Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 , did you have a positive ANA, and what other signs and symptoms are you having with this? Could it be mixed in with s & s of thyroid? What are they going to treat you with, concerning these two? Tx more bad news > well folks, > more bad news on my home front. testing positive for sjogrens and > lupus although the lupus seems to be dormant at this time. > have a great weekend. > julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Good luck Sheila, You've probably gone to the hospital already for your test, but just in case you haven't, I wanted to tell you the EMG test is not as bad as you imagine it could be. I had one done about a year and a half ago to determine if my arm and leg pain was caused by nerve damage / peripheral neuropathy. Are you having the CNV (conductive nerve velocity ) testing too? I came of out of there with that diagnosis but it wasn't accurate...or at least - the cause of my pain had not been fully determined yet. I was still on a search to find a doctor that would agree with me that I should be getting thyroid treatment. All these specialists would agree that I had a multi-nodular goiter, Hashi's - but with norml TSH - not one of the docs wold admit my chronic pain and fatigue could be related to my thyroid. (Hashi's is no big deal and should only make you a little tired sometimes...) It wasn't until I started running a low grade fever (since Dec 2002) that they took me seriously. Then they couldn't give up the search for cancer or a weird source of infection. (It's the thyroid, stupid.) Why don't they GET THAT? I had every symptom in the book - hey, but TSH was normal. Anyway, my point was the EMG was not that difficult and if you can deal with the daily chronic pain that we deal with most days - this isn't any harder to handle. It just sounds painful. Hey, if a bunch of us all wind up with a lupus diagnosis - we'll have to start a sub-group. What tests are you waiting to come back next week? All the specialized lupus anti-body testing? Me too. Except, I go back to my primary doctor.next weds for MY results but can't see the rheumatologist until May 19th. We''ll all have to be sure to check in with each other after these appointments. Is there anyone else out there with a Lupus AND thryoid diagnosis? Kate ----- Original Message ----- From: Kemal Kalajdzic To: Thyroiditis I have to leave in just a sec to go to the hospital to have that EMG test done. I am afraid of the pain...trying to just keep myself relaxed. Next Wed. (April 7th), I will see my rheumy and find out results of all my tests. I'm so sorry that you've been dealt another blow, and I'm praying that I'm not gonna be in the same boat. I am thinking of you. Well, off to the hospital in just a sec. {{{Hugs}}} Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 hi kate, thanks for post. can't type much cause my hands and arms ache. i have low tolerance to pain. EMG test was very painful for me...cried almost whole time. the worst was when i had to flex my muscles with the needle inserted. after test i noticed my left arm has rash all over it. don't know if it's nerves or related to test. my arms hurt to touch. very heavy. my forearms are swollen, but swelling is going down. when those electrical shocks were going thru me it was very scary and very weird experience...similar to when i've had epinephren...uncontrollable crying, heart racing, and going into hyperventilation. neurologist told me MOST people find the pain tolerable. that's what my OB/gyn said when i had biopsy of uterus without anaestia--i cried entire time...pain was terrible. anyway, i guess i'm just more sensitive to pain than most people. dunno. i'm glad it wasn't painful for you. other people go thru stuff and say they're fine where I have a hard time. he said i definitely have carpal tunnel...no sign of myathis gravis-- sorry can't spell today--or other diseases. so that's good. i want to reply to rest of your post but will do that tonight. i'm hurtin. thanks, kate and i'll talk to you later. [[hugs]]sheila > Good luck Sheila, > You've probably gone to the hospital already for your test, but just in case you haven't, I wanted to tell you the EMG test is not as bad as you imagine it could be. I had one done about a year and a half ago to determine if my arm and leg pain was caused by nerve damage / peripheral neuropathy. Are you having the CNV (conductive nerve velocity ) testing too? > > I came of out of there with that diagnosis but it wasn't accurate...or at least - the cause of my pain had not been fully determined yet. I was still on a search to find a doctor that would agree with me that I should be getting thyroid treatment. All these specialists would agree that I had a multi-nodular goiter, Hashi's - but with norml TSH - not one of the docs wold admit my chronic pain and fatigue could be related to my thyroid. (Hashi's is no big deal and should only make you a little tired sometimes...) It wasn't until I started running a low grade fever (since Dec 2002) that they took me seriously. Then they couldn't give up the search for cancer or a weird source of infection. (It's the thyroid, stupid.) Why don't they GET THAT? I had every symptom in the book - hey, but TSH was normal. > > Anyway, my point was the EMG was not that difficult and if you can deal with the daily chronic pain that we deal with most days - this isn't any harder to handle. It just sounds painful. > > Hey, if a bunch of us all wind up with a lupus diagnosis - we'll have to start a sub-group. > > What tests are you waiting to come back next week? All the specialized lupus anti-body testing? Me too. Except, I go back to my primary doctor.next weds for MY results but can't see the rheumatologist until May 19th. > > We''ll all have to be sure to check in with each other after these appointments. > > Is there anyone else out there with a Lupus AND thryoid diagnosis? > > Kate > ----- Original Message ----- > From: Kemal Kalajdzic > To: Thyroiditis > I have to leave in just a sec to go to the hospital to have that EMG test done. I am afraid of the pain...trying to just keep myself relaxed. Next Wed. (April 7th), I will see my rheumy and find out results of all my tests. > > I'm so sorry that you've been dealt another blow, and I'm praying that I'm not gonna be in the same boat. > > I am thinking of you. Well, off to the hospital in just a sec. {{{Hugs}}} Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Sheila, Don't feel bad about the EMG. I have a very HIGH pain tolerance, and endured a ton of supposedly painful testing on the same day with no problem, and thought the EMG was awful!!! I didn't get a good result, either, so maybe that's the reason???? Jo > > Good luck Sheila, > > You've probably gone to the hospital already for your test, but > just in case you haven't, I wanted to tell you the EMG test is not > as bad as you imagine it could be. I had one done about a year and > a half ago to determine if my arm and leg pain was caused by nerve > damage / peripheral neuropathy. Are you having the CNV (conductive > nerve velocity ) testing too? > > > > I came of out of there with that diagnosis but it wasn't > accurate...or at least - the cause of my pain had not been fully > determined yet. I was still on a search to find a doctor that would > agree with me that I should be getting thyroid treatment. All these > specialists would agree that I had a multi-nodular goiter, Hashi's - > but with norml TSH - not one of the docs wold admit my chronic pain > and fatigue could be related to my thyroid. (Hashi's is no big deal > and should only make you a little tired sometimes...) It wasn't > until I started running a low grade fever (since Dec 2002) that they > took me seriously. Then they couldn't give up the search for cancer > or a weird source of infection. (It's the thyroid, stupid.) Why > don't they GET THAT? I had every symptom in the book - hey, but TSH > was normal. > > > > Anyway, my point was the EMG was not that difficult and if you can > deal with the daily chronic pain that we deal with most days - this > isn't any harder to handle. It just sounds painful. > > > > Hey, if a bunch of us all wind up with a lupus diagnosis - we'll > have to start a sub-group. > > > > What tests are you waiting to come back next week? All the > specialized lupus anti-body testing? Me too. Except, I go back to > my primary doctor.next weds for MY results but can't see the > rheumatologist until May 19th. > > > > We''ll all have to be sure to check in with each other after these > appointments. > > > > Is there anyone else out there with a Lupus AND thryoid diagnosis? > > > > Kate > > ----- Original Message ----- > > From: Kemal Kalajdzic > > To: Thyroiditis > > I have to leave in just a sec to go to the hospital to have that > EMG test done. I am afraid of the pain...trying to just keep myself > relaxed. Next Wed. (April 7th), I will see my rheumy and find out > results of all my tests. > > > > I'm so sorry that you've been dealt another blow, and I'm > praying that I'm not gonna be in the same boat. > > > > I am thinking of you. Well, off to the hospital in just a sec. > {{{Hugs}}} Sheila Quote Link to comment Share on other sites More sharing options...
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