RE: Will it round out???

[Guest guest]

Hi Vicky,

I just read this new message you sent. My son is 9 months now. He had

quite a bit of flattening on the right back side of his head and on the side

of his head. We have been aggressively repositioning (rolled towels and

wedges with velcro to prop him on his side) for about 2 months. We have

seen some improvement. His head on the right side has rounded out near the

bottom and the right side of his head has rounded out. He still has a flat

SPOT (the whole side used to be flat) and his ears are still misaligned from

the top. When we used to look at him from the top before his head looked

like a parallelogram (sp?). It's like we wanted to push his forehead on the

right side back and the back of his head on the left side forward. Anyways,

it no longer looks like a parallelogram but he still hasn't rounded out

completely. I don't want this information to make anyone think that

repositioning is the answer, because we are still pursuing other opinions

and will be talking to a neurologist, but I think in the meantime, while we

wait to see specialists, that repositioning is definately worth a shot and

if you see improvement then that's great, but since our babes are older I

would still keep talking to doctors to see what can be done as far as the

headband and helmet.

Hope this helps (I know it's long)

----- Original Message -----

From: <ykciv88@...>

<Plagiocephalyegroups>

Sent: Thursday, April 27, 2000 6:41 AM

Subject: Will it round out???

> Hi everyone!

> My son will be 10 months and we are in the process of waiting

> for a final diagnosis from the doctor. (Long story) Anyway, I've been

> reading a lot of your posts and see that so many of you were told by

> your peds or other doctors that those flat spots would round out. I

> was told the same thing by the pediatrician and the plastic surgeon

> we

> have been seeing. The plastic surgeon said it may not be perfect but

> it will round out, and nobody has perfect heads anyway. I am looking

> into the headband because the more I think about it, I don't want to

> take that chance. Does anyone know if the heads really will round out

> on their own? Has anyone not used a helmet or headband and had their

> child's head round out nicely? How long does it take for it to

> correct

> itself? Just wondering if what the doctors say is really true.

> -Vicky

>

>

>

>

>

>

>

> ------------------------------------------------------------------------

> If you love your Mother...

> Click Here

> 1/3653/3/_/689409/_/956842875/

> ------------------------------------------------------------------------

>

>

[Guest guest]

, your description of your son's head and your repositioning success sounds EXACTLY like our situation, except Cameron is only 7 months. We debated and went back and forth for a month about whether or not we should do the helmet (although we had the appointment scheduled anyway), but in the end decided to go for it.... he still has a flat spot and his ears are misaligned. He gets cast tomorrow! -Pam

----- Original Message -----

From: Thornton

Plagiocephalyegroups

Sent: Thursday, April 27, 2000 12:57 PM

Subject: Re: Will it round out???

Hi Vicky,I just read this new message you sent. My son is 9 months now. He hadquite a bit of flattening on the right back side of his head and on the sideof his head. We have been aggressively repositioning (rolled towels andwedges with velcro to prop him on his side) for about 2 months. We haveseen some improvement. His head on the right side has rounded out near thebottom and the right side of his head has rounded out. He still has a flatSPOT (the whole side used to be flat) and his ears are still misaligned fromthe top. When we used to look at him from the top before his head lookedlike a parallelogram (sp?). It's like we wanted to push his forehead on theright side back and the back of his head on the left side forward. Anyways,it no longer looks like a parallelogram but he still hasn't rounded outcompletely. I don't want this information to make anyone think thatrepositioning is the answer, because we are still pursuing other opinionsand will be talking to a neurologist, but I think in the meantime, while wewait to see specialists, that repositioning is definately worth a shot andif you see improvement then that's great, but since our babes are older Iwould still keep talking to doctors to see what can be done as far as theheadband and helmet.Hope this helps (I know it's long)----- Original Message -----From: <ykciv88@...><Plagiocephalyegroups>Sent: Thursday, April 27, 2000 6:41 AMSubject: Will it round out???> Hi everyone!> My son will be 10 months and we are in the process of waiting> for a final diagnosis from the doctor. (Long story) Anyway, I've been> reading a lot of your posts and see that so many of you were told by> your peds or other doctors that those flat spots would round out. I> was told the same thing by the pediatrician and the plastic surgeon> we> have been seeing. The plastic surgeon said it may not be perfect but> it will round out, and nobody has perfect heads anyway. I am looking> into the headband because the more I think about it, I don't want to> take that chance. Does anyone know if the heads really will round out> on their own? Has anyone not used a helmet or headband and had their> child's head round out nicely? How long does it take for it to> correct> itself? Just wondering if what the doctors say is really true.> -Vicky>>>>>>>> ------------------------------------------------------------------------> If you love your Mother...> Click Here> 1/3653/3/_/689409/_/956842875/> ------------------------------------------------------------------------>>

[Guest guest]

In a message dated 4/27/00 9:59:54 PM Pacific Daylight Time, hambug@...

writes:

<< he still has a flat spot and his ears are misaligned. He gets cast

tomorrow! - >>

Pam- you will be very pleased with the results for the ear alignment...good

luck today with the casting! Kimry

[Guest guest]

Hi Pam,

We just came back from an appointment with our family doctor. He too has noticed a difference in 's head! We went over the letter he sent to the neurosurgeon re: banding and having consultation with us. We're hoping to have an answer from this doctor within the next week. The reason our Dr. wrote a letter and sent pics of 's head is because we live over 1000 miles away from the nearest children't hospital. Anyways it's great to know that other families are in similar situations and are seeing SOME results with repositioning.

----- Original Message -----

From: Doug & Pam

Plagiocephalyegroups

Sent: Thursday, April 27, 2000 7:54 PM

Subject: Re: Will it round out???

, your description of your son's head and your repositioning success sounds EXACTLY like our situation, except Cameron is only 7 months. We debated and went back and forth for a month about whether or not we should do the helmet (although we had the appointment scheduled anyway), but in the end decided to go for it.... he still has a flat spot and his ears are misaligned. He gets cast tomorrow! -Pam

----- Original Message -----

From: Thornton

Plagiocephalyegroups

Sent: Thursday, April 27, 2000 12:57 PM

Subject: Re: Will it round out???

Hi Vicky,I just read this new message you sent. My son is 9 months now. He hadquite a bit of flattening on the right back side of his head and on the sideof his head. We have been aggressively repositioning (rolled towels andwedges with velcro to prop him on his side) for about 2 months. We haveseen some improvement. His head on the right side has rounded out near thebottom and the right side of his head has rounded out. He still has a flatSPOT (the whole side used to be flat) and his ears are still misaligned fromthe top. When we used to look at him from the top before his head lookedlike a parallelogram (sp?). It's like we wanted to push his forehead on theright side back and the back of his head on the left side forward. Anyways,it no longer looks like a parallelogram but he still hasn't rounded outcompletely. I don't want this information to make anyone think thatrepositioning is the answer, because we are still pursuing other opinionsand will be talking to a neurologist, but I think in the meantime, while wewait to see specialists, that repositioning is definately worth a shot andif you see improvement then that's great, but since our babes are older Iwould still keep talking to doctors to see what can be done as far as theheadband and helmet.Hope this helps (I know it's long)----- Original Message -----From: <ykciv88@...><Plagiocephalyegroups>Sent: Thursday, April 27, 2000 6:41 AMSubject: Will it round out???> Hi everyone!> My son will be 10 months and we are in the process of waiting> for a final diagnosis from the doctor. (Long story) Anyway, I've been> reading a lot of your posts and see that so many of you were told by> your peds or other doctors that those flat spots would round out. I> was told the same thing by the pediatrician and the plastic surgeon> we> have been seeing. The plastic surgeon said it may not be perfect but> it will round out, and nobody has perfect heads anyway. I am looking> into the headband because the more I think about it, I don't want to> take that chance. Does anyone know if the heads really will round out> on their own? Has anyone not used a helmet or headband and had their> child's head round out nicely? How long does it take for it to> correct> itself? Just wondering if what the doctors say is really true.> -Vicky>>>>>>>> ------------------------------------------------------------------------> If you love your Mother...> Click Here> 1/3653/3/_/689409/_/956842875/> ------------------------------------------------------------------------>>

[Guest guest]

We have similar problem and have seen little improvement but it was also after 4 mos. when we realized that our daughter was not just using one side of her body but in fact her head was flattened on right and back right. yeeman

-----Original Message-----From: Doug & Pam <hambug@...>Plagiocephalyegroups <Plagiocephalyegroups>Date: Thursday, April 27, 2000 9:55 PMSubject: Re: Will it round out???

, your description of your son's head and your repositioning success sounds EXACTLY like our situation, except Cameron is only 7 months. We debated and went back and forth for a month about whether or not we should do the helmet (although we had the appointment scheduled anyway), but in the end decided to go for it.... he still has a flat spot and his ears are misaligned. He gets cast tomorrow! -Pam

----- Original Message -----

From: Thornton

Plagiocephalyegroups

Sent: Thursday, April 27, 2000 12:57 PM

Subject: Re: Will it round out???

Hi Vicky,I just read this new message you sent. My son is 9 months now. He hadquite a bit of flattening on the right back side of his head and on the sideof his head. We have been aggressively repositioning (rolled towels andwedges with velcro to prop him on his side) for about 2 months. We haveseen some improvement. His head on the right side has rounded out near thebottom and the right side of his head has rounded out. He still has a flatSPOT (the whole side used to be flat) and his ears are still misaligned fromthe top. When we used to look at him from the top before his head lookedlike a parallelogram (sp?). It's like we wanted to push his forehead on theright side back and the back of his head on the left side forward. Anyways,it no longer looks like a parallelogram but he still hasn't rounded outcompletely. I don't want this information to make anyone think thatrepositioning is the answer, because we are still pursuing other opinionsand will be talking to a neurologist, but I think in the meantime, while wewait to see specialists, that repositioning is definately worth a shot andif you see improvement then that's great, but since our babes are older Iwould still keep talking to doctors to see what can be done as far as theheadband and helmet.Hope this helps (I know it's long)----- Original Message -----From: <ykciv88@...><Plagiocephalyegroups>Sent: Thursday, April 27, 2000 6:41 AMSubject: Will it round out???> Hi everyone!> My son will be 10 months and we are in the process of waiting> for a final diagnosis from the doctor. (Long story) Anyway, I've been> reading a lot of your posts and see that so many of you were told by> your peds or other doctors that those flat spots would round out. I> was told the same thing by the pediatrician and the plastic surgeon> we> have been seeing. The plastic surgeon said it may not be perfect but> it will round out, and nobody has perfect heads anyway. I am looking> into the headband because the more I think about it, I don't want to> take that chance. Does anyone know if the heads really will round out> on their own? Has anyone not used a helmet or headband and had their> child's head round out nicely? How long does it take for it to> correct> itself? Just wondering if what the doctors say is really true.> -Vicky>>>>>>>> ------------------------------------------------------------------------> If you love your Mother...> Click Here> 1/3653/3/_/689409/_/956842875/> ------------------------------------------------------------------------>>

[Guest guest]

Hi everyone! I am a new member and am thankful to have found this group!

I have this same question...My husband and I took our son to Cranial

Technologies on Wednesday morning regarding his flat spot. They advised us

to consider the DOC Band. This, of course, is not the advice of the

pediatrician. The ped is telling us that it will correct itself and that we

should not worry. I am so stressed - what is the right decision?

We noticed the flat spot when our son was 2 months old. He is 4 months now

- it is not better. We have tried repositioning but I do not see an

improvement. I understand this is the perfect age to correct but I am torn

between the decision to get the band versus not. I have seen casts of

infant heads at 12 months and 21 months where treatment was not done and it

is not a place I want to be down the road.

I would appreciate knowing what percentage corrects itself versus the

percentage that is corrected by treatment - does anyone know this?

Also, I am so afraid that my happy little boy will be miserable in the band

- however, all the children I have seen seem to be fine.

Help..... I need some friendly advice and understanding.

Thanks,

Tammy Duffy

> -----Original Message-----

> From: Thornton [sMTP:bthornton@...]

> Sent: Friday, April 28, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Hi Pam,

>

> We just came back from an appointment with our family doctor. He too has

> noticed a difference in 's head! We went over the letter he sent to

> the neurosurgeon re: banding and having consultation with us. We're

> hoping to have an answer from this doctor within the next week. The

> reason our Dr. wrote a letter and sent pics of 's head is because we

> live over 1000 miles away from the nearest children't hospital. Anyways

> it's great to know that other families are in similar situations and are

> seeing SOME results with repositioning.

>

>

>

> ----- Original Message -----

> From: Doug & Pam <mailto:hambug@...>

> Plagiocephalyegroups <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 7:54 PM

> Subject: Re: Will it round out???

>

> , your description of your son's head and your repositioning

> success sounds EXACTLY like our situation, except Cameron is only 7

> months. We debated and went back and forth for a month about whether or

> not we should do the helmet (although we had the appointment scheduled

> anyway), but in the end decided to go for it.... he still has a flat spot

> and his ears are misaligned. He gets cast tomorrow! -Pam

>

> ----- Original Message -----

> From: Thornton <mailto:bthornton@...>

> Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 12:57 PM

> Subject: Re: Will it round out???

>

> Hi Vicky,

>

> I just read this new message you sent. My son is 9 months

> now. He had

> quite a bit of flattening on the right back side of his head

> and on the side

> of his head. We have been aggressively repositioning

> (rolled towels and

> wedges with velcro to prop him on his side) for about 2

> months. We have

> seen some improvement. His head on the right side has

> rounded out near the

> bottom and the right side of his head has rounded out. He

> still has a flat

> SPOT (the whole side used to be flat) and his ears are still

> misaligned from

> the top. When we used to look at him from the top before

> his head looked

> like a parallelogram (sp?). It's like we wanted to push his

> forehead on the

> right side back and the back of his head on the left side

> forward. Anyways,

> it no longer looks like a parallelogram but he still hasn't

> rounded out

> completely. I don't want this information to make anyone

> think that

> repositioning is the answer, because we are still pursuing

> other opinions

> and will be talking to a neurologist, but I think in the

> meantime, while we

> wait to see specialists, that repositioning is definately

> worth a shot and

> if you see improvement then that's great, but since our

> babes are older I

> would still keep talking to doctors to see what can be done

> as far as the

> headband and helmet.

>

> Hope this helps (I know it's long)

>

>

> ----- Original Message -----

> From: <ykciv88@...>

> <Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 6:41 AM

> Subject: Will it round out???

>

>

> > Hi everyone!

> > My son will be 10 months and we are in the process

> of waiting

> > for a final diagnosis from the doctor. (Long story)

> Anyway, I've been

> > reading a lot of your posts and see that so many of you

> were told by

> > your peds or other doctors that those flat spots would

> round out. I

> > was told the same thing by the pediatrician and the

> plastic surgeon

> > we

> > have been seeing. The plastic surgeon said it may not be

> perfect but

> > it will round out, and nobody has perfect heads anyway. I

> am looking

> > into the headband because the more I think about it, I

> don't want to

> > take that chance. Does anyone know if the heads really

> will round out

> > on their own? Has anyone not used a helmet or headband and

> had their

> > child's head round out nicely? How long does it take for

> it to

> > correct

> > itself? Just wondering if what the doctors say is really

> true.

> > -Vicky

> >

> >

> >

> >

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > If you love your Mother...

> > Click Here

> > <1/3653/3/_/689409/_/956842875/>

> >

> ------------------------------------------------------------------------

> >

> >

[Guest guest]

See the site at www.neurosurgery.org/journals/online_j/feb97/2-2-3.html

-----Original Message-----

From: Duffy, Tammy [mailto:tammy_duffy@...]

Sent: Friday, April 28, 2000 1:42 PM

'Plagiocephalyegroups'

Subject: RE: Will it round out???

Hi everyone! I am a new member and am thankful to have found this group!

I have this same question...My husband and I took our son to Cranial

Technologies on Wednesday morning regarding his flat spot. They advised us

to consider the DOC Band. This, of course, is not the advice of the

pediatrician. The ped is telling us that it will correct itself and that we

should not worry. I am so stressed - what is the right decision?

We noticed the flat spot when our son was 2 months old. He is 4 months now

- it is not better. We have tried repositioning but I do not see an

improvement. I understand this is the perfect age to correct but I am torn

between the decision to get the band versus not. I have seen casts of

infant heads at 12 months and 21 months where treatment was not done and it

is not a place I want to be down the road.

I would appreciate knowing what percentage corrects itself versus the

percentage that is corrected by treatment - does anyone know this?

Also, I am so afraid that my happy little boy will be miserable in the band

- however, all the children I have seen seem to be fine.

Help..... I need some friendly advice and understanding.

Thanks,

Tammy Duffy

> -----Original Message-----

> From: Thornton [sMTP:bthornton@...]

> Sent: Friday, April 28, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Hi Pam,

>

> We just came back from an appointment with our family doctor. He too has

> noticed a difference in 's head! We went over the letter he sent to

> the neurosurgeon re: banding and having consultation with us. We're

> hoping to have an answer from this doctor within the next week. The

> reason our Dr. wrote a letter and sent pics of 's head is because we

> live over 1000 miles away from the nearest children't hospital. Anyways

> it's great to know that other families are in similar situations and are

> seeing SOME results with repositioning.

>

>

>

> ----- Original Message -----

> From: Doug & Pam <mailto:hambug@...>

> Plagiocephalyegroups <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 7:54 PM

> Subject: Re: Will it round out???

>

> , your description of your son's head and your repositioning

> success sounds EXACTLY like our situation, except Cameron is only 7

> months. We debated and went back and forth for a month about whether or

> not we should do the helmet (although we had the appointment scheduled

> anyway), but in the end decided to go for it.... he still has a flat spot

> and his ears are misaligned. He gets cast tomorrow! -Pam

>

> ----- Original Message -----

> From: Thornton <mailto:bthornton@...>

> Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 12:57 PM

> Subject: Re: Will it round out???

>

> Hi Vicky,

>

> I just read this new message you sent. My son is 9 months

> now. He had

> quite a bit of flattening on the right back side of his head

> and on the side

> of his head. We have been aggressively repositioning

> (rolled towels and

> wedges with velcro to prop him on his side) for about 2

> months. We have

> seen some improvement. His head on the right side has

> rounded out near the

> bottom and the right side of his head has rounded out. He

> still has a flat

> SPOT (the whole side used to be flat) and his ears are still

> misaligned from

> the top. When we used to look at him from the top before

> his head looked

> like a parallelogram (sp?). It's like we wanted to push his

> forehead on the

> right side back and the back of his head on the left side

> forward. Anyways,

> it no longer looks like a parallelogram but he still hasn't

> rounded out

> completely. I don't want this information to make anyone

> think that

> repositioning is the answer, because we are still pursuing

> other opinions

> and will be talking to a neurologist, but I think in the

> meantime, while we

> wait to see specialists, that repositioning is definately

> worth a shot and

> if you see improvement then that's great, but since our

> babes are older I

> would still keep talking to doctors to see what can be done

> as far as the

> headband and helmet.

>

> Hope this helps (I know it's long)

>

>

> ----- Original Message -----

> From: <ykciv88@...>

> <Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 6:41 AM

> Subject: Will it round out???

>

>

> > Hi everyone!

> > My son will be 10 months and we are in the process

> of waiting

> > for a final diagnosis from the doctor. (Long story)

> Anyway, I've been

> > reading a lot of your posts and see that so many of you

> were told by

> > your peds or other doctors that those flat spots would

> round out. I

> > was told the same thing by the pediatrician and the

> plastic surgeon

> > we

> > have been seeing. The plastic surgeon said it may not be

> perfect but

> > it will round out, and nobody has perfect heads anyway. I

> am looking

> > into the headband because the more I think about it, I

> don't want to

> > take that chance. Does anyone know if the heads really

> will round out

> > on their own? Has anyone not used a helmet or headband and

> had their

> > child's head round out nicely? How long does it take for

> it to

> > correct

> > itself? Just wondering if what the doctors say is really

> true.

> > -Vicky

> >

> >

> >

> >

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > If you love your Mother...

> > Click Here

> > <1/3653/3/_/689409/_/956842875/>

> >

> ------------------------------------------------------------------------

> >

> >

[Guest guest]

Thanks Blake

Tammy Duffy

> -----Original Message-----

> From: Blake, Stuart [sMTP:stuartblake@...]

> Sent: Friday, April 28, 2000 3:28 PM

> 'Plagiocephalyegroups'

> Subject: RE: Will it round out???

>

> See the site at www.neurosurgery.org/journals/online_j/feb97/2-2-3.html

>

> -----Original Message-----

> From: Duffy, Tammy [ <mailto:tammy_duffy@...>]

> Sent: Friday, April 28, 2000 1:42 PM

> 'Plagiocephalyegroups'

> Subject: RE: Will it round out???

>

>

> Hi everyone! I am a new member and am thankful to have found this group!

>

>

> I have this same question...My husband and I took our son to Cranial

> Technologies on Wednesday morning regarding his flat spot. They advised

> us

> to consider the DOC Band. This, of course, is not the advice of the

> pediatrician. The ped is telling us that it will correct itself and that

> we

> should not worry. I am so stressed - what is the right decision?

>

> We noticed the flat spot when our son was 2 months old. He is 4 months

> now

> - it is not better. We have tried repositioning but I do not see an

> improvement. I understand this is the perfect age to correct but I am

> torn

> between the decision to get the band versus not. I have seen casts of

> infant heads at 12 months and 21 months where treatment was not done and

> it

> is not a place I want to be down the road.

>

> I would appreciate knowing what percentage corrects itself versus the

> percentage that is corrected by treatment - does anyone know this?

>

> Also, I am so afraid that my happy little boy will be miserable in the

> band

> - however, all the children I have seen seem to be fine.

>

> Help..... I need some friendly advice and understanding.

>

> Thanks,

> Tammy Duffy

>

> > -----Original Message-----

> > From: Thornton [sMTP:bthornton@...]

> > Sent: Friday, April 28, 2000 1:32 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Pam,

> >

> > We just came back from an appointment with our family doctor. He too

> has

> > noticed a difference in 's head! We went over the letter he sent

> to

> > the neurosurgeon re: banding and having consultation with us. We're

> > hoping to have an answer from this doctor within the next week. The

> > reason our Dr. wrote a letter and sent pics of 's head is because

> we

> > live over 1000 miles away from the nearest children't hospital. Anyways

>

> > it's great to know that other families are in similar situations and are

>

> > seeing SOME results with repositioning.

> >

> >

> >

> > ----- Original Message -----

> > From: Doug & Pam < <mailto:hambug@...>>

> > Plagiocephalyegroups <

> <mailto:Plagiocephalyegroups>>

> > Sent: Thursday, April 27, 2000 7:54 PM

> > Subject: Re: Will it round out???

> >

> > , your description of your son's head and your repositioning

>

> > success sounds EXACTLY like our situation, except Cameron is only 7

> > months. We debated and went back and forth for a month about whether or

>

> > not we should do the helmet (although we had the appointment scheduled

> > anyway), but in the end decided to go for it.... he still has a flat

> spot

> > and his ears are misaligned. He gets cast tomorrow! -Pam

> >

> > ----- Original Message -----

> > From: Thornton < <mailto:bthornton@...>>

> > Plagiocephalyegroups

> > < <mailto:Plagiocephalyegroups>>

> > Sent: Thursday, April 27, 2000 12:57 PM

> > Subject: Re: Will it round out???

> >

> > Hi Vicky,

> >

> > I just read this new message you sent. My son is 9 months

>

> > now. He had

> > quite a bit of flattening on the right back side of his

> head

> > and on the side

> > of his head. We have been aggressively repositioning

> > (rolled towels and

> > wedges with velcro to prop him on his side) for about 2

> > months. We have

> > seen some improvement. His head on the right side has

> > rounded out near the

> > bottom and the right side of his head has rounded out. He

>

> > still has a flat

> > SPOT (the whole side used to be flat) and his ears are

> still

> > misaligned from

> > the top. When we used to look at him from the top before

> > his head looked

> > like a parallelogram (sp?). It's like we wanted to push

> his

> > forehead on the

> > right side back and the back of his head on the left side

> > forward. Anyways,

> > it no longer looks like a parallelogram but he still

> hasn't

> > rounded out

> > completely. I don't want this information to make anyone

> > think that

> > repositioning is the answer, because we are still pursuing

>

> > other opinions

> > and will be talking to a neurologist, but I think in the

> > meantime, while we

> > wait to see specialists, that repositioning is definately

> > worth a shot and

> > if you see improvement then that's great, but since our

> > babes are older I

> > would still keep talking to doctors to see what can be

> done

> > as far as the

> > headband and helmet.

> >

> > Hope this helps (I know it's long)

> >

> >

> > ----- Original Message -----

> > From: <ykciv88@...>

> > <Plagiocephalyegroups>

> > Sent: Thursday, April 27, 2000 6:41 AM

> > Subject: Will it round out???

> >

> >

> > > Hi everyone!

> > > My son will be 10 months and we are in the

> process

> > of waiting

> > > for a final diagnosis from the doctor. (Long story)

> > Anyway, I've been

> > > reading a lot of your posts and see that so many of you

> > were told by

> > > your peds or other doctors that those flat spots would

> > round out. I

> > > was told the same thing by the pediatrician and the

> > plastic surgeon

> > > we

> > > have been seeing. The plastic surgeon said it may not be

>

> > perfect but

> > > it will round out, and nobody has perfect heads anyway.

> I

> > am looking

> > > into the headband because the more I think about it, I

> > don't want to

> > > take that chance. Does anyone know if the heads really

> > will round out

> > > on their own? Has anyone not used a helmet or headband

> and

> > had their

> > > child's head round out nicely? How long does it take for

>

> > it to

> > > correct

> > > itself? Just wondering if what the doctors say is really

>

> > true.

> > > -Vicky

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > ------------------------------------------------------------------------

>

> > > If you love your Mother...

> > > Click Here

> > > <

> <1/3653/3/_/689409/_/956842875/>>

> > >

> > ------------------------------------------------------------------------

>

> > >

> > >

[Guest guest]

This is the paper my neurosurgeon believes which means doing nothing is

as good as the band. I no longer believe it. I saw the

results of a child he said not to treat and couldn't believe that was his

recommendation. The parents started treatment anyway and it helped

alot. However, since his case was so severe and they waited until

he was a year the poor boy has a noticably deformed head. The boy

is now 3. Seeing this is what made me make up my mind to treat my

6.5 month old NOW! They had the same problem with their second son

and treated him at 4 months. I saw his head at 10 months and he

looks GREAT!

At 02:27 PM 4/28/00 -0500, you wrote:

See the site at

www.neurosurgery.org/journals/online_j/feb97/2-2-3.html

-----Original Message-----

From: Duffy, Tammy [mailto:tammy_duffy@...]

Sent: Friday, April 28, 2000 1:42 PM

'Plagiocephalyegroups'

Subject: RE: Will it round out???

Hi everyone! I am a new member and am thankful to have found this group!

I have this same question...My husband and I took our son to Cranial

Technologies on Wednesday morning regarding his flat spot. They advised us

to consider the DOC Band. This, of course, is not the advice of the

pediatrician. The ped is telling us that it will correct itself and that we

should not worry. I am so stressed - what is the right decision?

We noticed the flat spot when our son was 2 months old. He is 4 months now

- it is not better. We have tried repositioning but I do not see an

improvement. I understand this is the perfect age to correct but I am torn

between the decision to get the band versus not. I have seen casts of

infant heads at 12 months and 21 months where treatment was not done and it

is not a place I want to be down the road.

I would appreciate knowing what percentage corrects itself versus the

percentage that is corrected by treatment - does anyone know this?

Also, I am so afraid that my happy little boy will be miserable in the band

- however, all the children I have seen seem to be fine.

Help..... I need some friendly advice and understanding.

Thanks,

Tammy Duffy

> -----Original Message-----

> From: Thornton [sMTP:bthornton@...]

> Sent: Friday, April 28, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Hi Pam,

>

> We just came back from an appointment with our family doctor. He too has

> noticed a difference in 's head! We went over the letter he sent to

> the neurosurgeon re: banding and having consultation with us. We're

> hoping to have an answer from this doctor within the next week. The

> reason our Dr. wrote a letter and sent pics of 's head is because we

> live over 1000 miles away from the nearest children't hospital. Anyways

> it's great to know that other families are in similar situations and are

> seeing SOME results with repositioning.

>

>

>

> ----- Original Message -----

> From: Doug & Pam <mailto:hambug@...>

> Plagiocephalyegroups <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 7:54 PM

> Subject: Re: Will it round out???

>

> , your description of your son's head and your repositioning

> success sounds EXACTLY like our situation, except Cameron is only 7

> months. We debated and went back and forth for a month about whether or

> not we should do the helmet (although we had the appointment scheduled

> anyway), but in the end decided to go for it.... he still has a flat spot

> and his ears are misaligned. He gets cast tomorrow! -Pam

>

> ----- Original Message -----

> From: Thornton <mailto:bthornton@...>

> Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 12:57 PM

> Subject: Re: Will it round out???

>

> Hi Vicky,

>

> I just read this new message you sent. My son is 9 months

> now. He had

> quite a bit of flattening on the right back side of his head

> and on the side

> of his head. We have been aggressively repositioning

> (rolled towels and

> wedges with velcro to prop him on his side) for about 2

> months. We have

> seen some improvement. His head on the right side has

> rounded out near the

> bottom and the right side of his head has rounded out. He

> still has a flat

> SPOT (the whole side used to be flat) and his ears are still

> misaligned from

> the top. When we used to look at him from the top before

> his head looked

> like a parallelogram (sp?). It's like we wanted to push his

> forehead on the

> right side back and the back of his head on the left side

> forward. Anyways,

> it no longer looks like a parallelogram but he still hasn't

> rounded out

> completely. I don't want this information to make anyone

> think that

> repositioning is the answer, because we are still pursuing

> other opinions

> and will be talking to a neurologist, but I think in the

> meantime, while we

> wait to see specialists, that repositioning is definately

> worth a shot and

> if you see improvement then that's great, but since our

> babes are older I

> would still keep talking to doctors to see what can be done

> as far as the

> headband and helmet.

>

> Hope this helps (I know it's long)

>

>

> ----- Original Message -----

> From: <ykciv88@...>

> <Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 6:41 AM

> Subject: Will it round out???

>

>

> > Hi everyone!

> > My son will be 10 months and we are in the process

> of waiting

> > for a final diagnosis from the doctor. (Long story)

> Anyway, I've been

> > reading a lot of your posts and see that so many of you

> were told by

> > your peds or other doctors that those flat spots would

> round out. I

> > was told the same thing by the pediatrician and the

> plastic surgeon

> > we

> > have been seeing. The plastic surgeon said it may not be

> perfect but

> > it will round out, and nobody has perfect heads anyway. I

> am looking

> > into the headband because the more I think about it, I

> don't want to

> > take that chance. Does anyone know if the heads really

> will round out

> > on their own? Has anyone not used a helmet or headband and

> had their

> > child's head round out nicely? How long does it take for

> it to

> > correct

> > itself? Just wondering if what the doctors say is really

> true.

> > -Vicky

> >

> >

> >

> >

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > If you love your Mother...

> > Click Here

> > <1/3653/3/_/689409/_/956842875/>

> >

> ------------------------------------------------------------------------

> >

> >

[Guest guest]

Hi Tammy!

I'm no expert, but it seems like most kids here are experiencing good success with bands/helmets. Our pediatrician also told us Cameron's head would correct itself, but our craniofacial doctor told us that his head would not likely do any more rounding out on its own after 6 months, even though his head would still be growing. I think the period between 2 and 4 months is the time where you would be most likely to see success from repositioning, but if you haven't seen improvement, you might want to consider the band. This was a hard decision for us too as Cameron's case is fairly mild, but the reasons not to do it (e.g., cost, inconvenience, dealing with staring) didn't seem very important compared to the benefit of fixing his head and avoiding potential future problems. -Pam

----- Original Message -----

From: Duffy, Tammy

'Plagiocephalyegroups'

Sent: Friday, April 28, 2000 1:41 PM

Subject: RE: Will it round out???

Hi everyone! I am a new member and am thankful to have found this group! :)I have this same question...My husband and I took our son to CranialTechnologies on Wednesday morning regarding his flat spot. They advised usto consider the DOC Band. This, of course, is not the advice of thepediatrician. The ped is telling us that it will correct itself and that weshould not worry. I am so stressed - what is the right decision?We noticed the flat spot when our son was 2 months old. He is 4 months now- it is not better. We have tried repositioning but I do not see animprovement. I understand this is the perfect age to correct but I am tornbetween the decision to get the band versus not. I have seen casts ofinfant heads at 12 months and 21 months where treatment was not done and itis not a place I want to be down the road.I would appreciate knowing what percentage corrects itself versus thepercentage that is corrected by treatment - does anyone know this?Also, I am so afraid that my happy little boy will be miserable in the band- however, all the children I have seen seem to be fine.Help..... I need some friendly advice and understanding.Thanks,Tammy Duffy> -----Original Message-----> From: Thornton [sMTP:bthornton@...]> Sent: Friday, April 28, 2000 1:32 PM> Plagiocephalyegroups> Subject: Re: Will it round out???> > Hi Pam,> > We just came back from an appointment with our family doctor. He too has> noticed a difference in 's head! We went over the letter he sent to> the neurosurgeon re: banding and having consultation with us. We're> hoping to have an answer from this doctor within the next week. The> reason our Dr. wrote a letter and sent pics of 's head is because we> live over 1000 miles away from the nearest children't hospital. Anyways> it's great to know that other families are in similar situations and are> seeing SOME results with repositioning.> > > > ----- Original Message ----- > From: Doug & Pam <mailto:hambug@...> > Plagiocephalyegroups <mailto:Plagiocephalyegroups> > Sent: Thursday, April 27, 2000 7:54 PM> Subject: Re: Will it round out???> > , your description of your son's head and your repositioning> success sounds EXACTLY like our situation, except Cameron is only 7> months. We debated and went back and forth for a month about whether or> not we should do the helmet (although we had the appointment scheduled> anyway), but in the end decided to go for it.... he still has a flat spot> and his ears are misaligned. He gets cast tomorrow! -Pam> > ----- Original Message ----- > From: Thornton <mailto:bthornton@...> > Plagiocephalyegroups> <mailto:Plagiocephalyegroups> > Sent: Thursday, April 27, 2000 12:57 PM> Subject: Re: Will it round out???> > Hi Vicky,> > I just read this new message you sent. My son is 9 months> now. He had> quite a bit of flattening on the right back side of his head> and on the side> of his head. We have been aggressively repositioning> (rolled towels and> wedges with velcro to prop him on his side) for about 2> months. We have> seen some improvement. His head on the right side has> rounded out near the> bottom and the right side of his head has rounded out. He> still has a flat> SPOT (the whole side used to be flat) and his ears are still> misaligned from> the top. When we used to look at him from the top before> his head looked> like a parallelogram (sp?). It's like we wanted to push his> forehead on the> right side back and the back of his head on the left side> forward. Anyways,> it no longer looks like a parallelogram but he still hasn't> rounded out> completely. I don't want this information to make anyone> think that> repositioning is the answer, because we are still pursuing> other opinions> and will be talking to a neurologist, but I think in the> meantime, while we> wait to see specialists, that repositioning is definately> worth a shot and> if you see improvement then that's great, but since our> babes are older I> would still keep talking to doctors to see what can be done> as far as the> headband and helmet.> > Hope this helps (I know it's long)> > > ----- Original Message -----> From: <ykciv88@...>> <Plagiocephalyegroups>> Sent: Thursday, April 27, 2000 6:41 AM> Subject: Will it round out???> > > > Hi everyone!> > My son will be 10 months and we are in the process> of waiting> > for a final diagnosis from the doctor. (Long story)> Anyway, I've been> > reading a lot of your posts and see that so many of you> were told by> > your peds or other doctors that those flat spots would> round out. I> > was told the same thing by the pediatrician and the> plastic surgeon> > we> > have been seeing. The plastic surgeon said it may not be> perfect but> > it will round out, and nobody has perfect heads anyway. I> am looking> > into the headband because the more I think about it, I> don't want to> > take that chance. Does anyone know if the heads really> will round out> > on their own? Has anyone not used a helmet or headband and> had their> > child's head round out nicely? How long does it take for> it to> > correct> > itself? Just wondering if what the doctors say is really> true.> > -Vicky> >> >> >> >> >> >> >> >> ------------------------------------------------------------------------> > If you love your Mother...> > Click Here> > <1/3653/3/_/689409/_/956842875/>> >> ------------------------------------------------------------------------> >> >

[Guest guest]

In a message dated 4/28/00 2:17:02 PM Central Daylight Time,

tammy_duffy@... writes:

<<

Hi everyone! I am a new member and am thankful to have found this group!

I have this same question...My husband and I took our son to Cranial

Technologies on Wednesday morning regarding his flat spot. They advised us

to consider the DOC Band. This, of course, is not the advice of the

pediatrician. The ped is telling us that it will correct itself and that we

should not worry. I am so stressed - what is the right decision?

We noticed the flat spot when our son was 2 months old. He is 4 months now

- it is not better. We have tried repositioning but I do not see an

improvement. I understand this is the perfect age to correct but I am torn

between the decision to get the band versus not. I have seen casts of

infant heads at 12 months and 21 months where treatment was not done and it

is not a place I want to be down the road.

I would appreciate knowing what percentage corrects itself versus the

percentage that is corrected by treatment - does anyone know this?

Also, I am so afraid that my happy little boy will be miserable in the band

- however, all the children I have seen seem to be fine.

Help..... I need some friendly advice and understanding.

Thanks,

Tammy Duffy >>

Tammy, Tammy, Tammy..............First of all, Welcome to the group. Don't

wait!!!!!!!!!!! If you wait to make your decision, chances are, it will take

a while by the time you get the ball rolling. I have a 7mos old that has been

in helmet/PT since Jan. We lost 3mos because our first ped felt he would out

grow it and it was no big deal, hair would cover flat spot. We finally

changed drs and are now seeing neuro at Univ of Chicago. We decided right

away after dr mentioned helmet. We figured our son had nothing to lose!!

Since joing this group and doing alot of research, I discovered there is alot

more to plagio than having a flat spot. Parents have noticed not only obvious

distortions of features such as ears are misaligned, one eye may be smaller,

one cheeck fuller, etc as well as misaligned jaws and frequent ear

infections. Sorry this is so long. Again, I stress, DON'T

wait. You may be loosing precious and valuable time. Belinda (Indiana)

[Guest guest]

Doug and Pam Just wondering how you describe Cameron's head as mild - ours I also consider mild and wonder if we will be able to get presciprion for band before we waste our time traveling all over the country - where did you get helmet/band etc. fill me in please. yeeman@...

-----Original Message-----From: Doug & Pam <hambug@...>Plagiocephalyegroups <Plagiocephalyegroups>Date: Friday, April 28, 2000 4:19 PMSubject: Re: Will it round out???

Hi Tammy!

I'm no expert, but it seems like most kids here are experiencing good success with bands/helmets. Our pediatrician also told us Cameron's head would correct itself, but our craniofacial doctor told us that his head would not likely do any more rounding out on its own after 6 months, even though his head would still be growing. I think the period between 2 and 4 months is the time where you would be most likely to see success from repositioning, but if you haven't seen improvement, you might want to consider the band. This was a hard decision for us too as Cameron's case is fairly mild, but the reasons not to do it (e.g., cost, inconvenience, dealing with staring) didn't seem very important compared to the benefit of fixing his head and avoiding potential future problems. -Pam

----- Original Message -----

From: Duffy, Tammy

'Plagiocephalyegroups'

Sent: Friday, April 28, 2000 1:41 PM

Subject: RE: Will it round out???

Hi everyone! I am a new member and am thankful to have found this group! :)I have this same question...My husband and I took our son to CranialTechnologies on Wednesday morning regarding his flat spot. They advised usto consider the DOC Band. This, of course, is not the advice of thepediatrician. The ped is telling us that it will correct itself and that weshould not worry. I am so stressed - what is the right decision?We noticed the flat spot when our son was 2 months old. He is 4 months now- it is not better. We have tried repositioning but I do not see animprovement. I understand this is the perfect age to correct but I am tornbetween the decision to get the band versus not. I have seen casts ofinfant heads at 12 months and 21 months where treatment was not done and itis not a place I want to be down the road.I would appreciate knowing what percentage corrects itself versus thepercentage that is corrected by treatment - does anyone know this?Also, I am so afraid that my happy little boy will be miserable in the band- however, all the children I have seen seem to be fine.Help..... I need some friendly advice and understanding.Thanks,Tammy Duffy> -----Original Message-----> From: Thornton [sMTP:bthornton@...]> Sent: Friday, April 28, 2000 1:32 PM> Plagiocephalyegroups> Subject: Re: Will it round out???> > Hi Pam,> > We just came back from an appointment with our family doctor. He too has> noticed a difference in 's head! We went over the letter he sent to> the neurosurgeon re: banding and having consultation with us. We're> hoping to have an answer from this doctor within the next week. The> reason our Dr. wrote a letter and sent pics of 's head is because we> live over 1000 miles away from the nearest children't hospital. Anyways> it's great to know that other families are in similar situations and are> seeing SOME results with repositioning.> > > > ----- Original Message ----- > From: Doug & Pam <mailto:hambug@...> > Plagiocephalyegroups <mailto:Plagiocephalyegroups> > Sent: Thursday, April 27, 2000 7:54 PM> Subject: Re: Will it round out???> > , your description of your son's head and your repositioning> success sounds EXACTLY like our situation, except Cameron is only 7> months. We debated and went back and forth for a month about whether or> not we should do the helmet (although we had the appointment scheduled> anyway), but in the end decided to go for it.... he still has a flat spot> and his ears are misaligned. He gets cast tomorrow! -Pam> > ----- Original Message ----- > From: Thornton <mailto:bthornton@...> > Plagiocephalyegroups> <mailto:Plagiocephalyegroups> > Sent: Thursday, April 27, 2000 12:57 PM> Subject: Re: Will it round out???> > Hi Vicky,> > I just read this new message you sent. My son is 9 months> now. He had> quite a bit of flattening on the right back side of his head> and on the side> of his head. We have been aggressively repositioning> (rolled towels and> wedges with velcro to prop him on his side) for about 2> months. We have> seen some improvement. His head on the right side has> rounded out near the> bottom and the right side of his head has rounded out. He> still has a flat> SPOT (the whole side used to be flat) and his ears are still> misaligned from> the top. When we used to look at him from the top before> his head looked> like a parallelogram (sp?). It's like we wanted to push his> forehead on the> right side back and the back of his head on the left side> forward. Anyways,> it no longer looks like a parallelogram but he still hasn't> rounded out> completely. I don't want this information to make anyone> think that> repositioning is the answer, because we are still pursuing> other opinions> and will be talking to a neurologist, but I think in the> meantime, while we> wait to see specialists, that repositioning is definately> worth a shot and> if you see improvement then that's great, but since our> babes are older I> would still keep talking to doctors to see what can be done> as far as the> headband and helmet.> > Hope this helps (I know it's long)> > > ----- Original Message -----> From: <ykciv88@...>> <Plagiocephalyegroups>> Sent: Thursday, April 27, 2000 6:41 AM> Subject: Will it round out???> > > > Hi everyone!> > My son will be 10 months and we are in the process> of waiting> > for a final diagnosis from the doctor. (Long story)> Anyway, I've been> > reading a lot of your posts and see that so many of you> were told by> > your peds or other doctors that those flat spots would> round out. I> > was told the same thing by the pediatrician and the> plastic surgeon> > we> > have been seeing. The plastic surgeon said it may not be> perfect but> > it will round out, and nobody has perfect heads anyway. I> am looking> > into the headband because the more I think about it, I> don't want to> > take that chance. Does anyone know if the heads really> will round out> > on their own? Has anyone not used a helmet or headband and> had their> > child's head round out nicely? How long does it take for> it to> > correct> > itself? Just wondering if what the doctors say is really> true.> > -Vicky> >> >> >> >> >> >> >> >> ------------------------------------------------------------------------> > If you love your Mother...> > Click Here> > <1/3653/3/_/689409/_/956842875/>> >> ------------------------------------------------------------------------> >> >

[Guest guest]

Belinda ur in indiana - where are u getting treatment? Also, waited too many

months becasue ped - Bummer!

-----Original Message-----

From: bgles2@... <bgles2@...>

Plagiocephalyegroups <Plagiocephalyegroups>

Date: Friday, April 28, 2000 9:32 PM

Subject: Re: Will it round out???

>In a message dated 4/28/00 2:17:02 PM Central Daylight Time,

>tammy_duffy@... writes:

>

><<

> Hi everyone! I am a new member and am thankful to have found this group!

>

> I have this same question...My husband and I took our son to Cranial

> Technologies on Wednesday morning regarding his flat spot. They advised

us

> to consider the DOC Band. This, of course, is not the advice of the

> pediatrician. The ped is telling us that it will correct itself and that

we

> should not worry. I am so stressed - what is the right decision?

>

> We noticed the flat spot when our son was 2 months old. He is 4 months

now

> - it is not better. We have tried repositioning but I do not see an

> improvement. I understand this is the perfect age to correct but I am

torn

> between the decision to get the band versus not. I have seen casts of

> infant heads at 12 months and 21 months where treatment was not done and

it

> is not a place I want to be down the road.

>

> I would appreciate knowing what percentage corrects itself versus the

> percentage that is corrected by treatment - does anyone know this?

>

> Also, I am so afraid that my happy little boy will be miserable in the

band

> - however, all the children I have seen seem to be fine.

>

> Help..... I need some friendly advice and understanding.

>

> Thanks,

> Tammy Duffy >>

>Tammy, Tammy, Tammy..............First of all, Welcome to the group. Don't

>wait!!!!!!!!!!! If you wait to make your decision, chances are, it will

take

>a while by the time you get the ball rolling. I have a 7mos old that has

been

>in helmet/PT since Jan. We lost 3mos because our first ped felt he would

out

>grow it and it was no big deal, hair would cover flat spot. We finally

>changed drs and are now seeing neuro at Univ of Chicago. We decided right

>away after dr mentioned helmet. We figured our son had nothing to lose!!

>Since joing this group and doing alot of research, I discovered there is

alot

>more to plagio than having a flat spot. Parents have noticed not only

obvious

>distortions of features such as ears are misaligned, one eye may be

smaller,

>one cheeck fuller, etc as well as misaligned jaws and frequent ear

>infections. Sorry this is so long. Again, I stress,

DON'T

>wait. You may be loosing precious and valuable time. Belinda (Indiana)

>

>

>------------------------------------------------------------------------

>Accurate impartial advice on everything from laptops to table saws.

>1/3020/3/_/689409/_/956982963/

>------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 4/29/00 11:32:44 AM Central Daylight Time,

yeeman@... writes:

<< Belinda ur in indiana - where are u getting treatment? Also, waited too

many

months becasue ped - Bummer!

>>

Hi....We go to the Univ of Chicago for PT and Ballert Ortho for helmet. Ortho

is down the street from univ. We live in NW corner on state line. It's about

a 45minute drive. Once I drop my daughter off at school, it takes about

20minutes from there. I can't beat it. That is why I give alot of credit to

those in group who need to travel many miles. Belinda

[Guest guest]

Thanks Doug.

My husband and I have decided to go forward. This has been our gut feeling

from the beginning. We are in the process of getting a letter of

recommendation from our ped (reluctantly) and getting approval through

insurance.

I do have another question... I have been reading several of the other

messages and most everyone is mentioning a CAT Scan. Should I take my son

to a pediatric neurosurgeon for a 2nd opinion? Several messages are

mentioning closed sutures - how do I know that is not our problem - My

husband and I went directly to Cranial Tech here in Atlanta and began

discussing the band based on their recommendation.

Please respond - I have so much to learn about this.

Tammy Duffy

> -----Original Message-----

> From: Doug & Pam [sMTP:hambug@...]

> Sent: Friday, April 28, 2000 5:20 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Hi Tammy!

> I'm no expert, but it seems like most kids here are experiencing good

> success with bands/helmets. Our pediatrician also told us Cameron's head

> would correct itself, but our craniofacial doctor told us that his head

> would not likely do any more rounding out on its own after 6 months, even

> though his head would still be growing. I think the period between 2 and

> 4 months is the time where you would be most likely to see success from

> repositioning, but if you haven't seen improvement, you might want to

> consider the band. This was a hard decision for us too as Cameron's case

> is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

> dealing with staring) didn't seem very important compared to the benefit

> of fixing his head and avoiding potential future problems. -Pam

>

> ----- Original Message -----

> From: Duffy, Tammy <mailto:tammy_duffy@...>

> 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

>

> Sent: Friday, April 28, 2000 1:41 PM

> Subject: RE: Will it round out???

>

> Hi everyone! I am a new member and am thankful to have found this

> group!

>

> I have this same question...My husband and I took our son to Cranial

> Technologies on Wednesday morning regarding his flat spot. They

> advised us

> to consider the DOC Band. This, of course, is not the advice of the

> pediatrician. The ped is telling us that it will correct itself and

> that we

> should not worry. I am so stressed - what is the right decision?

>

> We noticed the flat spot when our son was 2 months old. He is 4

> months now

> - it is not better. We have tried repositioning but I do not see an

> improvement. I understand this is the perfect age to correct but I

> am torn

> between the decision to get the band versus not. I have seen casts

> of

> infant heads at 12 months and 21 months where treatment was not done

> and it

> is not a place I want to be down the road.

>

> I would appreciate knowing what percentage corrects itself versus

> the

> percentage that is corrected by treatment - does anyone know this?

>

> Also, I am so afraid that my happy little boy will be miserable in

> the band

> - however, all the children I have seen seem to be fine.

>

> Help..... I need some friendly advice and understanding.

>

> Thanks,

> Tammy Duffy

>

> > -----Original Message-----

> > From: Thornton [sMTP:bthornton@...]

> > Sent: Friday, April 28, 2000 1:32 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Pam,

> >

> > We just came back from an appointment with our family doctor. He

> too has

> > noticed a difference in 's head! We went over the letter he

> sent to

> > the neurosurgeon re: banding and having consultation with us.

> We're

> > hoping to have an answer from this doctor within the next week.

> The

> > reason our Dr. wrote a letter and sent pics of 's head is

> because we

> > live over 1000 miles away from the nearest children't hospital.

> Anyways

> > it's great to know that other families are in similar situations

> and are

> > seeing SOME results with repositioning.

> >

> >

> >

> > ----- Original Message -----

> > From: Doug & Pam <mailto:hambug@...>

> > Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> > Sent: Thursday, April 27, 2000 7:54 PM

> > Subject: Re: Will it round out???

> >

> > , your description of your son's head and your

> repositioning

> > success sounds EXACTLY like our situation, except Cameron is only

> 7

> > months. We debated and went back and forth for a month about

> whether or

> > not we should do the helmet (although we had the appointment

> scheduled

> > anyway), but in the end decided to go for it.... he still has a

> flat spot

> > and his ears are misaligned. He gets cast tomorrow! -Pam

> >

> > ----- Original Message -----

> > From: Thornton <mailto:bthornton@...>

> > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > Sent: Thursday, April 27, 2000 12:57 PM

> > Subject: Re: Will it round out???

> >

> > Hi Vicky,

> >

> > I just read this new message you sent. My son is 9

> months

> > now. He had

> > quite a bit of flattening on the right back side of

> his head

> > and on the side

> > of his head. We have been aggressively repositioning

> > (rolled towels and

> > wedges with velcro to prop him on his side) for about

> 2

> > months. We have

> > seen some improvement. His head on the right side has

> > rounded out near the

> > bottom and the right side of his head has rounded out.

> He

> > still has a flat

> > SPOT (the whole side used to be flat) and his ears are

> still

> > misaligned from

> > the top. When we used to look at him from the top

> before

> > his head looked

> > like a parallelogram (sp?). It's like we wanted to

> push his

> > forehead on the

> > right side back and the back of his head on the left

> side

> > forward. Anyways,

> > it no longer looks like a parallelogram but he still

> hasn't

> > rounded out

> > completely. I don't want this information to make

> anyone

> > think that

> > repositioning is the answer, because we are still

> pursuing

> > other opinions

> > and will be talking to a neurologist, but I think in

> the

> > meantime, while we

> > wait to see specialists, that repositioning is

> definately

> > worth a shot and

> > if you see improvement then that's great, but since

> our

> > babes are older I

> > would still keep talking to doctors to see what can be

> done

> > as far as the

> > headband and helmet.

> >

> > Hope this helps (I know it's long)

> >

> >

> > ----- Original Message -----

> > From: <ykciv88@...>

> > <Plagiocephalyegroups>

> > Sent: Thursday, April 27, 2000 6:41 AM

> > Subject: Will it round out???

> >

> >

> > > Hi everyone!

> > > My son will be 10 months and we are in the

> process

> > of waiting

> > > for a final diagnosis from the doctor. (Long story)

> > Anyway, I've been

> > > reading a lot of your posts and see that so many of

> you

> > were told by

> > > your peds or other doctors that those flat spots

> would

> > round out. I

> > > was told the same thing by the pediatrician and the

> > plastic surgeon

> > > we

> > > have been seeing. The plastic surgeon said it may

> not be

> > perfect but

> > > it will round out, and nobody has perfect heads

> anyway. I

> > am looking

> > > into the headband because the more I think about it,

> I

> > don't want to

> > > take that chance. Does anyone know if the heads

> really

> > will round out

> > > on their own? Has anyone not used a helmet or

> headband and

> > had their

> > > child's head round out nicely? How long does it take

> for

> > it to

> > > correct

> > > itself? Just wondering if what the doctors say is

> really

> > true.

> > > -Vicky

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> ------------------------------------------------------------------------

> > > If you love your Mother...

> > > Click Here

> > > <

> <1/3653/3/_/689409/_/956842875/>>

> > >

> >

> ------------------------------------------------------------------------

> > >

> > >

[Guest guest]

Tammy,

Check with CT and see what they recommend. The CT location that I am

seeing in WI wanted to make sure that the sutures in my son's head

had not closed prematurely so we went ahead and had a cat scan done.

From my understanding either a cat scan or MRI are the best ways to

get an accurate view. It is very rare for the sutures to close

prematurely. Also, the favorable results gave me some peace of mind.

Good luck,

--- In Plagiocephalyegroups, " Duffy, Tammy " <tammy_duffy@i...>

wrote:

> Thanks Doug.

>

> My husband and I have decided to go forward. This has been our gut

feeling

> from the beginning. We are in the process of getting a letter of

> recommendation from our ped (reluctantly) and getting approval

through

> insurance.

>

> I do have another question... I have been reading several of the

other

> messages and most everyone is mentioning a CAT Scan. Should I take

my son

> to a pediatric neurosurgeon for a 2nd opinion? Several messages are

> mentioning closed sutures - how do I know that is not our problem -

My

> husband and I went directly to Cranial Tech here in Atlanta and

began

> discussing the band based on their recommendation.

>

> Please respond - I have so much to learn about this.

> Tammy Duffy

>

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@h...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing

good

> > success with bands/helmets. Our pediatrician also told us

Cameron's head

> > would correct itself, but our craniofacial doctor told us that

his

head

> > would not likely do any more rounding out on its own after 6

months, even

> > though his head would still be growing. I think the period

between 2 and

> > 4 months is the time where you would be most likely to see

success

from

> > repositioning, but if you haven't seen improvement, you might

want

to

> > consider the band. This was a hard decision for us too as

Cameron's case

> > is fairly mild, but the reasons not to do it (e.g., cost,

inconvenience,

> > dealing with staring) didn't seem very important compared to the

benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@i...>

> > 'Plagiocephalyegroups'

<mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have found

this

> > group!

> >

> > I have this same question...My husband and I took our son to

Cranial

> > Technologies on Wednesday morning regarding his flat spot.

They

> > advised us

> > to consider the DOC Band. This, of course, is not the advice

of the

> > pediatrician. The ped is telling us that it will correct

itself and

> > that we

> > should not worry. I am so stressed - what is the right

decision?

> >

> > We noticed the flat spot when our son was 2 months old. He is

4

> > months now

> > - it is not better. We have tried repositioning but I do not

see an

> > improvement. I understand this is the perfect age to correct

but I

> > am torn

> > between the decision to get the band versus not. I have seen

casts

> > of

> > infant heads at 12 months and 21 months where treatment was

not done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself

versus

> > the

> > percentage that is corrected by treatment - does anyone know

this?

> >

> > Also, I am so afraid that my happy little boy will be

miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@u...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family

doctor. He

> > too has

> > > noticed a difference in 's head! We went over the

letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with

us.

> > We're

> > > hoping to have an answer from this doctor within the next

week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's head

is

> > because we

> > > live over 1000 miles away from the nearest children't

hospital.

> > Anyways

> > > it's great to know that other families are in similar

situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@h...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron is

only

> > 7

> > > months. We debated and went back and forth for a month

about

> > whether or

> > > not we should do the helmet (although we had the appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still

has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton <mailto:bthornton@u...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son

is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back side

of

> > his head

> > > and on the side

> > > of his head. We have been aggressively

repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side) for

about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right

side has

> > > rounded out near the

> > > bottom and the right side of his head has

rounded out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his

ears are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the

top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we wanted

to

> > push his

> > > forehead on the

> > > right side back and the back of his head on the

left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he

still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to

make

> > anyone

> > > think that

> > > repositioning is the answer, because we are

still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I

think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but

since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see what

can be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@e...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are in

the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long

story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so

many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat

spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician

and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said it

may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect

heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think

about it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the

heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does

it take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors say

is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

----------------------------------------------------------------------

--

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > <1/3653/3/_/689409/_/956842875/>>

> > > >

> > >

> >

----------------------------------------------------------------------

--

> > > >

> > > >

[Guest guest]

Who does the CAT Scan? Will CT do it or will I need to see a neurosurgeon?

Tammy Duffy

Client Relationship Manager

Direct: (404) 898-1942

Fax: (404) 870-7987

> -----Original Message-----

> From: fozzie@... [sMTP:fozzie@...]

> Sent: Monday, May 01, 2000 10:47 AM

> Plagiocephalyegroups

> Subject: Re: RE: Will it round out???

>

> Tammy,

>

> Check with CT and see what they recommend. The CT location that I am

> seeing in WI wanted to make sure that the sutures in my son's head

> had not closed prematurely so we went ahead and had a cat scan done.

>

> From my understanding either a cat scan or MRI are the best ways to

> get an accurate view. It is very rare for the sutures to close

> prematurely. Also, the favorable results gave me some peace of mind.

>

> Good luck,

>

>

>

>

>

>

> > Thanks Doug.

> >

> > My husband and I have decided to go forward. This has been our gut

> feeling

> > from the beginning. We are in the process of getting a letter of

> > recommendation from our ped (reluctantly) and getting approval

> through

> > insurance.

> >

> > I do have another question... I have been reading several of the

> other

> > messages and most everyone is mentioning a CAT Scan. Should I take

> my son

> > to a pediatric neurosurgeon for a 2nd opinion? Several messages are

> > mentioning closed sutures - how do I know that is not our problem -

> My

> > husband and I went directly to Cranial Tech here in Atlanta and

> began

> > discussing the band based on their recommendation.

> >

> > Please respond - I have so much to learn about this.

> > Tammy Duffy

> >

> >

> > > -----Original Message-----

> > > From: Doug & Pam [sMTP:hambug@h...]

> > > Sent: Friday, April 28, 2000 5:20 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Tammy!

> > > I'm no expert, but it seems like most kids here are experiencing

> good

> > > success with bands/helmets. Our pediatrician also told us

> Cameron's head

> > > would correct itself, but our craniofacial doctor told us that

> his

> head

> > > would not likely do any more rounding out on its own after 6

> months, even

> > > though his head would still be growing. I think the period

> between 2 and

> > > 4 months is the time where you would be most likely to see

> success

> from

> > > repositioning, but if you haven't seen improvement, you might

> want

> to

> > > consider the band. This was a hard decision for us too as

> Cameron's case

> > > is fairly mild, but the reasons not to do it (e.g., cost,

> inconvenience,

> > > dealing with staring) didn't seem very important compared to the

> benefit

> > > of fixing his head and avoiding potential future problems. -Pam

> > >

> > > ----- Original Message -----

> > > From: Duffy, Tammy <mailto:tammy_duffy@i...>

> > > 'Plagiocephalyegroups'

> <mailto:'Plagiocephalyegroups'>

> > >

> > > Sent: Friday, April 28, 2000 1:41 PM

> > > Subject: RE: Will it round out???

> > >

> > > Hi everyone! I am a new member and am thankful to have found

> this

> > > group!

> > >

> > > I have this same question...My husband and I took our son to

> Cranial

> > > Technologies on Wednesday morning regarding his flat spot.

> They

> > > advised us

> > > to consider the DOC Band. This, of course, is not the advice

> of the

> > > pediatrician. The ped is telling us that it will correct

> itself and

> > > that we

> > > should not worry. I am so stressed - what is the right

> decision?

> > >

> > > We noticed the flat spot when our son was 2 months old. He is

> 4

> > > months now

> > > - it is not better. We have tried repositioning but I do not

> see an

> > > improvement. I understand this is the perfect age to correct

> but I

> > > am torn

> > > between the decision to get the band versus not. I have seen

> casts

> > > of

> > > infant heads at 12 months and 21 months where treatment was

> not done

> > > and it

> > > is not a place I want to be down the road.

> > >

> > > I would appreciate knowing what percentage corrects itself

> versus

> > > the

> > > percentage that is corrected by treatment - does anyone know

> this?

> > >

> > > Also, I am so afraid that my happy little boy will be

> miserable in

> > > the band

> > > - however, all the children I have seen seem to be fine.

> > >

> > > Help..... I need some friendly advice and understanding.

> > >

> > > Thanks,

> > > Tammy Duffy

> > >

> > > > -----Original Message-----

> > > > From: Thornton [sMTP:bthornton@u...]

> > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Pam,

> > > >

> > > > We just came back from an appointment with our family

> doctor. He

> > > too has

> > > > noticed a difference in 's head! We went over the

> letter he

> > > sent to

> > > > the neurosurgeon re: banding and having consultation with

> us.

> > > We're

> > > > hoping to have an answer from this doctor within the next

> week.

> > > The

> > > > reason our Dr. wrote a letter and sent pics of 's head

> is

> > > because we

> > > > live over 1000 miles away from the nearest children't

> hospital.

> > > Anyways

> > > > it's great to know that other families are in similar

> situations

> > > and are

> > > > seeing SOME results with repositioning.

> > > >

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: Doug & Pam <mailto:hambug@h...>

> > > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > , your description of your son's head and your

> > > repositioning

> > > > success sounds EXACTLY like our situation, except Cameron is

> only

> > > 7

> > > > months. We debated and went back and forth for a month

> about

> > > whether or

> > > > not we should do the helmet (although we had the appointment

> > > scheduled

> > > > anyway), but in the end decided to go for it.... he still

> has a

> > > flat spot

> > > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Thornton <mailto:bthornton@u...>

> > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Vicky,

> > > >

> > > > I just read this new message you sent. My son

> is 9

> > > months

> > > > now. He had

> > > > quite a bit of flattening on the right back side

> of

> > > his head

> > > > and on the side

> > > > of his head. We have been aggressively

> repositioning

> > > > (rolled towels and

> > > > wedges with velcro to prop him on his side) for

> about

> > > 2

> > > > months. We have

> > > > seen some improvement. His head on the right

> side has

> > > > rounded out near the

> > > > bottom and the right side of his head has

> rounded out.

> > > He

> > > > still has a flat

> > > > SPOT (the whole side used to be flat) and his

> ears are

> > > still

> > > > misaligned from

> > > > the top. When we used to look at him from the

> top

> > > before

> > > > his head looked

> > > > like a parallelogram (sp?). It's like we wanted

> to

> > > push his

> > > > forehead on the

> > > > right side back and the back of his head on the

> left

> > > side

> > > > forward. Anyways,

> > > > it no longer looks like a parallelogram but he

> still

> > > hasn't

> > > > rounded out

> > > > completely. I don't want this information to

> make

> > > anyone

> > > > think that

> > > > repositioning is the answer, because we are

> still

> > > pursuing

> > > > other opinions

> > > > and will be talking to a neurologist, but I

> think in

> > > the

> > > > meantime, while we

> > > > wait to see specialists, that repositioning is

> > > definately

> > > > worth a shot and

> > > > if you see improvement then that's great, but

> since

> > > our

> > > > babes are older I

> > > > would still keep talking to doctors to see what

> can be

> > > done

> > > > as far as the

> > > > headband and helmet.

> > > >

> > > > Hope this helps (I know it's long)

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: <ykciv88@e...>

> > > > <Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > Subject: Will it round out???

> > > >

> > > >

> > > > > Hi everyone!

> > > > > My son will be 10 months and we are in

> the

> > > process

> > > > of waiting

> > > > > for a final diagnosis from the doctor. (Long

> story)

> > > > Anyway, I've been

> > > > > reading a lot of your posts and see that so

> many of

> > > you

> > > > were told by

> > > > > your peds or other doctors that those flat

> spots

> > > would

> > > > round out. I

> > > > > was told the same thing by the pediatrician

> and the

> > > > plastic surgeon

> > > > > we

> > > > > have been seeing. The plastic surgeon said it

> may

> > > not be

> > > > perfect but

> > > > > it will round out, and nobody has perfect

> heads

> > > anyway. I

> > > > am looking

> > > > > into the headband because the more I think

> about it,

> > > I

> > > > don't want to

> > > > > take that chance. Does anyone know if the

> heads

> > > really

> > > > will round out

> > > > > on their own? Has anyone not used a helmet or

> > > headband and

> > > > had their

> > > > > child's head round out nicely? How long does

> it take

> > > for

> > > > it to

> > > > > correct

> > > > > itself? Just wondering if what the doctors say

> is

> > > really

> > > > true.

> > > > > -Vicky

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> ----------------------------------------------------------------------

> --

> > > > > If you love your Mother...

> > > > > Click Here

> > > > > <

> > > <1/3653/3/_/689409/_/956842875/>>

> > > > >

> > > >

> > >

> ----------------------------------------------------------------------

> --

> > > > >

> > > > >

[Guest guest]

Since I am traveling a distance to CT (2 1/2 hours each way) I had a

neurosurgen locally do a cat scan who is familiar with plagio.

The CT location that I am seeing also does scans but I am not sure if

they all provide that service.

> > > Thanks Doug.

> > >

> > > My husband and I have decided to go forward. This has been our

gut

> > feeling

> > > from the beginning. We are in the process of getting a letter

of

> > > recommendation from our ped (reluctantly) and getting approval

> > through

> > > insurance.

> > >

> > > I do have another question... I have been reading several of

the

> > other

> > > messages and most everyone is mentioning a CAT Scan. Should I

take

> > my son

> > > to a pediatric neurosurgeon for a 2nd opinion? Several

messages

are

> > > mentioning closed sutures - how do I know that is not our

problem -

> > My

> > > husband and I went directly to Cranial Tech here in Atlanta and

> > began

> > > discussing the band based on their recommendation.

> > >

> > > Please respond - I have so much to learn about this.

> > > Tammy Duffy

> > >

> > >

> > > > -----Original Message-----

> > > > From: Doug & Pam [sMTP:hambug@h...]

> > > > Sent: Friday, April 28, 2000 5:20 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Tammy!

> > > > I'm no expert, but it seems like most kids here are

experiencing

> > good

> > > > success with bands/helmets. Our pediatrician also told us

> > Cameron's head

> > > > would correct itself, but our craniofacial doctor told us that

> > his

> > head

> > > > would not likely do any more rounding out on its own after 6

> > months, even

> > > > though his head would still be growing. I think the period

> > between 2 and

> > > > 4 months is the time where you would be most likely to see

> > success

> > from

> > > > repositioning, but if you haven't seen improvement, you might

> > want

> > to

> > > > consider the band. This was a hard decision for us too as

> > Cameron's case

> > > > is fairly mild, but the reasons not to do it (e.g., cost,

> > inconvenience,

> > > > dealing with staring) didn't seem very important compared to

the

> > benefit

> > > > of fixing his head and avoiding potential future problems.

-Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Duffy, Tammy <mailto:tammy_duffy@i...>

> > > > 'Plagiocephalyegroups'

> > <mailto:'Plagiocephalyegroups'>

> > > >

> > > > Sent: Friday, April 28, 2000 1:41 PM

> > > > Subject: RE: Will it round out???

> > > >

> > > > Hi everyone! I am a new member and am thankful to

have found

> > this

> > > > group!

> > > >

> > > > I have this same question...My husband and I took our

son to

> > Cranial

> > > > Technologies on Wednesday morning regarding his flat

spot.

> > They

> > > > advised us

> > > > to consider the DOC Band. This, of course, is not the

advice

> > of the

> > > > pediatrician. The ped is telling us that it will

correct

> > itself and

> > > > that we

> > > > should not worry. I am so stressed - what is the

right

> > decision?

> > > >

> > > > We noticed the flat spot when our son was 2 months

old. He is

> > 4

> > > > months now

> > > > - it is not better. We have tried repositioning but I

do not

> > see an

> > > > improvement. I understand this is the perfect age to

correct

> > but I

> > > > am torn

> > > > between the decision to get the band versus not. I

have seen

> > casts

> > > > of

> > > > infant heads at 12 months and 21 months where

treatment was

> > not done

> > > > and it

> > > > is not a place I want to be down the road.

> > > >

> > > > I would appreciate knowing what percentage corrects

itself

> > versus

> > > > the

> > > > percentage that is corrected by treatment - does

anyone know

> > this?

> > > >

> > > > Also, I am so afraid that my happy little boy will be

> > miserable in

> > > > the band

> > > > - however, all the children I have seen seem to be

fine.

> > > >

> > > > Help..... I need some friendly advice and

understanding.

> > > >

> > > > Thanks,

> > > > Tammy Duffy

> > > >

> > > > > -----Original Message-----

> > > > > From: Thornton [sMTP:bthornton@u...]

> > > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > > Plagiocephalyegroups

> > > > > Subject: Re: Will it round out???

> > > > >

> > > > > Hi Pam,

> > > > >

> > > > > We just came back from an appointment with our

family

> > doctor. He

> > > > too has

> > > > > noticed a difference in 's head! We went over

the

> > letter he

> > > > sent to

> > > > > the neurosurgeon re: banding and having

consultation with

> > us.

> > > > We're

> > > > > hoping to have an answer from this doctor within the

next

> > week.

> > > > The

> > > > > reason our Dr. wrote a letter and sent pics of

's head

> > is

> > > > because we

> > > > > live over 1000 miles away from the nearest

children't

> > hospital.

> > > > Anyways

> > > > > it's great to know that other families are in

similar

> > situations

> > > > and are

> > > > > seeing SOME results with repositioning.

> > > > >

> > > > >

> > > > >

> > > > > ----- Original Message -----

> > > > > From: Doug & Pam <mailto:hambug@h...>

> > > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > > Subject: Re: Will it round out???

> > > > >

> > > > > , your description of your son's head

and your

> > > > repositioning

> > > > > success sounds EXACTLY like our situation, except

Cameron is

> > only

> > > > 7

> > > > > months. We debated and went back and forth for a

month

> > about

> > > > whether or

> > > > > not we should do the helmet (although we had the

appointment

> > > > scheduled

> > > > > anyway), but in the end decided to go for it.... he

still

> > has a

> > > > flat spot

> > > > > and his ears are misaligned. He gets cast tomorrow!

-Pam

> > > > >

> > > > > ----- Original Message -----

> > > > > From: Thornton

<mailto:bthornton@u...>

> > > > > Plagiocephalyegroups

> > > > > <mailto:Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > > Subject: Re: Will it round

out???

> > > > >

> > > > > Hi Vicky,

> > > > >

> > > > > I just read this new message you sent.

My son

> > is 9

> > > > months

> > > > > now. He had

> > > > > quite a bit of flattening on the right

back side

> > of

> > > > his head

> > > > > and on the side

> > > > > of his head. We have been aggressively

> > repositioning

> > > > > (rolled towels and

> > > > > wedges with velcro to prop him on his

side) for

> > about

> > > > 2

> > > > > months. We have

> > > > > seen some improvement. His head on the

right

> > side has

> > > > > rounded out near the

> > > > > bottom and the right side of his head

has

> > rounded out.

> > > > He

> > > > > still has a flat

> > > > > SPOT (the whole side used to be flat)

and his

> > ears are

> > > > still

> > > > > misaligned from

> > > > > the top. When we used to look at him

from the

> > top

> > > > before

> > > > > his head looked

> > > > > like a parallelogram (sp?). It's like

we wanted

> > to

> > > > push his

> > > > > forehead on the

> > > > > right side back and the back of his head

on the

> > left

> > > > side

> > > > > forward. Anyways,

> > > > > it no longer looks like a parallelogram

but he

> > still

> > > > hasn't

> > > > > rounded out

> > > > > completely. I don't want this

information to

> > make

> > > > anyone

> > > > > think that

> > > > > repositioning is the answer, because we

are

> > still

> > > > pursuing

> > > > > other opinions

> > > > > and will be talking to a neurologist,

but I

> > think in

> > > > the

> > > > > meantime, while we

> > > > > wait to see specialists, that

repositioning is

> > > > definately

> > > > > worth a shot and

> > > > > if you see improvement then that's

great, but

> > since

> > > > our

> > > > > babes are older I

> > > > > would still keep talking to doctors to

see what

> > can be

> > > > done

> > > > > as far as the

> > > > > headband and helmet.

> > > > >

> > > > > Hope this helps (I know it's long)

> > > > >

> > > > >

> > > > > ----- Original Message -----

> > > > > From: <ykciv88@e...>

> > > > > <Plagiocephalyegroups>

> > > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > > Subject: Will it round out???

> > > > >

> > > > >

> > > > > > Hi everyone!

> > > > > > My son will be 10 months and we

are in

> > the

> > > > process

> > > > > of waiting

> > > > > > for a final diagnosis from the doctor.

(Long

> > story)

> > > > > Anyway, I've been

> > > > > > reading a lot of your posts and see

that so

> > many of

> > > > you

> > > > > were told by

> > > > > > your peds or other doctors that those

flat

> > spots

> > > > would

> > > > > round out. I

> > > > > > was told the same thing by the

pediatrician

> > and the

> > > > > plastic surgeon

> > > > > > we

> > > > > > have been seeing. The plastic surgeon

said it

> > may

> > > > not be

> > > > > perfect but

> > > > > > it will round out, and nobody has

perfect

> > heads

> > > > anyway. I

> > > > > am looking

> > > > > > into the headband because the more I

think

> > about it,

> > > > I

> > > > > don't want to

> > > > > > take that chance. Does anyone know if

the

> > heads

> > > > really

> > > > > will round out

> > > > > > on their own? Has anyone not used a

helmet or

> > > > headband and

> > > > > had their

> > > > > > child's head round out nicely? How

long does

> > it take

> > > > for

> > > > > it to

> > > > > > correct

> > > > > > itself? Just wondering if what the

doctors say

> > is

> > > > really

> > > > > true.

> > > > > > -Vicky

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> >

----------------------------------------------------------------------

> > --

> > > > > > If you love your Mother...

> > > > > > Click Here

> > > > > > <

> > > > <1/3653/3/_/689409/_/956842875/>>

> > > > > >

> > > > >

> > > >

> >

----------------------------------------------------------------------

> > --

> > > > > >

> > > > > >

[Guest guest]

Tammy,

If you went straight to cranial tech. they should have a pretty

good eye at distinguishing between CS and plagio. there are some

obvious visual differences (such as ear placement, etc.)

They also do check-ups every week (or 2, depending on age), so if they

do not see any changes in head shape in a short period of time, they will

probably recommend further testing.

We did not do any cat scans, x-rays or the like with our daughter.

We are pretty comfortable with the diagnosis. If you are still uncomfortable

tho, you may want to ask them to do these tests, although I hear they are

not too fun (not torturous, of course!)

Hope this helps.

kendra

"Duffy, Tammy" wrote:

Thanks Doug.

My husband and I have decided to go forward. This has been

our gut feeling

from the beginning. We are in the process of getting a letter

of

recommendation from our ped (reluctantly) and getting approval

through

insurance.

I do have another question... I have been reading several

of the other

messages and most everyone is mentioning a CAT Scan. Should

I take my son

to a pediatric neurosurgeon for a 2nd opinion? Several messages

are

mentioning closed sutures - how do I know that is not our problem

- My

husband and I went directly to Cranial Tech here in Atlanta and

began

discussing the band based on their recommendation.

Please respond - I have so much to learn about this.

Tammy Duffy

> -----Original Message-----

> From: Doug & Pam [sMTP:hambug@...]

> Sent: Friday, April 28, 2000 5:20

PM

> Plagiocephalyegroups

> Subject: Re: Will it round

out???

>

> Hi Tammy!

> I'm no expert, but it seems like most kids here are experiencing

good

> success with bands/helmets. Our pediatrician also told

us Cameron's head

> would correct itself, but our craniofacial doctor told us that

his head

> would not likely do any more rounding out on its own after 6

months, even

> though his head would still be growing. I think the period

between 2 and

> 4 months is the time where you would be most likely to see success

from

> repositioning, but if you haven't seen improvement, you might

want to

> consider the band. This was a hard decision for us too

as Cameron's case

> is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

> dealing with staring) didn't seem very important compared to

the benefit

> of fixing his head and avoiding potential future problems.

-Pam

>

> ----- Original Message -----

> From: Duffy, Tammy <mailto:tammy_duffy@...>

> 'Plagiocephalyegroups'

<mailto:'Plagiocephalyegroups'>

>

> Sent: Friday, April 28, 2000

1:41 PM

> Subject: RE: Will

it round out???

>

> Hi everyone! I am a

new member and am thankful to have found this

> group!

>

> I have this same question...My

husband and I took our son to Cranial

> Technologies on Wednesday

morning regarding his flat spot. They

> advised us

> to consider the DOC Band.

This, of course, is not the advice of the

> pediatrician. The ped

is telling us that it will correct itself and

> that we

> should not worry. I

am so stressed - what is the right decision?

>

> We noticed the flat spot

when our son was 2 months old. He is 4

> months now

> - it is not better.

We have tried repositioning but I do not see an

> improvement. I understand

this is the perfect age to correct but I

> am torn

> between the decision to get

the band versus not. I have seen casts

> of

> infant heads at 12 months

and 21 months where treatment was not done

> and it

> is not a place I want to

be down the road.

>

> I would appreciate knowing

what percentage corrects itself versus

> the

> percentage that is corrected

by treatment - does anyone know this?

>

> Also, I am so afraid that

my happy little boy will be miserable in

> the band

> - however, all the children

I have seen seem to be fine.

>

> Help..... I need some

friendly advice and understanding.

>

> Thanks,

> Tammy Duffy

>

> > -----Original Message-----

> > From:

Thornton [sMTP:bthornton@...]

> > Sent:

Friday, April 28, 2000 1:32 PM

> >

Plagiocephalyegroups

> > Subject:

Re: Will it round out???

> >

> > Hi Pam,

> >

> > We just came back from

an appointment with our family doctor. He

> too has

> > noticed a difference in

's head! We went over the letter he

> sent to

> > the neurosurgeon re: banding

and having consultation with us.

> We're

> > hoping to have an answer

from this doctor within the next week.

> The

> > reason our Dr. wrote a

letter and sent pics of 's head is

> because we

> > live over 1000 miles away

from the nearest children't hospital.

> Anyways

> > it's great to know that

other families are in similar situations

> and are

> > seeing SOME results with

repositioning.

> >

> >

> >

> >

----- Original Message -----

> >

From: Doug & Pam <mailto:hambug@...>

> >

Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> >

Sent: Thursday, April 27, 2000 7:54 PM

> >

Subject: Re: Will it round out???

> >

> >

, your description of your son's head and your

> repositioning

> > success sounds EXACTLY

like our situation, except Cameron is only

> 7

> > months. We debated

and went back and forth for a month about

> whether or

> > not we should do the helmet

(although we had the appointment

> scheduled

> > anyway), but in the end

decided to go for it.... he still has a

> flat spot

> > and his ears are misaligned.

He gets cast tomorrow! -Pam

> >

> >

----- Original Message -----

> >

From: Thornton <mailto:bthornton@...>

> >

Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> >

Sent: Thursday, April 27, 2000 12:57 PM

> >

Subject: Re: Will it round out???

> >

> >

Hi Vicky,

> >

> >

I just read this new message you sent. My son is 9

> months

> > now. He had

> >

quite a bit of flattening on the right back side of

> his head

> > and on the side

> >

of his head. We have been aggressively repositioning

> > (rolled towels and

> >

wedges with velcro to prop him on his side) for about

> 2

> > months. We have

> >

seen some improvement. His head on the right side has

> > rounded out near the

> >

bottom and the right side of his head has rounded out.

> He

> > still has a flat

> >

SPOT (the whole side used to be flat) and his ears are

> still

> > misaligned from

> >

the top. When we used to look at him from the top

> before

> > his head looked

> >

like a parallelogram (sp?). It's like we wanted to

> push his

> > forehead on the

> >

right side back and the back of his head on the left

> side

> > forward. Anyways,

> >

it no longer looks like a parallelogram but he still

> hasn't

> > rounded out

> >

completely. I don't want this information to make

> anyone

> > think that

> >

repositioning is the answer, because we are still

> pursuing

> > other opinions

> >

and will be talking to a neurologist, but I think in

> the

> > meantime, while we

> >

wait to see specialists, that repositioning is

> definately

> > worth a shot and

> >

if you see improvement then that's great, but since

> our

> > babes are older I

> >

would still keep talking to doctors to see what can be

> done

> > as far as the

> >

headband and helmet.

> >

> >

Hope this helps (I know it's long)

> >

> >

> >

----- Original Message -----

> >

From: <ykciv88@...>

> >

<Plagiocephalyegroups>

> >

Sent: Thursday, April 27, 2000 6:41 AM

> >

Subject: Will it round out???

> >

> >

> >

> Hi everyone!

> >

> My son will be 10 months and we are in the

> process

> > of waiting

> >

> for a final diagnosis from the doctor. (Long story)

> > Anyway, I've been

> >

> reading a lot of your posts and see that so many of

> you

> > were told by

> >

> your peds or other doctors that those flat spots

> would

> > round out. I

> >

> was told the same thing by the pediatrician and the

> > plastic surgeon

> >

> we

> >

> have been seeing. The plastic surgeon said it may

> not be

> > perfect but

> >

> it will round out, and nobody has perfect heads

> anyway. I

> > am looking

> >

> into the headband because the more I think about it,

> I

> > don't want to

> >

> take that chance. Does anyone know if the heads

> really

> > will round out

> >

> on their own? Has anyone not used a helmet or

> headband and

> > had their

> >

> child's head round out nicely? How long does it take

> for

> > it to

> >

> correct

> >

> itself? Just wondering if what the doctors say is

> really

> > true.

> >

> -Vicky

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

> ------------------------------------------------------------------------

> >

> If you love your Mother...

> >

> Click Here

> >

> <

> <1/3653/3/_/689409/_/956842875/>>

> >

>

> >

> ------------------------------------------------------------------------

> >

>

> >

>

[Guest guest]

Thanks Kendra.

I did call CT to ask if they did cat scans. They do not in this office in

Atlanta. I feel confident based on their diagnosis that all is ok. I am

just so new at all this that I am torn between the " hurry up and do it " mode

and the " I'm not so sure " mode. Just those parent jitters that I know

everyone has. It has been wonderful reading all the success stories and

hearing other concerns and struggles.

I want to make the right decision.

Tammy Duffy

> -----Original Message-----

> From: & Kendra [sMTP:kbgarv@...]

> Sent: Monday, May 01, 2000 11:39 AM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Tammy,

>

> If you went straight to cranial tech. they should have a pretty good

> eye at distinguishing between CS and plagio. there are some obvious

> visual differences (such as ear placement, etc.)

> They also do check-ups every week (or 2, depending on age), so if they

> do not see any changes in head shape in a short period of time, they

> will probably recommend further testing.

> We did not do any cat scans, x-rays or the like with our daughter. We

> are pretty comfortable with the diagnosis. If you are still

> uncomfortable tho, you may want to ask them to do these tests, although

> I hear they are not too fun (not torturous, of course!)

> Hope this helps.

> kendra

>

> " Duffy, Tammy " wrote:

>

> > Thanks Doug.

> >

> > My husband and I have decided to go forward. This has been our gut

> > feeling

> > from the beginning. We are in the process of getting a letter of

> > recommendation from our ped (reluctantly) and getting approval through

> >

> > insurance.

> >

> > I do have another question... I have been reading several of the

> > other

> > messages and most everyone is mentioning a CAT Scan. Should I take my

> > son

> > to a pediatric neurosurgeon for a 2nd opinion? Several messages are

> > mentioning closed sutures - how do I know that is not our problem - My

> >

> > husband and I went directly to Cranial Tech here in Atlanta and began

> > discussing the band based on their recommendation.

> >

> > Please respond - I have so much to learn about this.

> > Tammy Duffy

> >

> >

> > > -----Original Message-----

> > > From: Doug & Pam [sMTP:hambug@...]

> > > Sent: Friday, April 28, 2000 5:20 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Tammy!

> > > I'm no expert, but it seems like most kids here are experiencing

> > good

> > > success with bands/helmets. Our pediatrician also told us Cameron's

> > head

> > > would correct itself, but our craniofacial doctor told us that his

> > head

> > > would not likely do any more rounding out on its own after 6 months,

> > even

> > > though his head would still be growing. I think the period between

> > 2 and

> > > 4 months is the time where you would be most likely to see success

> > from

> > > repositioning, but if you haven't seen improvement, you might want

> > to

> > > consider the band. This was a hard decision for us too as Cameron's

> > case

> > > is fairly mild, but the reasons not to do it (e.g., cost,

> > inconvenience,

> > > dealing with staring) didn't seem very important compared to the

> > benefit

> > > of fixing his head and avoiding potential future problems. -Pam

> > >

> > > ----- Original Message -----

> > > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > > 'Plagiocephalyegroups'

> > <mailto:'Plagiocephalyegroups'>

> > >

> > > Sent: Friday, April 28, 2000 1:41 PM

> > > Subject: RE: Will it round out???

> > >

> > > Hi everyone! I am a new member and am thankful to have found

> > this

> > > group!

> > >

> > > I have this same question...My husband and I took our son to

> > Cranial

> > > Technologies on Wednesday morning regarding his flat spot.

> > They

> > > advised us

> > > to consider the DOC Band. This, of course, is not the advice

> > of the

> > > pediatrician. The ped is telling us that it will correct

> > itself and

> > > that we

> > > should not worry. I am so stressed - what is the right

> > decision?

> > >

> > > We noticed the flat spot when our son was 2 months old. He is

> > 4

> > > months now

> > > - it is not better. We have tried repositioning but I do not

> > see an

> > > improvement. I understand this is the perfect age to correct

> > but I

> > > am torn

> > > between the decision to get the band versus not. I have seen

> > casts

> > > of

> > > infant heads at 12 months and 21 months where treatment was

> > not done

> > > and it

> > > is not a place I want to be down the road.

> > >

> > > I would appreciate knowing what percentage corrects itself

> > versus

> > > the

> > > percentage that is corrected by treatment - does anyone know

> > this?

> > >

> > > Also, I am so afraid that my happy little boy will be

> > miserable in

> > > the band

> > > - however, all the children I have seen seem to be fine.

> > >

> > > Help..... I need some friendly advice and understanding.

> > >

> > > Thanks,

> > > Tammy Duffy

> > >

> > > > -----Original Message-----

> > > > From: Thornton [sMTP:bthornton@...]

> > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Pam,

> > > >

> > > > We just came back from an appointment with our family

> > doctor. He

> > > too has

> > > > noticed a difference in 's head! We went over the

> > letter he

> > > sent to

> > > > the neurosurgeon re: banding and having consultation with

> > us.

> > > We're

> > > > hoping to have an answer from this doctor within the next

> > week.

> > > The

> > > > reason our Dr. wrote a letter and sent pics of 's head

> > is

> > > because we

> > > > live over 1000 miles away from the nearest children't

> > hospital.

> > > Anyways

> > > > it's great to know that other families are in similar

> > situations

> > > and are

> > > > seeing SOME results with repositioning.

> > > >

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: Doug & Pam <mailto:hambug@...>

> > > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > , your description of your son's head and your

> > > repositioning

> > > > success sounds EXACTLY like our situation, except Cameron is

> > only

> > > 7

> > > > months. We debated and went back and forth for a month

> > about

> > > whether or

> > > > not we should do the helmet (although we had the appointment

> >

> > > scheduled

> > > > anyway), but in the end decided to go for it.... he still

> > has a

> > > flat spot

> > > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Thornton

> > <mailto:bthornton@...>

> > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Vicky,

> > > >

> > > > I just read this new message you sent. My son

> > is 9

> > > months

> > > > now. He had

> > > > quite a bit of flattening on the right back side

> > of

> > > his head

> > > > and on the side

> > > > of his head. We have been aggressively

> > repositioning

> > > > (rolled towels and

> > > > wedges with velcro to prop him on his side) for

> > about

> > > 2

> > > > months. We have

> > > > seen some improvement. His head on the right

> > side has

> > > > rounded out near the

> > > > bottom and the right side of his head has

> > rounded out.

> > > He

> > > > still has a flat

> > > > SPOT (the whole side used to be flat) and his

> > ears are

> > > still

> > > > misaligned from

> > > > the top. When we used to look at him from the

> > top

> > > before

> > > > his head looked

> > > > like a parallelogram (sp?). It's like we wanted

> > to

> > > push his

> > > > forehead on the

> > > > right side back and the back of his head on the

> > left

> > > side

> > > > forward. Anyways,

> > > > it no longer looks like a parallelogram but he

> > still

> > > hasn't

> > > > rounded out

> > > > completely. I don't want this information to

> > make

> > > anyone

> > > > think that

> > > > repositioning is the answer, because we are

> > still

> > > pursuing

> > > > other opinions

> > > > and will be talking to a neurologist, but I

> > think in

> > > the

> > > > meantime, while we

> > > > wait to see specialists, that repositioning is

> > > definately

> > > > worth a shot and

> > > > if you see improvement then that's great, but

> > since

> > > our

> > > > babes are older I

> > > > would still keep talking to doctors to see what

> > can be

> > > done

> > > > as far as the

> > > > headband and helmet.

> > > >

> > > > Hope this helps (I know it's long)

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: <ykciv88@...>

> > > > <Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > Subject: Will it round out???

> > > >

> > > >

> > > > > Hi everyone!

> > > > > My son will be 10 months and we are in

> > the

> > > process

> > > > of waiting

> > > > > for a final diagnosis from the doctor. (Long

> > story)

> > > > Anyway, I've been

> > > > > reading a lot of your posts and see that so

> > many of

> > > you

> > > > were told by

> > > > > your peds or other doctors that those flat

> > spots

> > > would

> > > > round out. I

> > > > > was told the same thing by the pediatrician

> > and the

> > > > plastic surgeon

> > > > > we

> > > > > have been seeing. The plastic surgeon said it

> > may

> > > not be

> > > > perfect but

> > > > > it will round out, and nobody has perfect

> > heads

> > > anyway. I

> > > > am looking

> > > > > into the headband because the more I think

> > about it,

> > > I

> > > > don't want to

> > > > > take that chance. Does anyone know if the

> > heads

> > > really

> > > > will round out

> > > > > on their own? Has anyone not used a helmet or

> > > headband and

> > > > had their

> > > > > child's head round out nicely? How long does

> > it take

> > > for

> > > > it to

> > > > > correct

> > > > > itself? Just wondering if what the doctors say

> > is

> > > really

> > > > true.

> > > > > -Vicky

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> >

> > > > > If you love your Mother...

> > > > > Click Here

> > > > > <

> > > <1/3653/3/_/689409/_/956842875/>>

> > > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> >

> > > > >

> > > > >

[Guest guest]

Tammy,

Grayson is absolutely precious!!! My son would be what is considered to be

mild to moderate. We have the same reaction from people. Everyone I've

pointed it out to has said they didn't notice it but once I showed them they

could see it. I believe them because I've told them to be honest and these

people are family and close friends and I know many of them have been honest

about other issues that I would have said LIE LIE LIE - hahaha - anyways I

do believe that if your child is moderate that most people probably don't

notice it and us moms do because we are always inspecting and now focussing

on their little noggins. I can't notice anything on the pic. All I see is

an adorable baby with a beautiful head of hair.

----- Original Message -----

From: Duffy, Tammy <tammy_duffy@...>

<Plagiocephalyegroups>

Sent: Monday, May 01, 2000 10:07 AM

Subject: RE: Will it round out???

> Doug:

>

> I looked at the picture of Cameron in the Files. What should I be looking

> for in regards to plagio or can you tell anything from that picture?

Can

> you tell me what you saw in Cameron's head that prompted your looking into

> the band/helmet? My son's head is what CT considers moderate and most

> people do not even notice the flatness unless we mention it (perhaps they

> are being polite).

>

> Attached is a picture of my son, Grayson, at 3 months from the front. I

> will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

> Congratulations on a successful casting. How long will Cameron wear the

> band? When we spoke to CT last week they estimated Grayson would need to

> wear the band for 3 months. Please let me know how Cameron does with the

> helmet once you pick it up on Thursday.

>

>

> Tammy

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing good

> > success with bands/helmets. Our pediatrician also told us Cameron's

head

> > would correct itself, but our craniofacial doctor told us that his head

> > would not likely do any more rounding out on its own after 6 months,

even

> > though his head would still be growing. I think the period between 2

and

> > 4 months is the time where you would be most likely to see success from

> > repositioning, but if you haven't seen improvement, you might want to

> > consider the band. This was a hard decision for us too as Cameron's

case

> > is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

> > dealing with staring) didn't seem very important compared to the benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have found this

> > group!

> >

> > I have this same question...My husband and I took our son to Cranial

> > Technologies on Wednesday morning regarding his flat spot. They

> > advised us

> > to consider the DOC Band. This, of course, is not the advice of the

> > pediatrician. The ped is telling us that it will correct itself and

> > that we

> > should not worry. I am so stressed - what is the right decision?

> >

> > We noticed the flat spot when our son was 2 months old. He is 4

> > months now

> > - it is not better. We have tried repositioning but I do not see an

> > improvement. I understand this is the perfect age to correct but I

> > am torn

> > between the decision to get the band versus not. I have seen casts

> > of

> > infant heads at 12 months and 21 months where treatment was not done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself versus

> > the

> > percentage that is corrected by treatment - does anyone know this?

> >

> > Also, I am so afraid that my happy little boy will be miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family doctor. He

> > too has

> > > noticed a difference in 's head! We went over the letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with us.

> > We're

> > > hoping to have an answer from this doctor within the next week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's head is

> > because we

> > > live over 1000 miles away from the nearest children't hospital.

> > Anyways

> > > it's great to know that other families are in similar situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron is only

> > 7

> > > months. We debated and went back and forth for a month about

> > whether or

> > > not we should do the helmet (although we had the appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton <mailto:bthornton@...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back side of

> > his head

> > > and on the side

> > > of his head. We have been aggressively repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side) for about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right side has

> > > rounded out near the

> > > bottom and the right side of his head has rounded out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his ears are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we wanted to

> > push his

> > > forehead on the

> > > right side back and the back of his head on the left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to make

> > anyone

> > > think that

> > > repositioning is the answer, because we are still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see what can be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are in the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said it may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think about it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does it take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors say is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > <1/3653/3/_/689409/_/956842875/>>

> > > >

> > >

> > ------------------------------------------------------------------------

> > > >

> > > >

[Guest guest]

Do you mind saying who your craniofacial doctor is. Please reply

directly to lpaquin@....

Thanks,

At 04:19 PM 4/28/00 -0500, you wrote:

Hi

Tammy!

I'm no expert, but it seems like most kids here are experiencing good

success with bands/helmets. Our pediatrician also told us Cameron's

head would correct itself, but our craniofacial doctor told us that his

head would not likely do any more rounding out on its own after 6 months,

even though his head would still be growing. I think the period

between 2 and 4 months is the time where you would be most likely to see

success from repositioning, but if you haven't seen improvement, you

might want to consider the band. This was a hard decision for us

too as Cameron's case is fairly mild, but the reasons not to do it (e.g.,

cost, inconvenience, dealing with staring) didn't seem very important

compared to the benefit of fixing his head and avoiding potential future

problems. -Pam

----- Original Message -----

From: Duffy, Tammy

'Plagiocephalyegroups'

Sent: Friday, April 28, 2000 1:41 PM

Subject: RE: Will it round out???

Hi everyone! I am a new member and am thankful to have found this group!

I have this same question...My husband and I took our son to Cranial

Technologies on Wednesday morning regarding his flat spot. They advised us

to consider the DOC Band. This, of course, is not the advice of the

pediatrician. The ped is telling us that it will correct itself and that we

should not worry. I am so stressed - what is the right decision?

We noticed the flat spot when our son was 2 months old. He is 4 months now

- it is not better. We have tried repositioning but I do not see an

improvement. I understand this is the perfect age to correct but I am torn

between the decision to get the band versus not. I have seen casts of

infant heads at 12 months and 21 months where treatment was not done and it

is not a place I want to be down the road.

I would appreciate knowing what percentage corrects itself versus the

percentage that is corrected by treatment - does anyone know this?

Also, I am so afraid that my happy little boy will be miserable in the band

- however, all the children I have seen seem to be fine.

Help..... I need some friendly advice and understanding.

Thanks,

Tammy Duffy

> -----Original Message-----

> From: Thornton [sMTP:bthornton@...]

> Sent: Friday, April 28, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Hi Pam,

>

> We just came back from an appointment with our family doctor. He too has

> noticed a difference in 's head! We went over the letter he sent to

> the neurosurgeon re: banding and having consultation with us. We're

> hoping to have an answer from this doctor within the next week. The

> reason our Dr. wrote a letter and sent pics of 's head is because we

> live over 1000 miles away from the nearest children't hospital. Anyways

> it's great to know that other families are in similar situations and are

> seeing SOME results with repositioning.

>

>

>

> ----- Original Message -----

> From: Doug & Pam <mailto:hambug@...>

> Plagiocephalyegroups <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 7:54 PM

> Subject: Re: Will it round out???

>

> , your description of your son's head and your repositioning

> success sounds EXACTLY like our situation, except Cameron is only 7

> months. We debated and went back and forth for a month about whether or

> not we should do the helmet (although we had the appointment scheduled

> anyway), but in the end decided to go for it.... he still has a flat spot

> and his ears are misaligned. He gets cast tomorrow! -Pam

>

> ----- Original Message -----

> From: Thornton <mailto:bthornton@...>

> Plagiocephalyegroups

> <mailto:Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 12:57 PM

> Subject: Re: Will it round out???

>

> Hi Vicky,

>

> I just read this new message you sent. My son is 9 months

> now. He had

> quite a bit of flattening on the right back side of his head

> and on the side

> of his head. We have been aggressively repositioning

> (rolled towels and

> wedges with velcro to prop him on his side) for about 2

> months. We have

> seen some improvement. His head on the right side has

> rounded out near the

> bottom and the right side of his head has rounded out. He

> still has a flat

> SPOT (the whole side used to be flat) and his ears are still

> misaligned from

> the top. When we used to look at him from the top before

> his head looked

> like a parallelogram (sp?). It's like we wanted to push his

> forehead on the

> right side back and the back of his head on the left side

> forward. Anyways,

> it no longer looks like a parallelogram but he still hasn't

> rounded out

> completely. I don't want this information to make anyone

> think that

> repositioning is the answer, because we are still pursuing

> other opinions

> and will be talking to a neurologist, but I think in the

> meantime, while we

> wait to see specialists, that repositioning is definately

> worth a shot and

> if you see improvement then that's great, but since our

> babes are older I

> would still keep talking to doctors to see what can be done

> as far as the

> headband and helmet.

>

> Hope this helps (I know it's long)

>

>

> ----- Original Message -----

> From: <ykciv88@...>

> <Plagiocephalyegroups>

> Sent: Thursday, April 27, 2000 6:41 AM

> Subject: Will it round out???

>

>

> > Hi everyone!

> > My son will be 10 months and we are in the process

> of waiting

> > for a final diagnosis from the doctor. (Long story)

> Anyway, I've been

> > reading a lot of your posts and see that so many of you

> were told by

> > your peds or other doctors that those flat spots would

> round out. I

> > was told the same thing by the pediatrician and the

> plastic surgeon

> > we

> > have been seeing. The plastic surgeon said it may not be

> perfect but

> > it will round out, and nobody has perfect heads anyway. I

> am looking

> > into the headband because the more I think about it, I

> don't want to

> > take that chance. Does anyone know if the heads really

> will round out

> > on their own? Has anyone not used a helmet or headband and

> had their

> > child's head round out nicely? How long does it take for

> it to

> > correct

> > itself? Just wondering if what the doctors say is really

> true.

> > -Vicky

> >

> >

> >

> >

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > If you love your Mother...

> > Click Here

> > <1/3653/3/_/689409/_/956842875/>

> >

> ------------------------------------------------------------------------

> >

> >

[Guest guest]

Thank you. Grayson has lost a lot of his hair. He had so much at birth. I

think it makes him look like a " little man " .

Grayson's flat spot is on the right side. From the side view and aerial

view he looks just like the parrallelogram (spelling?) drawing that I have

seen.

Tammy Duffy

Client Relationship Manager

Direct: (404) 898-1942

Fax: (404) 870-7987

> -----Original Message-----

> From: Crain [sMTP:acrain@...]

> Sent: Monday, May 01, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re:RE: Will it round out???

>

> Tammy-

>

> Grayson is sooo beautiful! All that hair! I bet everyone comments about

> it

>

>

> He doesn't seem to have any problems with an uneven face. On what side is

> his

> flat spot?

>

> C.

>

>

>

> ____________________Reply Separator____________________

> Subject: RE: Will it round out???

> Author: Plagiocephalyegroups

> Date: 5/1/00 12:07 PM

>

> Doug:

>

> I looked at the picture of Cameron in the Files. What should I be looking

> for in regards to plagio or can you tell anything from that picture?

> Can

> you tell me what you saw in Cameron's head that prompted your looking into

> the band/helmet? My son's head is what CT considers moderate and most

> people do not even notice the flatness unless we mention it (perhaps they

> are being polite).

>

> Attached is a picture of my son, Grayson, at 3 months from the front. I

> will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

> Congratulations on a successful casting. How long will Cameron wear the

> band? When we spoke to CT last week they estimated Grayson would need to

> wear the band for 3 months. Please let me know how Cameron does with the

> helmet once you pick it up on Thursday.

>

>

> Tammy

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing good

> > success with bands/helmets. Our pediatrician also told us Cameron's

> head

> > would correct itself, but our craniofacial doctor told us that his head

> > would not likely do any more rounding out on its own after 6 months,

> even

> > though his head would still be growing. I think the period between 2

> and

> > 4 months is the time where you would be most likely to see success from

> > repositioning, but if you haven't seen improvement, you might want to

> > consider the band. This was a hard decision for us too as Cameron's

> case

> > is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

> > dealing with staring) didn't seem very important compared to the benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > 'Plagiocephalyegroups'

> <mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have found this

> > group!

> >

> > I have this same question...My husband and I took our son to

> Cranial

> > Technologies on Wednesday morning regarding his flat spot. They

> > advised us

> > to consider the DOC Band. This, of course, is not the advice of

> the

> > pediatrician. The ped is telling us that it will correct itself

> and

> > that we

> > should not worry. I am so stressed - what is the right decision?

> >

> > We noticed the flat spot when our son was 2 months old. He is 4

> > months now

> > - it is not better. We have tried repositioning but I do not see

> an

> > improvement. I understand this is the perfect age to correct but I

> > am torn

> > between the decision to get the band versus not. I have seen casts

> > of

> > infant heads at 12 months and 21 months where treatment was not

> done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself versus

> > the

> > percentage that is corrected by treatment - does anyone know this?

> >

> > Also, I am so afraid that my happy little boy will be miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family doctor. He

> > too has

> > > noticed a difference in 's head! We went over the letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with us.

> > We're

> > > hoping to have an answer from this doctor within the next week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's head is

> > because we

> > > live over 1000 miles away from the nearest children't hospital.

> > Anyways

> > > it's great to know that other families are in similar situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron is only

> > 7

> > > months. We debated and went back and forth for a month about

> > whether or

> > > not we should do the helmet (although we had the appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton <mailto:bthornton@...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back side of

> > his head

> > > and on the side

> > > of his head. We have been aggressively repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side) for about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right side

> has

> > > rounded out near the

> > > bottom and the right side of his head has rounded

> out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his ears

> are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we wanted to

> > push his

> > > forehead on the

> > > right side back and the back of his head on the left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to make

> > anyone

> > > think that

> > > repositioning is the answer, because we are still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see what can

> be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are in the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said it may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think about

> it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does it

> take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors say is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > <1/3653/3/_/689409/_/956842875/>>

> > > >

> > >

> > ------------------------------------------------------------------------

> > > >

> > > >

[Guest guest]

Tammy Duffy

:

What made you decide to go forward with the band?

> -----Original Message-----

> From: Thornton [sMTP:bthornton@...]

> Sent: Monday, May 01, 2000 1:45 PM

> Plagiocephalyegroups

> Subject: Re: Will it round out???

>

> Tammy,

>

> Grayson is absolutely precious!!! My son would be what is considered to

> be

> mild to moderate. We have the same reaction from people. Everyone I've

> pointed it out to has said they didn't notice it but once I showed them

> they

> could see it. I believe them because I've told them to be honest and

> these

> people are family and close friends and I know many of them have been

> honest

> about other issues that I would have said LIE LIE LIE - hahaha - anyways I

> do believe that if your child is moderate that most people probably don't

> notice it and us moms do because we are always inspecting and now

> focussing

> on their little noggins. I can't notice anything on the pic. All I see

> is

> an adorable baby with a beautiful head of hair.

>

>

> ----- Original Message -----

> From: Duffy, Tammy <tammy_duffy@...>

> <Plagiocephalyegroups>

> Sent: Monday, May 01, 2000 10:07 AM

> Subject: RE: Will it round out???

>

>

> > Doug:

> >

> > I looked at the picture of Cameron in the Files. What should I be

> looking

> > for in regards to plagio or can you tell anything from that picture?

> Can

> > you tell me what you saw in Cameron's head that prompted your looking

> into

> > the band/helmet? My son's head is what CT considers moderate and most

> > people do not even notice the flatness unless we mention it (perhaps

> they

> > are being polite).

> >

> > Attached is a picture of my son, Grayson, at 3 months from the front. I

> > will need to take some pictures of the aerial, side and back views.

> >

> > <<TAMMY.BMP>>

> >

> > Congratulations on a successful casting. How long will Cameron wear the

> > band? When we spoke to CT last week they estimated Grayson would need

> to

> > wear the band for 3 months. Please let me know how Cameron does with

> the

> > helmet once you pick it up on Thursday.

> >

> >

> > Tammy

> >

> > > -----Original Message-----

> > > From: Doug & Pam [sMTP:hambug@...]

> > > Sent: Friday, April 28, 2000 5:20 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Tammy!

> > > I'm no expert, but it seems like most kids here are experiencing good

> > > success with bands/helmets. Our pediatrician also told us Cameron's

> head

> > > would correct itself, but our craniofacial doctor told us that his

> head

> > > would not likely do any more rounding out on its own after 6 months,

> even

> > > though his head would still be growing. I think the period between 2

> and

> > > 4 months is the time where you would be most likely to see success

> from

> > > repositioning, but if you haven't seen improvement, you might want to

> > > consider the band. This was a hard decision for us too as Cameron's

> case

> > > is fairly mild, but the reasons not to do it (e.g., cost,

> inconvenience,

> > > dealing with staring) didn't seem very important compared to the

> benefit

> > > of fixing his head and avoiding potential future problems. -Pam

> > >

> > > ----- Original Message -----

> > > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > > 'Plagiocephalyegroups' <mailto:'Plagiocephalyegroups'>

> > >

> > > Sent: Friday, April 28, 2000 1:41 PM

> > > Subject: RE: Will it round out???

> > >

> > > Hi everyone! I am a new member and am thankful to have found this

> > > group!

> > >

> > > I have this same question...My husband and I took our son to Cranial

> > > Technologies on Wednesday morning regarding his flat spot. They

> > > advised us

> > > to consider the DOC Band. This, of course, is not the advice of the

> > > pediatrician. The ped is telling us that it will correct itself and

> > > that we

> > > should not worry. I am so stressed - what is the right decision?

> > >

> > > We noticed the flat spot when our son was 2 months old. He is 4

> > > months now

> > > - it is not better. We have tried repositioning but I do not see an

> > > improvement. I understand this is the perfect age to correct but I

> > > am torn

> > > between the decision to get the band versus not. I have seen casts

> > > of

> > > infant heads at 12 months and 21 months where treatment was not done

> > > and it

> > > is not a place I want to be down the road.

> > >

> > > I would appreciate knowing what percentage corrects itself versus

> > > the

> > > percentage that is corrected by treatment - does anyone know this?

> > >

> > > Also, I am so afraid that my happy little boy will be miserable in

> > > the band

> > > - however, all the children I have seen seem to be fine.

> > >

> > > Help..... I need some friendly advice and understanding.

> > >

> > > Thanks,

> > > Tammy Duffy

> > >

> > > > -----Original Message-----

> > > > From: Thornton [sMTP:bthornton@...]

> > > > Sent: Friday, April 28, 2000 1:32 PM

> > > > Plagiocephalyegroups

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Pam,

> > > >

> > > > We just came back from an appointment with our family doctor. He

> > > too has

> > > > noticed a difference in 's head! We went over the letter he

> > > sent to

> > > > the neurosurgeon re: banding and having consultation with us.

> > > We're

> > > > hoping to have an answer from this doctor within the next week.

> > > The

> > > > reason our Dr. wrote a letter and sent pics of 's head is

> > > because we

> > > > live over 1000 miles away from the nearest children't hospital.

> > > Anyways

> > > > it's great to know that other families are in similar situations

> > > and are

> > > > seeing SOME results with repositioning.

> > > >

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: Doug & Pam <mailto:hambug@...>

> > > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 7:54 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > , your description of your son's head and your

> > > repositioning

> > > > success sounds EXACTLY like our situation, except Cameron is only

> > > 7

> > > > months. We debated and went back and forth for a month about

> > > whether or

> > > > not we should do the helmet (although we had the appointment

> > > scheduled

> > > > anyway), but in the end decided to go for it.... he still has a

> > > flat spot

> > > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > > >

> > > > ----- Original Message -----

> > > > From: Thornton <mailto:bthornton@...>

> > > > Plagiocephalyegroups

> > > > <mailto:Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 12:57 PM

> > > > Subject: Re: Will it round out???

> > > >

> > > > Hi Vicky,

> > > >

> > > > I just read this new message you sent. My son is 9

> > > months

> > > > now. He had

> > > > quite a bit of flattening on the right back side of

> > > his head

> > > > and on the side

> > > > of his head. We have been aggressively repositioning

> > > > (rolled towels and

> > > > wedges with velcro to prop him on his side) for about

> > > 2

> > > > months. We have

> > > > seen some improvement. His head on the right side has

> > > > rounded out near the

> > > > bottom and the right side of his head has rounded out.

> > > He

> > > > still has a flat

> > > > SPOT (the whole side used to be flat) and his ears are

> > > still

> > > > misaligned from

> > > > the top. When we used to look at him from the top

> > > before

> > > > his head looked

> > > > like a parallelogram (sp?). It's like we wanted to

> > > push his

> > > > forehead on the

> > > > right side back and the back of his head on the left

> > > side

> > > > forward. Anyways,

> > > > it no longer looks like a parallelogram but he still

> > > hasn't

> > > > rounded out

> > > > completely. I don't want this information to make

> > > anyone

> > > > think that

> > > > repositioning is the answer, because we are still

> > > pursuing

> > > > other opinions

> > > > and will be talking to a neurologist, but I think in

> > > the

> > > > meantime, while we

> > > > wait to see specialists, that repositioning is

> > > definately

> > > > worth a shot and

> > > > if you see improvement then that's great, but since

> > > our

> > > > babes are older I

> > > > would still keep talking to doctors to see what can be

> > > done

> > > > as far as the

> > > > headband and helmet.

> > > >

> > > > Hope this helps (I know it's long)

> > > >

> > > >

> > > > ----- Original Message -----

> > > > From: <ykciv88@...>

> > > > <Plagiocephalyegroups>

> > > > Sent: Thursday, April 27, 2000 6:41 AM

> > > > Subject: Will it round out???

> > > >

> > > >

> > > > > Hi everyone!

> > > > > My son will be 10 months and we are in the

> > > process

> > > > of waiting

> > > > > for a final diagnosis from the doctor. (Long story)

> > > > Anyway, I've been

> > > > > reading a lot of your posts and see that so many of

> > > you

> > > > were told by

> > > > > your peds or other doctors that those flat spots

> > > would

> > > > round out. I

> > > > > was told the same thing by the pediatrician and the

> > > > plastic surgeon

> > > > > we

> > > > > have been seeing. The plastic surgeon said it may

> > > not be

> > > > perfect but

> > > > > it will round out, and nobody has perfect heads

> > > anyway. I

> > > > am looking

> > > > > into the headband because the more I think about it,

> > > I

> > > > don't want to

> > > > > take that chance. Does anyone know if the heads

> > > really

> > > > will round out

> > > > > on their own? Has anyone not used a helmet or

> > > headband and

> > > > had their

> > > > > child's head round out nicely? How long does it take

> > > for

> > > > it to

> > > > > correct

> > > > > itself? Just wondering if what the doctors say is

> > > really

> > > > true.

> > > > > -Vicky

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> ------------------------------------------------------------------------

> > > > > If you love your Mother...

> > > > > Click Here

> > > > > <

> > > <1/3653/3/_/689409/_/956842875/>>

> > > > >

> > > >

> > >

> ------------------------------------------------------------------------

> > > > >

> > > > >

[Guest guest]

Grace was born with a ton of hair (which stuck straight up) and lost most of it

as well.

A little girl at Grace's daycare (Talyn) has thick dark hair. She's starting to

lose it on the top. So she looks like she's been struck with male pattern

baldness - a shiny pate with a dark thick fringe of hair around the edges.

C.

____________________Reply Separator____________________

Subject: RE: RE: Will it round out???

Author: Plagiocephalyegroups

Date: 5/1/00 1:14 PM

Thank you. Grayson has lost a lot of his hair. He had so much at birth. I

think it makes him look like a " little man " .

Grayson's flat spot is on the right side. From the side view and aerial

view he looks just like the parrallelogram (spelling?) drawing that I have

seen.

Tammy Duffy

Client Relationship Manager

Direct: (404) 898-1942

Fax: (404) 870-7987

> -----Original Message-----

> From: Crain [sMTP:acrain@...]

> Sent: Monday, May 01, 2000 1:32 PM

> Plagiocephalyegroups

> Subject: Re:RE: Will it round out???

>

> Tammy-

>

> Grayson is sooo beautiful! All that hair! I bet everyone comments about

> it

>

>

> He doesn't seem to have any problems with an uneven face. On what side is

> his

> flat spot?

>

> C.

>

>

>

> ____________________Reply Separator____________________

> Subject: RE: Will it round out???

> Author: Plagiocephalyegroups

> Date: 5/1/00 12:07 PM

>

> Doug:

>

> I looked at the picture of Cameron in the Files. What should I be looking

> for in regards to plagio or can you tell anything from that picture?

> Can

> you tell me what you saw in Cameron's head that prompted your looking into

> the band/helmet? My son's head is what CT considers moderate and most

> people do not even notice the flatness unless we mention it (perhaps they

> are being polite).

>

> Attached is a picture of my son, Grayson, at 3 months from the front. I

> will need to take some pictures of the aerial, side and back views.

>

> <<TAMMY.BMP>>

>

> Congratulations on a successful casting. How long will Cameron wear the

> band? When we spoke to CT last week they estimated Grayson would need to

> wear the band for 3 months. Please let me know how Cameron does with the

> helmet once you pick it up on Thursday.

>

>

> Tammy

>

> > -----Original Message-----

> > From: Doug & Pam [sMTP:hambug@...]

> > Sent: Friday, April 28, 2000 5:20 PM

> > Plagiocephalyegroups

> > Subject: Re: Will it round out???

> >

> > Hi Tammy!

> > I'm no expert, but it seems like most kids here are experiencing good

> > success with bands/helmets. Our pediatrician also told us Cameron's

> head

> > would correct itself, but our craniofacial doctor told us that his head

> > would not likely do any more rounding out on its own after 6 months,

> even

> > though his head would still be growing. I think the period between 2

> and

> > 4 months is the time where you would be most likely to see success from

> > repositioning, but if you haven't seen improvement, you might want to

> > consider the band. This was a hard decision for us too as Cameron's

> case

> > is fairly mild, but the reasons not to do it (e.g., cost, inconvenience,

> > dealing with staring) didn't seem very important compared to the benefit

> > of fixing his head and avoiding potential future problems. -Pam

> >

> > ----- Original Message -----

> > From: Duffy, Tammy <mailto:tammy_duffy@...>

> > 'Plagiocephalyegroups'

> <mailto:'Plagiocephalyegroups'>

> >

> > Sent: Friday, April 28, 2000 1:41 PM

> > Subject: RE: Will it round out???

> >

> > Hi everyone! I am a new member and am thankful to have found this

> > group!

> >

> > I have this same question...My husband and I took our son to

> Cranial

> > Technologies on Wednesday morning regarding his flat spot. They

> > advised us

> > to consider the DOC Band. This, of course, is not the advice of

> the

> > pediatrician. The ped is telling us that it will correct itself

> and

> > that we

> > should not worry. I am so stressed - what is the right decision?

> >

> > We noticed the flat spot when our son was 2 months old. He is 4

> > months now

> > - it is not better. We have tried repositioning but I do not see

> an

> > improvement. I understand this is the perfect age to correct but I

> > am torn

> > between the decision to get the band versus not. I have seen casts

> > of

> > infant heads at 12 months and 21 months where treatment was not

> done

> > and it

> > is not a place I want to be down the road.

> >

> > I would appreciate knowing what percentage corrects itself versus

> > the

> > percentage that is corrected by treatment - does anyone know this?

> >

> > Also, I am so afraid that my happy little boy will be miserable in

> > the band

> > - however, all the children I have seen seem to be fine.

> >

> > Help..... I need some friendly advice and understanding.

> >

> > Thanks,

> > Tammy Duffy

> >

> > > -----Original Message-----

> > > From: Thornton [sMTP:bthornton@...]

> > > Sent: Friday, April 28, 2000 1:32 PM

> > > Plagiocephalyegroups

> > > Subject: Re: Will it round out???

> > >

> > > Hi Pam,

> > >

> > > We just came back from an appointment with our family doctor. He

> > too has

> > > noticed a difference in 's head! We went over the letter he

> > sent to

> > > the neurosurgeon re: banding and having consultation with us.

> > We're

> > > hoping to have an answer from this doctor within the next week.

> > The

> > > reason our Dr. wrote a letter and sent pics of 's head is

> > because we

> > > live over 1000 miles away from the nearest children't hospital.

> > Anyways

> > > it's great to know that other families are in similar situations

> > and are

> > > seeing SOME results with repositioning.

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: Doug & Pam <mailto:hambug@...>

> > > Plagiocephalyegroups

> > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 7:54 PM

> > > Subject: Re: Will it round out???

> > >

> > > , your description of your son's head and your

> > repositioning

> > > success sounds EXACTLY like our situation, except Cameron is only

> > 7

> > > months. We debated and went back and forth for a month about

> > whether or

> > > not we should do the helmet (although we had the appointment

> > scheduled

> > > anyway), but in the end decided to go for it.... he still has a

> > flat spot

> > > and his ears are misaligned. He gets cast tomorrow! -Pam

> > >

> > > ----- Original Message -----

> > > From: Thornton <mailto:bthornton@...>

> > > Plagiocephalyegroups

> > > <mailto:Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 12:57 PM

> > > Subject: Re: Will it round out???

> > >

> > > Hi Vicky,

> > >

> > > I just read this new message you sent. My son is 9

> > months

> > > now. He had

> > > quite a bit of flattening on the right back side of

> > his head

> > > and on the side

> > > of his head. We have been aggressively repositioning

> > > (rolled towels and

> > > wedges with velcro to prop him on his side) for about

> > 2

> > > months. We have

> > > seen some improvement. His head on the right side

> has

> > > rounded out near the

> > > bottom and the right side of his head has rounded

> out.

> > He

> > > still has a flat

> > > SPOT (the whole side used to be flat) and his ears

> are

> > still

> > > misaligned from

> > > the top. When we used to look at him from the top

> > before

> > > his head looked

> > > like a parallelogram (sp?). It's like we wanted to

> > push his

> > > forehead on the

> > > right side back and the back of his head on the left

> > side

> > > forward. Anyways,

> > > it no longer looks like a parallelogram but he still

> > hasn't

> > > rounded out

> > > completely. I don't want this information to make

> > anyone

> > > think that

> > > repositioning is the answer, because we are still

> > pursuing

> > > other opinions

> > > and will be talking to a neurologist, but I think in

> > the

> > > meantime, while we

> > > wait to see specialists, that repositioning is

> > definately

> > > worth a shot and

> > > if you see improvement then that's great, but since

> > our

> > > babes are older I

> > > would still keep talking to doctors to see what can

> be

> > done

> > > as far as the

> > > headband and helmet.

> > >

> > > Hope this helps (I know it's long)

> > >

> > >

> > > ----- Original Message -----

> > > From: <ykciv88@...>

> > > <Plagiocephalyegroups>

> > > Sent: Thursday, April 27, 2000 6:41 AM

> > > Subject: Will it round out???

> > >

> > >

> > > > Hi everyone!

> > > > My son will be 10 months and we are in the

> > process

> > > of waiting

> > > > for a final diagnosis from the doctor. (Long story)

> > > Anyway, I've been

> > > > reading a lot of your posts and see that so many of

> > you

> > > were told by

> > > > your peds or other doctors that those flat spots

> > would

> > > round out. I

> > > > was told the same thing by the pediatrician and the

> > > plastic surgeon

> > > > we

> > > > have been seeing. The plastic surgeon said it may

> > not be

> > > perfect but

> > > > it will round out, and nobody has perfect heads

> > anyway. I

> > > am looking

> > > > into the headband because the more I think about

> it,

> > I

> > > don't want to

> > > > take that chance. Does anyone know if the heads

> > really

> > > will round out

> > > > on their own? Has anyone not used a helmet or

> > headband and

> > > had their

> > > > child's head round out nicely? How long does it

> take

> > for

> > > it to

> > > > correct

> > > > itself? Just wondering if what the doctors say is

> > really

> > > true.

> > > > -Vicky

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > ------------------------------------------------------------------------

> > > > If you love your Mother...

> > > > Click Here

> > > > <

> > <1/3653/3/_/689409/_/956842875/>>

> > > >

> > >

> > ------------------------------------------------------------------------

> > > >

> > > >