RE: Genetic Alliance - NCHPEG Survey - please help us!

[Guest guest]

In a message dated 12/8/2004 3:05:03 PM Pacific Standard Time,

imdsapresident@... writes:

http://www.nchpeg.org/SFGC_Survey/Survey.asp.

filled it out three times kristy!!

OOH, and if anyone is having trouble... the very last DOT after the " asp " is

not part of the webpage!

[Guest guest]

Thank you Kristy,

Hopefully this will help all new parents with kids who have any kind of

genetic disorder and are searching for right info.

Ranka

Genetic Alliance - NCHPEG Survey - please help us!

Dear friends,

As consumers, we often have concerns about what our providers know (and

don't know) about genetics, but often we don't have a chance to describe

what we think providers need to learn. Now we have an opportunity to be

heard by an organization that teaches health care providers about

genetics - the National Coalition for Health Professional Education in

Genetics (NCHPEG - pronounced " NITCH-peg " ).

The Genetic Alliance is partnering with NCHPEG in a survey. The purpose

of this survey is to ask families living with genetic conditions about

their perceptions of their health care providers' knowledge of genetics.

The information from this survey will be used to develop genetics

education for specific types of health care providers.

This is YOUR opportunity to educate health care professionals on mosaic

Down syndrome! Please respond to this survey! YOU have the opportunity

to make a difference and finally teach health care providers about MDS!

The survey doesn't take long at all and is very easy to complete! Make

sure that you click International Mosaic Down Syndrome Association when

filling out the survey! Our board of directors will have the chance to

win tote bags and coffee mugs from Genetic Alliance if we get the most

responses to the survey! So, not only are you educating the medical

community, you are giving IMDSA a chance to get recognition!

Click here for survey: http://www.nchpeg.org/SFGC_Survey/Survey.asp.

If the responder has more than one medical condition, s/he may respond

to the survey once for each condition.

Thanks so much!

Kristy Colvin

*************

IMDSA President

www.imdsa.com

Web: http://www.geneticalliance.org

Respond today to the Hillback Challenge -

http://www.geneticalliance.org/donation/hillback.asp

[Guest guest]

Hi Ranka,

I really do think this is a great survey! This will definately help EVERYONE

with ANY genetic disorder, as well as medical professionals who are looking for

more information on a particular disorder.

Thanks for doing the survey!

Kristy

Ranka Vucetic wrote:

Thank you Kristy,

Hopefully this will help all new parents with kids who have any kind of

genetic disorder and are searching for right info.

Ranka

Genetic Alliance - NCHPEG Survey - please help us!

Dear friends,

As consumers, we often have concerns about what our providers know (and

don't know) about genetics, but often we don't have a chance to describe

what we think providers need to learn. Now we have an opportunity to be

heard by an organization that teaches health care providers about

genetics - the National Coalition for Health Professional Education in

Genetics (NCHPEG - pronounced " NITCH-peg " ).

The Genetic Alliance is partnering with NCHPEG in a survey. The purpose

of this survey is to ask families living with genetic conditions about

their perceptions of their health care providers' knowledge of genetics.

The information from this survey will be used to develop genetics

education for specific types of health care providers.

This is YOUR opportunity to educate health care professionals on mosaic

Down syndrome! Please respond to this survey! YOU have the opportunity

to make a difference and finally teach health care providers about MDS!

The survey doesn't take long at all and is very easy to complete! Make

sure that you click International Mosaic Down Syndrome Association when

filling out the survey! Our board of directors will have the chance to

win tote bags and coffee mugs from Genetic Alliance if we get the most

responses to the survey! So, not only are you educating the medical

community, you are giving IMDSA a chance to get recognition!

Click here for survey: http://www.nchpeg.org/SFGC_Survey/Survey.asp.

If the responder has more than one medical condition, s/he may respond

to the survey once for each condition.

Thanks so much!

Kristy Colvin

*************

IMDSA President

www.imdsa.com

Web: http://www.geneticalliance.org

Respond today to the Hillback Challenge -

http://www.geneticalliance.org/donation/hillback.asp

[Guest guest]

Thanks Angel! I fixed the link!

http://www.nchpeg.org/SFGC_Survey/Survey.asp

filled it out three times kristy!!

OOH, and if anyone is having trouble... the very last DOT after the " asp " is

not part of the webpage!

Become a member of IMDSA today at http://www.imdsa.com

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Learn more about MDS http://www.mosaicdownsyndrome.com

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Contact IMDSA Today at:

IMDSA~PO Box 1052~lin,TX~77856~USA~1-

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