Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Photos of Whitney are posted in an album titled " Whitney Leigh " . KMR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 This could have been written almost word for word about our daughter Dorothy (2.5 yrs. MDS). She loves to perform! Always ready to act something out or sing to family and friends. She is always shy at first with others. The hands go up and behind her ears. Once she goes to a place more than once she is OK, i.e., library play time, gym day care while I work out, etc. Each time she gets more and more used to the others. She warms up to adults first. She loves signing. She knows so many. We do the animals to Old Mc, things at playground, familiar things to her. So nice to hear the similarities! Take care, Alice Alice Poholsky cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Thank so much for such a beautiful story about your child. koti_riedy wrote: Mosaic DS Community: Hi! We are the Riedys from Brookings, South Dakota. My husband came accross the http://www.imdsa.com site while researching for a doctoral class. It really struck home as we have a 2 year old daughter with MDS. Tim from the article sounds so much like our Whitney. She has excelled in every area, but struggles some with speech and fine motor skills. We didn't know during my pregnancy that Whitney had Down Syndrome. She was a healthy, 8 pound baby who just didn't " look quite right " at birth. We noticed the characteristic look right away, but there were no other signs of Down Syndrome. One week after we left the hospital, the geneticist called us with the results of the blood test and could only tell us that it was Downs, but it was mosaic. From there, we were on our own. Our community offered amazing support from the minute we arrived home. Although, we never actually felt the let down or sadness that it seems most parents go through. We were so thrilled that she had absolutely no health problems, that we decided to be greatful for that and just teach her and love her! It was and is hard for us to fit in with the local support network in many ways though. Whitney is doing so well that she is doing many things that their 4 and 5 year olds are doing. She knows upwards of 50 signs and she walked very early and has continued to grow at the 50th percentile on the " average " charts. She is a very sassy 30 pounds! The one thing we have enjoyed the most with our daughter is her ability to mimic and communicate. Not as much verbally, but with signs and expressions. She is always putting on a show and our families are convinced that she will live her adult life in Hollywood! She is very shy and timid though when not in a familiar setting. Which is our fault I guess. We are guilty of sheltering her! I work 2 days a week as a nurse and one of my best friends watches her for me, so she has never had to go to daycare. She has received Birth to 3 services since she was 2 months old and has benefited from that. All in all, our first time parent status has been more than we ever dreamed it could be. We are so lucky to have her and I wouldn't change a thing about her. We know she is going to excell in life just because of the internal fire she has. We would love to meet other families with an MDS member. As far as we know, Whitney is currently the only child with MDS in South Dakota. We are willing to travel and/or talk to anyone. (We love to show her off!!) Again, thanks for putting your story out there. You definately are not alone! I am glad to hear your son is doing so well and is going be a successful writer! Maybe he could some day write a play for our Whitney to act in! Sincerely yours, Josh, Koti, and Whitney Riedy Become a member of IMDSA today at http://www.imdsa.com ************************************************* Learn more about MDS http://www.mosaicdownsyndrome.com ************************************************* Contact IMDSA Today at: IMDSA~PO Box 1052~lin,TX~77856~USA~1- ************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Alice: Great to hear your story about Dorothy! She does sound a lot like our 2 year old Whitney. Espcecially the hands behind the ears! She is always doing that in uncomfortable situations! She is very shy and it takes her a while to warm up to people. She doesn't go to daycare and I am sure that is a big part of that. I would love to hear more from you, since our daughters are nearly the same age. Koti Riedy cell Quote Link to comment Share on other sites More sharing options...
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