Re: Some thoughts about HBOT...

[Guest guest]

I think

you are absolutely correct, in that, for most kids its probably not going to

hurt, for some it may really help, but I do think that more ASD kids have

seizures than people think, seizure-like activity, epileptic events, whatever,

that go undiagnosed, parents don’t have a clue its happening, many spikes

occur only in sleep, so I would just be apprehensive to do it without some previous

neuro work-up beforehand. At the very least, most kids diagnosed

with any ASD should have a sleep-EEG to see if there are any spikes or seizures

indicated. It’s a real shame

SPECTS aren’t covered under insurance, they absolutely should be….But

EEGs will be provided by insurance by most neuros for

anyone with an ASD diagnosis. I am

glad to know that clinical observation is pretty quick, so many things don’t

work this way, and an exacerbation of seizure activity would not be something I

would want confused with a “regression” that leads to good things. My thinking is that many ASD kids

probably need the HBOT to various areas of the brain, just not the areas where

spikes are occurring, its very catch-22. I wonder if taking an anti-convulstant during treatment would cut down on seizure risk

or would even make the treatment more effect in those prone to epileptic

activity (which is at a minimum at least 25% of ASD kids).

Some

thoughts about HBOT...

I put a recently published paper by Dan Rossignol MD about HBOT for

Autism in the files

section of our group. It's 63 pages with more than 260 HBOT references. On

paper --

there is a great deal of evidence that HBOT could help many children.

I understand your concern, but even with a SPECT scan or MRI etc... at this

point there is

no way to predict what the outcome will be, so I'm not sure if it is a

worthwhile investment

unless someone who can afford it wants to see if there is a blood flow issue

(which likely

there is) and see if there is a change (which you would likely tell clinically

by your child

getting better). On the other hand if you are concerned that HBOT might affect

blood flow

negatively and you want to be sure it doesn't, I guess you could do a before

and after in

that case, but either way I believe you would see the results much more quickly

by clinical

observation.

I'm not judging anyone for wanting to do before and after SPECT Scans. We are

going to

do some for our kids at my school (through a generous donation of SPECT Scans

to be

announced shortly) to see how much change happens and comparing clinical

observations

to scans, but I'm still not sure how much the typical parent will benefit when

we are talking

about $1500 dollars to do a before and after scan (unless they are covered by

insurance or

a family could easily afford it themselves).

HBOT is a newer therapy in autism, but is widely used and considered safe for

therapies

like strokes, mitochondrial problems and burns and it looks quite promising for

autism

and in general seemingly, relatively non-invasive. The only " brain

damage " that I have

heard described has to do with some broken DNA from a first time session that

is quickly

regenerated and the result is the body reacting by becoming more oxidatively

sound. The

other thing I heard is children prone to seizures might not be a good fit for

HBOT.

I'm relatively new to HBOT, so I still have much to learn, but this is my view

so far after

watching this therapy develop over the last year or so.

I'm going to be putting my family through HBOT starting next week and some of

our

children at school (of course with the assistance of a medical director). I'll

keep you

posted.

My best,

- Stan

> >

> > Hello group

> >

> > My son's pediatrician is willing to write me a prescription for

> > Valtrex.

> > What are some of the immediate changes/symptoms I should be noticing?

> >

> > I'm really having a hard time finding a DAN doctor in Northern

> > California.

> > I found a list of DAN doctors and I called three of them , but no

> > response yet.

> >

> > Is any one here doing HBOT?if so ..did you notice any significant

> > changes?

> >

>

[Guest guest]

Spironolactone was discussed as showing some promise in combination with HBOT.  It is a diuretic and helps with inflammation.  Dr. Bradstreet is doing work with this right now.  Helps some children not to regress after treatments of HBOT have stopped.  More results should be available by the DAN conference in Spring 2007.NoraI think you are absolutely correct, in that, for most kids its probably not going to hurt, for some it may really help, but I do think that more ASD kids have seizures than people think, seizure-like activity, epileptic events, whatever, that go undiagnosed, parents don’t have a clue its happening, many spikes occur only in sleep, so I would just be apprehensive to do it without some previous neuro work-up beforehand.  At the very least, most kids diagnosed with any ASD should have a sleep-EEG to see if there are any spikes or seizures indicated.  It’s a real shame SPECTS aren’t covered under insurance, they absolutely should be….But EEGs will be provided by insurance by most neuros for anyone with an ASD diagnosis.  I am glad to know that clinical observation is pretty quick, so many things don’t work this way, and an exacerbation of seizure activity would not be something I would want confused with a “regression” that leads to good things.  My thinking is that many ASD kids probably need the HBOT to various areas of the brain, just not the areas where spikes are occurring, its very catch-22.  I wonder if taking an anti-convulstantduring treatment would cut down on seizure risk or would even make the treatment more effect in those prone to epileptic activity (which is at a minimum at least 25% of ASD kids).   -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Stan KurtzSent: Tuesday, October 10, 2006 11:32 PMTo: mb12 valtrex Subject: Some thoughts about HBOT... I put a recently published paper by Dan Rossignol MD about HBOT for Autism in the files section of our group. It's 63 pages with more than 260 HBOT references. On paper --there is a great deal of evidence that HBOT could help many children.I understand your concern, but even with a SPECT scan or MRI etc... at this point there is no way to predict what the outcome will be, so I'm not sure if it is a worthwhile investment unless someone who can afford it wants to see if there is a blood flow issue (which likely there is) and see if there is a change (which you would likely tell clinically by your child getting better). On the other hand if you are concerned that HBOT might affect blood flow negatively and you want to be sure it doesn't, I guess you could do a before and after in that case, but either way I believe you would see the results much more quickly by clinical observation.I'm not judging anyone for wanting to do before and after SPECT Scans. We are going to do some for our kids at my school (through a generous donation of SPECT Scans to be announced shortly) to see how much change happens and comparing clinical observations to scans, but I'm still not sure how much the typical parent will benefit when we are talking about $1500 dollars to do a before and after scan (unless they are covered by insurance or a family could easily afford it themselves).HBOT is a newer therapy in autism, but is widely used and considered safe for therapies like strokes, mitochondrial problems and burns and it looks quite promising for autism and in general seemingly, relatively non-invasive. The only "brain damage" that I have heard described has to do with some broken DNA from a first time session that is quickly regenerated and the result is the body reacting by becoming more oxidatively sound. The other thing I heard is children prone to seizures might not be a good fit for HBOT.I'm relatively new to HBOT, so I still have much to learn, but this is my view so far after watching this therapy develop over the last year or so. I'm going to be putting my family through HBOT starting next week and some of our children at school (of course with the assistance of a medical director). I'll keep you posted.My best,- Stan> >> > Hello group> > > > My son's pediatrician is willing to write me a prescription for > > Valtrex. > > What are some of the immediate changes/symptoms I should be noticing?> > > > I'm really having a hard time finding a DAN doctor in Northern > > California.> > I found a list of DAN doctors and I called three of them , but no > > response yet.> > > > Is any one here doing HBOT?if so ..did you notice any significant > > changes?> >>

[Guest guest]

Interesting,

as this corresponds with the Washington study showing water-filled neurons in autistics as the result of

an inflammatory process….

Some thoughts about HBOT...

I

put a recently published paper by Dan Rossignol MD about HBOT for Autism in the

files

section of our group. It's 63 pages with more than

260 HBOT references. On paper --

there is a great deal of evidence that HBOT could

help many children.

I understand your concern, but even with a SPECT

scan or MRI etc... at this point there is

no way to predict what the outcome will be, so I'm

not sure if it is a worthwhile investment

unless someone who can afford it wants to see if

there is a blood flow issue (which likely

there is) and see if there is a change (which you

would likely tell clinically by your child

getting better). On the other hand if you are

concerned that HBOT might affect blood flow

negatively and you want to be sure it doesn't, I

guess you could do a before and after in

that case, but either way I believe you would see

the results much more quickly by clinical

observation.

I'm not judging anyone for wanting to do before

and after SPECT Scans. We are going to

do some for our kids at my school (through a

generous donation of SPECT Scans to be

announced shortly) to see how much change happens

and comparing clinical observations

to scans, but I'm still not sure how much the

typical parent will benefit when we are talking

about $1500 dollars to do a before and after scan

(unless they are covered by insurance or

a family could easily afford it themselves).

HBOT is a newer therapy in autism, but is widely

used and considered safe for therapies

like strokes, mitochondrial problems and burns and

it looks quite promising for autism

and in general seemingly, relatively non-invasive.

The only " brain damage " that I have

heard described has to do with some broken DNA

from a first time session that is quickly

regenerated and the result is the body reacting by

becoming more oxidatively sound. The

other thing I heard is children prone to seizures

might not be a good fit for HBOT.

I'm relatively new to HBOT, so I still have much

to learn, but this is my view so far after

watching this therapy develop over the last year

or so.

I'm going to be putting my family through HBOT

starting next week and some of our

children at school (of course with the assistance

of a medical director). I'll keep you

posted.

My best,

- Stan

> >

> > Hello group

> >

> > My son's pediatrician is willing to

write me a prescription for

> > Valtrex.

> > What are some of the immediate

changes/symptoms I should be noticing?

> >

> > I'm really having a hard time finding a

DAN doctor in Northern

> > California.

> > I found a list of DAN doctors and I

called three of them , but no

> > response yet.

> >

> > Is any one here doing HBOT?if so ..did

you notice any significant

> > changes?

> >

>

[Guest guest]

We were just prescribed spironolactone for our son. Anyone have

first hand experience?

> > >

> > > Hello group

> > >

> > > My son's pediatrician is willing to write me a prescription for

> > > Valtrex.

> > > What are some of the immediate changes/symptoms I should be

> noticing?

> > >

> > > I'm really having a hard time finding a DAN doctor in Northern

> > > California.

> > > I found a list of DAN doctors and I called three of them , but

no

> > > response yet.

> > >

> > > Is any one here doing HBOT?if so ..did you notice any

significant

> > > changes?

> > >

> >

>

[Guest guest]

We started spironolactone approximately 3 weeks ago in

an attempt to control my son's seizure activity. We

have felt for almost a year that his seizures were

being triggered by pain - most likely in the gut - of

course no neurologist would even consider it. When we

explained to our new DAN doctor how our son would

become panicked, moan, and double up in pain prior to

all of his seizures he immediately agreed that he

could have so much inflammation in the gut and/or

brain that the pain was inducing the seizures and put

him on spironolactone. While he indicated it could

take months to improve the inflammation, we are

cautiously optimistic as we are already seeing some

improvement in the number of seizures.

.

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[Guest guest]

Many seizures activity have been link to lack of Oxygen and blood

flow to the brain.

The lack of O2 and Blood flow can have many causes but the most

common are due to infections.

" ….infections include HHV-6, Mycoplasma, CMV and Chlamydia which can

trigger production of (IgA) antibodies against clot protective

proteins on blood vessel inner surfaces (called antiphospholipid

antibodies). One of these is the Beta 2 Glyco-protein 1 (anti B2GP1—

no, you are not going to be tested on this!). This then triggers

the clotting cascade. Once the clotting system is triggered, a

product called Soluble Fibrin Monomer (SFM) is made which is like

the polymers in plastic. The theory is that they create long thin

sheets of a teflon-like substance, similar to the scab that covers a

cut, but microscopic, which then coats the blood vessels. This

makes it hard for nutrients, oxygen, etc., to get in and out of the

blood vessels to the cells where they are needed. In summary, many

infections can cause the blood clotting system to activate,

resulting in a thin coating of Fibrin deposited on the blood

vessels. This prevents nutrients and oxygen from getting to the

cells in your body. "

Lunbrokinase is an excellent SAFE natural supplement that can help

clear the blood vessels and you will also take advantage of HBOC, I

have done it with excellent results.

I recommend reading about Lumbrokinase for seizures and at what

point HBOC is recommended to do and under what conditions HBO can be

beneficial. Another point to consider in my opinion while doing the

HBOC treatment is to consider a good antioxidant like R-lipoic or

Noni because HBC will cause a tremendous oxidative stress to the

brain, Doctors have different opinions related to this but mine is

oxidative stress is not good at all.

In addition, you do not want to do HBC If your child has organism

like bacteria that are aerobic, in other words, the bugs need oxygen

to survive, then O2 will make them grow and you can do more harm

than good.

" Many infections (called anaerobic) do not survive well in the

presence of oxygen. One can theorize that these Mycoplasma (which

may be anaerobic) and other organisms may trigger the clotting

system to create a shell, which then acts like a suit of armor,

protecting them from oxygen, your body's defense system, and

antibiotics. This would explain why these infections could evolve a

way to trigger the clotting mechanism. The Fibrin armor preventing

antibiotics from getting to the infection could also explain why

some people with these infections may not respond to antibiotics.

Indeed, some physicians have found that the antibiotics work better

once someone has been on a blood thinner (which may dissolve the

armor). "

I would like to give you a quick introduction about Lumbrokinase,

I think it can really help supporting antiviral therapy as well

HBOC, because of my own experience.

Lumbrokinase is the enzyme contained in Lumbricus-ruberus. It was

developed by ex vice-chancellor Hisashi Mihara who was in charge of

the second study room of physiology at

National Miyazaki Medical University.

The professor, Hisashi Mihara noticed that in the earthworms which

were used for study in Japan, USA, and Europe exists the special

enzyme that can melt thrombus. The enzyme was announced as animal

protein " Lumbrokinase " at the International Thrombus Hemostasis

Society held in Stockholm

" Our blood plays an important role to support our life, circulating

through the heart, liver, kidney, and, pancreas, etc. The blood

conveys nutrition, oxygen, etc. to every part of the body while

expelling impurities out of it. However, studies which began over

twenty-five years ago indicated as the body ages coagulation of the

blood increases thus hindering this purifying process...Lumbrokinase

helps to eliminate thrombus (clots) safely, thus increasing the free

flow of our blood naturally. "

My personal experience with my son Lumbrokinase and HBOC was very

rewarding.

.

>

> We started spironolactone approximately 3 weeks ago in

> an attempt to control my son's seizure activity. We

> have felt for almost a year that his seizures were

> being triggered by pain - most likely in the gut - of

> course no neurologist would even consider it. When we

> explained to our new DAN doctor how our son would

> become panicked, moan, and double up in pain prior to

> all of his seizures he immediately agreed that he

> could have so much inflammation in the gut and/or

> brain that the pain was inducing the seizures and put

> him on spironolactone. While he indicated it could

> take months to improve the inflammation, we are

> cautiously optimistic as we are already seeing some

> improvement in the number of seizures.

> .

>

>

>

>

_____________________________________________________________________

_______________

> Cheap talk?

> Check out Yahoo! Messenger's low PC-to-Phone call rates.

> http://voice.yahoo.com

>