children''s breathing

[Guest guest]

Suzanne very interesting indeed. We have 3 children and I (husband) have CMT1A.

Interesting how you say when first born first few minutes of life you had a non

breathing baby, us too for our third. Took them a few minutes to get baby to

breath (seemed liked hours as I watched). He did breath and has had no symptoms

since. The doctors even asked if the mother was on narcotics it was so bad.

Not exactly your problem but a very simular beginning. Makes me think now about

that day and the beginning of his life.

I myself have had breathing problems, I think CMT related. My oldest daughter,

now 6. Had breathing problems as a baby. She was on puffer's for a couple of

years and has since grown out of it. Although she has not been tested I belive

she has CMT. She gets leg pains, feet pains, and gets tired much faster then

her friends. She also tripped alot, although this is getting better.

Are you getting his DNA testing for CMT? Do you have CMT, have you ever been

tested?

BTW - I live in Hamilton and it you need or are looking for a great Doctor. Mine

has great knowledge of CMT and is at McMaster Universtity. He is very involved

in CMT. He might have some insight if needed.