New Member

[Guest guest]

Hi Everyone,

I am a new member to CCI. My name is Kim, age 34 and Preschool

teacher from Upstate NY. Mother of three under age 15. I was finally

diagnosed in 8/05 with Chiari 1 with hernination of 13mm. I was

misdiagnosed to have migraine headaches since a teenager. Migraines

run in the family. I think it is Chiari. With my help, my oldest

sister was diagnosed in Jan08 with Chiari 1 as well. I knew that it

was not just migraines. I always have had headeaches but after my

third child was born they became worse. Then I began to have severe

neck pain, severe shoulder pain, numbness and tingling in arm & legs,

tired, choking spells and finally a blackout. I was told it was from

stress of children and life. It took a blackout before an MRI was

ordered.I knew something was wrong. The scary part was I was going to

the Chiropactor prescribe by my doctor without an MRI. We all know

how dangerous that is. My chiropactor and I are good friends. She has

changed her policy to require MRI before she'll adjust any one and

looks from Chiari symptons in her patients. I had my decompression

surgery on 3/23/07 .

All the symptoms where gone. In

Dec. 07, mild headaches and neck pain returned. I still have these

sympotns but not every day like before surgery.

Has any of you had

symptons return months after surgery? My neurosurgeon has prescribed

PT and Neurontin for these syptons. Says these are not Chiari

sysmptons returning. Has any one taking Neurontin for headaches? When

I looked it up on the web it had lawsuits against it and bad side

effects. My system was to sencitive when taking Topomax at a low

dose. I been through the medicine things that didn't work at all.

Email me if you taken Neurontin or any advice.

It will be 1 year since my surgery next week. I'm feeling great and

slowly getting my endurance back. The surgery was worth it.

Have a pain free-day. Best wishes, Kim