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Hi everyone,

I found this board from others on the eosinophilgastro board (hi Deanna!). I

have been

reading old posts, and I am all freaked out now about what Miralax has been

doing to my

son.

Jasper has had abdominal pain on and off for almost two years. We tried PPIs

three times

- it was hard to tell if they helped or not. Took him in again just before

Christmas (07)

and the ped recommended an xray to see if he was constipated. Jasper was, so

the ped

recommended Miralax, which was supposed to be very safe. We gave him a full

dose every

day for a month or so. It did not help the abdominal pain, but it did help him

poop, so we

kept him on it.

Around Christmas Jasper also started to experience other symptoms, which the

doctors

(eventually a pediatric GI and a neurologist) could not explain. Arm and leg

pain so bad he

could not use the affected limb and sudden severe headaches.

Then he started rolling his eyes, which he said he could not help doing. Soon

after that,

when he walked through a doorway he would always knock his elbows against the

door

frame.

My husband teaches special ed and so we know the signs of OCD. But because of

Jasper's

stomach problems we have been putting off seeing yet ANOTHER doctor about him.

Now we know what his abdominal pain has been all about -- he was just diagnosed

with

eosinophilic gastroenteritis, which was probably caused by so=far unknown food

allergies.

But looking back, all the other stuff- the limb pain, headaches and neuro

symptoms

started after the Miralax.

Even more importantly - his stomach pain actually became more frequent after

beginning

with the Miralax.

He has been off the Miralax for about a week now. Also we took him off dairy,

just

because I have a hunch about it causing him problems. So far, he's going just

fine, but he

does have pain with BMs. I have been pushing fruit juice. Jasper has food

aversion, so

getting him to try taking new things is a very stressful experience for him, and

for me,

too.

My first question for you all is, how do I help Jasper get the Miralax out of

his system?

Keeping in mind, his food aversion means he will gladly swallow pills and

capsules, and

drink powders that dissolve in juice, but he doesn't like to chew things, eat

fruits and

vegetables, or drink thick drinks.

Thanks so much! I am so glad to have found you!

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