Re: CMT 2 and Rheumatoid Arthritis

[Guest guest]

Hi ,

Sorry to hear about the double diagnosis. At one time I was also

tested for RA, the doc thought for sure I had it. Even before I had

the RA blood test, she (the doc) wanted me to begin gold shots. (this

was back in the 80's I think) Long story short, about 6 years ago, my

Internist ordered the RA blood test, since I had some experimental

injections of Embrel and commented how great I felt. He thought I had

RA, but the the test revealed I did not.

~ Gretchen

[Guest guest]

Thanks, Gretchen. It's just another bump in the road. I've had a

difficult year and would appreciate good thoughts from everyone. I have to have

surgery again on Dec. 20 (sooner if there is a cancellation). I fell on

Halloween night and tore my neurostimulator battery out of the pocket. It's now

located on my lower backbone instead of hip. I seem to be falling and stumbling

more lately. The emotional strain of it all is the worst. My doctor wanted me to

go inpatient for a few days. I feel that would be a step backward for

me. Almost as if it is the last step before giving in.