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Raffi's swallowing

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Thanks for all the advice. I feel such great support. Last night was

terrible. He wanted to sleep, but he kept on getting up due to

swallowng and discomfort. He does have an enlarged 4th ventricle which

may be blowing up . I emailed the NS and am waiting his advice. My

husband and I agreed that tonight we will take him to emerg for a ct.

I will keep you posted.

Thanks

Marilou

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