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Letter, Re: Sufferer welcomes ME research funds (Worcester News, 30 December 2011)

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PERMISSION TO FORWARD AND RE-POST ON OTHER FORUMS, SOCIAL NETWORKING

SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER.

Worcester News Letters.

We would join the Worcestershire ME Support Group in welcoming the £1.6

million from the Medical Research Council (Sufferer welcomes ME research

funds, Worcester News, 30 December 2011 -

http://www.worcesternews.co.uk/news/9445419.Sufferer_welcomes_ME_research_funds/\

)

if it were to be spent on biomedical research and for people with M.E.

(Myalgic Encephalomyelitis). Sadly, neither is accurate.

Firstly, some of the projects, said to be, are not biomedical and are

led by researchers who do not believe that M.E. is of physiological

origin. Secondly, it is unlikely that any conclusions drawn from these

studies could be applied to people with M.E. because, contrary to common

assertion and repetition, M.E. is not the same as Chronic Fatigue

Syndrome (CFS) and attempting to apply recommendations for treatment

from a different set of people is mostly ineffective and can be

potentially harmful for M.E. sufferers.

We shall make no progress until this wasteful expenditure on invalid and

unreliable experimental design is no longer tolerated. Precious funding

must first be allocated to separating M.E. as a discrete illness from

the indiscriminate CFS bundle, as a proper foundation for any work that

can be trusted.

Yours sincerely

drjohngreensmithmecommunitytrust (DOT) org

Dr H Greensmith

ME Community Trust. org

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