Re: Digest Number 1810

[Guest guest]

In a message dated 5/20/01 3:20:33 AM Eastern Daylight Time,

writes:

<< By the way,

my doctor sent me to see a neuro-surgeon after my first MRI, he wanted to

operate after I failed at Physical Therapy (it made the pain much worse) but

I declined and just live with it. The other problem I have with the

herniation is numbness and tingling constantly in both hands and arms, when

in use. >>

Marta: You might want to try a " good " chiropractor for your numbness and

tingling which is related to your disc probem. No need for you to " live with

this " just because you do not want to opt for surgery. Mona

[Guest guest]

In a message dated 5/20/01 3:20:33 AM Eastern Daylight Time,

writes:

<< I just stopped abx (bicillin shots and zithromax) to

give my body a rest, but symptoms came on hard (head is fuzzy, low fever,

joint aches, etc.) with a day. Anyone experience this and did they get a

break or does it just continue >>

Irene: I , also would relapse after stopping meds. The combination of

Biaxin and Plaquenil (after 5 months) finally got me to where I am today--3

1/2 years totally symptom free since being bitten in 1993. You might ask

your doctor about the combo. Good luck, Mona

[Guest guest]

Hi Mona,

I did try a chiropractor and an acupuncturist, I must have been herxing

really bad at that time as I just could not complete the treatments, now

that I am feeling somewhat better I should try that route again. This was

around the time I was seeing every doctor I could as I was applying for

SSDI. Thanks for thinking of that for me! I also saw an orthopedic doctor

who treated me for carpal tunnel, gave me cortisone injections in both hands

and no relief at all, he wanted to operate then too, but I never went back.

I may drop a lot of things but the pain in the hands is lessening so I can

live with this for now too. It is all probably related to the disc anyway.

Marta

----- Original Message ----- >

> Marta: You might want to try a " good " chiropractor for your numbness and

> tingling which is related to your disc probem. No need for you to " live

with

> this " just because you do not want to opt for surgery. Mona

[Guest guest]

I have a fairly new primary Dr. She's very young and very new. I told her

that my hearing was coming up the next week for social security disability.

She says " well, we never found anything, you know " . She spoke a thousand

words in those few. I couldn't let it go so ended up calling her and asking

her what she meant by that - that I sure was hoping she wasn't one of those

doctors who believes that if it doesn't show up on xray or in a blood sample

it doesn't exist. Well, I told her the SSI was for chronic pain, car

accidents,Fibromyalgia, and chronic Lyme disease. She said " there is no

such thing as chronic Lyme disease. Once you're treated, you get better and

that's the end of it. " Needless to say I was enraged and I told her that I

felt like she just totally invalidated all the years of pain and suffering

I'd been been through. So, my question is - does anyone know of an article

I can send her that describes the presence of chronic lyme disease and what

people go through? She is very naive and ignorant but I think she is

teachable. Please email and let me know if you have any suggestions. Thank

you very much!!

/WI

julsiglew@...

>From:

>Reply-

>

>Subject: [ ] Digest Number 1810

>Date: 20 May 2001 07:19:12 -0000

>

>Welcome to

>

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>Please send messages not related to Lyme disease (this includes humor and

>information about other diseases) to -Offtopic

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>

>The chat room is always open!

> /chat

>------------------------------------------------------------------------

>

>There are 21 messages in this issue.

>

>Topics in this digest:

>

> 1. Re: Is Pediatric Lyme a Separate Specialty?

> From: " M.McCoy " <mlmccoy@...>

> 2. Re: Congrats Rose

> From: " M.McCoy " <mlmccoy@...>

> 3. Re: Is Pediatric Lyme a Separate Specialty?

> From: 'TOIL for Lyme' <toil_for_lyme@...>

> 4. Re: Congrats Rose

> From: " larryyenko " <larryy@...>

> 5. RE: Request from Dr. in CT

> From: " Cyntha Landon " <cyntha@...>

> 6. Re: Another Remission!

> From: " R. " <rjamesmartin@...>

> 7. Re: Another Remission!

> From: " R. " <rjamesmartin@...>

> 8. Re: Request from Dr. in CT

> From: " AtTheLake. " <AtTheLake@...>

> 9. Marta

> From: sammisj_s@...

> 10. NY or NJ people dx'd Y2K

> From: " C. Orlowski " <cheryl@...>

> 11. Re: NY or NJ people dx'd Y2K

> From: " C. Orlowski " <cheryl@...>

> 12. Fw: TV News SHow Philadelphia, NJ area TODAY

> From: " M.McCoy " <mlmccoy@...>

> 13. Re: Neck and Back Pain....Samm

> From: " M.McCoy " <mlmccoy@...>

> 14. Re: Cervical spine surgery

> From: " M.McCoy " <mlmccoy@...>

> 15. Re: Arrogant, egotistical doctors.

> From: " M.McCoy " <mlmccoy@...>

> 16. Re: Re: Another Remission!

> From: " M.McCoy " <mlmccoy@...>

> 17. Re: Repost: CRISIS in Our Community: Urgent Notice

> From: cws3333@...

> 18. Re: Neck and Back Pain....Samm

> From: sammisj_s@...

> 19. Help - Went off meds

> From: renier1@...

> 20. Dr Bleiweiss

> From: " rod " <rod@...>

> 21. mmi URGENT - PLEASE READ IMMEDIATELY

> From: ellenlu@...

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 1

> Date: Sat, 19 May 2001 06:26:50 -0400

> From: " M.McCoy " <mlmccoy@...>

>Subject: Re: Is Pediatric Lyme a Separate Specialty?

>

>I can't answer for all doctors, including Dr , but it has been my

>experience that the most renowned LLMD's do not take insurance but will

>bill

>your insurance company for you, so that there is a possibility that you

>would be reimbursed. There are some good Lyme doctors that recognize this

>hardship for patients and will either reduce their fee or even waive it in

>severe hardship cases. I don't know of any personally that have done this,

>I have just heard this through the grapevine.

>Marta

> Re: Is Pediatric Lyme a Separate Specialty?

>

>

>Hi Marta,

>This would explain it. Our Angel Doc is treating the mother (a new

>patient), is testing the husband next week, but has recommended the son be

>sent to Dr. . That's what prompted my question, since I wondered why

>he wouldn't be treating the whole family. Never had occasion to encounter

>this situation before, but have seen that many people have talked about

>going to Conecticut with their children. Didn't know if this was for

>special, hard-to-treat cases, or if it was routine with teen-agers and

>under. I have certainly heard of Dr. in other publications and have

>heard of his video before.

>

>How can drugs manufactured by the pharmaeutical companies be safe for kids

>if they aren't even tested on them? That is absolutely criminal!

>

>Thanks Marta, for your response and clarification!

>Love ya, Rose

>

>Marta wrote:

>

>It is my understanding that LD is especially harsh in

>children,

>particularly if it represents in the neurologic form and

>because of the

>limit in the number of drugs that are suitable for

>children. Did you know

>that the pharmaceutical companies rarely test drugs on

>children under 16?

>Not cost effective! Pediatric doctors have it really tough

>since they must

>use adult meds in adjusted doses and hope for the best.

> Hope that I understood your question properly.

>Hugs,

>Marta

>

>

>

>

>T.O.I.L. for Lyme!

>T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform;

>L=Labor for Lyme literacy

>**Websites**

>http://www.angelfire.com/tx3/RoseWriter or

>http://www.angelfire.com/biz/romarkaraoke/james.html

>

>

>

>---------------------------------

>

[Guest guest]

In a message dated 5/20/01 3:20:32 AM Eastern Daylight Time,

writes:

>

can you change me from digest to e-mailed responses please

Amy

[Guest guest]

Amy, look at the bottom of a post and you will see a link to go to change to

" normal " /email subscription. HTH

The human spirit is stronger than anything that can

happen to it.

C.

[Guest guest]

,

Go to Http://www.lymenet.com

and you can do a search for articles and print off as many as you find apply

to your needs.

Best wishes,

Edina

Re: Is Pediatric Lyme a Separate Specialty?

> >

> >

> >Hi Marta,

> >This would explain it. Our Angel Doc is treating the mother (a new

> >patient), is testing the husband next week, but has recommended the son

be

> >sent to Dr. . That's what prompted my question, since I wondered why

> >he wouldn't be treating the whole family. Never had occasion to encounter

> >this situation before, but have seen that many people have talked about

> >going to Conecticut with their children. Didn't know if this was for

> >special, hard-to-treat cases, or if it was routine with teen-agers and

> >under. I have certainly heard of Dr. in other publications and have

> >heard of his video before.

> >

> >How can drugs manufactured by the pharmaeutical companies be safe for

kids

> >if they aren't even tested on them? That is absolutely criminal!

> >

> >Thanks Marta, for your response and clarification!

> >Love ya, Rose

> >

> >Marta wrote:

> >

> >It is my understanding that LD is especially harsh in

> >children,

> >particularly if it represents in the neurologic form and

> >because of the

> >limit in the number of drugs that are suitable for

> >children. Did you know

> >that the pharmaceutical companies rarely test drugs on

> >children under 16?

> >Not cost effective! Pediatric doctors have it really tough

> >since they must

> >use adult meds in adjusted doses and hope for the best.

> > Hope that I understood your question properly.

> >Hugs,

> >Marta

> >

> >

> >

> >

> >T.O.I.L. for Lyme!

> >T=Teach tolerance; O=Overcome ignorance; I=Initiate insurance reform;

> >L=Labor for Lyme literacy

> >**Websites**

> >http://www.angelfire.com/tx3/RoseWriter or

> >http://www.angelfire.com/biz/romarkaraoke/james.html

> >

> >

> >

> >---------------------------------

> >

[Guest guest]

In a message dated 7/13/2003 8:22:57 AM Central Standard Time,

JanisG213@... writes:

> Kathy,

> I went to the table but there was hardly anything listed under

> location. Maybe I'm doing it wrong. I think it would be really

> helpful to have a list by state/location.

> Janis

>

HI Janis

If you click on " state " in the table it will put the members in " state

alphabetically " order to view....... heehee I tried it and it worked

Kathy mom to Sara 11

(^) (^) (^) (^) (^)

,,,\)/,,,\)/,,,\)/,,,\)/,,,\)/,,

[Guest guest]

In a message dated 03/07/2004 3:41:58 AM Pacific Standard Time,

writes:

> Sure it does. Decades of miss feeding your body, your thyroid (one of

> the week point for Os) gets damaged.

>

What do you think the biggest culprit is ? Lectins? ps.. can

the damage be repaired via diet... or is it irrepairable?

[Guest guest]

I'd say it is a combination of all. Plus we are affected by different

things. There are many ways to destroy things.

ABO Specifics Inc. - http://www.foodforyourblood.com

Re: Digest Number 1810

In a message dated 03/07/2004 3:41:58 AM Pacific Standard Time,

writes:

> Sure it does. Decades of miss feeding your body, your thyroid (one of

> the week point for Os) gets damaged.

>

What do you think the biggest culprit is ? Lectins? ps..

can

the damage be repaired via diet... or is it irrepairable?

[Guest guest]

Forgot - repair? It depends on the damage.

ABO Specifics Inc. - http://www.foodforyourblood.com

Re: Digest Number 1810

In a message dated 03/07/2004 3:41:58 AM Pacific Standard Time,

writes:

> Sure it does. Decades of miss feeding your body, your thyroid (one of

> the week point for Os) gets damaged.

>

What do you think the biggest culprit is ? Lectins? ps..

can

the damage be repaired via diet... or is it irrepairable?

[Guest guest]

In a message dated 3/16/2005 7:30:56 PM Eastern Standard Time,

writes:

t Burk Subject: Help with memory/recall (cross-posted)

Evy recently had a neurological assessment that showed his memory and

recall were statistically at the bottom 1% for his age. His deficits

included remembering words, names and worst of all, faces. Does anyone

have any specific drills or games that improve memory? This is an

underlying core neurological deficit. Like any area of weakness in the

spectrum, I have to believe it can be improved with education. I

don't know how educable it is, but I haven't let that stop me yet!

Keeping in mind that he is only 7, can anyone alert me to a source for

improving memory? I have already used tricks, of course, to help him

remember specific tasks, items and names, but what I want is something

targeting memory and recall in general. Thanks in advance!

t Burk

www.autismteachingtools.com

Home of the " Early Learner at Home "

Hi t,

Your kiddo sounds just like mine. Our school SLP is good she got us involved

with a journal for him . I submit pictures with a description of what we did

over the weekend. She then goes over it with him during her speech session(s).

Works on asking him " WH " questions and trying to get him to comment.

So it's a good " Recalls Past Experiences " type drill.

Larry

[Guest guest]

Hi everyone, reading this has been great, I am looking for a soap recipe

for eczema, I have read that neem oil, avocado oil, hemp seed oil, olive

oil, borage oil, evening primrose, jojoba oil, are good properties, I am

just stuck in formulating a good recipe.

any help please,

[Guest guest]



They are brilliant and I have a very useful training pack called Brief Encounters a very brief version of their full training which i have used to encourage practitioners to develop listening skills & contracts when working with women anal also to help manage endings and that they don't have to do everything themselves

Ann

RE: Digest Number 1810

I am glad that you have highlighted this website, . I wasn't aware of it until I started doing some work with One plus One about last year. I have been very impressed with them as an organisation, small but efficient and who certainly have the ear of a few useful people!

Best wishes

Toity

Dr Toity Deave

Research Fellow

Centre for Child & Adolescent Health

University of the West of England, Bristol/University of Bristol

Hampton House

Cotham Hill

Bristol BS6 6JS

Tel: 0117 3310893

Fax: 0117 3310891

Email: toity.deaveuwe (DOT) ac.uk

www.bristol.ac.uk/ccah

From: [mailto: ]Sent: Tue 15/08/2006 06:35 Subject: Digest Number 1810

SENATE FOR HEALTH VISITING AND SCHOOL NU

Messages In This Digest (3 Messages)

1. new website From: Cowley

2a. Re: Evidence for Comprehensive Spending review. From: Gill Newell 2b. Re: Evidence for Comprehensive Spending review. From: Cowley

View All Topics | Create New Topic

Messages

1.

new website

Posted by: " Cowley" sarahsacowley (DOT) free-online.co.uk senatehvsn1

Mon Aug 14, 2006 9:33 am (PST)

I just came across new website, which is managed by 'One plus one,' an organisation that does excellent work. It is called the 'parent connection' and can be found on: http://www.theparentconnection.org.uk/index.aspLooks like a good resource to recommend to parents.best wishes

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2a.

Re: Evidence for Comprehensive Spending review.

Posted by: "Gill Newell" gill.newelldsl (DOT) pipex.com lolly2boo1

Mon Aug 14, 2006 10:02 am (PST)

Dear Please would you post a link to the evidence for the spending review for thebenefit of all the daily digest members? I certainly don't want to miss thisopportunity!Many thanksGill

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2b.

Re: Evidence for Comprehensive Spending review.

Posted by: " Cowley" sarahsacowley (DOT) free-online.co.uk senatehvsn1

Mon Aug 14, 2006 1:43 pm (PST)

Sorry, it was forwarded to me by Cheryll; perhaps she can help? It was a joint letter from H M Treasury and DfES, so it may be on either of those websites.best wishesGill Newell wrote:> Dear >> >> Please would you post a link to the evidence for the spending review > for the benefit of all the daily digest members? I certainly don't > want to miss this opportunity!>> >> Many thanks>> >> Gill>> >>

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