taking sublingual form of ldn; would like input re nausea etc

[Guest guest]

I just joined this list. I was rxed the sublingual form of low dose naltrexone recently. It is causing some nausea. I have chronic nausea anyway but worsened with the introduction of LDN it would seem I posted my profile here

remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

The sublingual form seems to not be as often recognized. I found it discussed here http://ldn.proboards3.com/index.cgi?board=forum & action=display & thread=1120234688

I am unclear on how to take it in conjunction with Avonex which I am still on. For last week, I did do take the LDN on the day of and the day after the injection. I also am in a lot of pain but don't use pain med much at all. I am unclear on whether the LDN will counteract any pain meds altogether.

Anyway thanks for listening

K

[Guest guest]

,

Dr. Bihari states that Avonex and LDN are NOT compatible.

Regards,

Tom

[low dose naltrexone] taking sublingual form of ldn; would like input re nausea etc

I just joined this list. I was rxed the sublingual form of low dose naltrexone recently. It is causing some nausea. I have chronic nausea anyway but worsened with the introduction of LDN it would seem I posted my profile here

remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

The sublingual form seems to not be as often recognized. I found it discussed here http://ldn.proboards3.com/index.cgi?board=forum & action=display & thread=1120234688

I am unclear on how to take it in conjunction with Avonex which I am still on. For last week, I did do take the LDN on the day of and the day after the injection. I also am in a lot of pain but don't use pain med much at all. I am unclear on whether the LDN will counteract any pain meds altogether.

Anyway thanks for listening

K

[Guest guest]

> I just joined this list. I was rxed the sublingual form of low dose naltrexone

> recently. It is causing some nausea. I have chronic nausea anyway but

> worsened with the introduction of LDN it would seem I posted my profile here

> remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

>

> http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

>

> The sublingual form seems to not be as often recognized. I found it

> discussed here http://ldn.proboards3.com/index.cgi?board=forum

> <http://ldn.proboards3.com/index.cgi?board=forum & action=display & thread=11202

> 34688> & action=display & thread=1120234688

>

> I am unclear on how to take it in conjunction with Avonex which I am still

> on. For last week, I did do take the LDN on the day of and the day after the

> injection. I also am in a lot of pain but don't use pain med much at all. I

> am unclear on whether the LDN will counteract any pain meds altogether.

>

> Anyway thanks for listening

> K

=============

,

Help us out here. How do you get the sublingual into 3.0mg or 4.5mg? What

pharmacy do you get it from? How is it prepared? What sort of a doctor

prescribed this? Do you have MS? What milligram are you taking? What time do

you take it? How often do you take it? Do you take it nightly? I'm sure none

of us have heard of this sublingual LDN already prepared in 3.0mg or 4.5mg

doses. Please explain so we can help you. Go to the LDN website and read

thoroughly...including the Further Q & A page.

LDN website

http://www.low dose naltrexone.org

[Guest guest]

I posted most of the answers to your questions in the link under

remedy find. I was diagnosed RRMS by an MS neuro. However this

diagnosis was very recent and the doc is quite conerned re my rapid

progression in symptoms, EDSS level in the 6-6.5 range already, and

constant excaberations resulting in 3 hospitalizations in past 2

months. My neuro treats MS symptoms, prescribes Avonex and Rxes my

IVIG monthly booster.

Meanwhile, I saw my enviro Med MD who said why do't you try this LDN

(which I had asked about) but it was in sublingual form. The

pharmacy RX reads from the Dr himself. I am to take 50 parts or

2.5ccc via syringe between 9pm and 1am. (I have folowup appt at

which time dose was potentially to be doubled). In the link below on

the lDN site, I did see that they explain what sounds like how my

doctor is dispensing this form .You asked what pharmacy do you get

it from? I got it dispensed directly from the doctor. Where?

(ton, SC; Dr. Lieberman). How is it prepared? I assume it is

LDN powder prepared in liquid. What sort of a doctor prescribed

this? An environ Med MD in the field for more than 30 years. Do you

have MS? Yes, diagnosed by MS neuro and under their treatment. They

are concerned re " rapid progression without let up " . What milligram

are you taking? It says 1.5cc or 50parts and uses a diffderent

syringe and other meds he dispenses.

What time do you take it? 9-1am How often do you take it? 1x per day

but it is causing nausea and wanted input Do you take it nightly? I

was going to however I decided not to on the day of and the day

after I did my avonex shot. I wasn't sure what to do.

>>>You said: I'm sure none of us have heard of this sublingual LDN

already prepared in 3.0mg or 4.5mg doses.

I wasn't sure if anyone was or wasn't. I included a link below

where it appears that in July 05, someone posted about this type of

formulation. I had never heard of it either and frnkly expected to

leave my doc's office with an RX for the pill.

re

> > I just joined this list. I was rxed the sublingual form of

low dose naltrexone

> > recently. It is causing some nausea. I have chronic nausea

anyway but

> > worsened with the introduction of LDN it would seem I posted my

profile here

> > remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

> >

> > http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

> >

> > The sublingual form seems to not be as often recognized. I

found it

> > discussed here http://ldn.proboards3.com/index.cgi?board=forum

> > <http://ldn.proboards3.com/index.cgi?

board=forum & action=display & thread=11202

> > 34688> & action=display & thread=1120234688

> >

> > I am unclear on how to take it in conjunction with Avonex which

I am still

> > on. For last week, I did do take the LDN on the day of and the

day after the

> > injection. I also am in a lot of pain but don't use pain med

much at all. I

> > am unclear on whether the LDN will counteract any pain meds

altogether.

> >

> > Anyway thanks for listening

> > K

> =============

[Guest guest]

This means I have to decide whether to stop the avonex?? I was hoping

I could stagger and take the LDN on days perhaps when not taking

avonex. I am concerned what to do because I am experiencing such rapid

progression of symptoms since diagnosis.

I noted others on sites? stating they used the LDN coconcurrently with

interferons initially.

--- In low dose naltrexone , " tom bayuk " <tbayuk@c...>

wrote:

> ,

> Dr. Bihari states that Avonex and LDN are NOT compatible.

> Regards,

> Tom

>

> (rest snipped)

[Guest guest]

So you are taking the liquid method of LDN made with naltrexone. I

always thought sublingual meant putting a pill under the tongue and

let it melt. Sounds like you started on 1.5mgs and working up to

4.5mgs eventually. As Tom said, you can't take interferons with LDN

b/c incompatible and LDN won't work.

www.goodshape.net has homemade LDN instructions at the bottom you

can read how to make your own from dissolving a 50mg Revia pill.

Copaxone can be taken with LDN. I wouldn't touch any of the

injections and just try LDN and get up to 4.5mgs soon as you can. I

think you mentioned nausea. Find out how the pharmacist is making

your liquid LDN and if a filler is in it b/c you can change fillers

or make your own from a Revia pill if it isn't lactose you are

getting nauseated from. And Dr. Bihari says to take LDN between 9pm

and 3am and I find it's best to take at the same time nightly. And

another member here said she took 25mgs during day and stopped her

progression right in it's tracks but that might not work for

everyone. She doesn't do this unless some progressment starts and

takes normally nightly doses of 4.5mgs liquid method. Maybe she'll

email you.

I know liquid made with the Bristol Myers Revia works for me best

and generic did not and I started going downhill on 3 weeks of

generic and back on BM Revia and going back to normal.

You can also order Bristol Myers Revia from www.medsmex.com from

Mexico. Some pharmacies have BM Revia and some don't.

Rhonda

> > ,

> > Dr. Bihari states that Avonex and LDN are NOT compatible.

> > Regards,

> > Tom

> >

> > (rest snipped)

[Guest guest]

> > > I just joined this list. I was rxed the sublingual form of

> low dose naltrexone

> > > recently. It is causing some nausea. I have chronic nausea

> anyway but

> > > worsened with the introduction of LDN it would seem I posted my

> profile here

> > > remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

> > >

> > > http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

> > >

> > > The sublingual form seems to not be as often recognized. I

> found it

> > > discussed here http://ldn.proboards3.com/index.cgi?board=forum

> > > <http://ldn.proboards3.com/index.cgi?

> board=forum & action=display & thread=11202

> > > 34688> & action=display & thread=1120234688

> > >

> > > I am unclear on how to take it in conjunction with Avonex which

> I am still

> > > on. For last week, I did do take the LDN on the day of and the

> day after the

> > > injection. I also am in a lot of pain but don't use pain med

> much at all. I

> > > am unclear on whether the LDN will counteract any pain meds

> altogether.

> > >

> > > Anyway thanks for listening

> > > K

> > =============

,

Am I reading correctly that this is liquid LDN that you are placing under your

tongue? Find out if your pharmacy is using pure naltrexone powder. I am very

surprised that your neuro is giving you an immune system suppressant in Avonex

and then turning around and boosting you with IVIg. This doesn't make any

sense. How can either drug work when one is suppressing the immune system and

one is boosting the immune system¿¿¿ That's why Bihari is against using LDN

with all immune system suppressants. Stop placing the liquid under your tongue,

just drop it in mouth and swallow. Make sure there is absolutely nothing in

your liquid LDN but pure naltrexone powder and a flavoring. This mixture must

be kept refrigerated from the pharmacy to you and you must keep it in fridge at

home. Shake well before each use. Should keep for 1 month. 1.5cc is 1.5ml.

If the pharmacy is using ReVia tablets to crush and dissolve into liquid you may

be allergic to the filler that's in the ReVia brand Naltrexone pill. The pure

naltrexone powder does not have any fillers. Try staying on 1.5ml for 2 weeks

just swallowing it, not putting under tongue and then swallowing. Then try

upping to 2.0ml for 2 to 3 weeks then up to 2.5ml for awhile and so forth.

You need to get tested for Lyme Disease via a Western Blot test. Do not settle

for just the ELISA test as it can give too many false negatives. The Western

Blot is not a 100% in detecting Lyme but it is more sensitve than the ELISA.

Lyme can mimic MS in symptoms, MRI lesions and in spinal fluid exams. Rule out

Lyme ASAP.

The IVIg and LDN are immune system boosters...they modulate the immune system

back upward.

The Avonex, other interferons, chemo's and steroids suppress the immune

system...they modulate the immune system downward.

[Guest guest]

CONCERNING YOUR RAPID PROGRESSION- HAVE YOU BEEN IN CONTACT WITH PUPPIES THAT HAVE DISTEMPER OR DID YOU RECENTLY GET A VACINATION?

-- [low dose naltrexone] Re: taking sublingual form of ldn; would like input re nausea etc

> > > I just joined this list. I was rxed the sublingual form of > low dose naltrexone> > > recently. It is causing some nausea. I have chronic nausea > anyway but> > > worsened with the introduction of LDN it would seem I posted my > profile here> > > remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>> > > > > > http://www.remedyfind.com/hc-Multiple-Sclerosis.asp > > > > > > The sublingual form seems to not be as often recognized. I > found it> > > discussed here http://ldn.proboards3.com/index.cgi?board=forum> > > <http://ldn.proboards3.com/index.cgi?> board=forum & action=display & thread=11202> > > 34688> & action=display & thread=1120234688> > > > > > I am unclear on how to take it in conjunction with Avonex which > I am still> > > on. For last week, I did do take the LDN on the day of and the > day after the> > > injection. I also am in a lot of pain but don't use pain med > much at all. I> > > am unclear on whether the LDN will counteract any pain meds > altogether.> > > > > > Anyway thanks for listening> > > K> > =============,Am I reading correctly that this is liquid LDN that you are placing under your tongue? Find out if your pharmacy is using pure naltrexone powder. I am very surprised that your neuro is giving you an immune system suppressant in Avonex and then turning around and boosting you with IVIg. This doesn't make any sense. How can either drug work when one is suppressing the immune system and one is boosting the immune system¿¿¿ That's why Bihari is against using LDN with all immune system suppressants. Stop placing the liquid under your tongue, just drop it in mouth and swallow. Make sure there is absolutely nothing in your liquid LDN but pure naltrexone powder and a flavoring. This mixture must be kept refrigerated from the pharmacy to you and you must keep it in fridge at home. Shake well before each use. Should keep for 1 month. 1.5cc is 1.5ml. If the pharmacy is using ReVia tablets to crush and dissolve into liquid you may be allergic to the filler that's in the ReVia brand Naltrexone pill. The pure naltrexone powder does not have any fillers. Try staying on 1.5ml for 2 weeks just swallowing it, not putting under tongue and then swallowing. Then try upping to 2.0ml for 2 to 3 weeks then up to 2.5ml for awhile and so forth.You need to get tested for Lyme Disease via a Western Blot test. Do not settle for just the ELISA test as it can give too many false negatives. The Western Blot is not a 100% in detecting Lyme but it is more sensitve than the ELISA. Lyme can mimic MS in symptoms, MRI lesions and in spinal fluid exams. Rule out Lyme ASAP.The IVIg and LDN are immune system boosters...they modulate the immune system back upward.The Avonex, other interferons, chemo's and steroids suppress the immune system...they modulate the immune system downward.

[Guest guest]

Personally I would ask the doctor if I could stop Avonex and wait about 3 to

4 weeks and start on LDN in the pill form at 1.5, then add 1.5 within a

month. Then I would try the liquid form if that is not sufficient. If you

are female I would try and go up to 4.5mg. If you are a male then you might

do best to stay at 3.0mg.

[low dose naltrexone] Re: taking sublingual form of ldn; would like

input re nausea etc

> > > I just joined this list. I was rxed the sublingual form of

> low dose naltrexone

> > > recently. It is causing some nausea. I have chronic nausea

> anyway but

> > > worsened with the introduction of LDN it would seem I posted my

> profile here

> > > remedy find <http://www.remedyfind.com/show_profile.asp?id=86281>

> > >

> > > http://www.remedyfind.com/hc-Multiple-Sclerosis.asp

> > >

> > > The sublingual form seems to not be as often recognized. I

> found it

> > > discussed here http://ldn.proboards3.com/index.cgi?board=forum

> > > <http://ldn.proboards3.com/index.cgi?

> board=forum & action=display & thread=11202

> > > 34688> & action=display & thread=1120234688

> > >

> > > I am unclear on how to take it in conjunction with Avonex which

> I am still

> > > on. For last week, I did do take the LDN on the day of and the

> day after the

> > > injection. I also am in a lot of pain but don't use pain med

> much at all. I

> > > am unclear on whether the LDN will counteract any pain meds

> altogether.

> > >

> > > Anyway thanks for listening

> > > K

> > =============

,

Am I reading correctly that this is liquid LDN that you are placing under

your tongue? Find out if your pharmacy is using pure naltrexone powder. I

am very surprised that your neuro is giving you an immune system suppressant

in Avonex and then turning around and boosting you with IVIg. This doesn't

make any sense. How can either drug work when one is suppressing the immune

system and one is boosting the immune system¿¿¿ That's why Bihari is

against using LDN with all immune system suppressants. Stop placing the

liquid under your tongue, just drop it in mouth and swallow. Make sure

there is absolutely nothing in your liquid LDN but pure naltrexone powder

and a flavoring. This mixture must be kept refrigerated from the pharmacy

to you and you must keep it in fridge at home. Shake well before each use.

Should keep for 1 month. 1.5cc is 1.5ml. If the pharmacy is using ReVia

tablets to crush and dissolve into liquid you may be allergic to the filler

that's in the ReVia brand Naltrexone pill. The pure naltrexone powder does

not have any fillers. Try staying on 1.5ml for 2 weeks just swallowing it,

not putting under tongue and then swallowing. Then try upping to 2.0ml for

2 to 3 weeks then up to 2.5ml for awhile and so forth.

You need to get tested for Lyme Disease via a Western Blot test. Do not

settle for just the ELISA test as it can give too many false negatives. The

Western Blot is not a 100% in detecting Lyme but it is more sensitve than

the ELISA. Lyme can mimic MS in symptoms, MRI lesions and in spinal fluid

exams. Rule out Lyme ASAP.

The IVIg and LDN are immune system boosters...they modulate the immune

system back upward.

The Avonex, other interferons, chemo's and steroids suppress the immune

system...they modulate the immune system downward.

[Guest guest]

I have to decide first (unfortunately) whether I am willing to jump off the beta interferon's that I just stated as a newly diagnosed MSer;. I have had huge

disabilities and exasperations in recent months and I am unclear if the course of action below for example would be good. I may consider monitoring LDN and not doing that for now. I don't know. I am a female btw and thanks so much for offering your ideas. I have to admit that

I didn't know that LDN was totally contraindicated with betainterferons whatsoever and I am also unclear how to manage pain if there are contraindications with narcotics for example which I despite anyway but use at times.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Aletha WittmannSent: Friday, August 19, 2005 12:00 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: taking sublingual form of ldn; would like input re nausea etc

Personally I would ask the doctor if I could stop Avonex and wait about 3 to 4 weeks and start on LDN in the pill form at 1.5, then add 1.5 within a month. Then I would try the liquid form if that is not sufficient. If you are female I would try and go up to 4.5mg. If you are a male then you might do best to stay at 3.0mg.

[Guest guest]

That is right...one or the other.

Regards,

Tom

[low dose naltrexone] Re: taking sublingual form of ldn; would like

input re nausea etc

> This means I have to decide whether to stop the avonex?? I was hoping

> I could stagger and take the LDN on days perhaps when not taking

> avonex. I am concerned what to do because I am experiencing such rapid

> progression of symptoms since diagnosis.

> I noted others on sites? stating they used the LDN coconcurrently with

> interferons initially.

>

>

>> ,

>> Dr. Bihari states that Avonex and LDN are NOT compatible.

>> Regards,

>> Tom

>>

>> (rest snipped)

>

>

>

>

>

>

>

[Guest guest]

My neuroligist told me (i have MS) that i cannot have both avonex and

LDN. Avonex suppresses the immune system and LDN builds it up. You

are just fighting the drugs against each other and causing more

problems than you had before. neurologist says copaxone is the only MS

drug that does not act in the same way as the interferon drugs. you

can take copaxone with LDN.

tom bayuk wrote:

That is right...one or the other.

Regards,

Tom

[low dose naltrexone] Re: taking sublingual form of ldn; would

like

input re nausea etc

> This means I have to decide whether to stop the avonex?? I was

hoping

> I could stagger and take the LDN on days perhaps when not taking

> avonex. I am concerned what to do because I am experiencing such

rapid

> progression of symptoms since diagnosis.

> I noted others on sites? stating they used the LDN coconcurrently

with

> interferons initially.

>

>

>> ,

>> Dr. Bihari states that Avonex and LDN are NOT compatible.

>> Regards,

>> Tom

>>

>> (rest snipped)

>

>

>

>

>

>

>