Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Charlene, Thanks for sharing the letter with us. Now that I'm a grandma myself, I can understand her joy in Luke and Isaak's accomplishments. I also think that you and your husband deserve a pat on the back for all your efforts and the boys achievements. I agree with her - I don't know how the two of you did this. They are very lucky boys. Dotsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Sometimes it helps to have an outside opinion! I asked my mom to write her thoughts on the kids recovery down to give me an outside view. She told me I could share it so other Moms could see how well Luke and Isaak are doing. I suppose it's not totally unbiased, we are awfully close! But she is a very truthful person, extremely kind and so easy to talk to. She doesn't often type and I just know she worked so hard on this I couldn't help but share it! Feel free to email her if you like. Charlene 330-544-4018 ___________________________________________________________ My name is Arlene, the proud Grandma of Luke and Isaak. When we all noticed that Luke and Isaak weren't doing things as each birthday came and went I would say , " Oh he is just taking his time don''t worry. " But then we found out they had Autism, what a word. I was afraid of it and never heard of it. But Lukas and Isaak constantly cried. Well scream really is the word and Isaak screamed more than Lukas. Isaak screamed like he was in pain constantly, if I tried to hold him he would throw himself all over, you couldn't keep him in your arms, he banged his head, when really upset, bit his fingers till they were raw and bleeding, smacked at me if I tried to get close and he never ever said one word. I couldn't get close, he just pushed me away. Even if I sat down for him to come to me, he would just keep pushing me away. But always was that look of pain in his little eyes, and constant screaming. But now when I visit he is at the door with a smile, and he says " Hi Ya! " I get my hugs, he takes me to see his toys and yes, he lets me hold him. The joy in my heart is to much. Today he is a happy child, no pain in those sweet eyes. Then when I saw him play with his little brother, wow! There are just so many changes, and improvements in Isaak , my now vocal grandchild. Now Lukas always wanted be left alone. He had a don't touch me, go away look in his eyes. He cried constantly, and Luke like Isaak never hardly slept through the night. Just a few hours at a time was the most. When I baby-sat a few times, I couldn't imagine how Charlene and did this. I am not talking about crying. It was non stop screams! Luke did talk before he was 13 to 15 months old. He would wave bye-bye, give kisses, hugs, then it all stopped. I really thought I lost my grandson forever. But today he runs to see me, hugs me once again and says " I Love You, " Luke and Isaak are in school, doing things I never thought possible. My grandsons are here, and getting better everyday. I could go on about them, but hopefully this is enough to let you know the joy in my heart today at their recovery. Love To all Luke and Isaak's Grandma AR3537@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Charlene, This left me speechless! Somethings are just too priceless to put into words. God Bless, Gail A letter from my Mom! > Sometimes it helps to have an outside opinion! I asked my > mom to write her thoughts on the kids recovery down to give > me an outside view. She told me I could share it so other > Moms could see how well Luke and Isaak are doing. I suppose > it's not totally unbiased, we are awfully close! But she is > a very truthful person, extremely kind and so easy to talk > to. She doesn't often type and I just know she worked so > hard > on this I couldn't help but share it! > Feel free to email her if you like. > > Charlene > 330-544-4018 > ___________________________________________________________ > > My name is Arlene, the proud Grandma of Luke and Isaak. When > > we all noticed that Luke and Isaak weren't doing things as > each birthday came and went I would say , " Oh he is just > taking his time don''t worry. " But then we found out they > had Autism, what a word. I was afraid of it and never heard > of it. But Lukas and Isaak constantly cried. Well scream > really is the word and Isaak screamed more than Lukas. Isaak > > screamed like he was in pain constantly, if I tried to hold > him he would throw himself all over, you couldn't keep him > in your arms, he banged his head, when really upset, bit his > > fingers till they were raw and bleeding, smacked at me if I > > tried to get close and he never ever said one word. I > couldn't get close, he just pushed me away. Even if I sat > down for him to come to me, he would just keep pushing me > away. But always was that look of pain in his little eyes, > and constant screaming. But now when I visit he is at the > door with a smile, and he says " Hi Ya! " I get my hugs, he > takes me to see his toys and yes, he lets me hold him. The > joy in my heart is to much. Today he is a happy child, no > pain in those sweet eyes. Then when I saw him play with his > little brother, wow! There are just so many changes, and > improvements in Isaak , my now vocal grandchild. > > Now Lukas always wanted be left alone. He had a don't > touch me, go away look in his eyes. He cried constantly, and > > Luke like Isaak never hardly slept through the night. Just a > > few hours at a time was the most. When I baby-sat a few > times, I couldn't imagine how Charlene and did this. I > am not talking about crying. It was non stop screams! Luke > did talk before he was 13 to 15 months old. He would wave > bye-bye, give kisses, hugs, then it all stopped. I really > thought I lost my grandson forever. But today he runs to see > > me, hugs me once again and says " I Love You, " Luke and Isaak > > are in school, doing things I never thought possible. My > grandsons are here, and getting better everyday. I could go > on about them, but hopefully this is enough to let you know > the joy in my heart today at their recovery. > > Love To all > Luke and Isaak's Grandma > AR3537@... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Dotsie, We never could have backed our kids out of this nightmare without Dr. Kane. She actually deserves all the credit. Unfortunately, she won't take it! I'm sure you can guess who she gives the credit to. Thank you for the wonderful letter. You're kind thoughts meant the world to me, especially coming from another grandma. You and she have something in common and that's such a unique perspective. I will pass your pat on the back on to . He's never been one to shun praise! ) Thanks, Charlene 330-544-4018 DotsieBoo@... wrote: > Charlene, > Thanks for sharing the letter with us. Now that I'm a > grandma myself, I can > understand her joy in Luke and Isaak's accomplishments. I > also think that > you and your husband deserve a pat on the back for > all your efforts and > the boys achievements. I agree with her - I don't know > how the two of you > did this. They are very lucky boys. > Dotsie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2001 Report Share Posted April 9, 2001 Awesome! S On Wed, 28 March 2001, bluesclues@... wrote: > > <html><body> > <tt> > Sometimes it helps to have an outside opinion! I asked my<BR> > mom to write her thoughts on the kids recovery down to give<BR> > me an outside view. She told me I could share it so other<BR> > Moms could see how well Luke and Isaak are doing. I suppose<BR> > it's not totally unbiased, we are awfully close! But she is<BR> > a very truthful person, extremely kind and so easy to talk<BR> > to. She doesn't often type and I just know she worked so hard<BR> > on this I couldn't help but share it!<BR> > Feel free to email her if you like. <BR> > <BR> > Charlene<BR> > 330-544-4018<BR> > ___________________________________________________________<BR> > <BR> > My name is Arlene, the proud Grandma of Luke and Isaak. When<BR> > we all noticed that Luke and Isaak weren't doing things as<BR> > each birthday came and went I would say , & quot;Oh he is just<BR> > taking his time don''t worry. & quot; But then we found out they<BR> > had Autism, what a word. I was afraid of it and never heard<BR> > of it. But Lukas and Isaak constantly cried. Well scream<BR> > really is the word and Isaak screamed more than Lukas. Isaak<BR> > screamed like he was in pain constantly, if I tried to hold<BR> > him he would throw himself all over, you couldn't keep him<BR> > in your arms, he banged his head, when really upset, bit his<BR> > fingers till they were raw and & nbsp; bleeding, smacked at me if I<BR> > tried to get close and he never ever said one word. I<BR> > couldn't get close, he just pushed me away. Even if I sat<BR> > down for him to come to me, he would just keep pushing & nbsp; me<BR> > away. But always was that look of pain in his little eyes,<BR> > and constant screaming. But now when I visit he is at the<BR> > door with a smile, and he says & quot;Hi Ya! & quot; I get my hugs, he<BR> > takes me to see his toys and yes, he lets me hold him. The<BR> > joy in my heart is to much. Today he is a happy child, no<BR> > pain in those sweet eyes. Then when I saw him play with his<BR> > little brother, wow! There are just so many changes, and<BR> > improvements in Isaak , my now vocal grandchild.<BR> > <BR> > & nbsp; & nbsp; & nbsp; Now Lukas always wanted be left alone. He had a don't<BR> > touch me, go away look in his eyes. He cried constantly, and<BR> > Luke like Isaak never hardly slept through the night. Just a<BR> > few hours at a time was the most. When I baby-sat a few<BR> > times, I couldn't imagine how Charlene and did this. I<BR> > am not talking about crying. It was non stop screams! Luke<BR> > did talk before he was 13 to 15 months old. He would wave<BR> > bye-bye, give kisses, hugs, then it all stopped. I really<BR> > thought I lost my grandson forever. But today he runs to see<BR> > me, hugs me once again and says & quot;I Love You, & quot; Luke and Isaak<BR> > are in school, doing things I never thought possible. My<BR> > grandsons are here, and getting better everyday. I could go<BR> > on about them, but hopefully this is enough to let you know<BR> > the joy in my heart today at their recovery.<BR> > <BR> > Love To all<BR> > Luke and Isaak's Grandma<BR> > AR3537@...<BR> > <BR> > </tt> > > <br> > > <!-- |**|begin egp html banner|**| --> > > <table border=0 cellspacing=0 cellpadding=2> > <tr bgcolor=#FFFFCC> > <td align=center><font size= " -1 " color=#003399><b> Sponsor</b></font></td> > </tr> > <tr bgcolor=#FFFFFF> > <td width=470><a href= " http://rd./M=170603.1361494.2950176.2/D=egroupmail/S=1700061616:N\ /A=613962/?http://www.newaydirect.com " target= " _top " ><img width=468 height=60 src= " http://us.a1.yimg.com/us.yimg.com/a/ne/neway/neway3white.gif " alt= " www.newaydirect.com " border=0></a></td> > </tr> > <tr><td><img alt= " " width=1 height=1 src= " http://us.adserver./l?M=170603.1361494.2950176.2/D=egroupmail/S=17\ 00061616:N/A=613962/rand=278070385 " ></td></tr> > </table> > > <!-- |**|end egp html banner|**| --> > > > <br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Is this letter about Issak and Luke, after they were chelated? Sorry If I missed how they recovered? Was it chelation, how long did you chelate for? Lets us know. Thanks, Quote Link to comment Share on other sites More sharing options...
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