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Re: Digest Number 1459

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It seems that more and more we have a national day for illnesses, and other

things as well. I'm just wondering if there is a way to do this and have it

actually recognized by the government, media, and such.

A national day of awareness for Chiari, Syringomyelia or most likely perhaps-

rare illnesses or orphan diseases, any idea or information of how to do this?

While watching a news program, the cancer awareness has raised a huge, enormous

amount of money in the past year for research( if it stuck at all to my Teflon

brain-it was over 50 million). How could we do this?

Where do we begin? Anyone?

Warm Regards,

Judy Marie

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