied with this answer.

>

> I'm afraid I can't leave this without some comment however:

>

>

> > > > For those who think their child needs more thiamine than they

> can

> > > > absorb by using the regular stuff, there are alternatives to

> TTFD.

> > > >

> > > > Benfotiamine is one. It releases fairly benign benzoic acid

> rather

> > > > than toxic tetrahydrofurfuryl mercaptan when the thiamine is

> set free.

> > > > Also benfotiamine has the thaimine in the semi-active

> > > > monophosphorylated form while TTFD does not.

> > > >

> > > > You can find info at

> www.benfotiamine.org<http://www.benfotiamine.org/>

> > and can order it from

> > > > www.benfotiamine.net<http://www.benfotiamine.net/> (there are

> probably

> > other sources as well).

> > > >

> > > > Since benfotiamine does not have the toxicity of TTFD, it can

> be used

> > > > by mouth rather than transdermally.

> > > >

> > > > BTW, both benfotiamine and TTFD were developed for the same

> purpose -

> > > > preventing alcoholic neuropathy and psychosis - and for this

> purpose

> > > > they do both work reasonably well.

> > > >

> > > > Andy . . . . . . . . . .

> > > >

> > >

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com>

>

[Guest guest]

Moria, it does signify, though, that Dr. McC has many patients on TTFD, and so

has that direct experience with TTFD in action with a large number of patients

that I don't believe Andy has. Just my opinion, but it seems common sense that

this experience gives the edge to her point of view over his.

I also know I posted about a year ago on the A-M board - of which I should say

that I'm an appreciative member - about the very substantial increase in mercury

and other nasties in my son's Doctor's Data hair test, following the use of

nothing but TTFD. I asked Andy for his thoughts but, for whatever reason, he

didn't reply. Now I am a great admirer of his intellect and his generosity.

However, I'm not alone in thinking that he has a " thing " about TTFD that goes

beyond anything rational that I've seen him give as documentation for his

concern. So many of the things we do to deal with mercury can backfire,

including DMSA for some. I'm sorry to see him telling others not to consider

something that has helped many, especially those who for gut or whatever reasons

do badly with DMSA.

Again, I say this with respect..........

Abbie

Fw: [Autism-Mercury] Re: Don't poison kids with TTFD,

use Benfotiamine instead

Hello Jaquelyn's and and others,

When first posted this, I honestly thought she was

asking for Jaquelyn's opinion about ***Benfotiamine***

(which Lonsdale does NOT address in the prior post).

Jaquelyn's response appears to be only regarding TTFD, and

says she is satisfied with this answer.

I'm afraid I can't leave this without some comment however:

> > > For those who think their child needs more thiamine than they

can

> > > absorb by using the regular stuff, there are alternatives to

TTFD.

> > >

> > > Benfotiamine is one. It releases fairly benign benzoic acid

rather

> > > than toxic tetrahydrofurfuryl mercaptan when the thiamine is

set free.

> > > Also benfotiamine has the thaimine in the semi-active

> > > monophosphorylated form while TTFD does not.

> > >

> > > You can find info at

www.benfotiamine.org<http://www.benfotiamine.org/>

> and can order it from

> > > www.benfotiamine.net<http://www.benfotiamine.net/> (there are

probably

> other sources as well).

> > >

> > > Since benfotiamine does not have the toxicity of TTFD, it can

be used

> > > by mouth rather than transdermally.

> > >

> > > BTW, both benfotiamine and TTFD were developed for the same

purpose -

> > > preventing alcoholic neuropathy and psychosis - and for this

purpose

> > > they do both work reasonably well.

> > >

> > > Andy . . . . . . . . . .

> > >

> >