Re: I am pattitstarz sister

[Guest guest]

Dear Rose,

Thanks for joining, and Welcome to our " family of friends " . Patti

has one of the more difficult and serious disorders in that she has

Crohn's along with the ulcerating lesions on her legs. You can go to

our Links and Files and check out Crohn's as well as Pyroderma

Gangrenosum (PG). These conditions are considered to be autoimmune

disorders and sometimes family members experience different autoimmune

disorders like Fibromyalgia or Rheumatoid Arthritis. We have members

with many different AI disorders and you can read about them too. We

also have a webpage:

http://www.geocities.com/erythema_nodosum/Home_Page.html

that is an abbreviated verson of our Group resources.

Support and understanding from our families makes a big

difference. I hope Patti is doing better. She hasn't posted in a while.

Love to you and Patti,

> I wanted to join because I love her so much and want to understand

> all that I can about what she goes through daily. Thanks for letting

> me join ... Hi sis

[Guest guest]

Well...HELLO!!! This is a nice surprize. ~=0)

~*~ You will really like the people here. They are very focused and

intense about finding information regarding You, The Disease and any

other fact/finding regarding the DIsease Process. I love it here and

I Adore the people. Especially ...she is alright!!!

~*~ BUT!!! Now I won't be able to hide at all from you...LOL.

Ahhhhell, iz-ok.

~*~ I am glad your here. What I can't explain, you can.

~*~ My ErydosumPylonosum do-si-do your partner Friends...

(sheeeeeeesh I go waaay far for my humor, don't I? LOL) You will

come to like Ole Rosie. She not only is a Sister I was blessed with

but A Friend I can love, trust and be comfortable with.

......welcome, pull up your chair. Love you

X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X+X

> I wanted to join because I love her so much and want to understand

> all that I can about what she goes through daily. Thanks for

letting

> me join ... Hi sis

[Guest guest]

Hi , Gosh, I guess it has been awhile since I posted. To be

honest, I have been in the " Dumps " ...when I get that way, I hide.

I have had so much to think about. Plus, I had a cold that ended up

being a bit more serious, Bronchial Pnuemonia. Which my Dr. nipped

that in the bud. A couple days of her treatment and I was off and

running. LMAO...Yah, I wish, huh?

OH OH !!!! , The SS!!! Ya know I told you I had just made an

appt. but didn't make it? Well...I don't know why but they called

me. Ask me questions about my disease, meds...Dr's etc. I answered

but briefly, enough for them to work on. He said now, he would turn

in to the " Elgibility " (?) they will send a letter and I have 10

days to respond. So...I will be writting to you here in the next few

days...just for guidance. I hope I didn't mess it up by answering

questions. Did I??? Let me know PLZ... I PRAY...I am approved. Then

I can have medical asst. and move on with the stronger treatmeants

they have planned for me.

OK...signing off... Thank You, ...my love to you also.

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> > I wanted to join because I love her so much and want to

understand

> > all that I can about what she goes through daily. Thanks for

letting

> > me join ... Hi sis

[Guest guest]

Thanks for the warm welcome I am glad patti has a support group. I

try but realize having someone who has " been there " is also good. I

would never be able to say I understand because I havnt been there.

*laughing* Patti you know you cant hide from me anyway since we are

so much alike if you are in hibernation I know something is up(or

down)WE both do that. BTW I am not hibernating at the moment I am

reading a lot

> > > I wanted to join because I love her so much and want to

> understand

> > > all that I can about what she goes through daily. Thanks for

> letting

> > > me join ... Hi sis