Re: I need your input and help

November 24, 2009

If you arent happy w/your doctor fire her, and go find another, w/my endo

condition I used to get my charts from the doctors I saw, one of them the nurse

wrote that I was a bitch. Despite the way it was intended I took it as a

compliment, BITCH = Babe In Total Control of Herself.... If the new doctor is

going to ignore your symptoms feeling and words and only go w/what the old

doctor said that that doctor is not the doctor for you, fire them and go on to

the next.

Remember you are only helpless if you choose to be. First stand up and say Im

not going to take it anymore, screw the old doc & her diagnosis go out and find

someone who will actually help you and be a partner w/you in getting you back to

good health. And go on and live (use her for a moment to get the labs done tho)

and over the next 2 wks look for a new doc. You are allowed to say hey I

disagree w/her diagnosis and treatment plan.

Laurie

>

> I went back to my doc. today because for the last couple of weeks Idon't feel

well. My TSH is 0.89 and my T4 and 3 in the normal range. With those levels I

felt pretty good, had energy, my muscles didn't hurt, no hairloss.

> Then suddenly I had muscle pain again, joint pain, low energy, feel cold most

of the time when it is cold outside. I have a little bit of a brain fog.

> I went back with those symptomes 2 weeks ago and my doc. dissmissed them

because I had fluid in my ears from allergies.

> Today, she was angry at me, accused me of not taking the pills like she tells

me too (which is not true, she didnt' write it down correctly) . She said, I

have fibromyalgia and am chronicly depressed. She wants me to take Cymbalta /

which I will never take. I am not chron. depressed, I am depressed, because I

can't work much, cant' thinks strait.

> Now, she took my blood, also to test for gluten intolerance or sensitv, which

I requested. She didn't even think about it. And neither did the Endo.

> So, today, I needed to make an appointment to get the bloodtest for next week.

I found out my doc. is not in next week and I have to wait 2 weeks to get the

result and maybe a new prescription for Levoxyl. I am only taking 25mcg / the

lowest doses.

> I feel terrible, now I am depressed, feel helpless. I went and got selenium to

add to my diet. I started taking iodine but I think it's not right for me.

> I don't know what to do. I believe, I need to take more hormones since I feel

like I am not taking any hormones. The helpless feeling is coming from the fact

that my doc. declared me chron. depressed and refuses to help me. If I would go

to see another doc. they would contact my doc. and ...

> I need a shoulder to cry on, thanks for letting me do this here.

> If you have any advice as to what to do, I am listening..

>

November 24, 2009

Hi (max),

All of us with Hashis have been where you are to some degree. I could see

myself in these posts when I took levothyroxine sodium -T4 after first being

diagnosed in 2000. You feel like crap and just want some energy to do a few

things, but the doc says your labs are fine so it's depression. Heck yes, doc I

am depressed because I have no energy and my crummy brain doesn't work much

anymore either and I feel trapped in an 80 year old body at age 38 - my bowels

don't work, my joints ache and the bone throbbing fatigue exhausts me.

I went from doctor to doctor begging for help. I knew I didn't have typical

depression. My hair was falling out - my face, hands, knees, ankles and feet

were swollen – my color turned grayish - I gained 40 pounds in a month - I was

getting more fatigued even with upping the Levoxyl, then Synthroid, then

Levothyroxine and finally Unithroid - I'm sure you know all the symptoms. I even

got heart palps on the T4 and thought I would die.

I developed new diseases called fibromyalgia and Chronic Fatigue Syndrome. I

became crippled and bedridden in about a year and a half. Finally, my hubby

flushed the T4 and I improved. We found a doc that gave me T3 - Cytomel, but

the clinic head freaked and the doc said he could no longer help me. We came

seeking help via the Internet. Finally in a couple months I found a doc who gave

me Armour. Within two days I could walk on my own again, within a week the

brain fog lifted and in about a month the FM/CFS disappeared.

Although Synthoid and Levoxyl are the most used thyroid drugs, there are about

three million Hashi patients that don't tolerate these drugs and have to use

natural decissated thyroid for survival and to regain some quality of life.

Typically in Hashis you need to not only get optimal on the thyroid replacement,

but you have to FIX the Adrenal Fatigue. That includes replenishing

malnourished nutrients, like iron, b-12, D etc., avoiding refined foods

including sugar, artificial sweeteners, caffeine, dairy, soy, and gluten or

foods that badly affect you. Also, adequate sleep, eating meals and exercising

regularly is essential.

There is NO test for gluten intolerance or sensitivity, so you have to just

remove all gluten, which is many products, from your diet. The blood test the

doctor did was likely for celiac antibodies and disease. Gluten intolerance and

Celiac disease is not the same thing but both are treated with eating

gluten-free life. A little gluten is just as bad as a lot, so just beware.

Good luck,

~Bj

> >

> > I went back to my doc. today because for the last couple of weeks Idon't

feel well. My TSH is 0.89 and my T4 and 3 in the normal range. With those levels

I felt pretty good, had energy, my muscles didn't hurt, no hairloss.

> > Then suddenly I had muscle pain again, joint pain, low energy, feel cold

most of the time when it is cold outside. I have a little bit of a brain fog.

> > I went back with those symptomes 2 weeks ago and my doc. dissmissed them

because I had fluid in my ears from allergies.

> > Today, she was angry at me, accused me of not taking the pills like she

tells me too (which is not true, she didnt' write it down correctly) . She said,

I have fibromyalgia and am chronicly depressed. She wants me to take Cymbalta /

which I will never take. I am not chron. depressed, I am depressed, because I

can't work much, cant' thinks strait.

> > Now, she took my blood, also to test for gluten intolerance or sensitv,

which I requested. She didn't even think about it. And neither did the Endo.

> > So, today, I needed to make an appointment to get the bloodtest for next

week. I found out my doc. is not in next week and I have to wait 2 weeks to get

the result and maybe a new prescription for Levoxyl. I am only taking 25mcg /

the lowest doses.

> > I feel terrible, now I am depressed, feel helpless. I went and got selenium

to add to my diet. I started taking iodine but I think it's not right for me.

> > I don't know what to do. I believe, I need to take more hormones since I

feel like I am not taking any hormones. The helpless feeling is coming from the

fact that my doc. declared me chron. depressed and refuses to help me. If I

would go to see another doc. they would contact my doc. and ...

> > I need a shoulder to cry on, thanks for letting me do this here.

> > If you have any advice as to what to do, I am listening..

> >

>

> _________________________________________________________________

> Hotmail: Trusted email with powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/177141665/direct/01/

>

November 24, 2009

hi and hugs

i know just how you feel (and what a mean DR;; my last dr tried to Force me to

pay her $200 for ANother office visit =just to get copies of my thryoid labs

-that she ordered when i saw her 1 week previously_!!) i have to turn them in to

the state i was SO tired and fatigued that i coudln't handle dealing with

this dr /nurse who ARE breaking both Federal and State laws by not giving me a

copy of my labs (they also wouldn't turn them over to my New dr:)

i will enjoy sending them the certified letter during now that the holiday

season has started (and yes i have no idea whether she will bother to find

out what the LAW is tho the fact that the State Of California' Medical Board

website does not include a " tab " for patients they call US " Consumers "

right on..

bad dr; fire them, get a new one OR use them /your insurance for what YOU want

if that is your only solution..

= btw your dr is just as ill-educated as most Drs who try to treat thryoid

problems..

= btw did you know that hypothryoid peopel frequently have fluid in their

middle ear?? did you know that menierre's is a symtpom of hashis/hypot?

here is something most Alternative medical drs won't even know !:

" Adrenal Fatigue " is really about an upregulation of our entire stress sysetm -=

Brain , SNS and HPA axis and all of its stress hormones,,including Vasopressin!

did you know your inner-ear has Vasopessin hormone cell receptors in it ?

did you know they have proved that Tinnitus is caused by a lack of ATP in the

cells of teh inner-ear (endothelium etc) ?

did you know that TInnitus is being blamed on a lack of the stress hormone

Vasopressin?

did you know that many causes of deafness (includign old age type are caused

by a lack of the adrenal glands' stress hormone ALdosterone? both Vasopressin

and ALdosterone not only affect water /fluid balance in the body , but affect

sodium levels and potassum ratios etc..

-Vasoperssin also direclty affect Blood pressure and how much water the kidneys

release + blood clotting, and memory and socialization and grooming and

Postural HYpotension is caused by the hypothalamus and its hormone vasopressin

AND the hypothalamus' role as head of the Autonomic Nervous system!!

(? can the Auotnomic nervosu system and the hypothalamus get " Fatigued " ??) sure

are a lot of Hypot pateitns that feel faint or lightheaded when they go from

laying/sitting to standing !

==and YOUR dr won't know almost all of this info listed above :0==

so you empower yoruself by learning everything you can about thryoid,

autoimmuen/hashis, and also learn enough about " Adrenal Fatigue " to understand

that it is Really about the UPregulation of our *entire Stress system and ALL

the stress hormones,, will go high , then start to fatigue at some point *in

different people ,, till some go low, or maladapted.

the stress hormones including teh HPA axis hormone called MSH affects

temperature

**follow DR WIlson's Adrenal Fatigue book's lifestyle type guidelines

(nutrition, glycemic control, sleep, exercise, basic Vits/mins, water/celtic sea

salt/hydration, and STress management guidelines )

following _religiously_ those lifestyle guidelines will help take the Load off

your entire STress system!! so that it can all being to heal

==also check out Dr jacob Teitelbaum's CFS/FM AF/Hypot website===

get a better idea of how long term stress (caused by being left hypot /low FREE

T3 or ETC) can affect your Hypothalamus! the hypothalamus is the head of yoru

endorine , nervous ,immune and Stress systems and it direclty affects sleep

and everything else that your brain is in charge of

=

>

> I went back to my doc. today because for the last couple of weeks Idon't feel

well. My TSH is 0.89 and my T4 and 3 in the normal range. With those levels I

felt pretty good, had energy, my muscles didn't hurt, no hairloss.

> Then suddenly I had muscle pain again, joint pain, low energy, feel cold most

of the time when it is cold outside. I have a little bit of a brain fog.

> I went back with those symptomes 2 weeks ago and my doc. dissmissed them

because I had fluid in my ears from allergies.

> Today, she was angry at me, accused me of not taking the pills like she tells

me too (which is not true, she didnt' write it down correctly) . She said, I

have fibromyalgia and am chronicly depressed. She wants me to take Cymbalta /

which I will never take. I am not chron. depressed, I am depressed, because I

can't work much, cant' thinks strait.

> Now, she took my blood, also to test for gluten intolerance or sensitv, which

I requested. She didn't even think about it. And neither did the Endo.

> So, today, I needed to make an appointment to get the bloodtest for next week.

I found out my doc. is not in next week and I have to wait 2 weeks to get the

result and maybe a new prescription for Levoxyl. I am only taking 25mcg / the

lowest doses.

> I feel terrible, now I am depressed, feel helpless. I went and got selenium to

add to my diet. I started taking iodine but I think it's not right for me.

> I don't know what to do. I believe, I need to take more hormones since I feel

like I am not taking any hormones. The helpless feeling is coming from the fact

that my doc. declared me chron. depressed and refuses to help me. If I would go

to see another doc. they would contact my doc. and ...

> I need a shoulder to cry on, thanks for letting me do this here.

> If you have any advice as to what to do, I am listening..

>

November 24, 2009

Bj,

I am always confused about the best ratio of T4/T3 dose, 1:10 is said to be

" scientfically " good ratio for human being. But some would feel good with higher

dose of T3. How can we find the best ratio (maybe genetically suited for the

original health body)? Just make small change, hoping for the best and expecting

for the worst result?

Fragrance

> > >

> > > I went back to my doc. today because for the last couple of weeks Idon't

feel well. My TSH is 0.89 and my T4 and 3 in the normal range. With those levels

I felt pretty good, had energy, my muscles didn't hurt, no hairloss.

> > > Then suddenly I had muscle pain again, joint pain, low energy, feel cold

most of the time when it is cold outside. I have a little bit of a brain fog.

> > > I went back with those symptomes 2 weeks ago and my doc. dissmissed them

because I had fluid in my ears from allergies.

> > > Today, she was angry at me, accused me of not taking the pills like she

tells me too (which is not true, she didnt' write it down correctly) . She said,

I have fibromyalgia and am chronicly depressed. She wants me to take Cymbalta /

which I will never take. I am not chron. depressed, I am depressed, because I

can't work much, cant' thinks strait.

> > > Now, she took my blood, also to test for gluten intolerance or sensitv,

which I requested. She didn't even think about it. And neither did the Endo.

> > > So, today, I needed to make an appointment to get the bloodtest for next

week. I found out my doc. is not in next week and I have to wait 2 weeks to get

the result and maybe a new prescription for Levoxyl. I am only taking 25mcg /

the lowest doses.

> > > I feel terrible, now I am depressed, feel helpless. I went and got

selenium to add to my diet. I started taking iodine but I think it's not right

for me.

> > > I don't know what to do. I believe, I need to take more hormones since I

feel like I am not taking any hormones. The helpless feeling is coming from the

fact that my doc. declared me chron. depressed and refuses to help me. If I

would go to see another doc. they would contact my doc. and ...

> > > I need a shoulder to cry on, thanks for letting me do this here.

> > > If you have any advice as to what to do, I am listening..

> > >

> >

> > _________________________________________________________________

> > Hotmail: Trusted email with powerful SPAM protection.

> > http://clk.atdmt.com/GBL/go/177141665/direct/01/

> >

>

November 24, 2009

Carol,

your post is so long, and I have to read it throught for some time.