My Introduction

[Guest guest]

Hello, I'd like to introduce myself. I'm a 27 year old female with type 1A CMT.

I've been coping with CMT as long as I can remember. I was officially diagnosed

in 2000 after I had attempted doing a full time standing job and realized that I

absolutely couldn't do it. But before that all I knew was that I was clumsy,

couldn't wear most kinds of shoes and that I really truly hated sports, running,

skating, dancing, etc...

Now, I wear New Balance shoes with ankle braces on both feet (black velcroed,

came from Walgreens) with two pairs of Foot-ups that I got at a special shoe

store in St. Louis. They're basically a really strong piece of elastic that

connects between a strap around my ankle and the lowest criscross of shoe string

down the shoe. I honestly don't know how I ever got around without my Foot-Ups.

They save me so much pain.

My feet are extremely over-pronated and I have bad trouble with foot drop. I

also have lost a lot of sensation in my feet which causes some problems like not

being able to feel how hard I'm scratching, and not realizing how cold my feet

actually are. My hands aren't too bad, I do find myself clenching them

unconsciously and they hurt when they are overused, but my feet are really what

get me.

My husband and I don't have any children yet. We have this idea that we'd like

to wait until we're financially able to do PGD-Preimplantation Genetic

Diagnosis- to prevent passing it on. But I'm not real sure of everything with

that yet.

So anyway, I guess that's the quick rundown. Glad to be on here!

Rena