Re: Re: Hello! - New To Group - Quick Question

[Guest guest]

That's kinda what I try to do. I work 30 hours a week at me "real" job and just opened my own company within the last 6 months or so. Because I've always been a "do-er" and a little high strung I try to be on the couch relaxing be 7-8. With this last episode I've been trying to rest by 5-6pm. I normally try to get between 7-8 hours a night. There have been times when dealing with EN that I can least for longer - my longest is 26 hours - ouch!. Anyway - thanks for the advice!

Strecker wrote:

Dear Kandra,Your EN sounds quite similar to mine and I am going on 36 years ofliving with it. Stress, lack of sleep and overdoing all bring on ENflare-ups for me too. I have always required a lot of sleep: at least 8 hours and often 9 anight. During a flare-up, I can sleep many more hours. I think of itas my body being "under seige" and needing to rest and regroup tofight off the EN invader. I recover quickly and the lumps subside in acouple days with rest. If I don't rest the episode takes longer--up totwo weeks. But remember I always get at least 8 hours of sleep a night.I know that all my "preaching bedrest" is an unpopular sermon on thisgroup as people just can't spare the time. I think of it as "timewell spent" as it tends to make my flare-up briefer. I know this isn't the answer you were looking for, and there

arethings that help to alleviate symptoms, but rest, at least for me, isthe best treatment. When my body is dog tired it is telling me itneeds sleep.Love,

[Guest guest]

I wish I could get 8 hours of sleep per night. I wish

I could get 3 hours of sleep a night. I have terrible

insomnia and the stress I am under right now precludes

me from sleeping much at all and the sleep I get is

comprised of horrible nightmares. If I take an Ambien

I can sleep for several hours, but I can't take them

every night. In addition to everything else I am now

suffering from sleep deprivation when can be quite

serious. People tell me I look like I have risen from

the dead. I feel like it.

Terri

--- Strecker

wrote:

> Dear Kandra,

> Your EN sounds quite similar to mine and I am going

> on 36 years of

> living with it. Stress, lack of sleep and overdoing

> all bring on EN

> flare-ups for me too.

> I have always required a lot of sleep: at least 8

> hours and often 9 a

> night. During a flare-up, I can sleep many more

> hours. I think of it

> as my body being " under seige " and needing to rest

> and regroup to

> fight off the EN invader. I recover quickly and the

> lumps subside in a

> couple days with rest. If I don't rest the episode

> takes longer--up to

> two weeks. But remember I always get at least 8

> hours of sleep a night.

> I know that all my " preaching bedrest " is an

> unpopular sermon on this

> group as people just can't spare the time. I think

> of it as " time

> well spent " as it tends to make my flare-up briefer.

>

> I know this isn't the answer you were looking for,

> and there are

> things that help to alleviate symptoms, but rest, at

> least for me, is

> the best treatment. When my body is dog tired it is

> telling me it

> needs sleep.

> Love,

>

[Guest guest]

I sleep ok like 50% of the time. The other 50% is tossing and turning from joint soreness and hot sweats (the DR said that can be due to fever from EN). Its just after sleeping 7-8 hours I wake up and feel like I haven't slept more than 2-3. I think I look it too. Though most of my family and friends know about my EN problems and are a aware of the side effects. I suffered through about 4-5 weeks of it and felt better for a week or so and then got stressed with work, my own company, and having 100 people to my house for a pig roast on the 3rd. I was down for the count on the 4th and 5th - thank god I had time off. I've developped more bumps and feel like I got hit by a truck. I'm trying to rest more and get more sleep.

KandraTerri Smeigh wrote:

I wish I could get 8 hours of sleep per night. I wishI could get 3 hours of sleep a night. I have terribleinsomnia and the stress I am under right now precludesme from sleeping much at all and the sleep I get iscomprised of horrible nightmares. If I take an AmbienI can sleep for several hours, but I can't take themevery night. In addition to everything else I am nowsuffering from sleep deprivation when can be quiteserious. People tell me I look like I have risen fromthe dead. I feel like it.Terri--- Strecker wrote:> Dear Kandra,> Your EN sounds quite similar to mine and I am going> on 36 years of> living with it. Stress, lack of sleep and overdoing> all bring on EN> flare-ups for me too. > I have always required a lot of sleep: at

least 8> hours and often 9 a> night. During a flare-up, I can sleep many more> hours. I think of it> as my body being "under seige" and needing to rest> and regroup to> fight off the EN invader. I recover quickly and the> lumps subside in a> couple days with rest. If I don't rest the episode> takes longer--up to> two weeks. But remember I always get at least 8> hours of sleep a night.> I know that all my "preaching bedrest" is an> unpopular sermon on this> group as people just can't spare the time. I think> of it as "time> well spent" as it tends to make my flare-up briefer.> > I know this isn't the answer you were looking for,> and there are> things that help to alleviate symptoms, but rest, at> least for me, is> the best treatment. When my body is dog tired it is> telling me it> needs sleep.>

Love,> l a

[Guest guest]

We do a pig roast every year. I love it. I love all the things I do. I just do to much sometimes. This may sound odd coming from a person who has EN but I won't let it stop me. Like I told my soon to be husband, "What should I limit? The working, cleaning, cooking, etc". Things have to get done. When I have a flare up I do let what can go go but sometimes things just have to be done.

Kandra Strecker wrote:

Dear kandra,100 people over for a pig roast! Just imagininging that would throw meinto a flare-up! Well, now you learned a valuable lesson and next timesomeone else can have the roast at HER house. It is so much easierto take over a side dish! ;-) For me part of handling my EN waslearning my limitations.Love,