E.R.

[Guest guest]

Hi Everyone,

I am a bit frustrated. I am so torn between (1) just accepting that

I have a disease that is rare and I won't ever figure out why I am

sick and (2) really just going after a reason (Great job Els - by

the way! I sure hope you can find out what is making you sick and

help us all!!!!) I am having some awful right side pain (front and

back) - my doctor thought it was kidney stones and recommended a

trip to ER. The CAT scan showed no kidney stones and all my blood

work was fine. I am thinking it is related to eating. I am really

nauseous about 10 to 20 minutes after eating. Flaring up as usual -

new bumps popping out all the time.

Of course the ER docs had no clue about EN - one actually said to me

that it was " just " a derm. thing and it couldn't be related. In a

very nice way, I educated him a bit about us ENers. I am resting

mainly because my side hurts so much I have to! Any experience

here? Guesses? Advice on what to follow up on?

- sorry about all those bumps ouch! Beautiful pictures

though - Your son is adorable!!!!

Have a great weekend!

Deb

[Guest guest]

Hi Everyone,

Thanks so much for all the replies to my desperate cry for help. I am still in a lot of pain and did some research into some other doctor choices in the middle of the night last night. I am going to call my regular doctor today and get an appointment but I am also calling to the gastroen. department at the teaching hospital nearby. I am going to try to get the doctors to figure this out - I don't have a choice. It really hurts. I will keep you posted when I find anything out - hopefully you will remember me by then - ha!

Thanks again for taking the time to share with me your stories and give some advice - they really helps!

Deb C.

Jeff wrote:

you "might" want to get checked out for ibd. the terminal ileum (connection between the small and large bowel) is in the quadrant you mention, that is the type of crohns i have. i go thru periods of "stricturing" due to this area being narrow. the scare tisse has narrowed that area and sometimes it is painful for no reason, even tho i know i am not in a flare.just a thought.jeff> > Hi Everyone,> > I am a bit frustrated. I am so torn between (1) just accepting that > I have a disease that is rare and I won't ever figure out why I am > sick and (2) really just going after a reason (Great job Els - by > the way! I sure hope you can find out what is making you sick and >

help us all!!!!) I am having some awful right side pain (front and > back) - my doctor thought it was kidney stones and recommended a > trip to ER. The CAT scan showed no kidney stones and all my blood > work was fine. I am thinking it is related to eating. I am really > nauseous about 10 to 20 minutes after eating. Flaring up as usual -> new bumps popping out all the time. > > Of course the ER docs had no clue about EN - one actually said to me > that it was "just" a derm. thing and it couldn't be related. In a > very nice way, I educated him a bit about us ENers. I am resting > mainly because my side hurts so much I have to! Any experience > here? Guesses? Advice on what to follow up on? > > - sorry about all those bumps ouch! Beautiful pictures > though - Your son is adorable!!!!

> > Have a great weekend!> Deb__________________________________________________

[Guest guest]

I hope you are better now. Before I started that

special diet, I had also troubles with my stomac and

intestens. Now I don't have them anymore, I can eat

now without getting sick. Maybe an advise: don't eat

to much sugar, don't drink to much milk, don't eat to

much cheese and things alike. And drink enough water.

Certainly when you have these pains. It's good for

your kidneys and the rest of your body. I don't drink

or eat these things anymore and it helps a lot. I have

the feeling that the EN is getting better. But I

would tell it to your dr., and ask his opinion.

Because the things I do is personal and doesn't count

for everyone. Next time I see my dr., I'l ask him.

I hope they can help you by finding the problem and

the reason of EN. Because that's the most important.

I wish you all the luck and strength you need!

Els

--- Deb wrote:

> Hi Everyone,

>

> Thanks so much for all the replies to my desperate

> cry for help. I am still in a lot of pain and did

> some research into some other doctor choices in the

> middle of the night last night. I am going to call

> my regular doctor today and get an appointment but I

> am also calling to the gastroen. department at the

> teaching hospital nearby. I am going to try to get

> the doctors to figure this out - I don't have a

> choice. It really hurts. I will keep you posted

> when I find anything out - hopefully you will

> remember me by then - ha!

>

> Thanks again for taking the time to share with me

> your stories and give some advice - they really

> helps!

> Deb C.

>

>

>

> Jeff wrote:

>

> you " might " want to get checked out for ibd. the

> terminal ileum

> (connection between the small and large bowel) is in

> the quadrant you

> mention, that is the type of crohns i have. i go

> thru periods

> of " stricturing " due to this area being narrow. the

> scare tisse has

> narrowed that area and sometimes it is painful for

> no reason, even

> tho i know i am not in a flare.

>

> just a thought.

>

> jeff

>

>

> >

> > Hi Everyone,

> >

> > I am a bit frustrated. I am so torn between (1)

> just accepting

> that

> > I have a disease that is rare and I won't ever

> figure out why I am

> > sick and (2) really just going after a reason

> (Great job Els - by

> > the way! I sure hope you can find out what is

> making you sick and

> > help us all!!!!) I am having some awful right

> side pain (front and

> > back) - my doctor thought it was kidney stones and

> recommended a

> > trip to ER. The CAT scan showed no kidney stones

> and all my blood

> > work was fine. I am thinking it is related to

> eating. I am really

> > nauseous about 10 to 20 minutes after eating.

> Flaring up as usual -

>

> > new bumps popping out all the time.

> >

> > Of course the ER docs had no clue about EN - one

> actually said to

> me

> > that it was " just " a derm. thing and it couldn't

> be related. In a

> > very nice way, I educated him a bit about us

> ENers. I am resting

> > mainly because my side hurts so much I have to!

> Any experience

> > here? Guesses? Advice on what to follow up on?

> >

> > - sorry about all those bumps ouch!

> Beautiful pictures

> > though - Your son is adorable!!!!

> >

> > Have a great weekend!

> > Deb

>

>

>

>

>

[Guest guest]

Good Luck and I will keep you in my prayers that your pain eases up... I will be waiting to see how you make out.

Jackie S.

Re: Re: E.R.

Hi Everyone,

Thanks so much for all the replies to my desperate cry for help. I am still in a lot of pain and did some research into some other doctor choices in the middle of the night last night. I am going to call my regular doctor today and get an appointment but I am also calling to the gastroen. department at the teaching hospital nearby. I am going to try to get the doctors to figure this out - I don't have a choice. It really hurts. I will keep you posted when I find anything out - hopefully you will remember me by then - ha!

Thanks again for taking the time to share with me your stories and give some advice - they really helps!

Deb C.

Jeff wrote:

you "might" want to get checked out for ibd. the terminal ileum (connection between the small and large bowel) is in the quadrant you mention, that is the type of crohns i have. i go thru periods of "stricturing" due to this area being narrow. the scare tisse has narrowed that area and sometimes it is painful for no reason, even tho i know i am not in a flare.just a thought.jeff> > Hi Everyone,> > I am a bit frustrated. I am so torn between (1) just accepting that > I have a disease that is rare and I won't ever figure out why I am > sick and (2) really just going after a reason (Great job Els - by > the way! I sure hope you can find out what is making you sick and! > help us all!!!!) I am having some awful right side pain (front and > back) - my doctor thought it was kidney stones and recommended a > trip to ER. The CAT scan showed no kidney stones and all my blood > work was fine. I am thinking it is related to eating. I am really > nauseous about 10 to 20 minutes after eating. Flaring up as usual -> new bumps popping out all the time. > > Of course the ER docs had no clue about EN - one actually said to me > that it was "just" a derm. thing and it couldn't be related. In a > very nice way, I educated him a bit about us ENers. I am resting > mainly because my side hurts so much I have to! Any experience > here? Guesses? Advice on what to follow up on? > > - sorry about all those bumps ouch! Beautiful pictures > though - Your son is adorable!!!! & nb! sp; > > Have a great weekend!> Deb

__________________________________________________

[Guest guest]

Hi Jackie,

Thanks for the prayers. I am starting to feel better. I really think this could be a reaction to the Bextra I started taking last Tuesday night for my EN. I have a doctor's appointment on Thursday - I am praying he can think out-of-the-box a bit!

Have a good one!

Deb

Jackie Siraco wrote:

Good Luck and I will keep you in my prayers that your pain eases up... I will be waiting to see how you make out.

Jackie S.

Re: Re: E.R.

Hi Everyone,

Thanks so much for all the replies to my desperate cry for help. I am still in a lot of pain and did some research into some other doctor choices in the middle of the night last night. I am going to call my regular doctor today and get an appointment but I am also calling to the gastroen. department at the teaching hospital nearby. I am going to try to get the doctors to figure this out - I don't have a choice. It really hurts. I will keep you posted when I find anything out - hopefully you will remember me by then - ha!

Thanks again for taking the time to share with me your stories and give some advice - they really helps!

Deb C.

Jeff wrote:

you "might" want to get checked out for ibd. the terminal ileum (connection between the small and large bowel) is in the quadrant you mention, that is the type of crohns i have. i go thru periods of "stricturing" due to this area being narrow. the scare tisse has narrowed that area and sometimes it is painful for no reason, even tho i know i am not in a flare.just a thought.jeff> > Hi Everyone,> > I am a bit frustrated. I am so torn between (1) just accepting that > I have a disease that is rare and I won't ever figure out why I am > sick and (2) really just going after a reason (Great job Els - by > the way! I sure hope you can find out what is making you sick and!

> help us all!!!!) I am having some awful right side pain (front and > back) - my doctor thought it was kidney stones and recommended a > trip to ER. The CAT scan showed no kidney stones and all my blood > work was fine. I am thinking it is related to eating. I am really > nauseous about 10 to 20 minutes after eating. Flaring up as usual -> new bumps popping out all the time. > > Of course the ER docs had no clue about EN - one actually said to me > that it was "just" a derm. thing and it couldn't be related. In a > very nice way, I educated him a bit about us ENers. I am resting > mainly because my side hurts so much I have to! Any experience > here? Guesses? Advice on what to follow up on? > > - sorry about all those bumps ouch! Beautiful pictures > though - Your son is

adorable!!!! & nb! sp; > > Have a great weekend!> Deb

__________________________________________________