Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Dear Jeff and Group, I knew why you asked Lynda to contact you personally. :-) It is a huge job to sort through our old mail, and nice guy that you are, you were just making it easy for a new member [who may not even be familiar with Yahoo Groups and how to use the features]. I just wanted all PG members to feel welcomed to post on the message board. I can see that the ENers are outnumbering the PGers by quite a bit, but that is only because PG is so much more rare. I think the idea of putting your very lengthy (and interesting) case history into a file is great one. And I think all PG members would learn a lot by reading it. Most of what I know about PG and autoimmunity I owe to you Jeff. You make a huge contribution to this group, and I have always said that we are so lucky to have you as a member. Take note all members and especially those with PG: Jeff knows what he is talking about. He has learned the hard way, and now hopefully others will not have to! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 rebecca, again, you are too gracious. i have never met a person like you. i appreciate you understanding, and thought you would. i wanted to be sure eveyone else did too. lynda e-mailed me and i sent her my book...lol, crohns history. i will keep everyone posted on any new developments. hopefully she will post here also. my eye decided to majorly flare. scleritis. so, i had to pull out the stand-by pred drops and use that and call the eye doc. seems like the pred considerably curtailed it, at least the whole white of my eye is not red this time. the last time this happened was back in may. it was the worst bout ever and when i saw my opthamologist in august i asked him if there was something i could use besides the restasis that would work more quickly if i ever had another flare. that is when he gave me the pred drops. still pretty painful, hopefully it starts to lighten up tomorrow. you be well, and ta-taa, jeff > > Dear Jeff and Group, > > I knew why you asked Lynda to contact you personally. :-) It is a huge > job to sort through our old mail, and nice guy that you are, you were > just making it easy for a new member [who may not even be familiar > with Yahoo Groups and how to use the features]. I just wanted all PG > members to feel welcomed to post on the message board. I can see that > the ENers are outnumbering the PGers by quite a bit, but that is only > because PG is so much more rare. I think the idea of putting your > very lengthy (and interesting) case history into a file is great one. > And I think all PG members would learn a lot by reading it. > > Most of what I know about PG and autoimmunity I owe to you Jeff. You > make a huge contribution to this group, and I have always said that we > are so lucky to have you as a member. > > Take note all members and especially those with PG: Jeff knows what he > is talking about. He has learned the hard way, and now hopefully > others will not have to! > > Love, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Dear Jeff, Sorry you are going through another scleritis flare up. Unlike some pain, it seems just impossible to ignore eye pain. Great that you had the drops at the ready! Hopefully you'll wake up with comfortable eyes tomorrow. I know prednisone can cause glaucoma and cataracts. My hubby has decades of experience with both. I don't recall if you have glaucoma, but think you may have mentioned it. Your eye doc sounds top notch. Everyone needs a good opthalmologist especially as they get older. Reading your mail to M made me realize that we all have to become experts in our own disorders. We may start out thinking a doctor has all the answers but we learn quickly that they don't. Then it's research and trial and error. When we present our doctors with information like what you explained to M, I would hope they would listen because we are providing them with valuable info from patient's experience. You may not have an MD degree, Jeff, but in the field of autoimmunity, Crohns' and PG, you are more knowledgeable than most doctors. Wishing you and Everyone a Happy Weekend! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 hi rebecca, i don't have glaucoma and yes, pred drops " might " be bad over the long haul, but i only use this as an emergency. " normally " i put restatis in my eyes twice a day. it is a cyclosplorine emulshion. eye doc thought that was safer than even voltaren (nsaid) drops every day. jeff > > Dear Jeff, > > Sorry you are going through another scleritis flare up. Unlike some > pain, it seems just impossible to ignore eye pain. Great that you had > the drops at the ready! Hopefully you'll wake up with comfortable eyes > tomorrow. I know prednisone can cause glaucoma and cataracts. My hubby > has decades of experience with both. I don't recall if you have > glaucoma, but think you may have mentioned it. Your eye doc sounds top > notch. Everyone needs a good opthalmologist especially as they get older. > > Reading your mail to M made me realize that we all have to become > experts in our own disorders. We may start out thinking a doctor has > all the answers but we learn quickly that they don't. Then it's > research and trial and error. When we present our doctors with > information like what you explained to M, I would hope they would > listen because we are providing them with valuable info from > patient's experience. You may not have an MD degree, Jeff, but in the > field of autoimmunity, Crohns' and PG, you are more knowledgeable than > most doctors. > > Wishing you and Everyone a Happy Weekend! > Love, > Quote Link to comment Share on other sites More sharing options...
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