Guest guest Posted April 12, 2008 Report Share Posted April 12, 2008 Hi everyone, I found this board from others on the eosinophilgastro board (hi Deanna!). I have been reading old posts, and I am all freaked out now about what Miralax has been doing to my son. Jasper has had abdominal pain on and off for almost two years. We tried PPIs three times - it was hard to tell if they helped or not. Took him in again just before Christmas (07) and the ped recommended an xray to see if he was constipated. Jasper was, so the ped recommended Miralax, which was supposed to be very safe. We gave him a full dose every day for a month or so. It did not help the abdominal pain, but it did help him poop, so we kept him on it. Around Christmas Jasper also started to experience other symptoms, which the doctors (eventually a pediatric GI and a neurologist) could not explain. Arm and leg pain so bad he could not use the affected limb and sudden severe headaches. Then he started rolling his eyes, which he said he could not help doing. Soon after that, when he walked through a doorway he would always knock his elbows against the door frame. My husband teaches special ed and so we know the signs of OCD. But because of Jasper's stomach problems we have been putting off seeing yet ANOTHER doctor about him. Now we know what his abdominal pain has been all about -- he was just diagnosed with eosinophilic gastroenteritis, which was probably caused by so=far unknown food allergies. But looking back, all the other stuff- the limb pain, headaches and neuro symptoms started after the Miralax. Even more importantly - his stomach pain actually became more frequent after beginning with the Miralax. He has been off the Miralax for about a week now. Also we took him off dairy, just because I have a hunch about it causing him problems. So far, he's going just fine, but he does have pain with BMs. I have been pushing fruit juice. Jasper has food aversion, so getting him to try taking new things is a very stressful experience for him, and for me, too. My first question for you all is, how do I help Jasper get the Miralax out of his system? Keeping in mind, his food aversion means he will gladly swallow pills and capsules, and drink powders that dissolve in juice, but he doesn't like to chew things, eat fruits and vegetables, or drink thick drinks. Thanks so much! I am so glad to have found you! Quote Link to comment Share on other sites More sharing options...
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