RE: Will it round out???

[Guest guest]

What a cutie! Most people probably really don't notice anything. Even after

I told some people they wouldn't notice it.

-----Original Message-----

From: Duffy, Tammy <tammy_duffy@...>

'Plagiocephalyegroups' <Plagiocephalyegroups>

Date: Monday, May 01, 2000 10:05 AM

Subject: RE: Will it round out???

>Doug:

>

>I looked at the picture of Cameron in the Files. What should I be looking

>for in regards to plagio or can you tell anything from that picture? Can

>you tell me what you saw in Cameron's head that prompted your looking into

>the band/helmet? My son's head is what CT considers moderate and most

>people do not even notice the flatness unless we mention it (perhaps they

>are being polite).

>

>Attached is a picture of my son, Grayson, at 3 months from the front. I

>will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

>Congratulations on a successful casting. How long will Cameron wear the

>band? When we spoke to CT last week they estimated Grayson would need to

>wear the band for 3 months. Please let me know how Cameron does with the

>helmet once you pick it up on Thursday.

>

>

>Tammy

>

>> -----Original Message-----

>> From: Doug & Pam [sMTP:hambug@...]

>> Sent: Friday, April 28, 2000 5:20 PM

>> Plagiocephalyegroups

>> Subject: Re: Will it round out???

>>

>> Hi Tammy!

>> I'm no expert, but it seems like most kids here are experiencing good

>> success with bands/helmets. Our pediatrician also told us Cameron's head

>> would correct itself, but our craniofacial doctor told us that his head

>> would not likely do any more rounding out on its own after 6 months, even

>> though his head would still be growing. I think the period between 2 and

>> 4 months is the time where you would be most likely to see success from

>> repositioning, but if you haven't seen improvement, you might want to

>> consider the band. This was a hard decision for us too as Cameron's case

>> is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

>> dealing with staring) didn't seem very important compared to the benefit

>> of fixing his head and avoiding potential future problems. -Pam

>>

>> ----- Original Message -----

>> From: Duffy, Tammy <mailto:tammy_duffy@...>

>> 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

>>

>> Sent: Friday, April 28, 2000 1:41 PM

>> Subject: RE: Will it round out???

>>

>> Hi everyone! I am a new member and am thankful to have found this

>> group!

>>

>> I have this same question...My husband and I took our son to Cranial

>> Technologies on Wednesday morning regarding his flat spot. They

>> advised us

>> to consider the DOC Band. This, of course, is not the advice of the

>> pediatrician. The ped is telling us that it will correct itself and

>> that we

>> should not worry. I am so stressed - what is the right decision?

>>

>> We noticed the flat spot when our son was 2 months old. He is 4

>> months now

>> - it is not better. We have tried repositioning but I do not see an

>> improvement. I understand this is the perfect age to correct but I

>> am torn

>> between the decision to get the band versus not. I have seen casts

>> of

>> infant heads at 12 months and 21 months where treatment was not done

>> and it

>> is not a place I want to be down the road.

>>

>> I would appreciate knowing what percentage corrects itself versus

>> the

>> percentage that is corrected by treatment - does anyone know this?

>>

>> Also, I am so afraid that my happy little boy will be miserable in

>> the band

>> - however, all the children I have seen seem to be fine.

>>

>> Help..... I need some friendly advice and understanding.

>>

>> Thanks,

>> Tammy Duffy

>>

>> > -----Original Message-----

>> > From: Thornton [sMTP:bthornton@...]

>> > Sent: Friday, April 28, 2000 1:32 PM

>> > Plagiocephalyegroups

>> > Subject: Re: Will it round out???

>> >

>> > Hi Pam,

>> >

>> > We just came back from an appointment with our family doctor. He

>> too has

>> > noticed a difference in 's head! We went over the letter he

>> sent to

>> > the neurosurgeon re: banding and having consultation with us.

>> We're

>> > hoping to have an answer from this doctor within the next week.

>> The

>> > reason our Dr. wrote a letter and sent pics of 's head is

>> because we

>> > live over 1000 miles away from the nearest children't hospital.

>> Anyways

>> > it's great to know that other families are in similar situations

>> and are

>> > seeing SOME results with repositioning.

>> >

>> >

>> >

>> > ----- Original Message -----

>> > From: Doug & Pam <mailto:hambug@...>

>> > Plagiocephalyegroups

>> <mailto:Plagiocephalyegroups>

>> > Sent: Thursday, April 27, 2000 7:54 PM

>> > Subject: Re: Will it round out???

>> >

>> > , your description of your son's head and your

>> repositioning

>> > success sounds EXACTLY like our situation, except Cameron is only

>> 7

>> > months. We debated and went back and forth for a month about

>> whether or

>> > not we should do the helmet (although we had the appointment

>> scheduled

>> > anyway), but in the end decided to go for it.... he still has a

>> flat spot

>> > and his ears are misaligned. He gets cast tomorrow! -Pam

>> >

>> > ----- Original Message -----

>> > From: Thornton <mailto:bthornton@...>

>> > Plagiocephalyegroups

>> > <mailto:Plagiocephalyegroups>

>> > Sent: Thursday, April 27, 2000 12:57 PM

>> > Subject: Re: Will it round out???

>> >

>> > Hi Vicky,

>> >

>> > I just read this new message you sent. My son is 9

>> months

>> > now. He had

>> > quite a bit of flattening on the right back side of

>> his head

>> > and on the side

>> > of his head. We have been aggressively repositioning

>> > (rolled towels and

>> > wedges with velcro to prop him on his side) for about

>> 2

>> > months. We have

>> > seen some improvement. His head on the right side has

>> > rounded out near the

>> > bottom and the right side of his head has rounded out.

>> He

>> > still has a flat

>> > SPOT (the whole side used to be flat) and his ears are

>> still

>> > misaligned from

>> > the top. When we used to look at him from the top

>> before

>> > his head looked

>> > like a parallelogram (sp?). It's like we wanted to

>> push his

>> > forehead on the

>> > right side back and the back of his head on the left

>> side

>> > forward. Anyways,

>> > it no longer looks like a parallelogram but he still

>> hasn't

>> > rounded out

>> > completely. I don't want this information to make

>> anyone

>> > think that

>> > repositioning is the answer, because we are still

>> pursuing

>> > other opinions

>> > and will be talking to a neurologist, but I think in

>> the

>> > meantime, while we

>> > wait to see specialists, that repositioning is

>> definately

>> > worth a shot and

>> > if you see improvement then that's great, but since

>> our

>> > babes are older I

>> > would still keep talking to doctors to see what can be

>> done

>> > as far as the

>> > headband and helmet.

>> >

>> > Hope this helps (I know it's long)

>> >

>> >

>> > ----- Original Message -----

>> > From: <ykciv88@...>

>> > <Plagiocephalyegroups>

>> > Sent: Thursday, April 27, 2000 6:41 AM

>> > Subject: Will it round out???

>> >

>> >

>> > > Hi everyone!

>> > > My son will be 10 months and we are in the

>> process

>> > of waiting

>> > > for a final diagnosis from the doctor. (Long story)

>> > Anyway, I've been

>> > > reading a lot of your posts and see that so many of

>> you

>> > were told by

>> > > your peds or other doctors that those flat spots

>> would

>> > round out. I

>> > > was told the same thing by the pediatrician and the

>> > plastic surgeon

>> > > we

>> > > have been seeing. The plastic surgeon said it may

>> not be

>> > perfect but

>> > > it will round out, and nobody has perfect heads

>> anyway. I

>> > am looking

>> > > into the headband because the more I think about it,

>> I

>> > don't want to

>> > > take that chance. Does anyone know if the heads

>> really

>> > will round out

>> > > on their own? Has anyone not used a helmet or

>> headband and

>> > had their

>> > > child's head round out nicely? How long does it take

>> for

>> > it to

>> > > correct

>> > > itself? Just wondering if what the doctors say is

>> really

>> > true.

>> > > -Vicky

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> >

>> ------------------------------------------------------------------------

>> > > If you love your Mother...

>> > > Click Here

>> > > <

>> <1/3653/3/_/689409/_/956842875/>>

>> > >

>> >

>> ------------------------------------------------------------------------

>> > >

>> > >

[Guest guest]

Hi Tammy,

We haven't made that decision yet. We are currently waiting for a response

from a neurosurgeon at BC Children's Hosp (our family doc sent pics of

's head and his reports, we live 1000 miles away and thought that this

would save us a trip if the neuro thought he didn't need a consultation).

If this doc thinks he needs to have correction we will go to see him, I

believe that he makes helmets. We'll see if we're happy with him, if we are

we may go there for treatment as it's closer - and the insurance thing - if

we aren't happy, I guess we'll be looking into the DOC in Alberta.

----- Original Message -----

From: Duffy, Tammy <tammy_duffy@...>

<Plagiocephalyegroups>

Sent: Monday, May 01, 2000 11:17 AM

Subject: RE: Will it round out???

>

>

> Tammy Duffy

> :

>

> What made you decide to go forward with the band?

>

> > -----Original Message-----

> > From: Thornton [sMTP:bthornton@...]

> > Sent: Monday, May 01, 2000 1:45 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Tammy,

> >

> > Grayson is absolutely precious!!! My son would be what is considered to

> > be

> > mild to moderate. We have the same reaction from people. Everyone I've

> > pointed it out to has said they didn't notice it but once I showed them

> > they

> > could see it. I believe them because I've told them to be honest and

> > these

> > people are family and close friends and I know many of them have been

> > honest

> > about other issues that I would have said LIE LIE LIE - hahaha - anyways

I

> > do believe that if your child is moderate that most people probably

don't

> > notice it and us moms do because we are always inspecting and now

> > focussing

> > on their little noggins. I can't notice anything on the pic. All I see

> > is

> > an adorable baby with a beautiful head of hair.

> >

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <tammy_duffy@...>

> > <Plagiocephalyegroups>

> > Sent: Monday, May 01, 2000 10:07 AM

> > Subject: RE: Will it round out???

> >

> >

> > > Doug:

> > >

> > > I looked at the picture of Cameron in the Files. What should I be

> > looking

> > > for in regards to plagio or can you tell anything from that picture?

> > Can

> > > you tell me what you saw in Cameron's head that prompted your looking

> > into

> > > the band/helmet? My son's head is what CT considers moderate and most

> > > people do not even notice the flatness unless we mention it (perhaps

> > they

> > > are being polite).

> > >

> > > Attached is a picture of my son, Grayson, at 3 months from the front.

I

> > > will need to take some pictures of the aerial, side and back views.

> > >

> > > <<TAMMY.BMP>>

> > >

> > > Congratulations on a successful casting. How long will Cameron wear

the

> > > band? When we spoke to CT last week they estimated Grayson would need

> > to

> > > wear the band for 3 months. Please let me know how Cameron does with

> > the

> > > helmet once you pick it up on Thursday.

> > >

> > >

> > > Tammy

> > >

> > > > -----Original Message-----

> > > > From: Doug & Pam [sMTP:hambug@...]

> > > > Sent: Friday, April 28, 2000 5:20 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Tammy!

> > > > I'm no expert, but it seems like most kids here are experiencing

good

> > > > success with bands/helmets. Our pediatrician also told us Cameron's

> > head

> > > > would correct itself, but our craniofacial doctor told us that his

> > head

> > > > would not likely do any more rounding out on its own after 6 months,

> > even

> > > > though his head would still be growing. I think the period between

2

> > and

> > > > 4 months is the time where you would be most likely to see success

> > from

> > > > repositioning, but if you haven't seen improvement, you might want

to

> > > > consider the band. This was a hard decision for us too as Cameron's

> > case

> > > > is fairly mild, but the reasons not to do it (e.g., cost,

> > inconvenience,

> > > > dealing with staring) didn't seem very important compared to the

> > benefit

> > > > of fixing his head and avoiding potential future problems. -Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > > > 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

> > > >

> > > > Sent: Friday, April 28, 2000 1:41 PM

> > > > Subject: RE: Will it round out???

> > > >

> > > > Hi everyone! I am a new member and am thankful to have found this

> > > > group!

> > > >

> > > > I have this same question...My husband and I took our son to Cranial

> > > > Technologies on Wednesday morning regarding his flat spot. They

> > > > advised us

> > > > to consider the DOC Band. This, of course, is not the advice of the

> > > > pediatrician. The ped is telling us that it will correct itself and

> > > > that we

> > > > should not worry. I am so stressed - what is the right decision?

> > > >

> > > > We noticed the flat spot when our son was 2 months old. He is 4

> > > > months now

> > > > - it is not better. We have tried repositioning but I do not see an

> > > > improvement. I understand this is the perfect age to correct but I

> > > > am torn

> > > > between the decision to get the band versus not. I have seen casts

> > > > of

> > > > infant heads at 12 months and 21 months where treatment was not done

> > > > and it

> > > > is not a place I want to be down the road.

> > > >

> > > > I would appreciate knowing what percentage corrects itself versus

> > > > the

> > > > percentage that is corrected by treatment - does anyone know this?

> > > >

> > > > Also, I am so afraid that my happy little boy will be miserable in

> > > > the band

> > > > - however, all the children I have seen seem to be fine.

> > > >

> > > > Help..... I need some friendly advice and understanding.

> > > >

> > > > Thanks,

> > > > Tammy Duffy

> > > >

> > > > > -----Original Message-----

> > > > > From: Thornton [sMTP:bthornton@...]

> > > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > > Plagiocephalyegroups

> > > > > Subject: Re: Will it round out???

> > > > >

> > > > > Hi Pam,

> > > > >

> > > > > We just came back from an appointment with our family doctor. He

> > > > too has

> > > > > noticed a difference in 's head! We went over the letter he

> > > > sent to

> > > > > the neurosurgeon re: banding and having consultation with us.

> > > > We're

> > > > > hoping to have an answer from this doctor within the next week.

> > > > The

> > > > > reason our Dr. wrote a letter and sent pics of 's head is

> > > > because we

> > > > > live over 1000 miles away from the nearest children't hospital.

> > > > Anyways

> > > > > it's great to know that other families are in similar situations

> > > > and are

> > > > > seeing SOME results with repositioning.

> > > > >

> > > > >

> > > > >

> > > > > ----- Original Message -----

> > > > > From: Doug & Pam <mailto:hambug@...>

> > > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > > Subject: Re: Will it round out???

> > > > >

> > > > > , your description of your son's head and your

> > > > repositioning

> > > > > success sounds EXACTLY like our situation, except Cameron is only

> > > > 7

> > > > > months. We debated and went back and forth for a month about

> > > > whether or

> > > > > not we should do the helmet (although we had the appointment

> > > > scheduled

> > > > > anyway), but in the end decided to go for it.... he still has a

> > > > flat spot

> > > > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > > > >

> > > > > ----- Original Message -----

> > > > > From: Thornton <mailto:bthornton@...>

> > > > > Plagiocephalyegroups

> > > > > <mailto:Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > > Subject: Re: Will it round out???

> > > > >

> > > > > Hi Vicky,

> > > > >

> > > > > I just read this new message you sent. My son is 9

> > > > months

> > > > > now. He had

> > > > > quite a bit of flattening on the right back side of

> > > > his head

> > > > > and on the side

> > > > > of his head. We have been aggressively repositioning

> > > > > (rolled towels and

> > > > > wedges with velcro to prop him on his side) for about

> > > > 2

> > > > > months. We have

> > > > > seen some improvement. His head on the right side has

> > > > > rounded out near the

> > > > > bottom and the right side of his head has rounded out.

> > > > He

> > > > > still has a flat

> > > > > SPOT (the whole side used to be flat) and his ears are

> > > > still

> > > > > misaligned from

> > > > > the top. When we used to look at him from the top

> > > > before

> > > > > his head looked

> > > > > like a parallelogram (sp?). It's like we wanted to

> > > > push his

> > > > > forehead on the

> > > > > right side back and the back of his head on the left

> > > > side

> > > > > forward. Anyways,

> > > > > it no longer looks like a parallelogram but he still

> > > > hasn't

> > > > > rounded out

> > > > > completely. I don't want this information to make

> > > > anyone

> > > > > think that

> > > > > repositioning is the answer, because we are still

> > > > pursuing

> > > > > other opinions

> > > > > and will be talking to a neurologist, but I think in

> > > > the

> > > > > meantime, while we

> > > > > wait to see specialists, that repositioning is

> > > > definately

> > > > > worth a shot and

> > > > > if you see improvement then that's great, but since

> > > > our

> > > > > babes are older I

> > > > > would still keep talking to doctors to see what can be

> > > > done

> > > > > as far as the

> > > > > headband and helmet.

> > > > >

> > > > > Hope this helps (I know it's long)

> > > > >

> > > > >

> > > > > ----- Original Message -----

> > > > > From: <ykciv88@...>

> > > > > <Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > > Subject: Will it round out???

> > > > >

> > > > >

> > > > > > Hi everyone!

> > > > > > My son will be 10 months and we are in the

> > > > process

> > > > > of waiting

> > > > > > for a final diagnosis from the doctor. (Long story)

> > > > > Anyway, I've been

> > > > > > reading a lot of your posts and see that so many of

> > > > you

> > > > > were told by

> > > > > > your peds or other doctors that those flat spots

> > > > would

> > > > > round out. I

> > > > > > was told the same thing by the pediatrician and the

> > > > > plastic surgeon

> > > > > > we

> > > > > > have been seeing. The plastic surgeon said it may

> > > > not be

> > > > > perfect but

> > > > > > it will round out, and nobody has perfect heads

> > > > anyway. I

> > > > > am looking

> > > > > > into the headband because the more I think about it,

> > > > I

> > > > > don't want to

> > > > > > take that chance. Does anyone know if the heads

> > > > really

> > > > > will round out

> > > > > > on their own? Has anyone not used a helmet or

> > > > headband and

> > > > > had their

> > > > > > child's head round out nicely? How long does it take

> > > > for

> > > > > it to

> > > > > > correct

> > > > > > itself? Just wondering if what the doctors say is

> > > > really

> > > > > true.

> > > > > > -Vicky

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > ------------------------------------------------------------------------

> > > > > > If you love your Mother...

> > > > > > Click Here

> > > > > > <

> > > > <1/3653/3/_/689409/_/956842875/>>

> > > > > >

> > > > >

> > > >

> > ------------------------------------------------------------------------

> > > > > >

> > > > > >

[Guest guest]

Hi Tammy Again,

As you probably know we've been repositioning for about 2 months

(started at around 6 1/2 mos) He too was very much like a parellogram but

we are seeing some improvement, he now has just a flat spot on the upper

right side of the back of his head, his ears are moving slowly back into

position, but he still has some facial assymmetry. We're lucky to be seeing

improvement since we started repositioning later. BUT we are still looking

into other options and are interested in orthotic treatment.

.

----- Original Message -----

From: Duffy, Tammy <tammy_duffy@...>

<Plagiocephalyegroups>

Sent: Monday, May 01, 2000 11:14 AM

Subject: RE: RE: Will it round out???

> Thank you. Grayson has lost a lot of his hair. He had so much at birth.

I

> think it makes him look like a " little man " .

>

> Grayson's flat spot is on the right side. From the side view and aerial

> view he looks just like the parrallelogram (spelling?) drawing that I have

> seen.

>

> Tammy Duffy

> Client Relationship Manager

> Direct: (404) 898-1942

> Fax: (404) 870-7987

>

> > -----Original Message-----

> > From: Crain [sMTP:acrain@...]

> > Sent: Monday, May 01, 2000 1:32 PM

> > Plagiocephalyegroups

> > Subject: Re:RE: Will it round out???

> >

> > Tammy-

> >

> > Grayson is sooo beautiful! All that hair! I bet everyone comments

about

> > it

> >

> >

> > He doesn't seem to have any problems with an uneven face. On what side

is

> > his

> > flat spot?

> >

> > C.

> >

> >

> >

> > ____________________Reply Separator____________________

> > Subject: RE: Will it round out???

> > Author: Plagiocephalyegroups

> > Date: 5/1/00 12:07 PM

> >

> > Doug:

> >

> > I looked at the picture of Cameron in the Files. What should I be

looking

> > for in regards to plagio or can you tell anything from that picture?

> > Can

> > you tell me what you saw in Cameron's head that prompted your looking

into

> > the band/helmet? My son's head is what CT considers moderate and most

> > people do not even notice the flatness unless we mention it (perhaps

they

> > are being polite).

> >

> > Attached is a picture of my son, Grayson, at 3 months from the front. I

> > will need to take some pictures of the aerial, side and back views.

> >

> > <<TAMMY.BMP>>

> >

> > Congratulations on a successful casting. How long will Cameron wear the

> > band? When we spoke to CT last week they estimated Grayson would need

to

> > wear the band for 3 months. Please let me know how Cameron does with

the

> > helmet once you pick it up on Thursday.

> >

> >

> > Tammy

> >

> > > -----Original Message-----

> > > From: Doug & Pam [sMTP:hambug@...]

> > > Sent: Friday, April 28, 2000 5:20 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Tammy!

> > > I'm no expert, but it seems like most kids here are experiencing good

> > > success with bands/helmets. Our pediatrician also told us Cameron's

> > head

> > > would correct itself, but our craniofacial doctor told us that his

head

> > > would not likely do any more rounding out on its own after 6 months,

> > even

> > > though his head would still be growing. I think the period between 2

> > and

> > > 4 months is the time where you would be most likely to see success

from

> > > repositioning, but if you haven't seen improvement, you might want to

> > > consider the band. This was a hard decision for us too as Cameron's

> > case

> > > is fairly mild, but the reasons not to do it (e.g., cost,

inconvenience,

> > > dealing with staring) didn't seem very important compared to the

benefit

> > > of fixing his head and avoiding potential future problems. -Pam

> > >

> > > ----- Original Message -----

> > > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > > 'Plagiocephalyegroups'

> > <mailto:'Plagiocephalyegroups'>

> > >

> > > Sent: Friday, April 28, 2000 1:41 PM

> > > Subject: RE: Will it round out???

> > >

> > > Hi everyone! I am a new member and am thankful to have found

this

> > > group!

> > >

> > > I have this same question...My husband and I took our son to

> > Cranial

> > > Technologies on Wednesday morning regarding his flat spot. They

> > > advised us

> > > to consider the DOC Band. This, of course, is not the advice of

> > the

> > > pediatrician. The ped is telling us that it will correct itself

> > and

> > > that we

> > > should not worry. I am so stressed - what is the right decision?

> > >

> > > We noticed the flat spot when our son was 2 months old. He is 4

> > > months now

> > > - it is not better. We have tried repositioning but I do not see

> > an

> > > improvement. I understand this is the perfect age to correct but

I

> > > am torn

> > > between the decision to get the band versus not. I have seen

casts

> > > of

> > > infant heads at 12 months and 21 months where treatment was not

> > done

> > > and it

> > > is not a place I want to be down the road.

> > >

> > > I would appreciate knowing what percentage corrects itself versus

> > > the

> > > percentage that is corrected by treatment - does anyone know

this?

> > >

> > > Also, I am so afraid that my happy little boy will be miserable

in

> > > the band

> > > - however, all the children I have seen seem to be fine.

> > >

> > > Help..... I need some friendly advice and understanding.

> > >

> > > Thanks,

> > > Tammy Duffy

> > >

> > > > -----Original Message-----

> > > > From: Thornton [sMTP:bthornton@...]

> > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Pam,

> > > >

> > > > We just came back from an appointment with our family doctor.

He

> > > too has

> > > > noticed a difference in 's head! We went over the letter

he

> > > sent to

> > > > the neurosurgeon re: banding and having consultation with us.

> > > We're

> > > > hoping to have an answer from this doctor within the next week.

> > > The

> > > > reason our Dr. wrote a letter and sent pics of 's head is

> > > because we

> > > > live over 1000 miles away from the nearest children't hospital.

> > > Anyways

> > > > it's great to know that other families are in similar

situations

> > > and are

> > > > seeing SOME results with repositioning.

> > > >

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: Doug & Pam <mailto:hambug@...>

> > > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > , your description of your son's head and your

> > > repositioning

> > > > success sounds EXACTLY like our situation, except Cameron is

only

> > > 7

> > > > months. We debated and went back and forth for a month about

> > > whether or

> > > > not we should do the helmet (although we had the appointment

> > > scheduled

> > > > anyway), but in the end decided to go for it.... he still has a

> > > flat spot

> > > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Thornton

<mailto:bthornton@...>

> > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Vicky,

> > > >

> > > > I just read this new message you sent. My son is 9

> > > months

> > > > now. He had

> > > > quite a bit of flattening on the right back side of

> > > his head

> > > > and on the side

> > > > of his head. We have been aggressively

repositioning

> > > > (rolled towels and

> > > > wedges with velcro to prop him on his side) for

about

> > > 2

> > > > months. We have

> > > > seen some improvement. His head on the right side

> > has

> > > > rounded out near the

> > > > bottom and the right side of his head has rounded

> > out.

> > > He

> > > > still has a flat

> > > > SPOT (the whole side used to be flat) and his ears

> > are

> > > still

> > > > misaligned from

> > > > the top. When we used to look at him from the top

> > > before

> > > > his head looked

> > > > like a parallelogram (sp?). It's like we wanted to

> > > push his

> > > > forehead on the

> > > > right side back and the back of his head on the

left

> > > side

> > > > forward. Anyways,

> > > > it no longer looks like a parallelogram but he

still

> > > hasn't

> > > > rounded out

> > > > completely. I don't want this information to make

> > > anyone

> > > > think that

> > > > repositioning is the answer, because we are still

> > > pursuing

> > > > other opinions

> > > > and will be talking to a neurologist, but I think

in

> > > the

> > > > meantime, while we

> > > > wait to see specialists, that repositioning is

> > > definately

> > > > worth a shot and

> > > > if you see improvement then that's great, but since

> > > our

> > > > babes are older I

> > > > would still keep talking to doctors to see what can

> > be

> > > done

> > > > as far as the

> > > > headband and helmet.

> > > >

> > > > Hope this helps (I know it's long)

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: <ykciv88@...>

> > > > <Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > Subject: Will it round out???

> > > >

> > > >

> > > > > Hi everyone!

> > > > > My son will be 10 months and we are in the

> > > process

> > > > of waiting

> > > > > for a final diagnosis from the doctor. (Long

story)

> > > > Anyway, I've been

> > > > > reading a lot of your posts and see that so many

of

> > > you

> > > > were told by

> > > > > your peds or other doctors that those flat spots

> > > would

> > > > round out. I

> > > > > was told the same thing by the pediatrician and

the

> > > > plastic surgeon

> > > > > we

> > > > > have been seeing. The plastic surgeon said it may

> > > not be

> > > > perfect but

> > > > > it will round out, and nobody has perfect heads

> > > anyway. I

> > > > am looking

> > > > > into the headband because the more I think about

> > it,

> > > I

> > > > don't want to

> > > > > take that chance. Does anyone know if the heads

> > > really

> > > > will round out

> > > > > on their own? Has anyone not used a helmet or

> > > headband and

> > > > had their

> > > > > child's head round out nicely? How long does it

> > take

> > > for

> > > > it to

> > > > > correct

> > > > > itself? Just wondering if what the doctors say is

> > > really

> > > > true.

> > > > > -Vicky

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> >

> ------------------------------------------------------------------------

> > > > > If you love your Mother...

> > > > > Click Here

> > > > > <

> > > <1/3653/3/_/689409/_/956842875/>>

> > > > >

> > > >

> >

> ------------------------------------------------------------------------

> > > > >

> > > > >

[Guest guest]

Did you save her hair? I have a little baggie of Gage's.

C./subscribe/Plagiocephaly

----- Original Message -----

From: & Kendra

Plagiocephalyegroups

Sent: Monday, May 01, 2000 5:44 PM

Subject: Re: Will it round out???

Hanna had the "horse shoe" around the back of her head at about 3 months - so I gave her a buzz cut! Best thing I ever did!!! Kendra Crain wrote: Grace was born with a ton of hair (which stuck straight up) and lost most of it as well. A little girl at Grace's daycare (Talyn) has thick dark hair. She's starting to lose it on the top. So she looks like she's been struck with male pattern baldness - a shiny pate with a dark thick fringe of hair around the edges. C. ____________________Reply Separator____________________ Subject: RE: RE: Will it round out??? Author: Plagiocephalyegroups Date: 5/1/00 1:14 PM Thank you. Grayson has lost a lot of his hair. He had so much at birth. I think it makes him look like a "little man". Grayson's flat spot is on the right side. From the side view and aerial view he looks just like the parrallelogram (spelling?) drawing that I have seen. Tammy Duffy Client Relationship Manager Direct: (404) 898-1942 Fax: (404) 870-7987 > -----Original Message----- > From: Crain [sMTP:acrain@...] > Sent: Monday, May 01, 2000 1:32 PM > Plagiocephalyegroups > Subject: Re:RE: Will it round out??? > > Tammy- > > Grayson is sooo beautiful! All that hair! I bet everyone comments about > it > > > He doesn't seem to have any problems with an uneven face. On what side is > his > flat spot? > > C. > > > > ____________________Reply Separator____________________ > Subject: RE: Will it round out??? > Author: Plagiocephalyegroups > Date: 5/1/00 12:07 PM > > Doug: > > I looked at the picture of Cameron in the Files. What should I be looking > for in regards to plagio or can you tell anything from that picture? > Can > you tell me what you saw in Cameron's head that prompted your looking into > the band/helmet? My son's head is what CT considers moderate and most > people do not even notice the flatness unless we mention it (perhaps they > are being polite). > > Attached is a picture of my son, Grayson, at 3 months from the front. I > will need to take some pictures of the aerial, side and back views. > > <<TAMMY.BMP>> > > Congratulations on a successful casting. How long will Cameron wear the > band? When we spoke to CT last week they estimated Grayson would need to > wear the band for 3 months. Please let me know how Cameron does with the > helmet once you pick it up on Thursday. > > > Tammy > > > -----Original Message----- > > From: Doug & Pam [sMTP:hambug@...] > > Sent: Friday, April 28, 2000 5:20 PM > > Plagiocephalyegroups > > Subject: Re: Will it round out??? > > > > Hi Tammy! > > I'm no expert, but it seems like most kids here are experiencing good > > success with bands/helmets. Our pediatrician also told us Cameron's > head > > would correct itself, but our craniofacial doctor told us that his head > > would not likely do any more rounding out on its own after 6 months, > even > > though his head would still be growing. I think the period between 2 > and > > 4 months is the time where you would be most likely to see success from > > repositioning, but if you haven't seen improvement, you might want to > > consider the band. This was a hard decision for us too as Cameron's > case > > is fairly mild, but the reasons not to do it (e.g., cost, inconvenience, > > dealing with staring) didn't seem very important compared to the benefit > > of fixing his head and avoiding potential future problems. -Pam > > > > ----- Original Message ----- > > From: Duffy, Tammy <mailto:tammy_duffy@...> > > 'Plagiocephalyegroups' > <mailto:'Plagiocephalyegroups'> > > > > Sent: Friday, April 28, 2000 1:41 PM > > Subject: RE: Will it round out??? > > > > Hi everyone! I am a new member and am thankful to have found this > > group! > > > > I have this same question...My husband and I took our son to > Cranial > > Technologies on Wednesday morning regarding his flat spot. They > > advised us > > to consider the DOC Band. This, of course, is not the advice of > the > > pediatrician. The ped is telling us that it will correct itself > and > > that we > > should not worry. I am so stressed - what is the right decision? > > > > We noticed the flat spot when our son was 2 months old. He is 4 > > months now > > - it is not better. We have tried repositioning but I do not see > an > > improvement. I understand this is the perfect age to correct but I > > am torn > > between the decision to get the band versus not. I have seen casts > > of > > infant heads at 12 months and 21 months where treatment was not > done > > and it > > is not a place I want to be down the road. > > > > I would appreciate knowing what percentage corrects itself versus > > the > > percentage that is corrected by treatment - does anyone know this? > > > > Also, I am so afraid that my happy little boy will be miserable in > > the band > > - however, all the children I have seen seem to be fine. > > > > Help..... I need some friendly advice and understanding. > > > > Thanks, > > Tammy Duffy > > > > > -----Original Message----- > > > From: Thornton [sMTP:bthornton@...] > > > Sent: Friday, April 28, 2000 1:32 PM > > > Plagiocephalyegroups > > > Subject: Re: Will it round out??? > > > > > > Hi Pam, > > > > > > We just came back from an appointment with our family doctor. He > > too has > > > noticed a difference in 's head! We went over the letter he > > sent to > > > the neurosurgeon re: banding and having consultation with us. > > We're > > > hoping to have an answer from this doctor within the next week. > > The > > > reason our Dr. wrote a letter and sent pics of 's head is > > because we > > > live over 1000 miles away from the nearest children't hospital. > > Anyways > > > it's great to know that other families are in similar situations > > and are > > > seeing SOME results with repositioning. > > > > > > > > > > > > ----- Original Message ----- > > > From: Doug & Pam <mailto:hambug@...> > > > Plagiocephalyegroups > > <mailto:Plagiocephalyegroups> > > > Sent: Thursday, April 27, 2000 7:54 PM > > > Subject: Re: Will it round out??? > > > > > > , your description of your son's head and your > > repositioning > > > success sounds EXACTLY like our situation, except Cameron is only > > 7 > > > months. We debated and went back and forth for a month about > > whether or > > > not we should do the helmet (although we had the appointment > > scheduled > > > anyway), but in the end decided to go for it.... he still has a > > flat spot > > > and his ears are misaligned. He gets cast tomorrow! -Pam > > > > > > ----- Original Message ----- > > > From: Thornton <mailto:bthornton@...> > > > Plagiocephalyegroups > > > <mailto:Plagiocephalyegroups> > > > Sent: Thursday, April 27, 2000 12:57 PM > > > Subject: Re: Will it round out??? > > > > > > Hi Vicky, > > > > > > I just read this new message you sent. My son is 9 > > months > > > now. He had > > > quite a bit of flattening on the right back side of > > his head > > > and on the side > > > of his head. We have been aggressively repositioning > > > (rolled towels and > > > wedges with velcro to prop him on his side) for about > > 2 > > > months. We have > > > seen some improvement. His head on the right side > has > > > rounded out near the > > > bottom and the right side of his head has rounded > out. > > He > > > still has a flat > > > SPOT (the whole side used to be flat) and his ears > are > > still > > > misaligned from > > > the top. When we used to look at him from the top > > before > > > his head looked > > > like a parallelogram (sp?). It's like we wanted to > > push his > > > forehead on the > > > right side back and the back of his head on the left > > side > > > forward. Anyways, > > > it no longer looks like a parallelogram but he still > > hasn't > > > rounded out > > > completely. I don't want this information to make > > anyone > > > think that > > > repositioning is the answer, because we are still > > pursuing > > > other opinions > > > and will be talking to a neurologist, but I think in > > the > > > meantime, while we > > > wait to see specialists, that repositioning is > > definately > > > worth a shot and > > > if you see improvement then that's great, but since > > our > > > babes are older I > > > would still keep talking to doctors to see what can > be > > done > > > as far as the > > > headband and helmet. > > > > > > Hope this helps (I know it's long) > > > > > > > > > ----- Original Message ----- > > > From: <ykciv88@...> > > > <Plagiocephalyegroups> > > > Sent: Thursday, April 27, 2000 6:41 AM > > > Subject: Will it round out??? > > > > > > > > > > Hi everyone! > > > > My son will be 10 months and we are in the > > process > > > of waiting > > > > for a final diagnosis from the doctor. (Long story) > > > Anyway, I've been > > > > reading a lot of your posts and see that so many of > > you > > > were told by > > > > your peds or other doctors that those flat spots > > would > > > round out. I > > > > was told the same thing by the pediatrician and the > > > plastic surgeon > > > > we > > > > have been seeing. The plastic surgeon said it may > > not be > > > perfect but > > > > it will round out, and nobody has perfect heads > > anyway. I > > > am looking > > > > into the headband because the more I think about > it, > > I > > > don't want to > > > > take that chance. Does anyone know if the heads > > really > > > will round out > > > > on their own? Has anyone not used a helmet or > > headband and > > > had their > > > > child's head round out nicely? How long does it > take > > for > > > it to > > > > correct > > > > itself? Just wondering if what the doctors say is > > really > > > true. > > > > -Vicky > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > If you love your Mother... > > > > Click Here > > > > < > > <1/3653/3/_/689409/_/956842875/>> > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > >

[Guest guest]

Pam:

The picture of Cameron is definitely cute! I loved it. I would be

interested in seeing the other pictures if you can get them posted. Our

situations are similar. What made you decide to do the helmet? Did you try

repositioning and it was unsuccessful? I may already know this but I get so

confused reading all the emails (I try to read off and on during the day

while at work - its hard to keep up with everyone).

Tammy

Tammy Duffy

Client Relationship Manager

Direct: (404) 898-1942

Fax: (404) 870-7987

> -----Original Message-----

> From: Doug & Pam [sMTP:hambug@...]

> Sent: Monday, May 01, 2000 10:52 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Tammy,

> No, you can't really see Cameron's plagiocephaly in that picture... I just

> thought it was cute! He doesn't have any facial asymmetry and just barely

> noticeable bossing of the forehead (even to me). But I do have some

> pictures looking straight down on his head and from the side where you can

> clearly see the flatness.... I just haven't been able to scan them

> successfully yet (they seem to have too much shading or something that's

> making them difficult) but I'll get them out there shortly. Some people

> see it right away once I point it out, but some people still can't tell...

> my brother was trying to see the flatness and couldn't, but it's so

> obvious to me!

>

> The doctor estimates that he'll have to wear the helmet about 3 months.

> I'll let you know how it goes on Thursday. I bought the paint and

> stickers yesterday, so I'm ready to go! -Pam

>

> ----- Original Message -----

> From: Duffy, Tammy <mailto:tammy_duffy@...>

> 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

>

> Sent: Monday, May 01, 2000 12:07 PM

> Subject: RE: Will it round out???

>

> Doug:

>

> I looked at the picture of Cameron in the Files. What should I be

> looking

> for in regards to plagio or can you tell anything from that picture?

> Can

> you tell me what you saw in Cameron's head that prompted your

> looking into

> the band/helmet? My son's head is what CT considers moderate and

> most

> people do not even notice the flatness unless we mention it (perhaps

> they

> are being polite).

>

> Attached is a picture of my son, Grayson, at 3 months from the

> front. I

> will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

> Congratulations on a successful casting. How long will Cameron wear

> the

> band? When we spoke to CT last week they estimated Grayson would

> need to

> wear the band for 3 months. Please let me know how Cameron does

> with the

> helmet once you pick it up on Thursday.

>

>

> Tammy

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing

> good

> > success with bands/helmets. Our pediatrician also told us

> Cameron's head

> > would correct itself, but our craniofacial doctor told us that his

> head

> > would not likely do any more rounding out on its own after 6

> months, even

> > though his head would still be growing. I think the period

> between 2 and

> > 4 months is the time where you would be most likely to see success

> from

> > repositioning, but if you haven't seen improvement, you might want

> to

> > consider the band. This was a hard decision for us too as

> Cameron's case

> > is fairly mild, but the reasons not to do it (e.g., cost,

> inconvenience,

> > dealing with staring) didn't seem very important compared to the

> benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > 'Plagiocephalyegroups'

> <mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have

> found this

> > group!

> >

> > I have this same question...My husband and I took our son to

> Cranial

> > Technologies on Wednesday morning regarding his flat spot.

> They

> > advised us

> > to consider the DOC Band. This, of course, is not the

> advice of the

> > pediatrician. The ped is telling us that it will correct

> itself and

> > that we

> > should not worry. I am so stressed - what is the right

> decision?

> >

> > We noticed the flat spot when our son was 2 months old. He

> is 4

> > months now

> > - it is not better. We have tried repositioning but I do

> not see an

> > improvement. I understand this is the perfect age to

> correct but I

> > am torn

> > between the decision to get the band versus not. I have

> seen casts

> > of

> > infant heads at 12 months and 21 months where treatment was

> not done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself

> versus

> > the

> > percentage that is corrected by treatment - does anyone know

> this?

> >

> > Also, I am so afraid that my happy little boy will be

> miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family

> doctor. He

> > too has

> > > noticed a difference in 's head! We went over the

> letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with

> us.

> > We're

> > > hoping to have an answer from this doctor within the next

> week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's

> head is

> > because we

> > > live over 1000 miles away from the nearest children't

> hospital.

> > Anyways

> > > it's great to know that other families are in similar

> situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron

> is only

> > 7

> > > months. We debated and went back and forth for a month

> about

> > whether or

> > > not we should do the helmet (although we had the

> appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still

> has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton

> <mailto:bthornton@...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son

> is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back

> side of

> > his head

> > > and on the side

> > > of his head. We have been aggressively

> repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side)

> for about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right

> side has

> > > rounded out near the

> > > bottom and the right side of his head has

> rounded out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his

> ears are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the

> top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we

> wanted to

> > push his

> > > forehead on the

> > > right side back and the back of his head on

> the left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he

> still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to

> make

> > anyone

> > > think that

> > > repositioning is the answer, because we are

> still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I

> think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but

> since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see

> what can be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are

> in the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long

> story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so

> many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat

> spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician

> and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said

> it may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect

> heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think

> about it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the

> heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet

> or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does

> it take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors

> say is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > < <1/3653/3/_/689409/_/956842875/>>>

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > >

> > > >

[Guest guest]

Tammy

plmk all about the helmet where ur, when u got it, age,... I might have read

it b4 but I can't keep track of all the names. Anyway, I looked at Cameron's

pictures and he is beautiful.

Liz

-----Original Message-----

From: Duffy, Tammy <tammy_duffy@...>

'Plagiocephalyegroups' <Plagiocephalyegroups>

Date: Wednesday, May 03, 2000 7:31 AM

Subject: RE: Will it round out???

Pam:

The picture of Cameron is definitely cute! I loved it. I would be

interested in seeing the other pictures if you can get them posted. Our

situations are similar. What made you decide to do the helmet? Did you try

repositioning and it was unsuccessful? I may already know this but I get so

confused reading all the emails (I try to read off and on during the day

while at work - its hard to keep up with everyone).

Tammy

Tammy Duffy

Client Relationship Manager

Direct: (404) 898-1942

Fax: (404) 870-7987

> -----Original Message-----

> From: Doug & Pam [sMTP:hambug@...]

> Sent: Monday, May 01, 2000 10:52 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Tammy,

> No, you can't really see Cameron's plagiocephaly in that picture... I just

> thought it was cute! He doesn't have any facial asymmetry and just barely

> noticeable bossing of the forehead (even to me). But I do have some

> pictures looking straight down on his head and from the side where you can

> clearly see the flatness.... I just haven't been able to scan them

> successfully yet (they seem to have too much shading or something that's

> making them difficult) but I'll get them out there shortly. Some people

> see it right away once I point it out, but some people still can't tell...

> my brother was trying to see the flatness and couldn't, but it's so

> obvious to me!

>

> The doctor estimates that he'll have to wear the helmet about 3 months.

> I'll let you know how it goes on Thursday. I bought the paint and

> stickers yesterday, so I'm ready to go! -Pam

>

> ----- Original Message -----

> From: Duffy, Tammy <mailto:tammy_duffy@...>

> 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

>

> Sent: Monday, May 01, 2000 12:07 PM

> Subject: RE: Will it round out???

>

> Doug:

>

> I looked at the picture of Cameron in the Files. What should I be

> looking

> for in regards to plagio or can you tell anything from that picture?

> Can

> you tell me what you saw in Cameron's head that prompted your

> looking into

> the band/helmet? My son's head is what CT considers moderate and

> most

> people do not even notice the flatness unless we mention it (perhaps

> they

> are being polite).

>

> Attached is a picture of my son, Grayson, at 3 months from the

> front. I

> will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

> Congratulations on a successful casting. How long will Cameron wear

> the

> band? When we spoke to CT last week they estimated Grayson would

> need to

> wear the band for 3 months. Please let me know how Cameron does

> with the

> helmet once you pick it up on Thursday.

>

>

> Tammy

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing

> good

> > success with bands/helmets. Our pediatrician also told us

> Cameron's head

> > would correct itself, but our craniofacial doctor told us that his

> head

> > would not likely do any more rounding out on its own after 6

> months, even

> > though his head would still be growing. I think the period

> between 2 and

> > 4 months is the time where you would be most likely to see success

> from

> > repositioning, but if you haven't seen improvement, you might want

> to

> > consider the band. This was a hard decision for us too as

> Cameron's case

> > is fairly mild, but the reasons not to do it (e.g., cost,

> inconvenience,

> > dealing with staring) didn't seem very important compared to the

> benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > 'Plagiocephalyegroups'

> <mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have

> found this

> > group!

> >

> > I have this same question...My husband and I took our son to

> Cranial

> > Technologies on Wednesday morning regarding his flat spot.

> They

> > advised us

> > to consider the DOC Band. This, of course, is not the

> advice of the

> > pediatrician. The ped is telling us that it will correct

> itself and

> > that we

> > should not worry. I am so stressed - what is the right

> decision?

> >

> > We noticed the flat spot when our son was 2 months old. He

> is 4

> > months now

> > - it is not better. We have tried repositioning but I do

> not see an

> > improvement. I understand this is the perfect age to

> correct but I

> > am torn

> > between the decision to get the band versus not. I have

> seen casts

> > of

> > infant heads at 12 months and 21 months where treatment was

> not done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself

> versus

> > the

> > percentage that is corrected by treatment - does anyone know

> this?

> >

> > Also, I am so afraid that my happy little boy will be

> miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family

> doctor. He

> > too has

> > > noticed a difference in 's head! We went over the

> letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with

> us.

> > We're

> > > hoping to have an answer from this doctor within the next

> week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's

> head is

> > because we

> > > live over 1000 miles away from the nearest children't

> hospital.

> > Anyways

> > > it's great to know that other families are in similar

> situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron

> is only

> > 7

> > > months. We debated and went back and forth for a month

> about

> > whether or

> > > not we should do the helmet (although we had the

> appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still

> has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton

> <mailto:bthornton@...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son

> is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back

> side of

> > his head

> > > and on the side

> > > of his head. We have been aggressively

> repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side)

> for about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right

> side has

> > > rounded out near the

> > > bottom and the right side of his head has

> rounded out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his

> ears are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the

> top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we

> wanted to

> > push his

> > > forehead on the

> > > right side back and the back of his head on

> the left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he

> still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to

> make

> > anyone

> > > think that

> > > repositioning is the answer, because we are

> still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I

> think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but

> since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see

> what can be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are

> in the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long

> story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so

> many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat

> spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician

> and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said

> it may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect

> heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think

> about it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the

> heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet

> or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does

> it take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors

> say is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > < <1/3653/3/_/689409/_/956842875/>>>

> > > >

> > >

> >

> ------------------------------------------------------------------------

> > > >

> > > >