RE: MB12; ; Zinc Monomethionine

[Guest guest]

Thanks Vera. I’ve tried upping the

CLO and never saw any differences so I was thinking from your post maybe I was

missing the extra need for zinc. I’ll give it a try to check (he’s

really sensitive so I will start very slow) -

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Vera

Sent: Sunday, January 07, 2007

1:01 AM

To: mb12 valtrex

Subject: RE: MB12;

; Zinc Monomethionine

Hi

Regardless of the reason your child is hand stimming, I recommend zinc

monomethionine (or zinc polinate). It just really really helps so many

behaviors. My whole family is on it, and we think we all benefit.

The brand we get is called Complementary Prescriptions. You can

contact them at: . Here is the website. You may to

have your doctor's office get it for you. We get ours from our DANs Dr.

Bob Sears and Dr. Jerry Kartzinel. It is not an Rx, but you need to

contact them in terms of how to get it.

Here is the website.

http://www.cpmedical.net/

If you are not able to get it, I would ask the list our google for

other recommendations. Zinc monomethionine is very very strong. I would

start out in tiny doses throughout the day (it tastes yucky -- so the small

doses work better) with food. If you give it on an empty stomach he may

vomit (I did). I have had white lines on my nails (zinc deficiency) my

entire life and tried all the standard forms of zinc, but only the

monomethionine made them go away. After almost two years, can take

them on an empty stomach. That is how I tried and promptly threw up.

I recommend it to just about everyone. It is the most absorbable

form and it really really helps just overall behavior.

**************

I would say IMO that there are several types of " odd " eye

/ hand beahvior. We had the luxury of living with all of them.

Sometimes they need vision therapy to help improve. But I do not think

therapy alone with help. You are aware of most of these issues, but

I will go through in case any one else is following the thread.

1. Hand gazing, side glancing, staring at objects really really

close up even though they can see objects across the room. Often these

behaviors are attributed to damaged retinoid receptors (see Megson's

work). Bethanehcol and Omega 3s really help these behaviors. At age

3.5 his vision processing was about 80% delayed. Now it is normal.

The reason for the hand gazing is that the hand literally appears to detach

from the arm -- and well you can imagine why they stare. About 1 in 8 to

1-10 ASD kids are affected. Bethanehcol is an Rx and can according to

several DANs, can lower the seizure threshhold. But bethanechol was a

really great intervention for .

2. Hand gazing as a stimming type behavior which can be either

yeast or OCD.

3. Sporadic hand violence (very very very rare) and is only

one of a handful of kids of several thousand on CK2 that experienced this --

all the affected kids had the problem right after starting MB12 and all outgrew

it on zinc monomethionine. It does not sound like this is what your son

is doing. One minute they are sitting, playing happily and the next

minute they are attacking a hand like a caged animal going after

prey. It has not happened in over a year. But every once in a while

someone posts that they just started MB12 and now their child is attacking the

hands. We always say -- go for the zinc.

4. Watching TV etc upside down -- I think this one is

viruses. Prior to Valtrex he spent a good part of his day upside down

and/or dragging his head along the floor or along the wall.

5. Weird gazes and staring at things up close can also be due to

plain blurry vision and loss of peripheral vision and/or double vision:

Several neurologists documented that had no peripheral vision and saw

double. We think these improved with CLO and DMPS suppositories.

MB12 and Valtrex were not enough.

*********

Regardless of the reason your child is hand stimming, I recommend zinc

monomethionine.

Best wishes and I hope this answers your questions -- let me know if I

need to clarify.

Vera

Chap 'n Ali

<chapnalliverizon (DOT) net> wrote:

Vera,

Thanks for the

detail!! My son’s “hand stimming” Not flapping

more like hand staring really (then he makes them fly in the air) took off

during and after valtrex. We were on a small amount of zinc drink from

metagenics. But we are out. Do you think I should switch to the

zinc monomethinonine? I saw some capsule form at Wild Oats and almost

picked it up from your recommendations but went with a different kids

one. Now since you related that major hand looking I’m wondering if

I should jump on the zinc monomethionine. What kind of hand stimming did

your son do? Also he has become a little more aggressive at school like

never before (with his aide) I was thinking it was because we were out of

zinc. I’ve been concentrating so heavily on the yeast maybe

I’m missing a more important component at the moment. Thanks in

advance for your input,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Vera

Sent: Saturday, January 06, 2007

1:00 AM

To: mb12 valtrex

Subject: Re: MB12

Vera; last one;

A while back I listed some supplements that can help with the positive

negative side effects of MB12. We eventailly formed a mini-group of

about 10 kids that a hard time with MB12 and I wanted to include some

of the things that worked. I also would very much like to know more

regarding the genetics that are a contradiction to MB12. As far as the

things below, it goes without saying that the things that worked for some kids

were not tolerated by others

The problems I list below are also common in ASD, so note that I

am talking about a change in the behavior or a worsening of the behavior.

1, Hyperness and stimming: taurine and magnesium

sulfate cream. Remove TMG if the child is on it and you can replace with

DMG or try again later.

2. Sporadic self-inflicted violence: Zinc monomethionine.

and some of the other boys would be fine and then all of a sudden start biting

their hand. It was not a chronic thing (more likely fungus), but one

minute the kid is happy and the next minute he is biting the hand so hard that

it bleeds. Some of the boys started to punch a wall.

3. Mood swings, overly emotional, lethargic: Again,

zinc monomethionine.

4. Complete spaciness, tics, zombie: It was a reaction

to folinic in almost all cases. The problem disappeared when folinic was

replaced with folate.

5. Sustained violence not related to a yeast flare up (and you

have to be careful with that one): Again, it was a reaction to the

folinic. Some kids became zombies while others became violent.

6. Not responding at all to MB12: Adding in the

folinic. So what was the nightmare to some kids was a huge part of

progress for others.

The hand violence we think is linked to a high level of

histamines in the blood. If the MB12 starts to create a demand for zinc

and a person that may not even be that deficient in zinc starts

to use up the zinc, then the result can be psychotic behavior. It got to

the point for about the first 6 months on MB12 that if he even looked at his

hands, we would run for the zinc. Now he gets by on just 25 mgs per day,

but at the time he could not function on less than 80 mgs per day (he was 40

pounds). We even had to do it during chelation. He is such a

sweetie now that it is hard to believe we ever lived through that.

Best wishes

Vera

5.