Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER. Worcester News Letters. We would join the Worcestershire ME Support Group in welcoming the £1.6 million from the Medical Research Council (Sufferer welcomes ME research funds, Worcester News, 30 December 2011 - http://www.worcesternews.co.uk/news/9445419.Sufferer_welcomes_ME_research_funds/\ ) if it were to be spent on biomedical research and for people with M.E. (Myalgic Encephalomyelitis). Sadly, neither is accurate. Firstly, some of the projects, said to be, are not biomedical and are led by researchers who do not believe that M.E. is of physiological origin. Secondly, it is unlikely that any conclusions drawn from these studies could be applied to people with M.E. because, contrary to common assertion and repetition, M.E. is not the same as Chronic Fatigue Syndrome (CFS) and attempting to apply recommendations for treatment from a different set of people is mostly ineffective and can be potentially harmful for M.E. sufferers. We shall make no progress until this wasteful expenditure on invalid and unreliable experimental design is no longer tolerated. Precious funding must first be allocated to separating M.E. as a discrete illness from the indiscriminate CFS bundle, as a proper foundation for any work that can be trusted. Yours sincerely drjohngreensmithmecommunitytrust (DOT) org Dr H Greensmith ME Community Trust. org Quote Link to comment Share on other sites More sharing options...
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